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RLS-UK New Film - Ropinirole/Pramipexole/Neupro Patch
RLS-UK is commissioning a new film by a documentary company called SuperFolk Films. They have worked with other charities, including Parkinson's UK. The team would like to interview and film UK patients currently reducing Dopamine Agonists. Preferably, near the last stage of reduction. If you are
RLS-UK is commissioning a new film by a documentary company called SuperFolk Films. They have worked with other charities, including Parkinson's UK. The team would like to interview and film UK patients currently reducing Dopamine Agonists. Preferably, near the last stage of reduction. If you are
Kaarina
Administrator
in
Restless Legs Syndrome
1 year ago
My dad
Hi, Everyone: My dad who is 77 years old, has been in the ICU since the beginning of this month. First, he went to the hospital for a minor surgery to remove a benign cyst (pre-cancerous). The surgery went well, but one or two days after while he was still in the hospital, he choked on some food and
Hi, Everyone: My dad who is 77 years old, has been in the ICU since the beginning of this month. First, he went to the hospital for a minor surgery to remove a benign cyst (pre-cancerous). The surgery went well, but one or two days after while he was still in the hospital, he choked on some food and
ForMyPapa
in
ICUsteps
1 year ago
RA and live flu vaccine
HiMy daughter has rung to say my 2 year old grandson has just had a live flu vaccine. She said the GP has said to avoid people with very compromised immune systems, eg. they said, having bone marrow transplants, for a week. She asked if it was safe for them to see me and was told they had no guidance
HiMy daughter has rung to say my 2 year old grandson has just had a live flu vaccine. She said the GP has said to avoid people with very compromised immune systems, eg. they said, having bone marrow transplants, for a week. She asked if it was safe for them to see me and was told they had no guidance
Julia31
in
NRAS
1 year ago
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Flu and lupus flare
Hi everyone hope this finds you as well as can be expected, Has anyone had the Flu and had an odd flare when you get pains under rib cage but can take deep breath okay but the at random chest goes tight and feel lightheaded and have to rest on bed? Blood pressure seems normal. this has been going on
Hi everyone hope this finds you as well as can be expected, Has anyone had the Flu and had an odd flare when you get pains under rib cage but can take deep breath okay but the at random chest goes tight and feel lightheaded and have to rest on bed? Blood pressure seems normal. this has been going on
Geeforce99
in
LUPUS UK
1 year ago
Could my son have Ehlers-Danlos? Who to ask about diagnosis?
Hi everyone, I've joined the group today as I'm not sure if my son has hypermobile EDS and I'm not sure where to turn and what to do next. He has lots of niggly health issues which I'm starting to think might be EDS (or I could be adding 2+2=5). Since he was about 6 months old he has suffered horrendously
Hi everyone, I've joined the group today as I'm not sure if my son has hypermobile EDS and I'm not sure where to turn and what to do next. He has lots of niggly health issues which I'm starting to think might be EDS (or I could be adding 2+2=5). Since he was about 6 months old he has suffered horrendously
CN4321
in
Ehlers-Danlos Support UK
1 year ago
finished Neupro taper and looking for guidance on increasing my Gabapentin dosage
I’ve been taking Neupro 1mg and 400mg x 2 Gabapentin daily for my RLS. In the last 3 months I tapered off Neupro (1mg to 0.75 to 0.5 to 0.25 to 0) with my neurologist since I was experiencing more RLS symptoms despite being on Neupro. My RLS symptoms appeared most nights during the taper and I managed
I’ve been taking Neupro 1mg and 400mg x 2 Gabapentin daily for my RLS. In the last 3 months I tapered off Neupro (1mg to 0.75 to 0.5 to 0.25 to 0) with my neurologist since I was experiencing more RLS symptoms despite being on Neupro. My RLS symptoms appeared most nights during the taper and I managed
Discopage
in
Restless Legs Syndrome
1 year ago
Having a Covid Booster vaccination and Flu vaccination at the same time with Lupus (SLE)
Hi everyone, I need to get a Covid booster vaccination and also a Flu jab. The WHO suggests that it’s safe to have both vaccinations at the same time (in different arms) but I was wondering if there was anyone here with personal experience of having SLE and getting both of these vaccinations. Thanks
Hi everyone, I need to get a Covid booster vaccination and also a Flu jab. The WHO suggests that it’s safe to have both vaccinations at the same time (in different arms) but I was wondering if there was anyone here with personal experience of having SLE and getting both of these vaccinations. Thanks
MariaVT
in
LUPUS UK
1 year ago
What Stress Does to the Body After 50. The older we are, the more chronic stress can damage our health. But there are ways to tame the worry
AARP https://www.aarp.org/health/healthy-living/info-2023/how-stress-affects-your-health-after-50.html
AARP https://www.aarp.org/health/healthy-living/info-2023/how-stress-affects-your-health-after-50.html
MBAnderson
in
Cure Parkinson's
1 year ago
Covid
I started to have cold symptoms a week ago and took a test which was negative. Felt like the worse cold ever - terrible muscle aches, cough and congestion. After a couple of days I realised I couldn’t smell anything . My daughter who is a nurse said it sounds like Covid so I tested again and this
I started to have cold symptoms a week ago and took a test which was negative. Felt like the worse cold ever - terrible muscle aches, cough and congestion. After a couple of days I realised I couldn’t smell anything . My daughter who is a nurse said it sounds like Covid so I tested again and this
Wesleygrange2a
in
MPN Voice
1 year ago
The Flu Jab.
