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Richter's syndrome
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Trying to manage, and afraid
I've posted a few times before on the forum re RLS. I 'manage' my RLS with one 0.18mg Pramipexole tablet in the evening which at least allows me to be symptom-free by bedtime and I know I will sleep a good 5 hours. I do suffer RLS during the course of the day though, and although I know I could ask
I've posted a few times before on the forum re RLS. I 'manage' my RLS with one 0.18mg Pramipexole tablet in the evening which at least allows me to be symptom-free by bedtime and I know I will sleep a good 5 hours. I do suffer RLS during the course of the day though, and although I know I could ask
Sueloops
in
Restless Legs Syndrome
3 years ago
Low HCG 11dp6dt
Hi Everyone, I am trying not to worry but transferred a genetically test embryo on 5/20 and had my beta hcg yesterday. It was 41 and my RE said he likes to see 50. I am back tmrw to test again. My husband is elated but I’m so worried. Any advice? Similar situations? Hope you are all well and appreciate
Hi Everyone, I am trying not to worry but transferred a genetically test embryo on 5/20 and had my beta hcg yesterday. It was 41 and my RE said he likes to see 50. I am back tmrw to test again. My husband is elated but I’m so worried. Any advice? Similar situations? Hope you are all well and appreciate
Babydustforall
in
Fertility Network UK
3 years ago
Dopamine Agonist Official Withdrawal Advice (from Dr Earley??)
Just found this "detox" advice on a RLS Facebook page I was looking through. It's the first time I've ever seen a formal sheet explaining what will happen during DA withdrawal. It certainly reflects what I went through. It might be useful for anyone going through it, or thinking of doing so. It would
Just found this "detox" advice on a RLS Facebook page I was looking through. It's the first time I've ever seen a formal sheet explaining what will happen during DA withdrawal. It certainly reflects what I went through. It might be useful for anyone going through it, or thinking of doing so. It would
Joolsg
in
Restless Legs Syndrome
3 years ago
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Neupogen wash + failed ivf?
Hi, I had my 5th embryo transfer with neupogen wash on the same day of transfer. I have negative hpt on day10. I have blood test tomorrow. Anyone with failed ivf with neupogen wash?
Hi, I had my 5th embryo transfer with neupogen wash on the same day of transfer. I have negative hpt on day10. I have blood test tomorrow. Anyone with failed ivf with neupogen wash?
somukbs
in
Fertility Network UK
3 years ago
Is valerian ok to take with pred?
Still having difficulty sleeping due partly to pred I presume and also gastric problems (appointment with gastroenterologist tomorrow) . I do have zopoclone sleeping tablets and have taken one per night for 2 nights but reluctant to take more as know they’re are addictive . Could valerian be an alternative
Still having difficulty sleeping due partly to pred I presume and also gastric problems (appointment with gastroenterologist tomorrow) . I do have zopoclone sleeping tablets and have taken one per night for 2 nights but reluctant to take more as know they’re are addictive . Could valerian be an alternative
WillOllier
in
PMRGCAuk
3 years ago
HELP FOR RESTLESS LEGS SYNDROME
I have RLS so bad that I walk all night and get a couple of hours of sleep every other day. I live in a nightmare. Absolutely no life. Also in augmentation from Pramipexole. I had ordered a supplement for my husband who gets bad cramps at night. The supplement immediately helped him. He told
I have RLS so bad that I walk all night and get a couple of hours of sleep every other day. I live in a nightmare. Absolutely no life. Also in augmentation from Pramipexole. I had ordered a supplement for my husband who gets bad cramps at night. The supplement immediately helped him. He told
Josana13
in
Restless Legs Syndrome
3 years ago
Horizant and Burning Mouth Syndrome
Just when you think you’re getting a break…….so the Horizant is helping my RLS and I’m sleeping ok again finally but lately I noticed some BMS, Burning Mouth Syndrome. I had this before for almost a year due to an allergy to dental metals in my mouth. Three dentists told me it wasn’t possible but when
