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Richter's syndrome
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Anyone tried a homeopath
My mum has suffered with rls for about 10 years. She's tried ropinerole, pamiprexole, skin patches, gabapentin and pregablin. All of this gave her relief at first and then symptoms returned. Next the doctor gave her topiremade, with this her rls went away however she had really bad depression symptoms
My mum has suffered with rls for about 10 years. She's tried ropinerole, pamiprexole, skin patches, gabapentin and pregablin. All of this gave her relief at first and then symptoms returned. Next the doctor gave her topiremade, with this her rls went away however she had really bad depression symptoms
Bejwo50
in
Restless Legs Syndrome
3 years ago
Is there any advantage to putting off increasing my gabapentin?
Up until about 6 weeks ago the 1500 gabapentin that I take completely controlled my restless legs. Then about once a week I got restless legs. I have exercises that I do that take about 10 minutes that allows me to go back to bed without symptoms. It seems pretty obvious to me that I will eventually
Up until about 6 weeks ago the 1500 gabapentin that I take completely controlled my restless legs. Then about once a week I got restless legs. I have exercises that I do that take about 10 minutes that allows me to go back to bed without symptoms. It seems pretty obvious to me that I will eventually
SueJohnson
in
Restless Legs Syndrome
3 years ago
Coming off Apixaban
I have been on Apixaban 5mg twice a day for 6 months now due to me having a pulmonary embolism due to being bed bound with covid. I’m due to come off my medication today as my doctor insist I not longer need treatment. I’m very nervous to stop taking the tablets and what effects it will have on my body
I have been on Apixaban 5mg twice a day for 6 months now due to me having a pulmonary embolism due to being bed bound with covid. I’m due to come off my medication today as my doctor insist I not longer need treatment. I’m very nervous to stop taking the tablets and what effects it will have on my body
Ladyshnappz
in
Hughes Syndrome APS Forum
3 years ago
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NAC for RLS?
Has anyone tried NAC N-acetylcysteine? Did it help? I accidentally found this, my first thought was how could they miss this? "Glutamate can be reduced in the brains of persons with high glutamate levels within an hour of oral ingestion of N-acetylcysteine" I am taking it at the wrong time! If your
Has anyone tried NAC N-acetylcysteine? Did it help? I accidentally found this, my first thought was how could they miss this? "Glutamate can be reduced in the brains of persons with high glutamate levels within an hour of oral ingestion of N-acetylcysteine" I am taking it at the wrong time! If your
WideBody
in
Restless Legs Syndrome
3 years ago
Relief at last from RSL
Relief at last for my hubby who has suffered with RLS for more then 30 yrs to the point of not being able to sleep or sit down for as long as 52 hours at at time sometimes. Horrible torment. But 3weeks into taking Liquid Magnesium and Liquid Iron and of course lots of prayer he has had almost total
Relief at last for my hubby who has suffered with RLS for more then 30 yrs to the point of not being able to sleep or sit down for as long as 52 hours at at time sometimes. Horrible torment. But 3weeks into taking Liquid Magnesium and Liquid Iron and of course lots of prayer he has had almost total
Nahfranz
in
Restless Legs Syndrome
3 years ago
Newbie - where to start ?
