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Trying to stay positive when I dont "get" it
This pelvic floor tightness came out of nowhere several weeks ago. I never ever knew this existed. Now Im in on baclofen/valium suppositories, HRT therapy 3x a week. I go for hrs where I have no pain and then the spasms and throbbing begins. Is there anyone else going thru a similar situation? Im scared
This pelvic floor tightness came out of nowhere several weeks ago. I never ever knew this existed. Now Im in on baclofen/valium suppositories, HRT therapy 3x a week. I go for hrs where I have no pain and then the spasms and throbbing begins. Is there anyone else going thru a similar situation? Im scared
QueenVic1952
in
Pelvic Pain Support Network
1 year ago
NY Proton Center and Cyberknife at NYU Langone.
Hi Everyone, You were all so kind when I had a bit of a meltdown learning about my diagnosis and then finding this forum. Thank you all from the bottom of my heart. I took everyone’s advice. Slowing things down and doing my homework. I just wanted to mention a couple of items. I met with a very well
Hi Everyone, You were all so kind when I had a bit of a meltdown learning about my diagnosis and then finding this forum. Thank you all from the bottom of my heart. I took everyone’s advice. Slowing things down and doing my homework. I just wanted to mention a couple of items. I met with a very well
LBRV711
in
Prostate Cancer Network
10 months ago
Erleada & ADT
just started Erleada with my ADY, I enjoy pot daily, anyone else smoke pot and are on the above. No side effects yet!!!
just started Erleada with my ADY, I enjoy pot daily, anyone else smoke pot and are on the above. No side effects yet!!!
Leaffan57
in
Advanced Prostate Cancer
6 months ago
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Hyperbaric oxygen therapy
Hi Im in the middle of a bronchietasis flareup folowing flu 6 weeks ago and chest infection. Ive had a week of Amoxycilin a course of steroids and now coming to the end of 2 week Doxycycline. Im not sure Im back to my self.Yesterday I had my first session in the divers tank ( the service runs out of
Hi Im in the middle of a bronchietasis flareup folowing flu 6 weeks ago and chest infection. Ive had a week of Amoxycilin a course of steroids and now coming to the end of 2 week Doxycycline. Im not sure Im back to my self.Yesterday I had my first session in the divers tank ( the service runs out of
Topsy-Turvey
in
Lung Conditions Community Forum
9 months ago
Is ADT routinely given after prostatectomy
Trying to decide between prostatectomy and radiation (I understand if there was recurrence, I would have to do radiation and ADT) Is surgery the best chance to avoid ADT altogether Also, can anyone recommended a Surgeon at MD Anderson I also have urinary symptoms due to an enlarged prostate, I
Trying to decide between prostatectomy and radiation (I understand if there was recurrence, I would have to do radiation and ADT) Is surgery the best chance to avoid ADT altogether Also, can anyone recommended a Surgeon at MD Anderson I also have urinary symptoms due to an enlarged prostate, I
Vortex12
in
Prostate Cancer Network
6 months ago
Speech therapy
I would like to know if there are any members in this group who has speech problems with low voice pitch , because of which they are undergoing speech therapy conducted by Parkinson voice project
I would like to know if there are any members in this group who has speech problems with low voice pitch , because of which they are undergoing speech therapy conducted by Parkinson voice project
Ripraniya
in
Cure Parkinson's
10 months ago
Dental Issues with Finesteride
I am 7 years post full gland HIFU surgery. Quality of life remains good. I've been off ADT all this time. PSA has been slowly rising and hit 2.8. My urologist put me on finesteride. It prevents the conversion of T to DHT. Five weeks after starting on it I experienced an onslaught of dental problems.
I am 7 years post full gland HIFU surgery. Quality of life remains good. I've been off ADT all this time. PSA has been slowly rising and hit 2.8. My urologist put me on finesteride. It prevents the conversion of T to DHT. Five weeks after starting on it I experienced an onslaught of dental problems.
fast_eddie
in
Advanced Prostate Cancer
6 months ago
Radiation 10+ years after initial imrt
Psma detected a small area of cancer in what is left of my prostate…..psa of 20 at that time. After 3 months of eligard ,abiraterone and prednisone dropped to 0.04. MO and local radiologic oncologist are recommending a consult at MSK for tx of this area by whatever means might be the most safe and
Psma detected a small area of cancer in what is left of my prostate…..psa of 20 at that time. After 3 months of eligard ,abiraterone and prednisone dropped to 0.04. MO and local radiologic oncologist are recommending a consult at MSK for tx of this area by whatever means might be the most safe and
Tommyj2
in
Advanced Prostate Cancer
3 months ago
W&W, Sepsis, Pneumonia,Cellulitis, FEVERS ! - ???
