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Off on all meds
ITS GOING TI BE 2 YEARS I AM OFF ALL TYPE OF MEDS FOR MY RA.DUE TO ALL KIND OF INFECTIONS.I MUST SAY I HAVE BEING COPING VERY WELL ONCE IN A WILE MY LEFT KNEE GETS SWOLLEN BUT U PUT ICE PADS AND OFF AGAIN.I AM 69 YEARS OLD AND HAVE RA AND SJOGRENS SINCE 40.I HAVE HAD BREAST CANCER LUNG FIBROSIS I SUFFER
ITS GOING TI BE 2 YEARS I AM OFF ALL TYPE OF MEDS FOR MY RA.DUE TO ALL KIND OF INFECTIONS.I MUST SAY I HAVE BEING COPING VERY WELL ONCE IN A WILE MY LEFT KNEE GETS SWOLLEN BUT U PUT ICE PADS AND OFF AGAIN.I AM 69 YEARS OLD AND HAVE RA AND SJOGRENS SINCE 40.I HAVE HAD BREAST CANCER LUNG FIBROSIS I SUFFER
Al1954
in
NRAS
7 months ago
Thrush but not a bird
I have been given the wrong dose of my inhaler for Asthma. Now have to use two puffs instead of one to obtain the same amount. Will this increase my sore throat and oral thrush burden ? It is something I struggle with. Nothing to be done until Monday. Any advice would be welcome.
I have been given the wrong dose of my inhaler for Asthma. Now have to use two puffs instead of one to obtain the same amount. Will this increase my sore throat and oral thrush burden ? It is something I struggle with. Nothing to be done until Monday. Any advice would be welcome.
Dottie11
in
Lung Conditions Community Forum
5 months ago
Orphenadrine
My hwp had been using ophenadrine some time ago and stopped because of fears around using anticholinergics. However, his unrelenting battle with sciatica has me wondering if it might not be worth taking the risk. He is a well person in every other way, but the pain has him battling to do exercise. He
My hwp had been using ophenadrine some time ago and stopped because of fears around using anticholinergics. However, his unrelenting battle with sciatica has me wondering if it might not be worth taking the risk. He is a well person in every other way, but the pain has him battling to do exercise. He
ghoegap
in
Cure Parkinson's
7 months ago
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atrial fibrillation and Covid vaccination
since lockdown and having the regular booster Covid vaccinations my atrial fibrillation has increased dramatically over the last 6 months since the two boosters one in April this year and further one in October this year since then I’ve been getting them at least 2 to 3 times a week prior to that, it
since lockdown and having the regular booster Covid vaccinations my atrial fibrillation has increased dramatically over the last 6 months since the two boosters one in April this year and further one in October this year since then I’ve been getting them at least 2 to 3 times a week prior to that, it
colingee
in
Atrial Fibrillation Support
7 months ago
Human Rights Day - 75th Anniversary
Today marks the 75th Anniversary of Human Rights Day. This year’s theme is
Freedom, Equality and Justice for All
. Please remember this. In 2010, Dr Matt Jameson Evans (Chief Medical Officer) and an entrepreneur, Jorge Armanet founded HealthUnlocked. They wished to reshape how data and information
Today marks the 75th Anniversary of Human Rights Day. This year’s theme is
Freedom, Equality and Justice for All
. Please remember this. In 2010, Dr Matt Jameson Evans (Chief Medical Officer) and an entrepreneur, Jorge Armanet founded HealthUnlocked. They wished to reshape how data and information
Narwhal10
in
Pernicious Anaemia Society
7 months ago
shingles vaccination
hello. Has anyone had the shingles vaccination, I have PV and on Hydroxycarbamide. Wondering if to have it or not. take care x
hello. Has anyone had the shingles vaccination, I have PV and on Hydroxycarbamide. Wondering if to have it or not. take care x
Maisie10
in
MPN Voice
8 months ago
Sorted -,covid anti viral treatment
I managed to get covid a month after Rituxumab infusions, got free lateral flow test from independent pharmacy (boots and Tesco were hopeless and not signed up to the scheme) all the pharmacist needed was sight of a clinical letter confirming diagnosis. After testing positive I called 111 and an anti
I managed to get covid a month after Rituxumab infusions, got free lateral flow test from independent pharmacy (boots and Tesco were hopeless and not signed up to the scheme) all the pharmacist needed was sight of a clinical letter confirming diagnosis. After testing positive I called 111 and an anti
Pompey3
in
Vasculitis UK
7 months ago
Is this lupus?