As the title says, I’m new to the forum and very new to RLS. I feel that I’ve been suffering for around 5 years, but of recent it’s getting worst. I have been referred to a chiropractor, but apart from a nice massage, this isn’t helping.. So, I’m 31 years old, 6ft 4 and ‘normal’ build. I lead a fairly
As the title says, I’m new to the forum and very new to RLS. I feel that I’ve been suffering for around 5 years, but of recent it’s getting worst. I have been referred to a chiropractor, but apart from a nice massage, this isn’t helping.. So, I’m 31 years old, 6ft 4 and ‘normal’ build. I lead a fairly
Mpdeadman
in
Restless Legs Syndrome
3 years ago
SHARING A SUCCESSFUL EXPERIENCE
I was going to answer Shumbah, but then I thought that the answer could be interesting for all RLS sufferers. Hello Shumbah and other sufferers: I´m RLS since 30 years ago , I have never taken buprenorphine or any other opioid. I used Dopamine Agonists (in pills and patches) for years, but when the
I was going to answer Shumbah, but then I thought that the answer could be interesting for all RLS sufferers. Hello Shumbah and other sufferers: I´m RLS since 30 years ago , I have never taken buprenorphine or any other opioid. I used Dopamine Agonists (in pills and patches) for years, but when the
Arjiji
in
Restless Legs Syndrome
3 years ago
pramipexole withdrawal
Hi, Will someone give me a good slap for being an old fool ,still off the 0.180 micrograms so halved the o.350 micrograms 2 nights ago and managed to cope ,then last night I thought I wold be smart Alec and took no pramipexole ,was up all night legs doing the highland fling calmed down now ,will not
Hi, Will someone give me a good slap for being an old fool ,still off the 0.180 micrograms so halved the o.350 micrograms 2 nights ago and managed to cope ,then last night I thought I wold be smart Alec and took no pramipexole ,was up all night legs doing the highland fling calmed down now ,will not
auldreekie18
in
Restless Legs Syndrome
3 years ago
Possible sjogrens
Hi. I'm not sure if I can post about this here. I have autoimmune liver disease, PBC, AMA positive. And autoimmune inflammatory arthritis. My rheumatologist feels I may have sjogren's. I have dry eyes and mouth, sore ears, sore jaw and swollen glands under my jaw, painful joints in hands , feet, ankle
Hi. I'm not sure if I can post about this here. I have autoimmune liver disease, PBC, AMA positive. And autoimmune inflammatory arthritis. My rheumatologist feels I may have sjogren's. I have dry eyes and mouth, sore ears, sore jaw and swollen glands under my jaw, painful joints in hands , feet, ankle
Nellies47
in
NRAS
3 years ago
Artificial Sweetener +=insomnia and RLS
I thought I would share my christmas discovery The perils of being a woman always thinking about of waistline. Over the party season , I inceasead my artificial sweetner intake to approximately 6 sachets mostly at night. Most unusual for me I was having nights of being wide awake then resorting to taking
I thought I would share my christmas discovery The perils of being a woman always thinking about of waistline. Over the party season , I inceasead my artificial sweetner intake to approximately 6 sachets mostly at night. Most unusual for me I was having nights of being wide awake then resorting to taking
Shumbah
in
Restless Legs Syndrome
3 years ago
Lip biopsy results
Hi. I had a lip biopsy 3 weeks ago. Rheumatologist feels I've sjogrens but I'm serum neg. I have had dry eyes +mouth, mouth ulcers, sore swollen glands under my jaw, sore ears,sore joints in hands and feet and ankles and wrists,weakness in lower legs and arms , awful fatigue and restless legs. I have
Hi. I had a lip biopsy 3 weeks ago. Rheumatologist feels I've sjogrens but I'm serum neg. I have had dry eyes +mouth, mouth ulcers, sore swollen glands under my jaw, sore ears,sore joints in hands and feet and ankles and wrists,weakness in lower legs and arms , awful fatigue and restless legs. I have
Nellies47
in
The Australian Sjögren's Syndrome Association
3 years ago
what is Ovarian hyperstimulation syndrome (OHSS)
Hi everyone! I had my First IVF app today! we start our fertility meds on 18th jan!! can't wait. Long story short.. I got told I have Ovarian hyper-stimulation syndrome (OHSS) has anyone ever suffered with this? the consultant said a normal percentage is 19.8 but mines 178. iv read up on google (I know
Hi everyone! I had my First IVF app today! we start our fertility meds on 18th jan!! can't wait. Long story short.. I got told I have Ovarian hyper-stimulation syndrome (OHSS) has anyone ever suffered with this? the consultant said a normal percentage is 19.8 but mines 178. iv read up on google (I know
TTC1994
in
Fertility Network UK
3 years ago
Omg Prednisolone
I was diagnosed with PMR approx 18 months and for the last 6 weeks have been on 0mg Pred after following a very slow tapering plan ( advice given on this forum). I had a couple of set backs and had to increase the dose and start tapering again . I was very keen to get off the Pred but soon realised
