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Radium 223
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Others don’t understand
I know we’re all usually talking about our meds, but I’m wondering how everybody is faring when trying to explain to others what we go through. I’ve had my adult children question why I take oxycodone. Some seem to understand, some are very judgmental. RLS can start at 10:30 am, and is why I’m spreading
I know we’re all usually talking about our meds, but I’m wondering how everybody is faring when trying to explain to others what we go through. I’ve had my adult children question why I take oxycodone. Some seem to understand, some are very judgmental. RLS can start at 10:30 am, and is why I’m spreading
Marlayna
in
Restless Legs Syndrome
1 year ago
any info please
My consultant has suggested I try Valproate or Levetiracetam for my RLS/PLMD. Has anybody tried either of these and had any success or otherwise?
My consultant has suggested I try Valproate or Levetiracetam for my RLS/PLMD. Has anybody tried either of these and had any success or otherwise?
soupersuzy
in
Restless Legs Syndrome
10 months ago
Help with bone marrow not working
desperate seeking any advice on how to kick start his bone marrow - he only got through 3 cycles of the
Radium
223
and HGB and platelets have dropped - he has received platlets twice , and blood. Have to get levels up before we can even think about next treatment - any suggestions ?
desperate seeking any advice on how to kick start his bone marrow - he only got through 3 cycles of the
Radium
223
and HGB and platelets have dropped - he has received platlets twice , and blood. Have to get levels up before we can even think about next treatment - any suggestions ?
danyelpolo
in
Advanced Prostate Cancer
2 years ago
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Dialysis
Hello Just looking for some advice as we are completely stumped over the lack of information my mam has been giving.... My mam starts dialysis 3 times a week starting tomorrow she also has diabetes and we are so confused as to what she can eat after her dialysis the dietician we spoke to was completely
Hello Just looking for some advice as we are completely stumped over the lack of information my mam has been giving.... My mam starts dialysis 3 times a week starting tomorrow she also has diabetes and we are so confused as to what she can eat after her dialysis the dietician we spoke to was completely
Jk2023
in
Kidney Disease
1 year ago
Suggestions on Supplements
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
JayPwP
in
Cure Parkinson's
3 months ago
The 'Brain Energy Gap' and its possible implication on the progress of PD.
Has anyone else seen the work of Professor Stephen Cunnane on the 'brain energy gap' and its implications for PD, Alzheimers and cognitive impairment? I've put a link to one of his talks below, but to summarise: - Cognitive impairment and brain health in PD, Alzheimers, is due in part to an 'brain
Has anyone else seen the work of Professor Stephen Cunnane on the 'brain energy gap' and its implications for PD, Alzheimers and cognitive impairment? I've put a link to one of his talks below, but to summarise: - Cognitive impairment and brain health in PD, Alzheimers, is due in part to an 'brain
Mezmerric
in
Cure Parkinson's
3 months ago
tablet advice
hi. I currently take Candesartan for HBP but I've had low blood sodium readings for a couple of years. GP says nothing to worry about. But as I've been experiencing dizzy spells and anxiety etc I would like to change to something that wont affect my sodium. I've tried felodpine and ramipril. I don't
hi. I currently take Candesartan for HBP but I've had low blood sodium readings for a couple of years. GP says nothing to worry about. But as I've been experiencing dizzy spells and anxiety etc I would like to change to something that wont affect my sodium. I've tried felodpine and ramipril. I don't
philippa1412
in
High Blood Pressure Support
1 year ago
Blood sodium levels
Stage 3b My last labs over the past year have had a decrease in my blood sodium levels. Last test was 131. Nephrologist said I need to start eating more protein as that helps to keep sodium in your bloodstream instead of getting out in your body tissue. I don’t have any edema and take a diuretic. Not
Stage 3b My last labs over the past year have had a decrease in my blood sodium levels. Last test was 131. Nephrologist said I need to start eating more protein as that helps to keep sodium in your bloodstream instead of getting out in your body tissue. I don’t have any edema and take a diuretic. Not
MGsolid
in
Kidney Disease
1 year ago
Manometry studies
Hello, I am just wondering if anyone as had these studies and what I should expect,I think he said he is requesting the 24 hr test as well.I have looked on line to see what’s involved but was wondering if anyone who as gone through this test could tell me what it’s like? My Gastroenterologist as requested
Hello, I am just wondering if anyone as had these studies and what I should expect,I think he said he is requesting the 24 hr test as well.I have looked on line to see what’s involved but was wondering if anyone who as gone through this test could tell me what it’s like? My Gastroenterologist as requested
Buttsy
in
Scleroderma & Raynaud's UK (SRUK)
9 months ago
Help with bloods please
I used to be on here under mandy72 Help with bloods pleaseBreathless, slow heart rate (dipping as low as 50) dizzy and nausea...... Reason for the blood tests apart from when I was at Dr's heart rate was low 60, ecg and chest xray all good Full blood count Haemoglobin concentration 142 g/L [115.0 - 165.0
I used to be on here under mandy72 Help with bloods pleaseBreathless, slow heart rate (dipping as low as 50) dizzy and nausea...... Reason for the blood tests apart from when I was at Dr's heart rate was low 60, ecg and chest xray all good Full blood count Haemoglobin concentration 142 g/L [115.0 - 165.0
Licklemoose
in
Thyroid UK
1 year ago
Mct oil
Can you take Mct oil if you have pbc?
