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Richter's syndrome
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Heat pads
After getting rid of pramipexole using kratom, I continued on kratom as it turned out to be quite effective keeping the jittering down. I don't know if it is the cold weather or tolerance to kratom, but RLS is rearing it's ugly head again. The symptoms are disruptive but nothing like the horror I experienced
After getting rid of pramipexole using kratom, I continued on kratom as it turned out to be quite effective keeping the jittering down. I don't know if it is the cold weather or tolerance to kratom, but RLS is rearing it's ugly head again. The symptoms are disruptive but nothing like the horror I experienced
sigurdur
in
Restless Legs Syndrome
6 months ago
Newly Diagnosed with RSL and trying to get my head around it!
In the space of a week I have gone from a sane and active older lady to a sleep deprived zombie, unable to grasp how this diagnosis, which sounds relatively innocuous, is about to disrupt and change my life and I'm struggling to come terms with the prospect of living with what I can only describe as
In the space of a week I have gone from a sane and active older lady to a sleep deprived zombie, unable to grasp how this diagnosis, which sounds relatively innocuous, is about to disrupt and change my life and I'm struggling to come terms with the prospect of living with what I can only describe as
Lettucenotforget
in
Restless Legs Syndrome
6 months ago
Some good news
Just to keep you all up to date. I have been on 50mg daily of Agomelatine, for depression, foe the padt month. I feel the best I have felt in years!. Severe restless legs are 75% better. Some nights I have no rls at all. Always good to have a good news story - especially for me after the last 6 months
Just to keep you all up to date. I have been on 50mg daily of Agomelatine, for depression, foe the padt month. I feel the best I have felt in years!. Severe restless legs are 75% better. Some nights I have no rls at all. Always good to have a good news story - especially for me after the last 6 months
Trish8433
in
Restless Legs Syndrome
6 months ago
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Dry mouth and throat
I have a constantly dry throat and meds, probably from meds. Other than carrying water around with me whenever I go out, or a constant supply of cough sweets, does anyone have any suggestions? Thanks
I have a constantly dry throat and meds, probably from meds. Other than carrying water around with me whenever I go out, or a constant supply of cough sweets, does anyone have any suggestions? Thanks
veggiefan70
in
Fibromyalgia Action UK
6 months ago
removal of rheumatoid nodule
I am due to have a nodule removed from my thumb next month under local anaesthetic. Does anyone know if I have to stop my idacio jab and if so for how long before and after? I am having trouble contacting my advise team!
I am due to have a nodule removed from my thumb next month under local anaesthetic. Does anyone know if I have to stop my idacio jab and if so for how long before and after? I am having trouble contacting my advise team!
Zip1
in
NRAS
9 months ago
What is an ICM?
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
13 days ago
reversal of approval
Ihave been on Buprenorphine for two and a half month and doing well. I was able to stop the Pramipexol. All of a sudden, the pharmacy says it can’t refill it as it doesn’t carry an indication for RLS.. They are Dayi g their pharmacist made a mistake. My doctor has spoken to them and they are demanding
Ihave been on Buprenorphine for two and a half month and doing well. I was able to stop the Pramipexol. All of a sudden, the pharmacy says it can’t refill it as it doesn’t carry an indication for RLS.. They are Dayi g their pharmacist made a mistake. My doctor has spoken to them and they are demanding
teakabeagle
in
Restless Legs Syndrome
6 months ago
Propafenone Back!!!
JimF here in the U.S. A while back I posted regarding the critical shortages of Propafenone, which then bled over to shortages of Flecainide and Tikosyn.......which may continue until February. I'm happy to say that my 90 day supply of propafenone has just been refilled by my pharmacy, a truly "thank
JimF here in the U.S. A while back I posted regarding the critical shortages of Propafenone, which then bled over to shortages of Flecainide and Tikosyn.......which may continue until February. I'm happy to say that my 90 day supply of propafenone has just been refilled by my pharmacy, a truly "thank
frazeej
in
AF Association
6 months ago
Requip and Collagen
I have been taking Requip for several years and started taking Collagen last year as I had come off HRTand my hair and nails were in a terrible condition. I seem to remember seeing that taking both was not advised, is that correct? I have gone back on HRT but it has not made any difference.
I have been taking Requip for several years and started taking Collagen last year as I had come off HRTand my hair and nails were in a terrible condition. I seem to remember seeing that taking both was not advised, is that correct? I have gone back on HRT but it has not made any difference.
Brenda48
in
Restless Legs Syndrome
6 months ago
Update
I've finally come off ropinirole and am taking pregabalin150 mg only. It's not been easy. It's now 4 weeks since the last sliver of ropinirole and since then the symptoms have started to slowly creep back. I know from advice here that this is to be expected and the pregabalin dose can be increased. The
I've finally come off ropinirole and am taking pregabalin150 mg only. It's not been easy. It's now 4 weeks since the last sliver of ropinirole and since then the symptoms have started to slowly creep back. I know from advice here that this is to be expected and the pregabalin dose can be increased. The
Firenze1
in
Restless Legs Syndrome
6 months ago
getting off pramipexole
I’ve run into a RLP problem trying to get off pramipexole. I reduced the pramipexole from .5 mg to .375 mg. I’m into my 4 th week. I’ve increased the Gabapentin to 600 mg and having to use codine twice daily. I’m taking 5 mg of codine per dose. I’m still having from moderate to severe RLS pain. I need
I’ve run into a RLP problem trying to get off pramipexole. I reduced the pramipexole from .5 mg to .375 mg. I’m into my 4 th week. I’ve increased the Gabapentin to 600 mg and having to use codine twice daily. I’m taking 5 mg of codine per dose. I’m still having from moderate to severe RLS pain. I need
Moretravel1
in
Restless Legs Syndrome
6 months ago
Coming out of a very very long dark tunnel.