Had my first visit to the Hematologist . He was patient, he was kind , he was very informative and most important to me , he asked me what my questions and concerns were. Unlike a lot of doctors I worked with as a nurse , ( who MANY have seemed to have lost their Sensitivity chip ) , he was full
Had my first visit to the Hematologist . He was patient, he was kind , he was very informative and most important to me , he asked me what my questions and concerns were. Unlike a lot of doctors I worked with as a nurse , ( who MANY have seemed to have lost their Sensitivity chip ) , he was full
Sillysand
in
CLL Support
1 year ago
Intermediate favorable vs. unfavorable Gleason 7 acc.to 2 doctors + CLEAN PSMA, do we need third opinion +where? (Green Bay/Milwaukee areas)
Hello all~ I am writing as spokesperson and chief researcher for my husband, Steve. He is 75 and was dx'ed w/prostate cancer on 11/27 by his urologist after some months following a bad UTI and subsequent catheterization to "rest his bladder" by initial NP (whom we saw upon referral but subsequently
Hello all~ I am writing as spokesperson and chief researcher for my husband, Steve. He is 75 and was dx'ed w/prostate cancer on 11/27 by his urologist after some months following a bad UTI and subsequent catheterization to "rest his bladder" by initial NP (whom we saw upon referral but subsequently
AliceinW57
in
Prostate Cancer Network
6 months ago
Should Perineural Invasion (PNI) change my Radiation Treatment Plan
Hi everyone. A quick background. Age 59. Was diagnosed in Nov 2023 with Gleason 3+4=7 Intermediate Unfavorable (10 of 15 cores positive) and tumor in both side of prostate. PSA 5.9 Decipher .49 Bone Scan showed no metastasis Met with Multi Discipline team at Inova Schar Cancer Institute in Fairfax
Hi everyone. A quick background. Age 59. Was diagnosed in Nov 2023 with Gleason 3+4=7 Intermediate Unfavorable (10 of 15 cores positive) and tumor in both side of prostate. PSA 5.9 Decipher .49 Bone Scan showed no metastasis Met with Multi Discipline team at Inova Schar Cancer Institute in Fairfax
Seminole0412
in
Advanced Prostate Cancer
6 months ago
Hot Flashes and Veozah
I am 19 months into my 2 years on ADT + Zytiga & P. 6 months into it, I started experiencing severe hot flashes. Severe = Full body sweats, dripping off my brow, palms wet and needing to mop it off my chest or change my shirt. Every 1 -2 hours. I tried 4 antidepressants that didn't work. I then
I am 19 months into my 2 years on ADT + Zytiga & P. 6 months into it, I started experiencing severe hot flashes. Severe = Full body sweats, dripping off my brow, palms wet and needing to mop it off my chest or change my shirt. Every 1 -2 hours. I tried 4 antidepressants that didn't work. I then
Huzzah1
in
Advanced Prostate Cancer
6 months ago
Prostate cancer treatment and sexual mutilation
Well well. In the midst of the club no one wants to be a part of and just wanted to add my input. It seems that the treatment of prostate cancer often glazes over the fact that you will be sexually impacted severely. Depending on treatment outcome that could be a 0 to 7. Seems like the topic isn’t really
Well well. In the midst of the club no one wants to be a part of and just wanted to add my input. It seems that the treatment of prostate cancer often glazes over the fact that you will be sexually impacted severely. Depending on treatment outcome that could be a 0 to 7. Seems like the topic isn’t really
Yokohama2023
in
Advanced Prostate Cancer
6 months ago
Newly diagnosed researching lifestyle changes
Hi there, Had a overall physical of everything which included PSA which was 6 in 2016 and didn't put any attention to it and ignored it, nobody I spoke with who saw the report said to do anything. No family history of prostate cancer that I know of. Now 7 years later age 64, PSA 18, Free PSA 11%
