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Red nose after Raynaud’s diagnosis
Morning all 😀 I was diagnosed with Raynaud’s last winter and have since been experiencing horrible nose and cheek issues. m when I get hot or if I eat hot food my nose and cheeks pulsate and go bright red. It then goes almost back to normal as I cool down!! this has left me with a redder than normal
Morning all 😀 I was diagnosed with Raynaud’s last winter and have since been experiencing horrible nose and cheek issues. m when I get hot or if I eat hot food my nose and cheeks pulsate and go bright red. It then goes almost back to normal as I cool down!! this has left me with a redder than normal
Tor1972
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Femseven conti patches
Hi,Has anyone been prescribed femseven conti patches? I've been prescribed these by the nurse at the GP surgery as an alternative to evorel as they were making me bleed and my anxiety was really bad. I've read on the packet they could increase fibroids so not sure I should be taking them. I'm on 3
Hi,Has anyone been prescribed femseven conti patches? I've been prescribed these by the nurse at the GP surgery as an alternative to evorel as they were making me bleed and my anxiety was really bad. I've read on the packet they could increase fibroids so not sure I should be taking them. I'm on 3
Sheep2
in
Endometriosis UK
1 year ago
Rising PSA
Going into 7 years. No prostate. ADT on and off. Recently while on Lupron & NUBEQA PSA continues to rise. Now at 10.1 and Testosterone nondectable. PSMA/PET/CT scan last weeks states no metastases present. We meet with Dr. Aggarwal next week. Last month at our visit he told us at this point “Scans
Going into 7 years. No prostate. ADT on and off. Recently while on Lupron & NUBEQA PSA continues to rise. Now at 10.1 and Testosterone nondectable. PSMA/PET/CT scan last weeks states no metastases present. We meet with Dr. Aggarwal next week. Last month at our visit he told us at this point “Scans
JolleySprings
in
Advanced Prostate Cancer
6 months ago
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Dental Issues on Finesteride
Five weeks after starting on finesteride 5 mg I developed painfully sensitive teeth both top and bottom on left side of my mouth. Here's what a google search turned up: https://forum.propeciahelp.com/t/propecia-and-dental-problems/1254 https://www.ehealthme.com/ds/finasteride/toothaches/ I became
Five weeks after starting on finesteride 5 mg I developed painfully sensitive teeth both top and bottom on left side of my mouth. Here's what a google search turned up: https://forum.propeciahelp.com/t/propecia-and-dental-problems/1254 https://www.ehealthme.com/ds/finasteride/toothaches/ I became
fast_eddie
in
Fight Prostate Cancer
6 months ago
Testosterone Recovery Time after 1 Year of ADT?
I am ending ADT at 1 year. As of today my Testosterone is <0.01. It was 4.3 mg/mL before my first shot. Is there any data on how long it will take a 61 YO to start to see some T come back? Anyone here of a similar age and duration have any words or wisdom on what to expect? My next test will
I am ending ADT at 1 year. As of today my Testosterone is <0.01. It was 4.3 mg/mL before my first shot. Is there any data on how long it will take a 61 YO to start to see some T come back? Anyone here of a similar age and duration have any words or wisdom on what to expect? My next test will
OldVTGuy
in
Prostate Cancer Network
6 months ago
Rising PSA -
Diagnosed: May 2021 age 53 otherwise no health issues. Only symptom was increased urination that progressed to painful urination and inability to fully empty bladder. Highest PSA was 5. MRI showed Mets to pelvic lymph, seminal vessels, and pelvic bone. Gleason 4+3 (80% of samples) 4+5 for 10%. CT
Diagnosed: May 2021 age 53 otherwise no health issues. Only symptom was increased urination that progressed to painful urination and inability to fully empty bladder. Highest PSA was 5. MRI showed Mets to pelvic lymph, seminal vessels, and pelvic bone. Gleason 4+3 (80% of samples) 4+5 for 10%. CT
MPCSUX
in
Advanced Prostate Cancer
6 months ago
Firmagon seems to have stopped suppressing testosterone
Hi everyone I have been taking firmagon adt treatment for 6 years for stage 4 cancer last 2 blood tests have one a month showed increase in testosterone 0.76 in December then January test 1.76 this last test also showed a rise in psa has anyone had this problem I'm getting the shot regularly
