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Experiences with
Radium 223
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frequency and coverage of lab work
My 65 y.o. husband was diagnosed with CKD 6 months ago with a calculated GFR of 53. We immediately changed his diet to very low sodium, potassium and phospherous, and limited protein. In January (3 Mos. later) his PCP ordered lab work (blood and urine). There was very little change. Here it is 3 more
My 65 y.o. husband was diagnosed with CKD 6 months ago with a calculated GFR of 53. We immediately changed his diet to very low sodium, potassium and phospherous, and limited protein. In January (3 Mos. later) his PCP ordered lab work (blood and urine). There was very little change. Here it is 3 more
Hidden
in
Kidney Disease
2 years ago
cirrhosis and edema / ascites
My partner diagnosed 22.12.21 with alcoholic cirrhosis stopped drinking on that date. Since then has been having 3 weekly drains and wasn't able to have diuretics due to low sodium. Was hospitalised last Friday due to extreme edema in feet, legs and scrotum. Has been on IV diuretics as sodium now OK
My partner diagnosed 22.12.21 with alcoholic cirrhosis stopped drinking on that date. Since then has been having 3 weekly drains and wasn't able to have diuretics due to low sodium. Was hospitalised last Friday due to extreme edema in feet, legs and scrotum. Has been on IV diuretics as sodium now OK
Rshc
in
British Liver Trust
2 years ago
Autistic and just diagnosed with Epilepsy im so scared
Hi my son is 22, Autistic and has learning difficulties he has just had his second seizure, so has been told he is Epileptic, im scared, gave him his first dose of Sodium Valterate this morning, i hate hes on this medicine, i cant eat or sleep and trying to be Strong for my beautiful boy.
Hi my son is 22, Autistic and has learning difficulties he has just had his second seizure, so has been told he is Epileptic, im scared, gave him his first dose of Sodium Valterate this morning, i hate hes on this medicine, i cant eat or sleep and trying to be Strong for my beautiful boy.
Brynrhian
in
Epilepsy Action
2 years ago
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Diclofenac Sodium Gel (Voltaren Gel)
My RLS is aggravated and symptoms are increased when using Voltaren gel for my arthritic pain. Have anyone had similar experience with the anti-inflammatory gel?
My RLS is aggravated and symptoms are increased when using Voltaren gel for my arthritic pain. Have anyone had similar experience with the anti-inflammatory gel?
halperinchen
in
Restless Legs Syndrome
2 years ago
Suddenly weight lossand dry skin, diabetic nephropathy stage 2 .
Am 52 years and 6 months old,170cm/1.7m tall,and 74 kg, with diabetic nephropathy stage 2. From December last year,2021,I was weighing 86kg,but have lost 12 kg in a span of 4 monts,now at 74kg...Besides that,I have dry skin...have restricted myself on animal protein (occasionally I take beans), potassium
Am 52 years and 6 months old,170cm/1.7m tall,and 74 kg, with diabetic nephropathy stage 2. From December last year,2021,I was weighing 86kg,but have lost 12 kg in a span of 4 monts,now at 74kg...Besides that,I have dry skin...have restricted myself on animal protein (occasionally I take beans), potassium
Mwachibwago
in
Kidney Disease
2 years ago
Sodium Valporate & possible side affects
Hi! Has anyone on Sodium Valporate (for Bipolar) ever had any experiences with hair loss & also a rise in blood pressure? I’m interested in your feedback! Many Thanks
Hi! Has anyone on Sodium Valporate (for Bipolar) ever had any experiences with hair loss & also a rise in blood pressure? I’m interested in your feedback! Many Thanks
Blue-Sunday
in
Anxiety and Depression Support
2 years ago
Advice on Xtandi & radium 223 side effects
Hi all, my Dad is currently doing a trial, Peace 111, xtandi &
radium
223
with zometa. He is loosing weight, not alarmingly fast but at the point now where he needs to start putting some back on and also muscle mass. I was thinking swimming might be good as it's low impact.