Hi there, Had a overall physical of everything which included PSA which was 6 in 2016 and didn't put any attention to it and ignored it, nobody I spoke with who saw the report said to do anything. No family history of prostate cancer that I know of. Now 7 years later age 64, PSA 18, Free PSA 11%
Nwdx
in
Advanced Prostate Cancer
5 months ago
Staring at my unopened bottle of Orgovyx
Well, D-day (or maybe O-day) has arrived (thank you FED-X). I'm about to do a swan dive into my battle against my PCa. After a week of searching for this stuff, my clinic found it in Louisville Kentucky at a pharmacy called Onco360. Not exactly a neighborhood corner market with me living on an island
Well, D-day (or maybe O-day) has arrived (thank you FED-X). I'm about to do a swan dive into my battle against my PCa. After a week of searching for this stuff, my clinic found it in Louisville Kentucky at a pharmacy called Onco360. Not exactly a neighborhood corner market with me living on an island
mababa
in
Advanced Prostate Cancer
5 months ago
Cirrhosis diagnosis
I have recently been diagnosed with cirrhosis following abnormal blood test and fibroscan. I am a non drinker, with a BMI 22.3. The specialist says I am one of the 5-7% of people with a fatty liver but not over weight and probably hereditary. This has come as a shock. I only had a blood test because
I have recently been diagnosed with cirrhosis following abnormal blood test and fibroscan. I am a non drinker, with a BMI 22.3. The specialist says I am one of the 5-7% of people with a fatty liver but not over weight and probably hereditary. This has come as a shock. I only had a blood test because
0range5520
in
British Liver Trust
1 year ago
QoLing on a Prayer - a year later & PSA update
https://youtu.be/oabJ6vvz0OI?si=0gy0804F3Yqkp30s It's been a year since the 14th of 28s IMRT and the PSA is https://youtu.be/J2VDEl18rgQ?si=396vEID1xVZAw8S2 and at 1.3 the last two tests 😁, the lowest in 5 years -Woo Hoo For anyone who missed the vid, here ya go: https://photos.app.goo.gl/NkXaWGSHiNYNmvM57
https://youtu.be/oabJ6vvz0OI?si=0gy0804F3Yqkp30s It's been a year since the 14th of 28s IMRT and the PSA is https://youtu.be/J2VDEl18rgQ?si=396vEID1xVZAw8S2 and at 1.3 the last two tests 😁, the lowest in 5 years -Woo Hoo For anyone who missed the vid, here ya go: https://photos.app.goo.gl/NkXaWGSHiNYNmvM57
dockam
in
Advanced Prostate Cancer
3 months ago
Names of ADT and antiADT Drugs
I would like a simple list of the medical names and brand names of the various prostate hormone treatment drugs to keep them straight.
I would like a simple list of the medical names and brand names of the various prostate hormone treatment drugs to keep them straight.
Worked_the_World
in
Advanced Prostate Cancer
6 months ago
Levo and Lio dosage advice please🙏
Hi wonderful forum, I'm in a pickle, always in a pickle😛 please could I have some advice on dosages and next steps, please 😁. 23/1/23 first set of results given to private endocrinologist... FT3. 3.8. 3.1-6.8 FT4. 20.5. 12-22 TSH. 0.54. 0.27-4.2 Was on 175mcg Mercury
Hi wonderful forum, I'm in a pickle, always in a pickle😛 please could I have some advice on dosages and next steps, please 😁. 23/1/23 first set of results given to private endocrinologist... FT3. 3.8. 3.1-6.8 FT4. 20.5. 12-22 TSH. 0.54. 0.27-4.2 Was on 175mcg Mercury
Ankles
in
Thyroid UK
1 year ago
Back in permanent AF and warfarin dose decrease
Hi All, I used to have paroxysmal AF which was ablated by Prof Schilling back in 2010. I had been in NSR. However I was diagnosed with prostate cancer back in the summer. I had huge delays and postponements before I had a biopsy. I eventually got the results 5 weeks later (rather than the two weeks promised
Hi All, I used to have paroxysmal AF which was ablated by Prof Schilling back in 2010. I had been in NSR. However I was diagnosed with prostate cancer back in the summer. I had huge delays and postponements before I had a biopsy. I eventually got the results 5 weeks later (rather than the two weeks promised
MarkS
in
AF Association
6 months ago
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