I was diagnosed with PMR approx 18 months and for the last 6 weeks have been on 0mg Pred after following a very slow tapering plan ( advice given on this forum). I had a couple of set backs and had to increase the dose and start tapering again . I was very keen to get off the Pred but soon realised
Liby57
in
PMRGCAuk
3 years ago
No support from GP - need to change meds
Hi everyone and Merry Christmas! This is my first post to the forum and I'm sorry it's quite a long one. I'm hoping that someone can advise me about a change of medication. I've had RLS since a teenager (now in my 50s). I augmented on Pramipexole about 5 years ago and went through hell to stop. I tried
Hi everyone and Merry Christmas! This is my first post to the forum and I'm sorry it's quite a long one. I'm hoping that someone can advise me about a change of medication. I've had RLS since a teenager (now in my 50s). I augmented on Pramipexole about 5 years ago and went through hell to stop. I tried
Night_raven
in
Restless Legs Syndrome
3 years ago
Erosion of a historically good marriage due to my FND
After a year’s onset of various symptoms, I was diagnosed with FND July 2021. Thanks be to God that I live near a world renown hospital and have a cutting-edge neurologist who is a movement specialist My husband is not responding well to this. He refuses to read any of the literature and doctor notes
After a year’s onset of various symptoms, I was diagnosed with FND July 2021. Thanks be to God that I live near a world renown hospital and have a cutting-edge neurologist who is a movement specialist My husband is not responding well to this. He refuses to read any of the literature and doctor notes
HenriettaPoultryfoot
in
Functional Neurological Disorder - FND Hope
3 years ago
Support group in the US?
Hello Everyone! Is there a support group for the US? I’ve been diagnosed with hyper mobility spectrum disorder and in July I see a geneticist for EDS testing. Thank you!
Hello Everyone! Is there a support group for the US? I’ve been diagnosed with hyper mobility spectrum disorder and in July I see a geneticist for EDS testing. Thank you!
TurquoiseTime
in
Ehlers-Danlos Support UK
3 years ago
tramadol does it work
Hi , Merry Xmas to everyone another year of hell survived with this curse ,on pramipexole for years not working well now thinking of going on tramadol whats your views ,what difference if it is addictive at 83 not long to go so make them better. tried Gabapenton not for me as well as pregabelon appreiate
Hi , Merry Xmas to everyone another year of hell survived with this curse ,on pramipexole for years not working well now thinking of going on tramadol whats your views ,what difference if it is addictive at 83 not long to go so make them better. tried Gabapenton not for me as well as pregabelon appreiate
auldreekie18
in
Restless Legs Syndrome
3 years ago
Chronic fatigue
Hi There. Just a random question. Before I was diagnosed with endometriosis one of the symptoms I suffered with chronic fatigue. In November 2021 I had my laparoscopic surgery, all went well. After two months I am still suffering with chronic fatigue, no energy whatsoever. Can you still suffer with chronic
Hi There. Just a random question. Before I was diagnosed with endometriosis one of the symptoms I suffered with chronic fatigue. In November 2021 I had my laparoscopic surgery, all went well. After two months I am still suffering with chronic fatigue, no energy whatsoever. Can you still suffer with chronic
Cockapoo-2016
in
Endometriosis UK
3 years ago
How long to wait for a tracheotomy
Hello. So my brother has been weaned off sedation abit. However he has been becoming distressed- not surprising as he has a tube down his throat and the nurses have told him where he is. He is still not fully unsedated - his partner is struggling as she showed him a picture of their daughter but he was
Hello. So my brother has been weaned off sedation abit. However he has been becoming distressed- not surprising as he has a tube down his throat and the nurses have told him where he is. He is still not fully unsedated - his partner is struggling as she showed him a picture of their daughter but he was
paris2021
in
ICUsteps
3 years ago
Zinc deficiency
Hi all, I found out i have a zinc deficiency. I have PA and also exocrine pancreatic insufficiency. I am also currently suffering from chronic sinusitis and tinitus. Do any of you have any experience of zinc deficiency? I had a commercial genetic dna test a few years ago and i think the raw data says
Hi all, I found out i have a zinc deficiency. I have PA and also exocrine pancreatic insufficiency. I am also currently suffering from chronic sinusitis and tinitus. Do any of you have any experience of zinc deficiency? I had a commercial genetic dna test a few years ago and i think the raw data says
Luac
in
Pernicious Anaemia Society
3 years ago
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