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Stoma reversal
I have just had a liver transplant and went back for my first check up, everything is going so well so far. While I was waiting for my liver transplant I had an emergency Stoma surgery and had a bag fitted, the surgeon that gave me my first check up for my liver said in about six months or so they will
I have just had a liver transplant and went back for my first check up, everything is going so well so far. While I was waiting for my liver transplant I had an emergency Stoma surgery and had a bag fitted, the surgeon that gave me my first check up for my liver said in about six months or so they will
Dogbot
in
Living with a Stoma
1 year ago
Has anyone experienced this...
So partner needs transplant, had assessment app last week but got cancelled due to being an in patient in hospital with sepsis. Infection cleared but today doc said kidneys not doing so well today. He has bleeding from lips and nose due to low platelets but they have said they are not giving him platelets
So partner needs transplant, had assessment app last week but got cancelled due to being an in patient in hospital with sepsis. Infection cleared but today doc said kidneys not doing so well today. He has bleeding from lips and nose due to low platelets but they have said they are not giving him platelets
Fauncey
in
British Liver Trust
1 year ago
Dr Google
Is it the only was to test accurately for liver disease is having a liver biopsy, according to Google ultrasound is only 30 odd % CT scan 60 odd % should I just ignore Dr Google
Is it the only was to test accurately for liver disease is having a liver biopsy, according to Google ultrasound is only 30 odd % CT scan 60 odd % should I just ignore Dr Google
Hidden
in
British Liver Trust
1 year ago
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liver dialysis
hello Has anyone heard of this new treatment “Liver Dialysis’ apparently cleans your liver out of toxins, improves your bloods? I’m seeing my transplant team for the first time on 9th Aug and apparently I think I’m boarderline if I need a transplant, so was wondering if this treatment would be better
hello Has anyone heard of this new treatment “Liver Dialysis’ apparently cleans your liver out of toxins, improves your bloods? I’m seeing my transplant team for the first time on 9th Aug and apparently I think I’m boarderline if I need a transplant, so was wondering if this treatment would be better
Harriet-sarah
in
British Liver Trust
1 year ago
Good news
Whilst I am still struggling with getting help for my son, I had a bright spot of news this week. Had a consultation with my liver nurse, first time face to face since lockdown. My bloods have been great for several years, ultrasounds all good too. I had a Fibroscan as I hadn’t had one for around 4
Whilst I am still struggling with getting help for my son, I had a bright spot of news this week. Had a consultation with my liver nurse, first time face to face since lockdown. My bloods have been great for several years, ultrasounds all good too. I had a Fibroscan as I hadn’t had one for around 4
scampi2122
in
British Liver Trust
1 year ago
Tear in oesophagus
Hi Folks , Mum has cirrhosis of the liver , portal hypertension and oesophageal varcies , just out the hospital after getting two pins put in from a tear in oesophagus , blood transfusion , antibiotics etc should we be aware for another bleed , does this normally happen ? Any advice appreciated .
Hi Folks , Mum has cirrhosis of the liver , portal hypertension and oesophageal varcies , just out the hospital after getting two pins put in from a tear in oesophagus , blood transfusion , antibiotics etc should we be aware for another bleed , does this normally happen ? Any advice appreciated .
