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Hypothyroidism, Bullous Pemphigoid, Osteoarthritis, Rheumatoid Arthritis, Vasculitis, High Blood Pressure, Glaucoma. Bowel problems.
That was eventually replaced with various drugs such as sulpasaloprine and then was put on
Rituximab
Drips but I proved allergic to them all. Anybody else in Mycophenolate?
That was eventually replaced with various drugs such as sulpasaloprine and then was put on
Rituximab
Drips but I proved allergic to them all. Anybody else in Mycophenolate?
Jetxav
in
NRAS
7 years ago
White cell yo-yo
I have been very tired and achy since i came off the plaquenil , I really hope its not going to affect the
rituximab
treatment. I was nearly going to ask for a surgical mask LOL but the hand sanitizer will have to do 😀
I have been very tired and achy since i came off the plaquenil , I really hope its not going to affect the
rituximab
treatment. I was nearly going to ask for a surgical mask LOL but the hand sanitizer will have to do 😀
weathervane
in
NRAS
7 years ago
RITUXIMAB
Hi there eveyone I am starting on
Rituximab
next week with my first infusion and I am a little nervous to say the least! Just wanting to know if anyone who is on it as any info on side effects etc.
Hi there eveyone I am starting on
Rituximab
next week with my first infusion and I am a little nervous to say the least! Just wanting to know if anyone who is on it as any info on side effects etc.
Bakbre
in
LUPUS UK
7 years ago
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Interesting Study
Funded research study looking at the effect of
Rituximab
on flu vaccinations in patients with ANCA associated Vasculitis. Specifically whether
Rituximab
makes the vaccine less effective and what to do to mitigate the risk.
Funded research study looking at the effect of
Rituximab
on flu vaccinations in patients with ANCA associated Vasculitis. Specifically whether
Rituximab
makes the vaccine less effective and what to do to mitigate the risk.
Hidden
in
Vasculitis UK
7 years ago
Autoimmune meningitis
:P I've had it for years to and fro, a year ago I got to know that it's due to Sjogrens and after avaiting full effect of
rituximab
treatment (and plaquenil, prednisolone, IvIg and medication for Hashimoto's) they now think my symptoms are due to permanent damage to the meninges.
:P I've had it for years to and fro, a year ago I got to know that it's due to Sjogrens and after avaiting full effect of
rituximab
treatment (and plaquenil, prednisolone, IvIg and medication for Hashimoto's) they now think my symptoms are due to permanent damage to the meninges.
Taiga
in
Meningitis Now
7 years ago
Apparently time for treatment
My liver is enlarged and treatment is on the horizon I will be starting Bendamustine/
Rituximab
after Christmas. My question has anyone experienced MRSA in their lungs and then diagnosed with my diagnosis followed with the chemo described above. Any response greatly appreciated.
My liver is enlarged and treatment is on the horizon I will be starting Bendamustine/
Rituximab
after Christmas. My question has anyone experienced MRSA in their lungs and then diagnosed with my diagnosis followed with the chemo described above. Any response greatly appreciated.
Sallyurnotal
in
CLL Support
7 years ago
My journey on FLAIR (Ibrutinib & Rituximab)
The main side effect I have had, possibly from
Rituximab
or Ibrutinib has been joint pain which occurs in various parts of the body for a day or two and then disappears.
The main side effect I have had, possibly from
Rituximab
or Ibrutinib has been joint pain which occurs in various parts of the body for a day or two and then disappears.
Naboo
in
CLL Support
7 years ago
Urgent question: low platelets
My husband Murray is in a very precarious state right now and I would sure appreciate your input. Just to summarize - he is 58, diagnosed 3 1/2 years ago but with symptoms for many years before that, 13q, 11q & trisomy 12, relapsed quickly after FCR, on ibrutinib for 9 months, scheduled for stem cell
My husband Murray is in a very precarious state right now and I would sure appreciate your input. Just to summarize - he is 58, diagnosed 3 1/2 years ago but with symptoms for many years before that, 13q, 11q & trisomy 12, relapsed quickly after FCR, on ibrutinib for 9 months, scheduled for stem cell
Glees
in
CLL Support
7 years ago
Visited Bev again...
Don’t want to promise miracles but there is a slim possibility that hitting Bev’s system with
Rituximab
may positively impact her overall condition eg all her other many conditions.
Don’t want to promise miracles but there is a slim possibility that hitting Bev’s system with
Rituximab
may positively impact her overall condition eg all her other many conditions.
Beverly
Administrator
in
The Australian Sjögren's Syndrome Association
7 years ago
HIB vaccine
I have had numerous haemafilus influenza infections since having
rituximab
. In fact I can’t get rid of it at the moment and on 6 weeks of antibiotics. The hospital tested my antiobodies against hibb and they are low so I have to have a vaccine.
I have had numerous haemafilus influenza infections since having
rituximab
. In fact I can’t get rid of it at the moment and on 6 weeks of antibiotics. The hospital tested my antiobodies against hibb and they are low so I have to have a vaccine.
joannebond360
in
LUPUS UK
7 years ago
Just finished FIRST round FCR - what will happen next?
