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MO recommendations at Mayo, Moffitt?
Hello - After 7 months of ADT (Lupron/abi) my MOs are not offering anything but continuation until my PSA fails, so I'd like to network more; so please let me know whom you think are the best at these two places. Thanks in advance.
Hello - After 7 months of ADT (Lupron/abi) my MOs are not offering anything but continuation until my PSA fails, so I'd like to network more; so please let me know whom you think are the best at these two places. Thanks in advance.
jackwfrench
in
Advanced Prostate Cancer
4 months ago
Which Estrogen Patch dose to use?
This plot shows the median serum estrogen (E2) concentration (in pg/mL) versus total Weekly Estrogen patch dose (mg/wk) from five different references ranging from 2000 to 2019. The data set from Smith et. al (2019) is for castrate-resistant prostate cancer men (CRPC), who are not taking ADT. Overall
This plot shows the median serum estrogen (E2) concentration (in pg/mL) versus total Weekly Estrogen patch dose (mg/wk) from five different references ranging from 2000 to 2019. The data set from Smith et. al (2019) is for castrate-resistant prostate cancer men (CRPC), who are not taking ADT. Overall
janebob99
in
Prostate Cancer Network
4 months ago
what next!
I am currently on 4mg and struggling while waiting for a referral to an endocrinologist I am also on the waiting list for a reverse shoulder replacement for my right shoulder I have had full knee and hip replacement also on the right side 2 days ago I was just taking my shoes off and something
I am currently on 4mg and struggling while waiting for a referral to an endocrinologist I am also on the waiting list for a reverse shoulder replacement for my right shoulder I have had full knee and hip replacement also on the right side 2 days ago I was just taking my shoes off and something
AnniesRyder5
in
PMRGCAuk
11 months ago
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Advice on hormonal treatment?
hi all, 10 days post-lap here. Unfortunately ended up losing my left ovary and tube - had 4 endometriomas on it, 1 of which was 8cm, and this was all adhered to my rectum. So the surgeon said it needed to come out. I’m waiting for a post-op appointment but the consultant said the endo will likely come
hi all, 10 days post-lap here. Unfortunately ended up losing my left ovary and tube - had 4 endometriomas on it, 1 of which was 8cm, and this was all adhered to my rectum. So the surgeon said it needed to come out. I’m waiting for a post-op appointment but the consultant said the endo will likely come
Apprentice_Hag
in
Endometriosis UK
4 months ago
Question in Preparation for pBAT
For those who have experience with BAT: I’m getting ready to start my first 30 day cycle of pBAT this week. But I have a concern about my high SHBG (sex hormone binding globulin) level, which is 79 nmol/L. With Eligard ADT in the background, my pBAT program calls for 8 injections of T propionate
For those who have experience with BAT: I’m getting ready to start my first 30 day cycle of pBAT this week. But I have a concern about my high SHBG (sex hormone binding globulin) level, which is 79 nmol/L. With Eligard ADT in the background, my pBAT program calls for 8 injections of T propionate
Ichthus316
in
Fight Prostate Cancer
5 months ago
Similar question to Ezzedine. PSA rising
March 19 I was diagnosed with Gleason 9 prostate cancer. PSA was 0.9 (it turns out I have a non secreting prostate. I had 37 sessions of EBRT and 3 years zoladex. Whilst under ADT and for 1 year after ADT conclusion my PSA was 0.01 (indecipherable) Then a year ago my PSA was 0.02, then 0.03 and last
March 19 I was diagnosed with Gleason 9 prostate cancer. PSA was 0.9 (it turns out I have a non secreting prostate. I had 37 sessions of EBRT and 3 years zoladex. Whilst under ADT and for 1 year after ADT conclusion my PSA was 0.01 (indecipherable) Then a year ago my PSA was 0.02, then 0.03 and last
arry4424
in
Prostate Cancer Network
5 months ago
None of my family message me.
I deleted Facebook around a year ago, and after that I have felt very isolated. During that period of time there has been a lot of introspection and I have noticed that I never receive messages from family members. It is always me sending messages. And then they often stop responding even if I am
I deleted Facebook around a year ago, and after that I have felt very isolated. During that period of time there has been a lot of introspection and I have noticed that I never receive messages from family members. It is always me sending messages. And then they often stop responding even if I am
davidthecoder
in
Anxiety and Depression Support
7 months ago
Disc space narrowing at the lumbosacral level, with hypertrophy of the lower lumbar facet joints.’
