So Many Things: Good morning, Everyone! It... - PSP Association

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So Many Things

Indiana-Girl profile image
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Good morning, Everyone!

It has been a lovely weekend and I was able to take my beloved husband out for a wheelchair ride. He does so enjoy being able to be outdoors. He is in probably the final stages of CBD. His speech has recently become mostly slurred yes and no. His right side is now, for all intents and purposes seemingly paralyzed. He can move only with extreme effort and usually with the help of his left arm. Our hospice nurses are so helpful and kind but no one can see the subtle changes I see, sometimes everyday. One increasing change is that his eyes water almost constantly and he appears to not be able to see where things are in space. He will reach for something and is nowhere near where the object is. He is also increasingly easily agitated. Has anyone else experienced these things as the disease progresses?

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Indiana-Girl profile image
Indiana-Girl
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Sebuly14 profile image
Sebuly14

My husband had problems with his eyes. He saw the ophthalmologist and his eyes were dry causing his retina to be distorted and the oil glands in his eyelids were clogged. He recommended applying heat to his eyelids, then a cleanser for his eyelids, followed by drops. He still has some problems, but his eyes are better. I treat his eyes twice a day. Hope this helps.

AliBee1 profile image
AliBee1

Hi,I am so glad that you were able to enjoy a lovely weekend outside with your husband.

I see that you have been given some good advice re his eyes.

My husband could not have medication to calm down agitation because of his liver but it is worth asking your wonderful Hospice team if they can recommend anything. Music used to ease a lot of my husband's agitation and during his last few days, which were in hospital, I think it even calmed the nursing staff down too as they loved coming into the room where I had the CD playing. Good luck and a big hug. AliBee xx

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