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recovery after 19 months
hi all i just have a question which i really hope someone can answer my husband had a hypoxic brain injury 19months ago his recovery was very very slow the first year up until april when he started to walk and started to engage alittle more he had speech therpy who gave up on him about a month ago
hi all i just have a question which i really hope someone can answer my husband had a hypoxic brain injury 19months ago his recovery was very very slow the first year up until april when he started to walk and started to engage alittle more he had speech therpy who gave up on him about a month ago
fity123r
in
Headway
2 years ago
How to build support around you during a cycle?
I'm struggling a lot this cycle - more than I expected. I know the drugs make me feel low and anxious but I'm feeling so lonely during the process, and pretty let down by friends and family. We've been through this many times before and were super lucky to have had my daughter (now 20 months) through
I'm struggling a lot this cycle - more than I expected. I know the drugs make me feel low and anxious but I'm feeling so lonely during the process, and pretty let down by friends and family. We've been through this many times before and were super lucky to have had my daughter (now 20 months) through
lmno
in
Fertility Network UK
2 years ago
A positive A&E experience
There has been so much comment about bad hospital experiences that I thought I should report a good one. Last night, just as the death of the Queen was announced, my husband was taken ill with acute abdominal pain. I phoned 999, got a quick reply and a sympathetic response and an ambulance crew arrived
There has been so much comment about bad hospital experiences that I thought I should report a good one. Last night, just as the death of the Queen was announced, my husband was taken ill with acute abdominal pain. I phoned 999, got a quick reply and a sympathetic response and an ambulance crew arrived
Buffafly
in
AF Association
2 years ago
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Constipation suggestions
Anyone have any suggestions for chronic constipation? Have tried numerous things without success. Thinking of trying Dulcolex and would be grateful for any opinions on this medication. Oh, and also Linaclotide which can only be prescribed. Thank you.
Anyone have any suggestions for chronic constipation? Have tried numerous things without success. Thinking of trying Dulcolex and would be grateful for any opinions on this medication. Oh, and also Linaclotide which can only be prescribed. Thank you.
Harley1020
in
IBS Network
2 years ago
Unknown Condition
It’s been 24 years since I found out that I have McCune Albright Syndrome/Fibrous dysplasia. This is a very rare condition affecting my bones and endocrine system (Hormones). I have fibrous dysplasia in my head, face, jaw and it’s taken away most of my front teeth. I have a disfigurement although I don
It’s been 24 years since I found out that I have McCune Albright Syndrome/Fibrous dysplasia. This is a very rare condition affecting my bones and endocrine system (Hormones). I have fibrous dysplasia in my head, face, jaw and it’s taken away most of my front teeth. I have a disfigurement although I don
Leeds1968
in
Changing Faces
2 years ago
Reaching out
Hi all I recently posted about me bagging a one to one with a community support worker well this aft I went to see her with my son and it went really well my BIGGEST PROBLEM I face is the health n safety with the private rental I'm in.. I don't have anyone in my house other than family due to my chaos
Hi all I recently posted about me bagging a one to one with a community support worker well this aft I went to see her with my son and it went really well my BIGGEST PROBLEM I face is the health n safety with the private rental I'm in.. I don't have anyone in my house other than family due to my chaos
Survivor37
in
Headway
2 years ago
Still worried
I'm still worried after 8months and having ultrasound scans, blood rests, fit tests and others and all are OK results but I'm still having the lower left side bowel pain, I've had 2 colonoscopies in 2017 and the end of 2019 and were clear and ok apart from gas but am i still best having another bowel
I'm still worried after 8months and having ultrasound scans, blood rests, fit tests and others and all are OK results but I'm still having the lower left side bowel pain, I've had 2 colonoscopies in 2017 and the end of 2019 and were clear and ok apart from gas but am i still best having another bowel
Calamity64
in
IBS Network
2 years ago
New post, old member
Good Morning I should apologise for not being a bit more proactive on this site. I suffered a TBI caused by an AVM 2 years ago (this caused a subarachnoid hemmorage) this has left me with permanent double vision and a balance problem. I spent 4 months in hospital, only left there because I forced it
Good Morning I should apologise for not being a bit more proactive on this site. I suffered a TBI caused by an AVM 2 years ago (this caused a subarachnoid hemmorage) this has left me with permanent double vision and a balance problem. I spent 4 months in hospital, only left there because I forced it
timd59
in
Headway
2 years ago
3 Peg injections later
Hi My Friends! I hope everyone is doing well! Its been very hot and humid, here. I don’t appreciate it! LOL. I have had 3 Peg injections and have my 4th this Friday. I am finding that my energy levels have plummeted. I am feeling weak and getting breathless with little activity. My HCT was 43.7 a week
Hi My Friends! I hope everyone is doing well! Its been very hot and humid, here. I don’t appreciate it! LOL. I have had 3 Peg injections and have my 4th this Friday. I am finding that my energy levels have plummeted. I am feeling weak and getting breathless with little activity. My HCT was 43.7 a week
Wewo01
in
MPN Voice
2 years ago
I have a wonderful Solicitor
hi everyone, it’s been a while since I last posted my updated news. My divorce has been put on hold for whatever reason which I do not understand. I payed out 600 pounds for flights and accommodation but had to cancel due to the above. I am feeling so much better than before as I was in a mess physically
hi everyone, it’s been a while since I last posted my updated news. My divorce has been put on hold for whatever reason which I do not understand. I payed out 600 pounds for flights and accommodation but had to cancel due to the above. I am feeling so much better than before as I was in a mess physically
1949liz
in
Headway
2 years ago
Understanding Palliative Care
I received a email today: There is a lot of confusion when it comes to palliative care.