Hi, I'm just into my sixties and have developed symptoms that are tempting to pigeonhole "getting older" or menopause, but I don't think that they are. I do know though that the flare ups became much worse following a viral infection Feb 2020 (maybe covid?). I also reacted dramatically to the astra
Hi, I'm just into my sixties and have developed symptoms that are tempting to pigeonhole "getting older" or menopause, but I don't think that they are. I do know though that the flare ups became much worse following a viral infection Feb 2020 (maybe covid?). I also reacted dramatically to the astra
Foodwithfriends83
in
LUPUS UK
7 months ago
overlapping symptoms
hi all I’ve finally seen a rheumatologist and he wasn’t able to give me a diagnosis as he says I don’t present the classic symptoms for any one particular autoimmune disease but I have overlapping symptoms of more than one condition. The hair loss and rash seem to be puzzling them too. I’ve been prescribed
hi all I’ve finally seen a rheumatologist and he wasn’t able to give me a diagnosis as he says I don’t present the classic symptoms for any one particular autoimmune disease but I have overlapping symptoms of more than one condition. The hair loss and rash seem to be puzzling them too. I’ve been prescribed
TheRedOnes
in
LUPUS UK
7 months ago
Pain in lower left abdomen for 5 years and now a very little bright red blood in stool once in a while
Hi All,When I was 24 (10 years ago)years old I consulted a gastroenterologist with stomach discomfort and bloating. He did an colonoscopy and an endoscopy..One polyp was found and was benign on biopsy.I was diagnosed with IBS..Time passed stomach problems were a daily concern for me.5 years ago suddenly
Hi All,When I was 24 (10 years ago)years old I consulted a gastroenterologist with stomach discomfort and bloating. He did an colonoscopy and an endoscopy..One polyp was found and was benign on biopsy.I was diagnosed with IBS..Time passed stomach problems were a daily concern for me.5 years ago suddenly
S_searching
in
Colon Cancer Connected
7 months ago
Advice after possible Covid
Hi all, I've been horribly ill with what is probably Covid (no positive LFT test but typical weird breathlessness, fluid lungs, fatigue, dizziness and all the rest). However, three weeks later and a course of antibiotics, and I'm still feeling rotten - massive fatigue, pains everywhere, dizziness
Hi all, I've been horribly ill with what is probably Covid (no positive LFT test but typical weird breathlessness, fluid lungs, fatigue, dizziness and all the rest). However, three weeks later and a course of antibiotics, and I'm still feeling rotten - massive fatigue, pains everywhere, dizziness
Treetop33
in
LUPUS UK
7 months ago
The RLS nightmare
My name is Tim and RLS sucks!!!!! In 2013 i was put on disability because I have flat back syndrome and it has caused chronic pain for over 20 years non stop 24/7 and I am addicted to opioids. On June 20th of this yr I received a dbl laminectomy on my l4 and l5 vertebra and the knife was removed. Now
My name is Tim and RLS sucks!!!!! In 2013 i was put on disability because I have flat back syndrome and it has caused chronic pain for over 20 years non stop 24/7 and I am addicted to opioids. On June 20th of this yr I received a dbl laminectomy on my l4 and l5 vertebra and the knife was removed. Now
Miloboy23
in
Restless Legs Syndrome
5 months ago
Round and round
had last O treatment end of June. I have been sick since 3 rounds of upper respiratory which has turned to pneumonia I can’t get out of this cycle. Supposed to see ms dr tomorrow to discuss pushing O back to 6 months I’ve been on 5 month. X-ray showed Mass on lungs which is either pneumonia or the big
had last O treatment end of June. I have been sick since 3 rounds of upper respiratory which has turned to pneumonia I can’t get out of this cycle. Supposed to see ms dr tomorrow to discuss pushing O back to 6 months I’ve been on 5 month. X-ray showed Mass on lungs which is either pneumonia or the big
NanaCC179
in
My MSAA Community
8 months ago
advice
Hello! I havnt posted before but was looking on the lupus Uk website and wanted some advice if possible. I have been struggling with weird symptoms for a while since my son was born 4 years ago- ( then cot covid and was really unwell so was all put down to long covid) I have positive APS antibodies