Sharonmcfarlane
in
British Liver Trust
1 year ago
new diagnosis
Hella all. I was diagnosed a few years ago with nafld and then due to an error had a two year gap between a fibrosis score and getting the results. That showed a jump from 7 to 16 in the score so I was offered another test. The new test gave a result of 28 and a fat scores of 396/400. Understandably
Hella all. I was diagnosed a few years ago with nafld and then due to an error had a two year gap between a fibrosis score and getting the results. That showed a jump from 7 to 16 in the score so I was offered another test. The new test gave a result of 28 and a fat scores of 396/400. Understandably
Hexamon
in
British Liver Trust
1 year ago
2 years and counting…
I had supper with my family yesterday evening. I’d cooked some fish for Good Friday and had opened a bottle of chilled Chablis for them and a sparkling elderflower soft drink for myself. (Belvoir Farm - delicious). We were chatting and my brother reminded me that it was 2 years ago since I’d been in
I had supper with my family yesterday evening. I’d cooked some fish for Good Friday and had opened a bottle of chilled Chablis for them and a sparkling elderflower soft drink for myself. (Belvoir Farm - delicious). We were chatting and my brother reminded me that it was 2 years ago since I’d been in
Aotea2012
in
British Liver Trust
1 year ago
Confused and stressed
I have decompensated liver not alcohol related ten years on methatrixate and fatty liver diagnosed at Easter and hospitalised six weeks ago with ascetics now on reduced fluid spirolactOne 50mgs lactulose 10 mils four times a day carvedilol 6.25mgs a day l have varices macrogol 2sachets a day and frusamideI
I have decompensated liver not alcohol related ten years on methatrixate and fatty liver diagnosed at Easter and hospitalised six weeks ago with ascetics now on reduced fluid spirolactOne 50mgs lactulose 10 mils four times a day carvedilol 6.25mgs a day l have varices macrogol 2sachets a day and frusamideI
Missmanor2
in
British Liver Trust
1 year ago
I don’t understand my diagnosis as it’s changed from being overdosed by opiates (hospital error). Now it’s change.
In 2019 I was found on the floor & I don’t know or recall nothing. I could not see as I had balloon out so big that I was unrecognisable. It was a while to get my sight back but I was also told that I was had Liver failure. All my different consultants got together and realised that I was on so much
In 2019 I was found on the floor & I don’t know or recall nothing. I could not see as I had balloon out so big that I was unrecognisable. It was a while to get my sight back but I was also told that I was had Liver failure. All my different consultants got together and realised that I was on so much
Teanna
in
British Liver Trust
1 year ago
Involvement Opportunity - PRaCTicAL Research Project (UK)
The British Liver Trust are excited to be working with NHS Lothian, University of Edinburgh, Scottish National Blood Transfusion Services (SNBTS) and Cell and Gene Therapy Catapult as part of a collaboration to create the first ‘Centre for Precision Cell Therapy for the Liver’ in the world. PRaCTicAL
The British Liver Trust are excited to be working with NHS Lothian, University of Edinburgh, Scottish National Blood Transfusion Services (SNBTS) and Cell and Gene Therapy Catapult as part of a collaboration to create the first ‘Centre for Precision Cell Therapy for the Liver’ in the world. PRaCTicAL
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
Thiamin
Hi, my gp has prescribed Thiamine, she hasn't said how long I need to take it for ? I have a little bit of fatty liver, but that's all I know, what sort of question should I be asking and how worried should I be?
Hi, my gp has prescribed Thiamine, she hasn't said how long I need to take it for ? I have a little bit of fatty liver, but that's all I know, what sort of question should I be asking and how worried should I be?
Jajay
in
British Liver Trust
1 year ago
Elevated ALT and scared
Hello, I’m 31 and had some bloodwork done last week and I had an ALT of 60, everything else was normal. My doctor didn’t seem very concerned. I am quite overweight and for the first time in my life, trying to lose weight. I’ve lost about 5 kilo in the last 2 months and have about 30 to go. My diet has
Hello, I’m 31 and had some bloodwork done last week and I had an ALT of 60, everything else was normal. My doctor didn’t seem very concerned. I am quite overweight and for the first time in my life, trying to lose weight. I’ve lost about 5 kilo in the last 2 months and have about 30 to go. My diet has
scaredcanadian
in
British Liver Trust
1 year ago
Hereditary Results
Well results are in my cirrhosis isn't Through hereditary gene,have had to constantly fne for results ,all I've been told is I'm being given a medication dont know any more. All I know is I will get bloods done at 6 months. I feel I'm left in limbo Is it my weight that's caused this or meds for high
Well results are in my cirrhosis isn't Through hereditary gene,have had to constantly fne for results ,all I've been told is I'm being given a medication dont know any more. All I know is I will get bloods done at 6 months. I feel I'm left in limbo Is it my weight that's caused this or meds for high
Bmw-Bmw
in
British Liver Trust
1 year ago
strange PBC , LFT back to normal before starting Urso- anyone with similar experience?
