Search
Search
About
Log in
Join
Experiences with
Rituximab
Posts
Communities
2,558 public posts
Filter results
“Yay I’m finally out of hospital!!”
So, while in hospital for 6 weeks, Bev had two 8 hour drips of
Rituximab
- two blood transfusions - countless pills and tests - another Albumin drip - and another iron transfusion - and maybe another iron drip in 2 weeks.
So, while in hospital for 6 weeks, Bev had two 8 hour drips of
Rituximab
- two blood transfusions - countless pills and tests - another Albumin drip - and another iron transfusion - and maybe another iron drip in 2 weeks.
Beverly
Administrator
in
The Australian Sjögren's Syndrome Association
7 years ago
Round 4 FCR complete
I finished round 4 of my FCR infusions just 2 weeks ago so should be at my lowest blood point, but am having absolutely 000000 side effects. If anything, I am not as tired as I was after rounds 2 and 3. and the feelings of incessant coldness have gone away. Swollen lymph glands that I could feel under
I finished round 4 of my FCR infusions just 2 weeks ago so should be at my lowest blood point, but am having absolutely 000000 side effects. If anything, I am not as tired as I was after rounds 2 and 3. and the feelings of incessant coldness have gone away. Swollen lymph glands that I could feel under
Marie-54
in
CLL Support
6 years ago
Would appreciate your input!
Hi all, I saw my Dr. 8 weeks ago and he was pretty sure I was getting near treatment. I have been W & W since 2011, I'm 57. He was concerned because the Absolute count went from 12,000 to 22,400 in 4 1/2 months. I just received my new results today: Absolute count is down to 18,000 White count is hovering
Hi all, I saw my Dr. 8 weeks ago and he was pretty sure I was getting near treatment. I have been W & W since 2011, I'm 57. He was concerned because the Absolute count went from 12,000 to 22,400 in 4 1/2 months. I just received my new results today: Absolute count is down to 18,000 White count is hovering
lorna222
in
CLL Support
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Rituximab again
Last Thursday I had my fourth of a two part course of
Rituximab
infusion along with oral Piriton and Paracetamol tablets. I started to sleep because of the effects of the the tablets. During the infusion I felt very hot and had to have a fan to cool me but my temperature was normal.
Last Thursday I had my fourth of a two part course of
Rituximab
infusion along with oral Piriton and Paracetamol tablets. I started to sleep because of the effects of the the tablets. During the infusion I felt very hot and had to have a fan to cool me but my temperature was normal.
Maureenpearl
in
LUPUS UK
7 years ago
Rituximab - Biological Drugs
I have had RA for 12 years now and my consultant wants to put me on
Rituximab
. I am very concerned about the side effects of this drug, particularly as I have already had a heart attack linked to my RA. Does anyone have experience of this drug, good or bad, or are like me, worried about starting.
I have had RA for 12 years now and my consultant wants to put me on
Rituximab
. I am very concerned about the side effects of this drug, particularly as I have already had a heart attack linked to my RA. Does anyone have experience of this drug, good or bad, or are like me, worried about starting.
7stiff4days
in
NRAS
7 years ago
Farewell Tocilizumab...hello Baricitinib
I was dagnosed with RD 3.5yrs ago, been on Enbrel,
Rituximab
and Tocilizumab. My last infusion was 4 weeks ago... Today I start new treatment. Baricitinib which is a JAK inhibitor. No more infusions. I take one tablet a day along with my weekly 20mg of MTX.
I was dagnosed with RD 3.5yrs ago, been on Enbrel,
Rituximab
and Tocilizumab. My last infusion was 4 weeks ago... Today I start new treatment. Baricitinib which is a JAK inhibitor. No more infusions. I take one tablet a day along with my weekly 20mg of MTX.
