Experiences with

Rituximab

Hi all, I saw my Dr. 8 weeks ago and he was pretty sure I was getting near treatment. I have been W & W since 2011, I'm 57. He was concerned because the Absolute count went from 12,000 to 22,400 in 4 1/2 months. I just received my new results today: Absolute count is down to 18,000 White count is hovering

Last Thursday I had my fourth of a two part course of Rituximab infusion along with oral Piriton and Paracetamol tablets. I started to sleep because of the effects of the the tablets. During the infusion I felt very hot and had to have a fan to cool me but my temperature was normal.

I have had RA for 12 years now and my consultant wants to put me on Rituximab. I am very concerned about the side effects of this drug, particularly as I have already had a heart attack linked to my RA. Does anyone have experience of this drug, good or bad, or are like me, worried about starting.

Some wise words on the effects of diet on CLL from the well respected CLL specialists Drs Keating and Sharman. Dr Keating was behind the development of FCR and Dr Sharman has provided some excellent blogs on CLL: http://www.cll-nhl.com From the transcript Dr Sharman [i]"I think that we've talked

I was dagnosed with RD 3.5yrs ago, been on Enbrel, Rituximab and Tocilizumab. My last infusion was 4 weeks ago... Today I start new treatment. Baricitinib which is a JAK inhibitor. No more infusions. I take one tablet a day along with my weekly 20mg of MTX.

I am now on a bisphosphonate (sodium alendronate) My haematologist has now grasped the nettle and I am starting weekly rituximab x4 in the hope of getting a remission. The hope is that my need for steroids will reduce or stop.

Our doctor started with R-Benda protocol (Rituximab) last week, it will last 6 sessions, 1 session every 4 weeks. Did anyone had the same therapy? I know that every patient is unique but I want to know what comes next. Will he need a therapy every 2 years? What can I expect from the future?

I got a letter from Dr Clarke at Southmead saying that my visit to Addenbrookes came to the conclusion that, after a PET scan, I will now have this drug Can anyone tell me what to expect please as in how long it takes and possible side effects ? I’m a bit worried but this disease is bad & I just want

Ok, this may be crazy, I keep biting the sides of my tongue and mouth since starting FCR. I have bruises and raw spots. This mostly happens at night but also during the day. Anyone else out there ever have this problem? Beth

I've been doing so well, one year on from a rituximab infusion, but today I can barely move - toes, ankles, knees, hips, fingers, wrists, elbows and shoulders are all hurting so much. I realise I did something that I shouldn't but is this a normal RA reaction?

Hi everyone! My dad is on his 4th round of what they call “aggressive chemo” for NHL. He is taking FCR with monthly infusions of antibodies,antibirala, antibiotics (to prevent shingles and pneumonia, as well as oral chemo and 7 days monthly of immune boosting injections. This round was particularly

Hello again, on Monday our 2nd session will begin (Rituximab, Bendamustine therapy) but my husband has white spots on his face. I asked the doctor and he said it can be some kind of a fungus because his neutrophil counts are low.(0.56) Has anyone had the same experience? Thanks again Aylin

I've had lots of immune suppresant drugs over the last year including rituximab, prednisilone, azathioprine and MMF. I'm not taking them now but I wonder whther withdrawing from them could have had an impact. I'm worried this will spread and I'll become completely bald !

They paid for my 3 rituximab daycare tratment but now refusing saying that rituximab is a monoclonal antibody hence cannot be given. Though nothing mentioned in their policy terms . Their grievence cell has rejected to pay furtther. Need help & guidance to go further

He is on mycophenolate and IV rituximab. His haemoglobin will definitely affect his aerobic ability and it is creeping upbeat at 10g at the moment. But it could normalise eventually?? He is 18 and incredibly optimistic about his future. That's just the way he is!

Back in 09 learned I had stage 4 CLL & went through 6 mo of FCR chemo....all went well until Aug of 17 when my white count started rising 10k per month... in Nov I started Imbruvica & my swollen neck glands went down in the first week while my WBC rose 30k... for the last mo my WBC has been slowly

Greeting All, Always lurking and reading posts. After 6 x FCR in March '14 I'm still plodding on and even though my Consultant appointments have narrowed to 6 Weeks apart, there's been many bright spells during 2017 - in particular, 1. Free Car Parking at the hospital. (Once paid £22 during FCR Treatment

Happy New year to you and all here! This forum becomes our sounding board, our counselling session, our font of knowledge, our diary to log and share our darkest thoughts, our laughter but most importantly our support. It's a while since I wrote on here but I still dip in constantly. I'm now just over

Hi all, I was diagnosed 3 years ago with CLL, I am now 53 yo and with wbc up and platelets down as well as swollen lymph nodes and enlarged spleen my Doctor has started me on treatments. I am going to Dana Farber and taking part of a study that combines Ibrutinib with standard FCR treatment. I will take

I was on imbruvica (3 pills 420) for about 3 months and CBC test came back better, however I got so sick my doctor stopped me that was about 10 weeks ago and my CBC tests looked almost normal. he wants me to try one pill a day but there is no way I am taking imbruvica again. I had chemo FCR in 2009