Hi everyone I have been taking firmagon adt treatment for 6 years for stage 4 cancer last 2 blood tests have one a month showed increase in testosterone 0.76 in December then January test 1.76 this last test also showed a rise in psa has anyone had this problem I'm getting the shot regularly
johnscats
in
Advanced Prostate Cancer
6 months ago
Heart valve replacement - meeting with surgeon
Hi This is the first time I’ve posted so hope you can help please. My hubby has an appointment this Thursday to see the surgeon to discuss mitral heart valve replacement options. It has been such a shock to us both and we are still feeling fairly numbed by it all. There are a number of very obvious
Hi This is the first time I’ve posted so hope you can help please. My hubby has an appointment this Thursday to see the surgeon to discuss mitral heart valve replacement options. It has been such a shock to us both and we are still feeling fairly numbed by it all. There are a number of very obvious
DozyB
in
British Heart Foundation
1 year ago
5Rhythms Challenge - Week 1 of 3
We’re getting started with the 5-Rhythms! As some of you may know, 5Rhythms is a movement meditation practice devised by Gabrielle Roth in the late 1970s. It is said to put the body in motion, in order to still the mind. The five rhythms (in order) are
Flowing, Staccato, Chaos, Lyrical
We’re getting started with the 5-Rhythms! As some of you may know, 5Rhythms is a movement meditation practice devised by Gabrielle Roth in the late 1970s. It is said to put the body in motion, in order to still the mind. The five rhythms (in order) are
Flowing, Staccato, Chaos, Lyrical
CBDB
Administrator
in
Strength & Flex
10 months ago
PSA Gone Up
I had RP in January of 2023, started ADT in May of 2023 and went through 38 session of SRT between July and August. In am currently on my second six month dose of Eligard and it should be done in May of this year. In November 2023, I had my first PSA test since SRT and it was .008 ng/mL. I just got
I had RP in January of 2023, started ADT in May of 2023 and went through 38 session of SRT between July and August. In am currently on my second six month dose of Eligard and it should be done in May of this year. In November 2023, I had my first PSA test since SRT and it was .008 ng/mL. I just got
toyman79912
in
Advanced Prostate Cancer
6 months ago
PSA holding low after all!!
As I complained a couple of months ago that PSA could be increasing, today the PSA moved a bit down from 0.03 3 months ago to 0.01 today :-), so I needed to write a few words here about my feelings. With a warm-hearted attitude, somehow enthusiastic but foolish too, as these things are never static,
As I complained a couple of months ago that PSA could be increasing, today the PSA moved a bit down from 0.03 3 months ago to 0.01 today :-), so I needed to write a few words here about my feelings. With a warm-hearted attitude, somehow enthusiastic but foolish too, as these things are never static,
Paulo1968
in
Advanced Prostate Cancer
6 months ago
3 month PSA post RT/ADT, low enough?
51, diagnosed at age 50 (Pirad 5 w/ ECE, 3+4 (20%), PSA 10.1, negative PSMA, Decipher high 0.84). I received SBRT treatment at UCLA in late October, 2023 (finished 10/25). I’ve been on ADT since October 16, 2023 and am scheduled to end ADT this March. I had my first follow up PSA test on 1/19 and it
51, diagnosed at age 50 (Pirad 5 w/ ECE, 3+4 (20%), PSA 10.1, negative PSMA, Decipher high 0.84). I received SBRT treatment at UCLA in late October, 2023 (finished 10/25). I’ve been on ADT since October 16, 2023 and am scheduled to end ADT this March. I had my first follow up PSA test on 1/19 and it
sptill72
in
Prostate Cancer Network
6 months ago
Orchidectomy vs ADT
For anyone who had the bilateral orchidectomy, I would like some advice for my husband. When was it done? Before or after BCR occurred? What are the side effects? Do you take any other ADT meds after? How is your QOL and is there anything you'd do differently. He had RP in Dec 2021. No other treatment
For anyone who had the bilateral orchidectomy, I would like some advice for my husband. When was it done? Before or after BCR occurred? What are the side effects? Do you take any other ADT meds after? How is your QOL and is there anything you'd do differently. He had RP in Dec 2021. No other treatment
tn12
in
Advanced Prostate Cancer
6 months ago
My Oligometastatic PCa Journey Continues...coming up on year 9!