Can you take Mct oil if you have pbc?
Survived-
in
PBC Foundation
4 months ago
pain eating after hiatus hernia repair.
hey everyone, I had surgery to repair a hiatus hernia I had in 2019. I’m grateful I have had no acid reflux since but I get this really bad pain in my left shoulder (kind of up inline with my armpit). I went back to hospital for endoscopy and barium swallow because I regurgitate my food and they found
hey everyone, I had surgery to repair a hiatus hernia I had in 2019. I’m grateful I have had no acid reflux since but I get this really bad pain in my left shoulder (kind of up inline with my armpit). I went back to hospital for endoscopy and barium swallow because I regurgitate my food and they found
ShelleyPa
in
Pain Concern
9 months ago
Talzenna approved by FDA
FDA Approves Talzenna for Metastatic, Castration-Resistant Prostate Cancer Significant radiographic progression-free survival seen for homologous recombination repair gene mutation, including with BRCA mutation HealthDay MONDAY, June 26, 2023 (HealthDay News) -- The U.S. Food and Drug Administration
FDA Approves Talzenna for Metastatic, Castration-Resistant Prostate Cancer Significant radiographic progression-free survival seen for homologous recombination repair gene mutation, including with BRCA mutation HealthDay MONDAY, June 26, 2023 (HealthDay News) -- The U.S. Food and Drug Administration
Magnus1964
in
Prostate Cancer Network
1 year ago
preservatives in B12
I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have bought a lot of these and worry first if I can’t use them and secondly if all have this in them. Any advice please?
I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have bought a lot of these and worry first if I can’t use them and secondly if all have this in them. Any advice please?
smg1950
in
Pernicious Anaemia Society
1 year ago
potassium / lo salt / rampiril
also whilst NHS says avoid low sodium salt if on rampiril - as too much potassium but all other food ok - I have seen other sources saying avoid bananas and things - any info on that at all - thanks
also whilst NHS says avoid low sodium salt if on rampiril - as too much potassium but all other food ok - I have seen other sources saying avoid bananas and things - any info on that at all - thanks
Lowe1066
in
High Blood Pressure Support
1 year ago
Are my eyes yellow?
I have anxiety and i am freaking out feeling i have damaged my liver. My mum told me my cousin's husband who is in his 60s his liver cirrhosis and i feel i am the same even though im 34. I drink occasionally but i have had epilepsy for a long time and was until recently on sodium valproate which can
I have anxiety and i am freaking out feeling i have damaged my liver. My mum told me my cousin's husband who is in his 60s his liver cirrhosis and i feel i am the same even though im 34. I drink occasionally but i have had epilepsy for a long time and was until recently on sodium valproate which can
Hidden
in
British Liver Trust
11 months ago
thought I’d do a new post
I wrote last week about iron results, and was asked if I had more results so I’m giving them now I was on 150 thyroxine/12/1/2 t3 , haemoglobin level. 141g/l. ( 115-165g/l White blood 7.3. ( 4.10- 11/10g/l Platelet count 208. (135-450g/l Red cell count 4.9 (3.8-4.8 Heamatocrit 0.429 (0.37-
I wrote last week about iron results, and was asked if I had more results so I’m giving them now I was on 150 thyroxine/12/1/2 t3 , haemoglobin level. 141g/l. ( 115-165g/l White blood 7.3. ( 4.10- 11/10g/l Platelet count 208. (135-450g/l Red cell count 4.9 (3.8-4.8 Heamatocrit 0.429 (0.37-
Kowbie
in
Thyroid UK
1 year ago
I didn't realise this could happen. ......
So after TBI I had a great recovery and after 5 months I went back to work on phased days back. Then 6 weeks later I go back full time. First week was ok and I seemed to enjoy it although some people were difficult to work with. The first 2 days of last week difficult a lot. Too difficult I ended up
So after TBI I had a great recovery and after 5 months I went back to work on phased days back. Then 6 weeks later I go back full time. First week was ok and I seemed to enjoy it although some people were difficult to work with. The first 2 days of last week difficult a lot. Too difficult I ended up
Hidden
in
Headway
1 year ago
SC in Australia
Hi everyone,I've got a packet of B12 (I'm in Australia and it's the Neo brand) and I'm thinking of injecting it SC. The problem is it says 'for IM use only'. It's hydroxocobalamin chloride 1mg in 1mL and the other ingredients are sodium chloride, water and acetic acid. Does anyone know if this sort
Hi everyone,I've got a packet of B12 (I'm in Australia and it's the Neo brand) and I'm thinking of injecting it SC. The problem is it says 'for IM use only'. It's hydroxocobalamin chloride 1mg in 1mL and the other ingredients are sodium chloride, water and acetic acid. Does anyone know if this sort
greenscarf
in
Pernicious Anaemia Society
1 year ago
Just need to have a rant about this horrendous condition 😡
I thought this would be a good place to have a rant about my IBS. I am completely fed up of this horrendous condition completely taking control over my life. I have not slept in days due to constant nausea and pain and not being able to get in any sort of comfortable position so I can sleep. I find
I thought this would be a good place to have a rant about my IBS. I am completely fed up of this horrendous condition completely taking control over my life. I have not slept in days due to constant nausea and pain and not being able to get in any sort of comfortable position so I can sleep. I find
Floss-12
in
IBS Network
11 months ago
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