Chezis21
in
NRAS
7 years ago
How do changes in diet affect CLL treatment? Are supplements safe to use? CLL experts Dr. Michael Keating and Dr. Jeff Sharman respond
Some wise words on the effects of diet on CLL from the well respected CLL specialists Drs Keating and Sharman. Dr Keating was behind the development of FCR and Dr Sharman has provided some excellent blogs on CLL: http://www.cll-nhl.com
From the transcript
Dr Sharman [i]"I think that we've talked
Some wise words on the effects of diet on CLL from the well respected CLL specialists Drs Keating and Sharman. Dr Keating was behind the development of FCR and Dr Sharman has provided some excellent blogs on CLL: http://www.cll-nhl.com
From the transcript
Dr Sharman [i]"I think that we've talked
AussieNeil
Partner
in
CLL Support
7 years ago
Sleep walking into trouble
I am now on a bisphosphonate (sodium alendronate) My haematologist has now grasped the nettle and I am starting weekly
rituximab
x4 in the hope of getting a remission. The hope is that my need for steroids will reduce or stop.
I am now on a bisphosphonate (sodium alendronate) My haematologist has now grasped the nettle and I am starting weekly
rituximab
x4 in the hope of getting a remission. The hope is that my need for steroids will reduce or stop.
charliegirl
in
CLL Support
7 years ago
Husband with CLL in Rituximab Therapy
Our doctor started with R-Benda protocol (
Rituximab
) last week, it will last 6 sessions, 1 session every 4 weeks. Did anyone had the same therapy? I know that every patient is unique but I want to know what comes next. Will he need a therapy every 2 years? What can I expect from the future?
Our doctor started with R-Benda protocol (
Rituximab
) last week, it will last 6 sessions, 1 session every 4 weeks. Did anyone had the same therapy? I know that every patient is unique but I want to know what comes next. Will he need a therapy every 2 years? What can I expect from the future?
aylinozel
in
CLL Support
7 years ago
Having rituximab
I got a letter from Dr Clarke at Southmead saying that my visit to Addenbrookes came to the conclusion that, after a PET scan, I will now have this drug Can anyone tell me what to expect please as in how long it takes and possible side effects ? I’m a bit worried but this disease is bad & I just want
I got a letter from Dr Clarke at Southmead saying that my visit to Addenbrookes came to the conclusion that, after a PET scan, I will now have this drug Can anyone tell me what to expect please as in how long it takes and possible side effects ? I’m a bit worried but this disease is bad & I just want
Balderick
in
Vasculitis UK
7 years ago
So much pain.....
I've been doing so well, one year on from a
rituximab
infusion, but today I can barely move - toes, ankles, knees, hips, fingers, wrists, elbows and shoulders are all hurting so much. I realise I did something that I shouldn't but is this a normal RA reaction?
I've been doing so well, one year on from a
rituximab
infusion, but today I can barely move - toes, ankles, knees, hips, fingers, wrists, elbows and shoulders are all hurting so much. I realise I did something that I shouldn't but is this a normal RA reaction?
Thereseh
in
NRAS
7 years ago
Tongue biting
Ok, this may be crazy, I keep biting the sides of my tongue and mouth since starting FCR. I have bruises and raw spots. This mostly happens at night but also during the day. Anyone else out there ever have this problem? Beth
Ok, this may be crazy, I keep biting the sides of my tongue and mouth since starting FCR. I have bruises and raw spots. This mostly happens at night but also during the day. Anyone else out there ever have this problem? Beth
Mosaicgigi
in
CLL Support
7 years ago
Fungus
Hello again, on Monday our 2nd session will begin (
Rituximab
, Bendamustine therapy) but my husband has white spots on his face. I asked the doctor and he said it can be some kind of a fungus because his neutrophil counts are low.(0.56) Has anyone had the same experience? Thanks again Aylin
Hello again, on Monday our 2nd session will begin (
Rituximab
, Bendamustine therapy) but my husband has white spots on his face. I asked the doctor and he said it can be some kind of a fungus because his neutrophil counts are low.(0.56) Has anyone had the same experience? Thanks again Aylin
aylinozel
in
CLL Support
7 years ago
ITP and hair loss (alopecia)
I've had lots of immune suppresant drugs over the last year including
rituximab
, prednisilone, azathioprine and MMF. I'm not taking them now but I wonder whther withdrawing from them could have had an impact. I'm worried this will spread and I'll become completely bald !