Please, does anyone have ‘ disc space narrowing at the lumbosacral level, with hypertrophy of the lower lumbar facet joints.’ ?? I also have bilateral hip replacements plus, severe asthma (controlled mainly by steroid inhalers, oral steroids, antibiotics and numerous other asthma meds)….and CKD
Please, does anyone have ‘ disc space narrowing at the lumbosacral level, with hypertrophy of the lower lumbar facet joints.’ ?? I also have bilateral hip replacements plus, severe asthma (controlled mainly by steroid inhalers, oral steroids, antibiotics and numerous other asthma meds)….and CKD
DollyDutchGirl_1946
in
Pain Concern
11 months ago
Best HRT for...
I have just gone through actual menopause and have had a number of symptoms creep into my life steadily over the past 10 odd years. To help manage them and minimise risk of CVD, Type 2 diabetes, osteoporosis, etc., I am going to embrace HRT and, fingers crossed, get a bit of 'me' back.I know there are
I have just gone through actual menopause and have had a number of symptoms creep into my life steadily over the past 10 odd years. To help manage them and minimise risk of CVD, Type 2 diabetes, osteoporosis, etc., I am going to embrace HRT and, fingers crossed, get a bit of 'me' back.I know there are
Snowybell
in
PCOS UK (Verity)
1 year ago
RT with ADT Relogolix (Orgovyx) vs Enzalutamide (Xtandi) Side Effect Differences?
There may not be a lot of people that can offer anecdotal reports on both as monotherapies but the reason I ask is some studies in the last 3 years are showing administration of Xtandi during Radiotherapy has shown outcomes as good as if not better than RT + ADT. https://www.sciencedirect.com/science
There may not be a lot of people that can offer anecdotal reports on both as monotherapies but the reason I ask is some studies in the last 3 years are showing administration of Xtandi during Radiotherapy has shown outcomes as good as if not better than RT + ADT. https://www.sciencedirect.com/science
jazj
in
Advanced Prostate Cancer
5 months ago
I was just diagnosed with multiple goiters
hello, I have never had any thyroid issues in my life until my doctor felt my neck and said -you have goiters- I got an ultrasound and I have multiple goiters on both sides of my neck. My blood work is in the low end of normal, but now I will be seeing an endocrinologist next week. I am menopausal and
hello, I have never had any thyroid issues in my life until my doctor felt my neck and said -you have goiters- I got an ultrasound and I have multiple goiters on both sides of my neck. My blood work is in the low end of normal, but now I will be seeing an endocrinologist next week. I am menopausal and
Sandalsforever
in
Thyroid UK
1 year ago
Is there such a thing as too fast of a recovery of T on iADT 🫨
After 2 years of ADT, I decided against continuing on that for life and to initiate iADT. Otherwise known as "taking a vacation".I am now 10 weeks without ADT, and my testosterone is already at 104. My questions this time are for others here who have had a similarly quick return of testosterone. I
After 2 years of ADT, I decided against continuing on that for life and to initiate iADT. Otherwise known as "taking a vacation".I am now 10 weeks without ADT, and my testosterone is already at 104. My questions this time are for others here who have had a similarly quick return of testosterone. I
Lewellen
in
Advanced Prostate Cancer
5 months ago
I don't know what to do anymore.