Hi all, my Dad is currently doing a trial, Peace 111, xtandi &
radium
223
with zometa. He is loosing weight, not alarmingly fast but at the point now where he needs to start putting some back on and also muscle mass. I was thinking swimming might be good as it's low impact.
Nickhmcg
in
Advanced Prostate Cancer
3 years ago
edema - in testicles
We are waiting on a call back from the hospital. Partners edema getting worse by the day, now throughout legs and feet and testicles. He is in so much discomfort it is breaking my heart. He had to stop diuretics due to low sodium but last bloods showed sodium at normal (lowest end of normal) level
We are waiting on a call back from the hospital. Partners edema getting worse by the day, now throughout legs and feet and testicles. He is in so much discomfort it is breaking my heart. He had to stop diuretics due to low sodium but last bloods showed sodium at normal (lowest end of normal) level
Rshc
in
British Liver Trust
2 years ago
A List of Screening Tests For A High PSA
A 73 year old friend had a PSA test that came back @ 50 . He is not afraid, is cool and analytical. He can afford to have any out of pocket testing and treatment . He wants to understand the status of his prostate cancer before having any treatment. He is asking if there is a list of screening tests
A 73 year old friend had a PSA test that came back @ 50 . He is not afraid, is cool and analytical. He can afford to have any out of pocket testing and treatment . He wants to understand the status of his prostate cancer before having any treatment. He is asking if there is a list of screening tests
Dd7757
in
Advanced Prostate Cancer
2 years ago
ALBUMIN and EDEMA and COMPRESSION SOCKS - oh my!
partner diagnosed decompensated cirrhosis 22.12.21 - stopped drinking the same day. Albumin 18 at diagnosis, 24 at best since now dipped again to 22. How long did people's albumin take to recover - is it normally so slow to improve - in contrast bilirubin gone from 256 to 58 since Dec. He is having
partner diagnosed decompensated cirrhosis 22.12.21 - stopped drinking the same day. Albumin 18 at diagnosis, 24 at best since now dipped again to 22. How long did people's albumin take to recover - is it normally so slow to improve - in contrast bilirubin gone from 256 to 58 since Dec. He is having
Rshc
in
British Liver Trust
2 years ago
Husbands collapse
Well I've just visited my husband again and the Dr says that his confused state may improve once I get him back to my daughters. She doesn't know if it will ease and she's not sure if it was caused by the sodium drop or something else going on. His blood tests aren't back from yesterday, but they're
Well I've just visited my husband again and the Dr says that his confused state may improve once I get him back to my daughters. She doesn't know if it will ease and she's not sure if it was caused by the sodium drop or something else going on. His blood tests aren't back from yesterday, but they're
TinT22
in
Headway
2 years ago
Information on who to contact plz
Hi I've just seen the news about sodium valproate was wondering how to get information about compensation etc as I have a child who has difficultys and I was taking this drug thro his pregnant
Hi I've just seen the news about sodium valproate was wondering how to get information about compensation etc as I have a child who has difficultys and I was taking this drug thro his pregnant
Louiseh74
in
Epilepsy Action
2 years ago
Rectal prolapse
Hi everyone and Happy Easter - hope the sun is shining where you are. It's beautiful here! (UK). Unfortunately I think I have a rectal prolapse :( . I had a soft mass pop out this morning. It's more or less gone back in now but googling tells me that it won't be a one-off. I have real difficulties with
Hi everyone and Happy Easter - hope the sun is shining where you are. It's beautiful here! (UK). Unfortunately I think I have a rectal prolapse :( . I had a soft mass pop out this morning. It's more or less gone back in now but googling tells me that it won't be a one-off. I have real difficulties with
Ursula_I
in
SHARE Metastatic Breast Cancer
2 years ago
Ain’t that a kick in the teeth
Well, fellow travellers. I haven’t posted for a long while , but I have been lurking. Like many others, I tend to “forget” about the forum while I am too busy enjoying life and return when things are not so rosy. I am at loss to explain the purpose of this missive as it’s not particular uplifting nor
Well, fellow travellers. I haven’t posted for a long while , but I have been lurking. Like many others, I tend to “forget” about the forum while I am too busy enjoying life and return when things are not so rosy. I am at loss to explain the purpose of this missive as it’s not particular uplifting nor
aFibber55
in
AF Association
2 years ago
Awaiting Results
Evening Hope not too long a post .. Have been having pains in the front of my throat for the last 4 years occ . I started getting a lot more 2 years ago Painful Well this year seen Dr told her pains in throat into ear occ . Carotid checked -( then 2 months ago Ct scan with barium - iodine inj ..