It's been a while since I've posted. But wanted to offer a note of
encouragement
for those here that have
oligometastatic prostate cancer
. I was diagnosed in 2015 (227 PSA, Gleason 8, 1 MET in the spine) and still going strong. After years of
hormone therapy
, 6 rounds of
chemo
It's been a while since I've posted. But wanted to offer a note of
encouragement
for those here that have
oligometastatic prostate cancer
. I was diagnosed in 2015 (227 PSA, Gleason 8, 1 MET in the spine) and still going strong. After years of
hormone therapy
, 6 rounds of
chemo
JamesAtlanta
in
Advanced Prostate Cancer
6 months ago
Red-Light Therapy - To Wait, or Not to Wait?
That is the question. I've spent several mornings researching RLT and while I've found a few small clinical trials and descriptions of various kinds of light therapy (see https://www.apdaparkinson.org/article/light-therapy-for-parkinsons-disease/), as well as self-promoting ads by device producers
That is the question. I've spent several mornings researching RLT and while I've found a few small clinical trials and descriptions of various kinds of light therapy (see https://www.apdaparkinson.org/article/light-therapy-for-parkinsons-disease/), as well as self-promoting ads by device producers
Alock2020
in
Cure Parkinson's
10 months ago
Lupron Question.
I have been on Lupron since June 2022. September 2023 Abiraterone and 5mg of prednisone was added. Psa was 19 in Sept and dropped to 1.26 as of Jan. 11 2024. Since going on Abi when I get a monthly Lupron shot I have trouble sleeping that first night and mild flu like symptoms the next day. I have agreed
I have been on Lupron since June 2022. September 2023 Abiraterone and 5mg of prednisone was added. Psa was 19 in Sept and dropped to 1.26 as of Jan. 11 2024. Since going on Abi when I get a monthly Lupron shot I have trouble sleeping that first night and mild flu like symptoms the next day. I have agreed
Professorgary
in
Advanced Prostate Cancer
6 months ago
Clavicular joint pain
Hello you supporting People. I am on Lupron since seven months. I try to be serious about rather heavy weightlifting. In the beginning of my ADT journey my achilles tendons were sore. Then pain moved to anterior knees and lately to my all four clavicular joints and refering to my neck.This is really
Hello you supporting People. I am on Lupron since seven months. I try to be serious about rather heavy weightlifting. In the beginning of my ADT journey my achilles tendons were sore. Then pain moved to anterior knees and lately to my all four clavicular joints and refering to my neck.This is really
Gs-rider
in
Advanced Prostate Cancer
6 months ago
Higher pulse than average
I’m quite fit but am feeling as though I’ve run a marathon - heart rate up and air hungry . I have UAT and take Armour Thyroid. I’ve reduced the dose from 1 grain am and pm to 1 am and 1/2 pm but it hasn’t made any difference. This has been happening for about two weeks now. I also take HRT, vitamin
I’m quite fit but am feeling as though I’ve run a marathon - heart rate up and air hungry . I have UAT and take Armour Thyroid. I’ve reduced the dose from 1 grain am and pm to 1 am and 1/2 pm but it hasn’t made any difference. This has been happening for about two weeks now. I also take HRT, vitamin
Karen-Eleanor
in
Thyroid UK
1 year ago
Bicalutamide Vs Eligard
I'm just starting my journey which will involve ADT and RT. The RT is scheduled to happen in early July and ADT to start soon. No spread according to Pet scan. Gleason 4+4 and PSA 7.9. Absolutely no symptoms whatsoever, feeling good for a 65yo. RO doesn't seem to be in any hurry. I have a few important
I'm just starting my journey which will involve ADT and RT. The RT is scheduled to happen in early July and ADT to start soon. No spread according to Pet scan. Gleason 4+4 and PSA 7.9. Absolutely no symptoms whatsoever, feeling good for a 65yo. RO doesn't seem to be in any hurry. I have a few important
PJT58
in
Advanced Prostate Cancer
6 months ago
Total Hip Replacement tomorrow - yay!
So having been in a lot of pain with my right hip since last September and staving it off with injections, finally I am going into hospital tomorrow for a total hip replacement. Feeling grateful but trepidacious. Have read Dorset Lady’s tips - thank you for those - and have taken them onboard. Doing
So having been in a lot of pain with my right hip since last September and staving it off with injections, finally I am going into hospital tomorrow for a total hip replacement. Feeling grateful but trepidacious. Have read Dorset Lady’s tips - thank you for those - and have taken them onboard. Doing
SusyTe
in
PMRGCAuk
1 year ago
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