Just when you think you’re getting a break…….so the Horizant is helping my RLS and I’m sleeping ok again finally but lately I noticed some BMS, Burning Mouth Syndrome. I had this before for almost a year due to an allergy to dental metals in my mouth. Three dentists told me it wasn’t possible but when
Redeyed
in
Restless Legs Syndrome
3 years ago
New Rheumatologist
Saw my new rheumatologist last Thursday, and so far I am impressed. Lupus unit were dismissive as my bloods are normal but she says I could be sero negative. This was at my local hospital, which on the whole does not have a very good reputation, but I have found since covid that they have improved
Saw my new rheumatologist last Thursday, and so far I am impressed. Lupus unit were dismissive as my bloods are normal but she says I could be sero negative. This was at my local hospital, which on the whole does not have a very good reputation, but I have found since covid that they have improved
donnabrain
in
Hughes Syndrome APS Forum
3 years ago
Covid-19 vaccine and getting pregnant
I booked my first dose of Covid-19 vaccine on Thursday. Even if I stopped the Clomid treatment this month I ovulated, which was a nice surprise. We are having timed sex intercourse. Is it safe to have the vaccine on Thursday? I will be on 5 days post ovulation. I will start ivf treatment in July, is
I booked my first dose of Covid-19 vaccine on Thursday. Even if I stopped the Clomid treatment this month I ovulated, which was a nice surprise. We are having timed sex intercourse. Is it safe to have the vaccine on Thursday? I will be on 5 days post ovulation. I will start ivf treatment in July, is
FrancyItaly
in
Fertility Network UK
3 years ago
Hyper mobility tips
Hi everyone I hope you’re all well I suffer from fibro and hyper mobility and all my joints are hugely affected. I am really struggling with pain management especially with my new job. My employer is not supportive or understanding and I am not sure how long I can bare the pain and lack of support
Hi everyone I hope you’re all well I suffer from fibro and hyper mobility and all my joints are hugely affected. I am really struggling with pain management especially with my new job. My employer is not supportive or understanding and I am not sure how long I can bare the pain and lack of support
egm123
in
Ehlers-Danlos Support UK
3 years ago
Lactulose... Ugh! Please help
So I started taking Lactulose yesterday again. Took it a long time ago with no problems I can remember. 1Tbs 2x a day. Now... 2Tbs 3x a day. I took the first 2Tbs and thought I would die from cramps and gas and then the runs. Drank water like a fish and still awoke dehydrated. Today I am doing 1Tbs 3x
So I started taking Lactulose yesterday again. Took it a long time ago with no problems I can remember. 1Tbs 2x a day. Now... 2Tbs 3x a day. I took the first 2Tbs and thought I would die from cramps and gas and then the runs. Drank water like a fish and still awoke dehydrated. Today I am doing 1Tbs 3x
FLgirl0722
in
British Liver Trust
3 years ago
Surely this can't be right
Hello I am currently taking clonazepam half a tablet every other night as my GP was concerned about the addictive nature of the drug. It does help a little but still up every night 2/3 times but managing to get about 5/6 hrs which is a lot better than I've had at other times. I had a private neurologist
Hello I am currently taking clonazepam half a tablet every other night as my GP was concerned about the addictive nature of the drug. It does help a little but still up every night 2/3 times but managing to get about 5/6 hrs which is a lot better than I've had at other times. I had a private neurologist
Operababe
in
Restless Legs Syndrome
3 years ago
Using Kratom to come off pramipexole
I’ve been taking Pramipexole now for 13 years, two 0.088 a day. I’ve just ordered red vein kratom, which I realise can be addictive, but was wondering if anyone has used this to come off Pramipexole successfully? My last attempt was cold turkey........hellish and I know that the tramadol I was prescribed
I’ve been taking Pramipexole now for 13 years, two 0.088 a day. I’ve just ordered red vein kratom, which I realise can be addictive, but was wondering if anyone has used this to come off Pramipexole successfully? My last attempt was cold turkey........hellish and I know that the tramadol I was prescribed
Deeperside
in
Restless Legs Syndrome
3 years ago
Negative HPT after 40.88 Beta hcg is it negative ?