Evening Hope not too long a post .. Have been having pains in the front of my throat for the last 4 years occ . I started getting a lot more 2 years ago Painful Well this year seen Dr told her pains in throat into ear occ . Carotid checked -( then 2 months ago Ct scan with barium - iodine inj ..
GShep64
in
Thyroid UK
2 years ago
Has anyone with CLl dealt with Neuro Endocrine cancer (liver) as a second cancer?
FOURTH Cancer. Melanoma, CLL, Prostate, Neuro Endocrine I stopped Imbrubica in July 2019. In the last 6 months my lymph nodes in my neck were very noticeable. WBC were at 58,000. I was tired but felt ok otherwise. Decided it was time for treatment. Gazyva and Venetaclex was the treatment recommended
FOURTH Cancer. Melanoma, CLL, Prostate, Neuro Endocrine I stopped Imbrubica in July 2019. In the last 6 months my lymph nodes in my neck were very noticeable. WBC were at 58,000. I was tired but felt ok otherwise. Decided it was time for treatment. Gazyva and Venetaclex was the treatment recommended
aboylan
in
CLL Support
2 years ago
Just need some support
Hello all, my son is 7. He was born with CKD, he's currently in stage 2. He has reflux grade 5 bilateral, hydrophronesis bilateral, hyperkalemia, distended bladder, urinary retention and chronic constipation. They all kind of play off of each other and are either all controlled and keep his function
Hello all, my son is 7. He was born with CKD, he's currently in stage 2. He has reflux grade 5 bilateral, hydrophronesis bilateral, hyperkalemia, distended bladder, urinary retention and chronic constipation. They all kind of play off of each other and are either all controlled and keep his function
Turtlepower88
in
Parents of Children with Kidney Disease
2 years ago
Shortness of breath and wheezing
UPDATE: lung function tests normal. Had an ABG (arterial blood gases), results are all over the place, specialist has no idea what’s going on! I have extremely high O2, low CO2, low bicarbonate, low sodium and alkaline pH. Booked in for cardiologist and stress test next week, followed by cardiopulmonary
UPDATE: lung function tests normal. Had an ABG (arterial blood gases), results are all over the place, specialist has no idea what’s going on! I have extremely high O2, low CO2, low bicarbonate, low sodium and alkaline pH. Booked in for cardiologist and stress test next week, followed by cardiopulmonary
MusicalFurbaby
in
LUPUS UK
2 years ago
Very frustrated mum.
Still frustrated my daughter now age 6 years is still struggling with chronic constipation she now on movlicoil and sodium pic everyday sometimes we go up to 6 a day sometimes we stay on 2 a day but the soiling never stops .Her tummy is normal just she has trained her brain not to poo so 1 how do we
Still frustrated my daughter now age 6 years is still struggling with chronic constipation she now on movlicoil and sodium pic everyday sometimes we go up to 6 a day sometimes we stay on 2 a day but the soiling never stops .Her tummy is normal just she has trained her brain not to poo so 1 how do we
Misty10
in
ERIC
2 years ago
please let me hear your positive stories re going from decompensated to compensated
My partner was diagnosed with cirrhosis in Dec and underwent a medical detox from alcohol. He was very poorly and remained in hospital for 3 weeks. Since then he has been eating well and not drinking. His bilirubin has come down from 256 to 60 and his blood platelets look good at 160. The doctors
My partner was diagnosed with cirrhosis in Dec and underwent a medical detox from alcohol. He was very poorly and remained in hospital for 3 weeks. Since then he has been eating well and not drinking. His bilirubin has come down from 256 to 60 and his blood platelets look good at 160. The doctors
Rshc
in
British Liver Trust
2 years ago
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