Hello! I havnt posted before but was looking on the lupus Uk website and wanted some advice if possible. I have been struggling with weird symptoms for a while since my son was born 4 years ago- ( then cot covid and was really unwell so was all put down to long covid) I have positive APS antibodies
Ell5
in
LUPUS UK
7 months ago
Advice needed please
I've had GPA for 25 years with 2 relapses. I last had Rituximab in June 21, I then in November had Covid with 2 hospital admissions. I now have long Covid. I cannot have RTmab because my Immune system is so low, Igg 3.4IgA 0.48 IgM 0.42p Yesterday I was walking around and felt extreme fatigue,
I've had GPA for 25 years with 2 relapses. I last had Rituximab in June 21, I then in November had Covid with 2 hospital admissions. I now have long Covid. I cannot have RTmab because my Immune system is so low, Igg 3.4IgA 0.48 IgM 0.42p Yesterday I was walking around and felt extreme fatigue,
Fleen
in
Vasculitis UK
7 months ago
Long covid
Im struggling to get over covid and im on day 13. I have symptoms of long covidfever, diarrhea, loss of smell and taste. I have hashimotos and taking levothyroxine 100mcg alongside t3 15mcg. Any advice on how to deal with this will be very welcome
Im struggling to get over covid and im on day 13. I have symptoms of long covidfever, diarrhea, loss of smell and taste. I have hashimotos and taking levothyroxine 100mcg alongside t3 15mcg. Any advice on how to deal with this will be very welcome
Geegee777
in
Thyroid UK
7 months ago
Helicobacter pylori
Good morning just wondered if you have come across H Pylori I seem to have tested positive for this test. Waiting to hear from GP later today, what questions should I ask? I was assuming not enough stomach acid but now not sure what’s going on with my guts! Look forward to hearing your views
Good morning just wondered if you have come across H Pylori I seem to have tested positive for this test. Waiting to hear from GP later today, what questions should I ask? I was assuming not enough stomach acid but now not sure what’s going on with my guts! Look forward to hearing your views
Bollieforme
in
Thyroid UK
8 months ago
Covid question
I’ve avoided Covid up until now. My partner and I picked it up in Cuba. Started with what we thought was food poisoning, the dreaded diarrhea. It’s now been 14 days. We’ve had chills, fevers, fatigue and daily diarrhea. I’m at the final three months of V treatment so was advised to start the antiviral
I’ve avoided Covid up until now. My partner and I picked it up in Cuba. Started with what we thought was food poisoning, the dreaded diarrhea. It’s now been 14 days. We’ve had chills, fevers, fatigue and daily diarrhea. I’m at the final three months of V treatment so was advised to start the antiviral
Cottager1989
in
CLL Support
7 months ago
Very fast onset of Pneumonia! It’s a long story; are you comfortable…
My husband is on W&W for CLL, though he may start treatment soon. Well, he had a heavy cold (as did I) and though it lingered abit we weren’t too concerned. Was still coughing up green mucus abit but he wasn’t concerned (I was and told him but … well, he felt better he said) Day before Christmas Eve
My husband is on W&W for CLL, though he may start treatment soon. Well, he had a heavy cold (as did I) and though it lingered abit we weren’t too concerned. Was still coughing up green mucus abit but he wasn’t concerned (I was and told him but … well, he felt better he said) Day before Christmas Eve
Tpdnotts
in
CLL Support
6 months ago
Ultralow biomass biome - EMMA result pre-FET
Hi friends, Thanks to everyone who posts in this forum. I've found it so helpful. I've just received my EMMA test result, which has come back as "ULTRALOW BIOMASS BIOME". I previously had 63% lactobacillus and 29% gardnerella. I did the antibiotic followed by two rounds of probiotics. My doctor
Hi friends, Thanks to everyone who posts in this forum. I've found it so helpful. I've just received my EMMA test result, which has come back as "ULTRALOW BIOMASS BIOME". I previously had 63% lactobacillus and 29% gardnerella. I did the antibiotic followed by two rounds of probiotics. My doctor
LondonSarah
in
Fertility Network UK
5 months ago
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