Hi somebody please suggest me i had beta hcg 40.88 2 days before and test need to be repeated after 3 days as per ivf lab.Today i did UPT but it was negative can i consider it a negative pregnancy?
Hi somebody please suggest me i had beta hcg 40.88 2 days before and test need to be repeated after 3 days as per ivf lab.Today i did UPT but it was negative can i consider it a negative pregnancy?
Arya1234
in
Fertility Network UK
3 years ago
Advice - NK cells
Hi fellow warriors, I hope you’re all okay. I haven’t logged in for a number of months as I needed a break from all things IVF after our two failed cycles last year. I hope there have been lots more BFPs and happy news for you all. We are currently planning our next cycle and potentially my last cycle
Hi fellow warriors, I hope you’re all okay. I haven’t logged in for a number of months as I needed a break from all things IVF after our two failed cycles last year. I hope there have been lots more BFPs and happy news for you all. We are currently planning our next cycle and potentially my last cycle
Kat_15
in
Fertility Network UK
3 years ago
**sensitive post** screening results
Hi everyone I had my 12 week scan yesterday and I was very anxious about my screening results and unfortunately I got put into the high risk category for Down syndrome with a 1 in 57 chance, where the national average for my age is 1 in 245. Everything looked normal on the ultrasound, heartbeat was
Hi everyone I had my 12 week scan yesterday and I was very anxious about my screening results and unfortunately I got put into the high risk category for Down syndrome with a 1 in 57 chance, where the national average for my age is 1 in 245. Everything looked normal on the ultrasound, heartbeat was
Sukibubs
in
Fertility Network UK
3 years ago
Carrie Ann Inaba "Sjogren's syndrome, lupus, fibromyalgia, rheumatoid arthritis, "and I have the markers for antiphospholipid syndrome' "
https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
Piscesdreamer
in
LUPUS UK
3 years ago
Carrie Ann Inaba "Sjogren's syndrome, lupus, fibromyalgia, rheumatoid arthritis, "and I have the markers for antiphospholipid syndrome"
(You may need to sign up for a free patient account, I find their emails to be VERY informative) https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
(You may need to sign up for a free patient account, I find their emails to be VERY informative) https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
Piscesdreamer
in
Hughes Syndrome APS Forum
3 years ago
Anyone else have painful knee joints after prolonged ICU stay?
I spent a month in ICU and was intubated most of the time through a tracheostomy (due to double pneumonia caused by Legionnaire's Disease). I also spend a considerable amount of that time in an induced coma and had to relearn walking, hand movements, etc. Two months later I am still suffering from very
I spent a month in ICU and was intubated most of the time through a tracheostomy (due to double pneumonia caused by Legionnaire's Disease). I also spend a considerable amount of that time in an induced coma and had to relearn walking, hand movements, etc. Two months later I am still suffering from very
holdtheprozac
in
ICUsteps
3 years ago
Hypoxia?
I posted a question on a video by Dr Neale Barnard regarding RLS. A kind person posted this in response: Finnish doctor found out that the root cause of restless legs is hypoxia. So, enhancing the blood flow by lifestyle that is beneficial to glycocalyx and eNOS, is a cure 😊 Dr Dean Ornish, Campbell
I posted a question on a video by Dr Neale Barnard regarding RLS. A kind person posted this in response: Finnish doctor found out that the root cause of restless legs is hypoxia. So, enhancing the blood flow by lifestyle that is beneficial to glycocalyx and eNOS, is a cure 😊 Dr Dean Ornish, Campbell
kicker2
in
Restless Legs Syndrome
3 years ago
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