The last time I was here was about 9 months ago. For a reference here is a link to a thread I posted in before. https://healthunlocked.com/my-ocd/posts/149552410/my-ocd-is-sabotaging-my-attempts-to-treat-my-anxiety-and-depression.?responses=149622964 After I was hospitalized for 10 days, I lost my
The last time I was here was about 9 months ago. For a reference here is a link to a thread I posted in before. https://healthunlocked.com/my-ocd/posts/149552410/my-ocd-is-sabotaging-my-attempts-to-treat-my-anxiety-and-depression.?responses=149622964 After I was hospitalized for 10 days, I lost my
Metastar
in
My OCD Community
5 months ago
Confused after ultrasound scan
I am 48 and I have had crohnic pelvic pain for 18 months but have had painful periods and left hand side pain for 20 years. Every uss I have had has come back clear.I had an uss a year ago that came back clear. I saw a nhs gynae in October who said she could feel Fibroids pressing against my bladder
I am 48 and I have had crohnic pelvic pain for 18 months but have had painful periods and left hand side pain for 20 years. Every uss I have had has come back clear.I had an uss a year ago that came back clear. I saw a nhs gynae in October who said she could feel Fibroids pressing against my bladder
Mindfullness4791
in
Endometriosis UK
1 year ago
How many estrogen patches should I use?
I had a nice breakthrough today. 😀 I collected all of the available data on the number of estrogen patches that the studies have used, and plotted the measured serum estradiol level versus total milligrams of estrogen used every week. I was pleasantly surprised when all five of the data points
I had a nice breakthrough today. 😀 I collected all of the available data on the number of estrogen patches that the studies have used, and plotted the measured serum estradiol level versus total milligrams of estrogen used every week. I was pleasantly surprised when all five of the data points
janebob99
in
Advanced Prostate Cancer
5 months ago
How many estrogen patches to use?
I had a nice breakthrough today. 😀 I collected all of the available data on the number of estrogen patches that the studies have used, and plotted the measured serum estradiol level versus total milligrams of estrogen used every week. I was pleasantly surprised when all five of the data points
I had a nice breakthrough today. 😀 I collected all of the available data on the number of estrogen patches that the studies have used, and plotted the measured serum estradiol level versus total milligrams of estrogen used every week. I was pleasantly surprised when all five of the data points
janebob99
in
Prostate Cancer Network
5 months ago
Confused after ultrasound results
I am 48 and I have had crohnic pelvic pain for 18 months but have had painful periods and left hand side pain for 20 years. Every uss I have had has come back clear.I had an uss a year ago that came back clear. I saw a nhs gynae in October who said she could feel Fibroids pressing against my bladder
I am 48 and I have had crohnic pelvic pain for 18 months but have had painful periods and left hand side pain for 20 years. Every uss I have had has come back clear.I had an uss a year ago that came back clear. I saw a nhs gynae in October who said she could feel Fibroids pressing against my bladder
Mindfullness4791
in
Pelvic Pain Support Network
1 year ago
Greater use of Benlysta, Saphnelo seen in US, EU to treat lupus
Goal to reduce long-term glucocorticoids use to prevent side effects
In both the U.S. and Europe, clinicians want to limit treatment with glucocorticoids — steroid hormones whose long-term use for autoimmune diseases is tied to serious side effects — among people with moderate to severe lupus
Goal to reduce long-term glucocorticoids use to prevent side effects
In both the U.S. and Europe, clinicians want to limit treatment with glucocorticoids — steroid hormones whose long-term use for autoimmune diseases is tied to serious side effects — among people with moderate to severe lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
10 months ago
CLL AND RA
About five years ago I was diagnosed with CLL, a high WBC but it is steady, I am getting no treatment, just monitoring for now. This month I was diagnosed with severe RA ,with a sudden onset four months ago. Treatment so far is Enbrel and prednisone. I'm working on tapering off the prednisone, and now
About five years ago I was diagnosed with CLL, a high WBC but it is steady, I am getting no treatment, just monitoring for now. This month I was diagnosed with severe RA ,with a sudden onset four months ago. Treatment so far is Enbrel and prednisone. I'm working on tapering off the prednisone, and now
WLF3
in
CLL Support
11 months ago
PSA vs Testosterone plot has large scatter, but still confirms Morgentaler's Saturation Model.
Here are two plots comparing PSA values to Testosterone levels taken from a pair of large data sets. What is striking is the large amount of scatter in the individual data from both datasets, with factors of 2-6 X deviations from the average (or median) values. The upper plot has N = 255 data points
Here are two plots comparing PSA values to Testosterone levels taken from a pair of large data sets. What is striking is the large amount of scatter in the individual data from both datasets, with factors of 2-6 X deviations from the average (or median) values. The upper plot has N = 255 data points
janebob99
in
Prostate Cancer Network
5 months ago
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