Many people equate the term palliative care with hospice
, but the two terms are not interchangeable. Palliative care is a medical approach that can be applied at any stage of disease – even at the time of
I received a email today: There is a lot of confusion when it comes to palliative care.
Many people equate the term palliative care with hospice
, but the two terms are not interchangeable. Palliative care is a medical approach that can be applied at any stage of disease – even at the time of
Gcf51
in
Cure Parkinson's
2 years ago
How common is bezoar in PD?
Bezoar is a concretion of food in the abdomen. Photos resemble cannon balls. One sign of a bezoar is gastroparesis: Stomach emptying very slowly. I don't have the common signs of PD; No slowness or freezing in place . I have constipation. In two weeks I have to swallow a "Smart Pill" which
Bezoar is a concretion of food in the abdomen. Photos resemble cannon balls. One sign of a bezoar is gastroparesis: Stomach emptying very slowly. I don't have the common signs of PD; No slowness or freezing in place . I have constipation. In two weeks I have to swallow a "Smart Pill" which
kaypeeoh
in
Cure Parkinson's
2 years ago
Moviprep colonoscopy with IBS constipation
Hello, I'm having a colonoscopy in 2 days time and really worried moviprep is not going to work and make things even worse with my chronic constipation. Any experiences with moviprep and chronic constipation? Thank you for reading
Hello, I'm having a colonoscopy in 2 days time and really worried moviprep is not going to work and make things even worse with my chronic constipation. Any experiences with moviprep and chronic constipation? Thank you for reading
Bluemon75
in
IBS Network
2 years ago
Adventures in anal probing...
I saw a new doc today for gastroparesis. She said my diet is the worst and a big cause of my gastric problems. I need to swallow a "Smart Pill" which will travel through my guts recording things and I need an anal probe which will measure the muscle contractions of my colon and rectum. We had
I saw a new doc today for gastroparesis. She said my diet is the worst and a big cause of my gastric problems. I need to swallow a "Smart Pill" which will travel through my guts recording things and I need an anal probe which will measure the muscle contractions of my colon and rectum. We had
kaypeeoh
in
Cure Parkinson's
2 years ago
Ruined nose job
I had a nosejob 2 weeks ago, and it ruined everything. I had a very average nose before the surgery, but i wanted to correct my bump on my side profile. Now i look bad from the side and also from the front, i look like Michael Jackson after all those surgeries and i hate it, i cry every hour, cant sleep
I had a nosejob 2 weeks ago, and it ruined everything. I had a very average nose before the surgery, but i wanted to correct my bump on my side profile. Now i look bad from the side and also from the front, i look like Michael Jackson after all those surgeries and i hate it, i cry every hour, cant sleep
Naja21
in
Changing Faces
2 years ago
Having a Bad Week
Another painful flare up and couldn't get out of the bathroom when I was due to go out. Happens so often it must be a trigger. Starts with cramps and I have a few seconds to make it to the loo. Then in and out all day with D. Had many tests, colonoscopies, SIBO etc. Tried various meds, CBT, hynotherapy
Another painful flare up and couldn't get out of the bathroom when I was due to go out. Happens so often it must be a trigger. Starts with cramps and I have a few seconds to make it to the loo. Then in and out all day with D. Had many tests, colonoscopies, SIBO etc. Tried various meds, CBT, hynotherapy
Katerina1
in
IBS Network
2 years ago
Trialing disimpaction
My 4 year old has been having very soft stool leaks on and off for most of her potty training life. We have had periods of several weeks at a time where she is absolutely fine and then the accidents begin again. The doctors felt her tummy and didn't think it felt like she was constipated, but after
My 4 year old has been having very soft stool leaks on and off for most of her potty training life. We have had periods of several weeks at a time where she is absolutely fine and then the accidents begin again. The doctors felt her tummy and didn't think it felt like she was constipated, but after
Minnie654
in
ERIC
2 years ago
Amgevita / Adalimumab side effects
Hi everyone just a quick update, four months now taking 40mg Amgevita / Adalimumab. The side effects are now appearing which are not that good at all and hoping they will pass but my mood is up and down, feeling anxious, nauseous and tired on and off, my guts do not feel good at all, sometimes after
Hi everyone just a quick update, four months now taking 40mg Amgevita / Adalimumab. The side effects are now appearing which are not that good at all and hoping they will pass but my mood is up and down, feeling anxious, nauseous and tired on and off, my guts do not feel good at all, sometimes after
Frankiefocus
in
NRAS
2 years ago
2nd recurrence 😢
Nov 17 3c HGSOC, BRACA2, surgery, chemo, immunotherapy trial, failed trial, 1st recurrence, chemo followed by Niraparib since April 2019 with no side effects at all, CA124 9-13. Was convinced I was ‘the one’ it was going to work for but in May CA125 went up by 3. Nurse wasn’t concerned, I knew!! Then
Nov 17 3c HGSOC, BRACA2, surgery, chemo, immunotherapy trial, failed trial, 1st recurrence, chemo followed by Niraparib since April 2019 with no side effects at all, CA124 9-13. Was convinced I was ‘the one’ it was going to work for but in May CA125 went up by 3. Nurse wasn’t concerned, I knew!! Then
Doglover1410
in
My Ovacome
2 years ago
So Many Things
Good morning, Everyone! It has been a lovely weekend and I was able to take my beloved husband out for a wheelchair ride. He does so enjoy being able to be outdoors. He is in probably the final stages of CBD. His speech has recently become mostly slurred yes and no. His right side is now, for all intents
Good morning, Everyone! It has been a lovely weekend and I was able to take my beloved husband out for a wheelchair ride. He does so enjoy being able to be outdoors. He is in probably the final stages of CBD. His speech has recently become mostly slurred yes and no. His right side is now, for all intents
Indiana-Girl
in
PSP Association
2 years ago
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