The Flu Jab. Good afternoon everyone. I went along along for my yearly Flu Jab yesterday morning early doors and had mine done. I had a fairly busy day so when my jab was complete I put it to the back of my mind. As yesterday went on I felt a little more tired that usual so I went to bed a little earlier
The Flu Jab. Good afternoon everyone. I went along along for my yearly Flu Jab yesterday morning early doors and had mine done. I had a fairly busy day so when my jab was complete I put it to the back of my mind. As yesterday went on I felt a little more tired that usual so I went to bed a little earlier
Joseph260268
in
Lung Conditions Community Forum
1 year ago
This might be found useful?
I was on here quite a bit after a total knee replacement two years ago. Nothing much seemed to help that wasn't either an opoid or some other harsh drug. I decided to load up on Fenugreek water each day (one quart from simmering 2 Tablesp. seed in one quart of water, cooling, then straining-seeds can
I was on here quite a bit after a total knee replacement two years ago. Nothing much seemed to help that wasn't either an opoid or some other harsh drug. I decided to load up on Fenugreek water each day (one quart from simmering 2 Tablesp. seed in one quart of water, cooling, then straining-seeds can
Dedou
in
Restless Legs Syndrome
1 year ago
Covid & Flu booster
Hello everyone I recently started on Benapali injections….2nd one this week so obviously can’t tell if it’s helping yet. So far only tiredness as side effect. Do I have to stop for 1 week before having the Covid and flu boosters ? Also I am due my second Shingles vaccination and trying to avoid
Hello everyone I recently started on Benapali injections….2nd one this week so obviously can’t tell if it’s helping yet. So far only tiredness as side effect. Do I have to stop for 1 week before having the Covid and flu boosters ? Also I am due my second Shingles vaccination and trying to avoid
K3-2
in
NRAS
1 year ago
Lyrica pregabalin
Since Horizant is now breaking down before 24 hours, I’m thinking of switching to Pregabalin/Lyrica. What is the group’s experience with pregabalin? Has it helped people?
Since Horizant is now breaking down before 24 hours, I’m thinking of switching to Pregabalin/Lyrica. What is the group’s experience with pregabalin? Has it helped people?
tagaxel
in
Restless Legs Syndrome
1 year ago
Cold and MTX
Hello everyone I've had a cold, bunged up nose, sore throat and slight chesty cough since Tuesday. I'm scheduled to take my weekly MTX on Sunday. Should I take it? I seem to remember reading that I could safely miss a dose and it was actually advised that you should temporary stop the medication if unwell
Hello everyone I've had a cold, bunged up nose, sore throat and slight chesty cough since Tuesday. I'm scheduled to take my weekly MTX on Sunday. Should I take it? I seem to remember reading that I could safely miss a dose and it was actually advised that you should temporary stop the medication if unwell
tina-shelley
in
NRAS
1 year ago
Aids post knee replacement
I'm due a total knee replacement next month. I already have an easy reach grabber, a leg raiser and a raised toilet seat from when I had a new hip last year. Are there other things that people have found helpful? Thanks 😊 x
I'm due a total knee replacement next month. I already have an easy reach grabber, a leg raiser and a raised toilet seat from when I had a new hip last year. Are there other things that people have found helpful? Thanks 😊 x
greynot
in
NRAS
1 year ago
Another cold . 2 nd one in the last month. On methotrexate and lefluamide .Fed up
I’ve got another cold .Checked for Covid ,negative. This is the 2 nd one in a month. Very careful where I go and keep hands gelled but I’ve got a runny nose and cough. Fed up.
I’ve got another cold .Checked for Covid ,negative. This is the 2 nd one in a month. Very careful where I go and keep hands gelled but I’ve got a runny nose and cough. Fed up.
Cal48
in
NRAS
1 year ago
Cold in September
Hi all didn't take long for me to pick up a cold I work with kids. Yesterday I woke up with a cold and my asthma flaring up. Struggled through work with salamol. Took my rescue steriods last evening and this morning. No work today and resting at home. Salamol at regular intervals. Feel wiped out, no
Hi all didn't take long for me to pick up a cold I work with kids. Yesterday I woke up with a cold and my asthma flaring up. Struggled through work with salamol. Took my rescue steriods last evening and this morning. No work today and resting at home. Salamol at regular intervals. Feel wiped out, no
elanaoali
in
Asthma Community Forum
1 year ago
Effect of a bad cold?
I was comfortably working my way down via DSNS from 8.5 to 8 when I caught a nasty cold (negative for covid). The morning pain in my shoulders became very unpleasant, though not to the level of what I would call a flare, which I have experienced before. The pain subsided but never really left all day
I was comfortably working my way down via DSNS from 8.5 to 8 when I caught a nasty cold (negative for covid). The morning pain in my shoulders became very unpleasant, though not to the level of what I would call a flare, which I have experienced before. The pain subsided but never really left all day
papadapadoo
in
PMRGCAuk
1 year ago
Lifestyle
Hi everyone need a little help?I've got a cold,what do yous recommended to take?
Hi everyone need a little help?I've got a cold,what do yous recommended to take?
Hamish12
in
COPD Friends
1 year ago
Nasal Flu Vaccination
Hi everyone, I have PMR and currently on 10mg of Prednisolone. Should I avoid contact with my Grandaughter for a while when she has received the Nasal Flu Drops. Thank you Jenny
Hi everyone, I have PMR and currently on 10mg of Prednisolone. Should I avoid contact with my Grandaughter for a while when she has received the Nasal Flu Drops. Thank you Jenny
Attic
in
PMRGCAuk
1 year ago
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