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Ibrutinib VS V&O
I initially started with
rituximab
and shrank my nodes then went on Imbruvica after a few months and here we are. I had it pretty bad at first prior to the chemo but have responded well. Thoughts and opinions ?? I’m nowhere near as knowledgeable as many of you and seeking to learn.
I initially started with
rituximab
and shrank my nodes then went on Imbruvica after a few months and here we are. I had it pretty bad at first prior to the chemo but have responded well. Thoughts and opinions ?? I’m nowhere near as knowledgeable as many of you and seeking to learn.
GettinThruIt
in
CLL Support
2 months ago
Obinutuzumab not recommended for funding by NHS England
NHS England have not recommended funding obinutuzumab for people with lupus and secondary non-response to
rituximab
. However, they are prepared to consider it again in the future.
NHS England have not recommended funding obinutuzumab for people with lupus and secondary non-response to
rituximab
. However, they are prepared to consider it again in the future.
Debbie_kinsey
Administrator
in
LUPUS UK
7 months ago
Rituximab
Dear All, My 25 year old daughter with SLE has been asked to start
rituximab
infusion due to the renal team not being happy with the amount of protein in urine and think her current immune suppressants are no longer effective. May I please ask if anyone is on
rituximab
and any advice?
Dear All, My 25 year old daughter with SLE has been asked to start
rituximab
infusion due to the renal team not being happy with the amount of protein in urine and think her current immune suppressants are no longer effective. May I please ask if anyone is on
rituximab
and any advice?
Adiahama
in
LUPUS UK
9 months ago
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Dry throat and skin & headaches after Rituximab infusions
Hi there, I'm wondering if anyone else has experienced these symptoms after
Rituximab
infusions? I've just had the second dose after the first infusions 5 months ago. I had a mild reaction both times on the first of two infusions: tingly, scratchy throat and mouth.
Hi there, I'm wondering if anyone else has experienced these symptoms after
Rituximab
infusions? I've just had the second dose after the first infusions 5 months ago. I had a mild reaction both times on the first of two infusions: tingly, scratchy throat and mouth.
Han1
in
NRAS
3 months ago
HAIR LOSS
Dermatologist said combination of long-term use of steroids,
Rituximab
,Mepacrine any one of these or combination. I know with medical issues over last 11 years I should not be worried about hair loss but it is really getting me down. Any words of wisdom
Dermatologist said combination of long-term use of steroids,
Rituximab
,Mepacrine any one of these or combination. I know with medical issues over last 11 years I should not be worried about hair loss but it is really getting me down. Any words of wisdom
Haired
in
LUPUS UK
2 months ago
A few developments - anybody got similar
On a funny note to end, I was in Bedale North Yorkshire on Market Day last Tuesday, I was having my
Rituximab
the following day so got on the pushbike and got out. Unfortunately for me on the way I got drenched as the heavens opened.
On a funny note to end, I was in Bedale North Yorkshire on Market Day last Tuesday, I was having my
Rituximab
the following day so got on the pushbike and got out. Unfortunately for me on the way I got drenched as the heavens opened.
Investigator1
in
Vasculitis UK
2 months ago
Rheumatoid arthritis since 1995
Hi,I was diagnosed with ra 1996,been on various drugs over the years,I'm taken methotrexate self injection and
rituximab
infusion, I've had 2 operations on my feet joints removed and fused,I'm 65 still working which is a struggle,two year ago I was awarded the lower living pip no mobility pip,how do
Hi,I was diagnosed with ra 1996,been on various drugs over the years,I'm taken methotrexate self injection and
rituximab
infusion, I've had 2 operations on my feet joints removed and fused,I'm 65 still working which is a struggle,two year ago I was awarded the lower living pip no mobility pip,how do
Justlucy
in
NRAS
5 months ago
Eye troubles
I am now on a low dose of methotrexate and
Rituximab
. I have noticed that my eye sight has gradually been getting more and more blurred. I have today had an opticians appointment and have been told that my sight is now not good enough to drive.
I am now on a low dose of methotrexate and
Rituximab
. I have noticed that my eye sight has gradually been getting more and more blurred. I have today had an opticians appointment and have been told that my sight is now not good enough to drive.
littlemissp
in
LUPUS UK
1 month ago
rituximab
I wondered if anyone has had
rituximab
infusions for their myositis and what the experience has been like - impact on disease, side effects, infections due to immune suppression, infusion process itself? The rheumatologist has given this as a potential option and I’m seeking some insight.
I wondered if anyone has had
rituximab
infusions for their myositis and what the experience has been like - impact on disease, side effects, infections due to immune suppression, infusion process itself? The rheumatologist has given this as a potential option and I’m seeking some insight.
ruablue
in
Myositis UK
9 months ago
Why did my infusions get stopped?
I’ve had several
Rituximab
infusions, usually every 9 months to a year apart; the last one was in 2021. In 2022 I was informed that
Rituximab
would be replaced by Rituxithon ( I hope that’s right) as its cheaper. I haven’t got a problem with this.