Those of you who have the patience to read my sometimes rambling posts will know that I was taking 6mg of Ropinirole a day and had been taking it for quite some time with Neupro patches before that anyway I finally went private to see a terrific Doctor Jose Thomas at the Spire Hospital in Cardiff who
Those of you who have the patience to read my sometimes rambling posts will know that I was taking 6mg of Ropinirole a day and had been taking it for quite some time with Neupro patches before that anyway I finally went private to see a terrific Doctor Jose Thomas at the Spire Hospital in Cardiff who
HipHop1972
in
Restless Legs Syndrome
6 months ago
Conundrum Gastrin
Hi everyone, does anyone have advice when trying to increase weight when diagnosed with Intestinal Metaplasia and Hyperplasia. I have been doing some research regarding the damage that Gastrin can do when it doesn't switch off (NET's tumours) because of low stomach acid and as the Gastrin is activated
Hi everyone, does anyone have advice when trying to increase weight when diagnosed with Intestinal Metaplasia and Hyperplasia. I have been doing some research regarding the damage that Gastrin can do when it doesn't switch off (NET's tumours) because of low stomach acid and as the Gastrin is activated
Helliborous
in
Pernicious Anaemia Society
2 months ago
Augmentation- Report via Yellow Card Scheme
The MHRA is encouraging people to report adverse side effects via the Yellow Card Scheme. If you have suffered drug induced worsening on Ropinirole, Pramipexole or the Neupro patch, please report to help raise awareness among medical professionals. https://content.govdelivery.com/accounts/UKMHRA/bulletins
The MHRA is encouraging people to report adverse side effects via the Yellow Card Scheme. If you have suffered drug induced worsening on Ropinirole, Pramipexole or the Neupro patch, please report to help raise awareness among medical professionals. https://content.govdelivery.com/accounts/UKMHRA/bulletins
Joolsg
in
Restless Legs Syndrome
6 months ago
No more propafenone!!!! What???
I'm in the U.S., diagnosed PAF ~3 years ago. Have achieved excellent control with propafenone (Rythmol). My pharmacy informed me they cannot refill my prescription, as there is a supply side problem with propafenone. From what I have read, there is a dangerous shortage of propafenone in the U.S and
I'm in the U.S., diagnosed PAF ~3 years ago. Have achieved excellent control with propafenone (Rythmol). My pharmacy informed me they cannot refill my prescription, as there is a supply side problem with propafenone. From what I have read, there is a dangerous shortage of propafenone in the U.S and
frazeej
in
AF Association
6 months ago
Psilocybin
Dear friends: I recently read a post by someone who had a resolution of RLS after medically supervised use of psilocybin. After taking Mirapex, Gabapentin, OxyContin, Methadone, and Horizant, I am desperate for alternatives. The poster lives in CA as do I. I am unable to locate the post via searching
Dear friends: I recently read a post by someone who had a resolution of RLS after medically supervised use of psilocybin. After taking Mirapex, Gabapentin, OxyContin, Methadone, and Horizant, I am desperate for alternatives. The poster lives in CA as do I. I am unable to locate the post via searching
JustVisiting23
in
Restless Legs Syndrome
6 months ago
Side Effects - Ropinirole & Pramipexole
Hi all, I found that the generic Ropinirole gave me nausea but the commercial ReQuip didn't, now ReQuip is being manufactured under license for GSK and the "commercial" ReQuip is giving me nausea. I have thus switched to Pramipexole and I am currently 3 days into GLEPARK generic version, it is giving
Hi all, I found that the generic Ropinirole gave me nausea but the commercial ReQuip didn't, now ReQuip is being manufactured under license for GSK and the "commercial" ReQuip is giving me nausea. I have thus switched to Pramipexole and I am currently 3 days into GLEPARK generic version, it is giving
PaddyMac1
in
Restless Legs Syndrome
6 months ago
Newbie
Please forgive me if I am totally wrong as I have had zero sleep for two nights now. I was put on Pramipexole (i think that is what it is called) but when I needed to increase the dose to four a night I was unable to sleep due to insomnia, so two days ago I started taking Ropinirole which feels like
Please forgive me if I am totally wrong as I have had zero sleep for two nights now. I was put on Pramipexole (i think that is what it is called) but when I needed to increase the dose to four a night I was unable to sleep due to insomnia, so two days ago I started taking Ropinirole which feels like
Gardeninglover8
in
Restless Legs Syndrome
6 months ago
Help ! 1 week post circumcision sensitivity
Hey guys. i got my circumcision done 7 days before. I had a very severe phimosis which i never seen my glance in my life as the foreskin is never retracted back. In terms of pain it’s very mild. But i am very very hypersensitive in the glance whenever i feel a touch down there . Even a small touch is
Hey guys. i got my circumcision done 7 days before. I had a very severe phimosis which i never seen my glance in my life as the foreskin is never retracted back. In terms of pain it’s very mild. But i am very very hypersensitive in the glance whenever i feel a touch down there . Even a small touch is
Megatron2000
in
Sexual Health India
9 months ago
Pramipexole RLS symptoms worse
Just started taking Pramipexole for RLS for the first night. Wow, didn’t know the symptoms would become totally overwhelming all over body too.is this normal, does it settle down? I have Fibromyalgia, which means I also take Duloxetine for the pain and am medication sensitive, but never thought it would
Just started taking Pramipexole for RLS for the first night. Wow, didn’t know the symptoms would become totally overwhelming all over body too.is this normal, does it settle down? I have Fibromyalgia, which means I also take Duloxetine for the pain and am medication sensitive, but never thought it would
Fra3021
in
Restless Legs Syndrome
6 months ago
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