I've had lots of immune suppresant drugs over the last year including
rituximab
, prednisilone, azathioprine and MMF. I'm not taking them now but I wonder whther withdrawing from them could have had an impact. I'm worried this will spread and I'll become completely bald !
prudencepayes
in
ITP Support Association
7 years ago
Chemo Side Effects FCR
Hi everyone! My dad is on his 4th round of what they call “aggressive chemo” for NHL. He is taking FCR with monthly infusions of antibodies,antibirala, antibiotics (to prevent shingles and pneumonia, as well as oral chemo and 7 days monthly of immune boosting injections. This round was particularly
Hi everyone! My dad is on his 4th round of what they call “aggressive chemo” for NHL. He is taking FCR with monthly infusions of antibodies,antibirala, antibiotics (to prevent shingles and pneumonia, as well as oral chemo and 7 days monthly of immune boosting injections. This round was particularly
Whitehouse_77
in
CLL Support
7 years ago
Rejection of claim for daycare rituximab cancer treatment by United India Insurance Co
They paid for my 3
rituximab
daycare tratment but now refusing saying that
rituximab
is a monoclonal antibody hence cannot be given. Though nothing mentioned in their policy terms . Their grievence cell has rejected to pay furtther. Need help & guidance to go further
They paid for my 3
rituximab
daycare tratment but now refusing saying that
rituximab
is a monoclonal antibody hence cannot be given. Though nothing mentioned in their policy terms . Their grievence cell has rejected to pay furtther. Need help & guidance to go further
munjalbom8
in
Breast Cancer India
7 years ago
Can anyone with SLE do intense exercise?
He is on mycophenolate and IV
rituximab
. His haemoglobin will definitely affect his aerobic ability and it is creeping upbeat at 10g at the moment. But it could normalise eventually?? He is 18 and incredibly optimistic about his future. That's just the way he is!
He is on mycophenolate and IV
rituximab
. His haemoglobin will definitely affect his aerobic ability and it is creeping upbeat at 10g at the moment. But it could normalise eventually?? He is 18 and incredibly optimistic about his future. That's just the way he is!
Deegraham
in
LUPUS UK
7 years ago
Dark Urine with Imbruvica ?
Back in 09 learned I had stage 4 CLL & went through 6 mo of FCR chemo....all went well until Aug of 17 when my white count started rising 10k per month... in Nov I started Imbruvica & my swollen neck glands went down in the first week while my WBC rose 30k... for the last mo my WBC has been slowly
Back in 09 learned I had stage 4 CLL & went through 6 mo of FCR chemo....all went well until Aug of 17 when my white count started rising 10k per month... in Nov I started Imbruvica & my swollen neck glands went down in the first week while my WBC rose 30k... for the last mo my WBC has been slowly
emarine
in
CLL Support
7 years ago
Antibiotics and rituximab
Just started on
Rituximab
3 days ago and am due for my second treatment in two weeks. I have a UTI and have just started antibiotics for 7 days. Will this defer my next
rituximab
or will it be ok to have?
Just started on
Rituximab
3 days ago and am due for my second treatment in two weeks. I have a UTI and have just started antibiotics for 7 days. Will this defer my next
rituximab
or will it be ok to have?
gpaman
in
NRAS
7 years ago
2017 - Bright and Dark
Greeting All, Always lurking and reading posts. After 6 x FCR in March '14 I'm still plodding on and even though my Consultant appointments have narrowed to 6 Weeks apart, there's been many bright spells during 2017 - in particular, 1. Free Car Parking at the hospital. (Once paid £22 during FCR Treatment
Greeting All, Always lurking and reading posts. After 6 x FCR in March '14 I'm still plodding on and even though my Consultant appointments have narrowed to 6 Weeks apart, there's been many bright spells during 2017 - in particular, 1. Free Car Parking at the hospital. (Once paid £22 during FCR Treatment
Bribin
in
CLL Support
7 years ago
1
...
68
69
70
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1030 results
NRAS
575 results
Vasculitis UK
333 results
View top 10 communities
Sort by
Most Relevant
Newest