They waited for the third day to infuse the
Rituximab
, but I had Cyclophosphamide and Fludarabine all three days. I had only one tiny issue with a scratchy throat and itchy tongue with the Rituximad which they knocked back quickly with Benadryl.
They waited for the third day to infuse the
Rituximab
, but I had Cyclophosphamide and Fludarabine all three days. I had only one tiny issue with a scratchy throat and itchy tongue with the Rituximad which they knocked back quickly with Benadryl.
Marie-54
in
CLL Support
7 years ago
Rituximab and pancreas
Good Morning All, Has anybody had problems with
Rituximab
affecting their pancreas? I've been 'ill' with various things over the last few weeks, and after a blood test last week I appear to have a problem with my pancreas and am in the middle of a flare.
Good Morning All, Has anybody had problems with
Rituximab
affecting their pancreas? I've been 'ill' with various things over the last few weeks, and after a blood test last week I appear to have a problem with my pancreas and am in the middle of a flare.
KayEP
in
NRAS
7 years ago
burning sensation on my scalp
I am Anja (61) from the Netherlands. I have had CLL since 2010. FCR in 2012. I am participating in the ACP 196 study since March this year. Then I started Ibrutinib. It has gone well for a while but since a month I have a very burning sensation on my scalp, and stitches and hair loss. Also nerve pains
I am Anja (61) from the Netherlands. I have had CLL since 2010. FCR in 2012. I am participating in the ACP 196 study since March this year. Then I started Ibrutinib. It has gone well for a while but since a month I have a very burning sensation on my scalp, and stitches and hair loss. Also nerve pains
jroon08
in
CLL Support
7 years ago
Dr. Furman on the Diminishing Role of FCR
Hi, As we're getting ready to head to ASH this week, we wanted to post in response to a query that was posted originally on the CLLSLL io group forum. Dr. Richard Furman is their medical advisor and his response really puts the comparison of a therapy that has existed for decades with a therapy that
Hi, As we're getting ready to head to ASH this week, we wanted to post in response to a query that was posted originally on the CLLSLL io group forum. Dr. Richard Furman is their medical advisor and his response really puts the comparison of a therapy that has existed for decades with a therapy that
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
Should men and women be treated differently?
As the study states [i]We conclude that the higher
rituximab
dose for elderly male patients abrogated the adverse prognosis of male sex without increasing toxicity.
As the study states [i]We conclude that the higher
rituximab
dose for elderly male patients abrogated the adverse prognosis of male sex without increasing toxicity.
Cllcanada
Top Poster CURE Hero
in
CLL Support
7 years ago
Round 2 FCR complete
I have completed round 2 of FCR and am past the lowest point (10 days post) so am starting to recover. The infusion days themselves were easy. I have a port so it is a simple hook up and away they go. No reactions day one and two, but by end of day 3 I was starting to feel some nausea. I take Ondansetron
I have completed round 2 of FCR and am past the lowest point (10 days post) so am starting to recover. The infusion days themselves were easy. I have a port so it is a simple hook up and away they go. No reactions day one and two, but by end of day 3 I was starting to feel some nausea. I take Ondansetron
Marie-54
in
CLL Support
7 years ago
Jules is back and my plans for 2018 are
Hi Everyone Some of you know I do the odd Cycle ride for Charity, CLLSA and Bloodwise. To the unfortunate new members to this site allow me to introduce myself. I'm Jules AKA as The Flyer I have been on Watch and Wait for nearly 8 years now and decided I would try and help raise some funds - so far
Hi Everyone Some of you know I do the odd Cycle ride for Charity, CLLSA and Bloodwise. To the unfortunate new members to this site allow me to introduce myself. I'm Jules AKA as The Flyer I have been on Watch and Wait for nearly 8 years now and decided I would try and help raise some funds - so far
TheFlyer
in
CLL Support
7 years ago
Abdominal pain
I've been on watch and wait for most of that time, apart from a course of
Rituximab
about 3 years ago as my platelets had gone thru the floor and my WBC had more than doubled in the space of 6 months. Recently I've been getting sharp pains in my left abdomen, just under the bottom rib.
I've been on watch and wait for most of that time, apart from a course of
Rituximab
about 3 years ago as my platelets had gone thru the floor and my WBC had more than doubled in the space of 6 months. Recently I've been getting sharp pains in my left abdomen, just under the bottom rib.
Daveyo
in
CLL Support
7 years ago
FCR Cycle one
Had cycle 1 FCR - was a little rough but come time for 2nd cycle my BW is normal why continue
Had cycle 1 FCR - was a little rough but come time for 2nd cycle my BW is normal why continue
Mathild
in
CLL Support
7 years ago
FCR + Ibrutinib trial
This is a wonderful community and I thank everyone who responded to my previos post with an opinion or just a message of support. I have the opportunity to participate in a trial that combines ibrutinib with FCR for 6 months and after that ends i would continue to take the ibrutinib for 2 years. I’
This is a wonderful community and I thank everyone who responded to my previos post with an opinion or just a message of support. I have the opportunity to participate in a trial that combines ibrutinib with FCR for 6 months and after that ends i would continue to take the ibrutinib for 2 years. I’
Haesl
in
CLL Support
7 years ago
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