I’ve had several
Rituximab
infusions, usually every 9 months to a year apart; the last one was in 2021. In 2022 I was informed that
Rituximab
would be replaced by Rituxithon ( I hope that’s right) as its cheaper. I haven’t got a problem with this.
SwimmerBTC
in
NRAS
6 months ago
Anti viral?
I'm on
rituximab
and azathioprine aswell as prednisolone. I've not yet done a test but have been feeling breathless and coughing more than normal. I'm not allowed to have my covid or flu vaccinations due to my recent
rituximab
infusion.
I'm on
rituximab
and azathioprine aswell as prednisolone. I've not yet done a test but have been feeling breathless and coughing more than normal. I'm not allowed to have my covid or flu vaccinations due to my recent
rituximab
infusion.
Vqueen
in
Vasculitis UK
8 months ago
Rituximab
Hello everyone I have not posted before but read the other posts every day I have SLE, osteoporosis, arthiritus, CKD, amoloid and was recently hospitalised with acute fibrosis of the lungs I am In constant pain due to broken bones in spine My Rheumatologist has got me accepted for
Rituximab
Hello everyone I have not posted before but read the other posts every day I have SLE, osteoporosis, arthiritus, CKD, amoloid and was recently hospitalised with acute fibrosis of the lungs I am In constant pain due to broken bones in spine My Rheumatologist has got me accepted for
Rituximab
Catcon01
in
LUpus Patients Understanding and Support
9 months ago
Recurring high temperatures?
GPA current treatment
rituximab
azathioprine and prednisolone
GPA current treatment
rituximab
azathioprine and prednisolone
Vqueen
in
Vasculitis UK
8 months ago
Golimumab v. Rituximab? What is others' experience?
I'd like to know what experience others have had of
rituximab
: side effects, effectiveness, etc. so that I'm ready with questions to ask at my next appointment.
I'd like to know what experience others have had of
rituximab
: side effects, effectiveness, etc. so that I'm ready with questions to ask at my next appointment.
Lifesforliving
in
NRAS
7 months ago
does everyone take methotrexate?
I have already tried Baricitnib, Enbrel,
rituximab
(allergic reaction). The consultant mentioned adulilumab or Filgotinib. Has anyone got any experience of these drugs? my consultant seemed to think side effects for methotrexate were rare?? Anyway hope everyone is ok xx
I have already tried Baricitnib, Enbrel,
rituximab
(allergic reaction). The consultant mentioned adulilumab or Filgotinib. Has anyone got any experience of these drugs? my consultant seemed to think side effects for methotrexate were rare?? Anyway hope everyone is ok xx
Claire32
in
NRAS
4 months ago
CNS Symptoms and Advice
When I started
rituximab
7 ish years ago I remember being disappointed as it took a good year or so for things to improve but then my main problem was peripheral nerve damage, with autonomic involvement .
When I started
rituximab
7 ish years ago I remember being disappointed as it took a good year or so for things to improve but then my main problem was peripheral nerve damage, with autonomic involvement .
Galaxy2
in
Vasculitis UK
7 months ago
Why are we waiting?
So they gave me my last infusion of
rituximab
in June 2023. They made no difference to my pain or blood levels. I had zero follow up calls and no further offers of help.
So they gave me my last infusion of
rituximab
in June 2023. They made no difference to my pain or blood levels. I had zero follow up calls and no further offers of help.
RootsToots
in
NRAS
6 months ago
Possible Leukoplakia
I have been through the mill since last October, Covid in October, then Retinal Tears in November along with my
Rituximab
then diagnosed with low cortisol production in Feb (currently waiting results after second test) it’s just one thing after another. Now this. Has anyone had anything similar.
I have been through the mill since last October, Covid in October, then Retinal Tears in November along with my
Rituximab
then diagnosed with low cortisol production in Feb (currently waiting results after second test) it’s just one thing after another. Now this. Has anyone had anything similar.
Investigator1
in
Vasculitis UK
2 months ago
Kidney biopsy confirms active GPA
I have seen my rheumatologist twice now, given pred and was put forward for
rituximab
. Due to the blood and protein in my pee I was referred to renal and had a kidney biopsy on Wednesday of this week. It has been confirmed that my vasculitis is active in the kidneys.
I have seen my rheumatologist twice now, given pred and was put forward for
rituximab
. Due to the blood and protein in my pee I was referred to renal and had a kidney biopsy on Wednesday of this week. It has been confirmed that my vasculitis is active in the kidneys.
lollypocket
in
Vasculitis UK
6 months ago
CARPEL TUNNEL
I am on 5mg maintenance Steroids/
Rituximab
/Mepacrine for Lupus& Sjogrens. Any advice would be appreciated. X
I am on 5mg maintenance Steroids/
Rituximab
/Mepacrine for Lupus& Sjogrens. Any advice would be appreciated. X
Haired
in
LUPUS UK
7 months ago
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