I’m 31 and have had raised ALT on and off and GGT (ever since my first pregnancy ) (GGT highest 98 and alt highest 37) and a bit elevated cholesterol,no scaring of the liver (did a fibroscan) , every where i have looked it says your ALP level will decrease if Ursofalk is working. My ALP has never been
I’m 31 and have had raised ALT on and off and GGT (ever since my first pregnancy ) (GGT highest 98 and alt highest 37) and a bit elevated cholesterol,no scaring of the liver (did a fibroscan) , every where i have looked it says your ALP level will decrease if Ursofalk is working. My ALP has never been
Tramezzini
in
PBC Foundation
1 year ago
April 15th Free Workshop with Liver Disease Specialists
Hi Blue Faery community 💙 Join us for a free virtual educational workshop on hepatocellular carcinoma (HCC) with a panel of experienced healthcare providers! In this workshop, you'll hear from four passionate liver disease doctors - Drs. Moon, Olson, Pillai, and Singal - about their experiences with
Hi Blue Faery community 💙 Join us for a free virtual educational workshop on hepatocellular carcinoma (HCC) with a panel of experienced healthcare providers! In this workshop, you'll hear from four passionate liver disease doctors - Drs. Moon, Olson, Pillai, and Singal - about their experiences with
MichelleL_BlueFaery
Editor
in
Blue Faery Liver Cancer
1 year ago
KVSLM
Hi everyone, i wondered if anyone gets a metallic taste in mouth. I have Cirrhosis i take quite a few tablets as im also Diabetic.I also get pain in upper abdomen,and it feels really hard.I feel miserable at moment please help x
Hi everyone, i wondered if anyone gets a metallic taste in mouth. I have Cirrhosis i take quite a few tablets as im also Diabetic.I also get pain in upper abdomen,and it feels really hard.I feel miserable at moment please help x
Ksvlm
in
British Liver Trust
1 year ago
Diag with NAFLD Cirrhosis from biopsy, doctor said theres no difference between a 15kpa and 30kpa fibroscan score, confused?
Hi guys, I had a fibroscan score a couple months back of 30kpa which I took to suggest I had fairly advanced cirrhosis, had a biopsy which confirmed cirrhosis, when I was told the results I asked for liver doctor if given my fibroscan score of 30kpa it meant that I was far gone and could expect to become
Hi guys, I had a fibroscan score a couple months back of 30kpa which I took to suggest I had fairly advanced cirrhosis, had a biopsy which confirmed cirrhosis, when I was told the results I asked for liver doctor if given my fibroscan score of 30kpa it meant that I was far gone and could expect to become
ar_123
in
British Liver Trust
1 year ago
1300"+ steps per day 9 weeks pregnant
i've been finding that i've been unintentionally racking up almost 15000 steps a day because of running around after family, moving house and other stuff. I was put on modified bed rest at the start of my pregnancy due to bleeding and severe cramping. And i get quote a lot of lower torso /back ache at
i've been finding that i've been unintentionally racking up almost 15000 steps a day because of running around after family, moving house and other stuff. I was put on modified bed rest at the start of my pregnancy due to bleeding and severe cramping. And i get quote a lot of lower torso /back ache at
pinky30
in
Fertility Network UK - Pregnancy Support
2 years ago
Fatigue after eating
Hello - I was diagnosed with decompensated cirrhosis in 2020 and then as compensated in 2021, and have been feeling fairly well since then - eating well (with a few treats!) and looking after myself. However, over the last couple of months, I have been struggling again with extreme fatigue, inverted
Hello - I was diagnosed with decompensated cirrhosis in 2020 and then as compensated in 2021, and have been feeling fairly well since then - eating well (with a few treats!) and looking after myself. However, over the last couple of months, I have been struggling again with extreme fatigue, inverted
LineyLou
in
British Liver Trust
1 year ago
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