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Super Confused
In January 2011 I was told I was AMA+ and I had PBC. In December 2011 I had a lap band removed and while they we in there I requested a liver biopsy. The results showed I had PBC. I refused any medication for PBC because I was not taking medicine that "may" help slow dow the progression of PBC. Last
In January 2011 I was told I was AMA+ and I had PBC. In December 2011 I had a lap band removed and while they we in there I requested a liver biopsy. The results showed I had PBC. I refused any medication for PBC because I was not taking medicine that "may" help slow dow the progression of PBC. Last
kosy2
in
PBC Foundation
9 months ago
contradiction in the diagnosis of liver cirrhosis
images & Fibroscan shows that i have cirrhosis since more than 12 years. biopsy & Blood test before three years showed fibrosis between F2 to F3 but no cirrhosis , in your opinion which tools is more reliable and do you have such experience of contradiction's during the course of your disease
images & Fibroscan shows that i have cirrhosis since more than 12 years. biopsy & Blood test before three years showed fibrosis between F2 to F3 but no cirrhosis , in your opinion which tools is more reliable and do you have such experience of contradiction's during the course of your disease
Alan21
in
British Liver Trust
9 months ago
Ascites Long Term
Hello All, I've had Ascites now for eighteen months. At first I confused the symptoms with a hernia that I had which has since been repaired. After a visit to my GP, he told me I had IBS and gave me some pills to alleviate that. Two weeks later I was back at the GP's. This time he examined me and said
Hello All, I've had Ascites now for eighteen months. At first I confused the symptoms with a hernia that I had which has since been repaired. After a visit to my GP, he told me I had IBS and gave me some pills to alleviate that. Two weeks later I was back at the GP's. This time he examined me and said
redlion1954
in
British Liver Trust
10 months ago
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Blue Badge
Hoping this might help others I have recently being diagnosed AIH F2 I have days lacking energy and struggle walking etc a friend suggested I apply for a blue badge for parking didn’t think I could however I found the process very quick and simple I had to have assessment as not in receipt of anything
Hoping this might help others I have recently being diagnosed AIH F2 I have days lacking energy and struggle walking etc a friend suggested I apply for a blue badge for parking didn’t think I could however I found the process very quick and simple I had to have assessment as not in receipt of anything
DebbyJ1
in
British Liver Trust
10 months ago
update
hi to those of you that follow me on here and those who don’t just wanted to do a quick update. So I saw Transplant consultant last month and he said I probably won’t live 5 years without a transplant. I went back yesterday as follow up as they are now seeing me monthly, and we’ll I was totally surprised
hi to those of you that follow me on here and those who don’t just wanted to do a quick update. So I saw Transplant consultant last month and he said I probably won’t live 5 years without a transplant. I went back yesterday as follow up as they are now seeing me monthly, and we’ll I was totally surprised
Harriet-sarah
in
British Liver Trust
10 months ago
Vitamins and Supplements
I am in the throws of reading Chris van Tulleken's book Ultra-Processed People. It has been an eye opener. Not that one hasn't been aware of the harms of processed food but perhaps one has been unaware at how extensive it is and also how seemingly malicious for corporate gain? What does come out is
I am in the throws of reading Chris van Tulleken's book Ultra-Processed People. It has been an eye opener. Not that one hasn't been aware of the harms of processed food but perhaps one has been unaware at how extensive it is and also how seemingly malicious for corporate gain? What does come out is
Ridge
in
PMRGCAuk
8 months ago
decompensated liver
Hi all, Around a year ago my mum was admitted to A and E with decompensated liver due to alcohol. It was very hard to get her admitted despite numerous phone calls to the doctors and the ambulance because she had capacity. She had ascites, encephalopathy, oedema and was yellow all over her skin and
Hi all, Around a year ago my mum was admitted to A and E with decompensated liver due to alcohol. It was very hard to get her admitted despite numerous phone calls to the doctors and the ambulance because she had capacity. She had ascites, encephalopathy, oedema and was yellow all over her skin and
xxdaughterxx
in
British Liver Trust
2 days ago
Vitamin A - retinol.
Dr. John Campbell posted a video about how low vitamin A (retinol) levels predispose a person to experience pneumonia from the Mycoplasm pneumoniae which is currently at near epidemic levels among children in northern China. No surprise here to be honest considering the severe lockdowns. Children have
Dr. John Campbell posted a video about how low vitamin A (retinol) levels predispose a person to experience pneumonia from the Mycoplasm pneumoniae which is currently at near epidemic levels among children in northern China. No surprise here to be honest considering the severe lockdowns. Children have
gabkad
in
Thyroid UK
8 months ago
Made to feel ashamed
I'm sorry if this is insignificant but I have just had a 'health review ' at my local doctors and made to feel ashamed and embarrassed and absolutely awful about myself.I have liver cirrhosis, I was ill November 2022 and had numerous scans and it was confirmed by a fibro scan. It scared the hell out
I'm sorry if this is insignificant but I have just had a 'health review ' at my local doctors and made to feel ashamed and embarrassed and absolutely awful about myself.I have liver cirrhosis, I was ill November 2022 and had numerous scans and it was confirmed by a fibro scan. It scared the hell out
HotLemon
in
British Liver Trust
28 days ago
Biopsy and Fibroscan
Hello I was diagnosed with PBC in May after they removed my gallbladder and took a liver biopsy. My questions is...the biopsy state I was Stage 1 but I received a phone call from my gastro yesterday who told me I am at Stage 3 and probable Stage 4 according to the fibroscan. I'm not sure why the discrepancy
Hello I was diagnosed with PBC in May after they removed my gallbladder and took a liver biopsy. My questions is...the biopsy state I was Stage 1 but I received a phone call from my gastro yesterday who told me I am at Stage 3 and probable Stage 4 according to the fibroscan. I'm not sure why the discrepancy
suz56
in
PBCers Organization
10 months ago
When to take Carvedilol?
Hi there, I haven't posted anything for here for a while - but do read other's stories and experiences which is often very helpful - so thank you! I am now taking 12.5mg of carvedilol per day - taking one in the morning and one at night before going to bed - I often feel the morning dose leaves me
Hi there, I haven't posted anything for here for a while - but do read other's stories and experiences which is often very helpful - so thank you! I am now taking 12.5mg of carvedilol per day - taking one in the morning and one at night before going to bed - I often feel the morning dose leaves me
deepwater22
in
British Liver Trust
1 month ago
What Causes Itching
What else besides elevated bilirubin would cause itching with liver disease? My bilirubin level is normal but I itch like crazy sometimes.
What else besides elevated bilirubin would cause itching with liver disease? My bilirubin level is normal but I itch like crazy sometimes.
FlippinOut
in
British Liver Trust
10 months ago
Referral
I'm in stage 4 cirrhosis but confused about my doctor referring me to a transplant clinic while in a compensated condition! I thought it had to be absolutely an emergency for a transplant.
I'm in stage 4 cirrhosis but confused about my doctor referring me to a transplant clinic while in a compensated condition! I thought it had to be absolutely an emergency for a transplant.
TyiseChar1
in
British Liver Trust
10 months ago
Travelling with Insurance
Hi folks, I was diagnosed with Decompensated Cirrhosis 2 years ago and have had regular routine 6 month MRI scans and bloods done which have all shown no features of concern and that my liver has fully recompensated. I mentioned that I was hoping to travel abroad to Spain and asked if I was OK with flying
Hi folks, I was diagnosed with Decompensated Cirrhosis 2 years ago and have had regular routine 6 month MRI scans and bloods done which have all shown no features of concern and that my liver has fully recompensated. I mentioned that I was hoping to travel abroad to Spain and asked if I was OK with flying
Nip1
in
British Liver Trust
10 months ago
Fibrosis?
Hi there. Continuing my journey to recovery, I was today told by my doctor that I need to have a blood test to see if I have any scarring of the liver. My LFT’s are better than they were in June last year. An ultrasound in August 23 noticed a fatty liver. So, can you still get scarring of the liver
Hi there. Continuing my journey to recovery, I was today told by my doctor that I need to have a blood test to see if I have any scarring of the liver. My LFT’s are better than they were in June last year. An ultrasound in August 23 noticed a fatty liver. So, can you still get scarring of the liver
Chris7746
in
British Liver Trust
2 months ago
I have a partner in crime now
It turns out my husband has just been diagnosed with NAFLD. Not that he was not supporting me but he can now properly join me me on my journey get both my liver back to normal 😊 I have NASH Fibrosis 1 and my husband has NAFLD. Apparently he was told a year ago but completely forgot about it and our
It turns out my husband has just been diagnosed with NAFLD. Not that he was not supporting me but he can now properly join me me on my journey get both my liver back to normal 😊 I have NASH Fibrosis 1 and my husband has NAFLD. Apparently he was told a year ago but completely forgot about it and our
Redgreenblue
in
British Liver Trust
10 months ago
liver pain in side. Terrified
I am a heavy drinker who had a scare earlier this year where I was told I had reversible liver damage. I was sober for a month and bloods improved. I foolishly slipped back to my old ways of very heavy daily drinking and now have pain in my right side. I am seeing the doctor tomorrow and can’t see how
I am a heavy drinker who had a scare earlier this year where I was told I had reversible liver damage. I was sober for a month and bloods improved. I foolishly slipped back to my old ways of very heavy daily drinking and now have pain in my right side. I am seeing the doctor tomorrow and can’t see how
LeWabbit
in
British Liver Trust
10 months ago
Is APS hereditary?
I'm just wondering because my dad's keeping getting these nose bleeds and it's just not stopping. He's just had an operation to cut the artery and doc said that will be the end of nose bleeds. Well it's not. He's got what looks like clots coming out of his nose. So I've said maybe mention me with APS
I'm just wondering because my dad's keeping getting these nose bleeds and it's just not stopping. He's just had an operation to cut the artery and doc said that will be the end of nose bleeds. Well it's not. He's got what looks like clots coming out of his nose. So I've said maybe mention me with APS
Charts
in
Hughes Syndrome APS Forum
10 months ago
worried about the future
at what stage of liver cirrhosis, might you need a transplant? does anyone have any experience of an iron infusion? how serious is cirrhosis of the liver and is it a terminal illness; am I going to die? sorry for the questions but I can’t sleep and my brain is whirling around . I’m usually quite positive
at what stage of liver cirrhosis, might you need a transplant? does anyone have any experience of an iron infusion? how serious is cirrhosis of the liver and is it a terminal illness; am I going to die? sorry for the questions but I can’t sleep and my brain is whirling around . I’m usually quite positive
Hopeful85
in
British Liver Trust
10 months ago
Unsure what to do?
Yesterday [Friday 22nd Sept] I recieved a call from the Hospital treating my Cirrhosis to inform me they have had a request from my Heptoligy Doctor for a Biopsy due to them not being able to determine the cause of continued elevating blood results, they have had a cancellation for Monday [25th]. This
Yesterday [Friday 22nd Sept] I recieved a call from the Hospital treating my Cirrhosis to inform me they have had a request from my Heptoligy Doctor for a Biopsy due to them not being able to determine the cause of continued elevating blood results, they have had a cancellation for Monday [25th]. This
tipovtong
in
British Liver Trust
10 months ago
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