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I can’t go on
Hello. I am a 49 year old woman. I have suffered with Restless leg then home for over eight years. Up until two years ago it was tolerable. If I missed a night or two of sleep I could still function because it didn’t happen every night And I could catch up on my sleep here and there. At this point
Hello. I am a 49 year old woman. I have suffered with Restless leg then home for over eight years. Up until two years ago it was tolerable. If I missed a night or two of sleep I could still function because it didn’t happen every night And I could catch up on my sleep here and there. At this point
F_rls_N33D_H3LP
in
Restless Legs Syndrome
6 years ago
To My HER2 positive friends
Hi! I haven’t posted in awhile...I showed some progression in January had right mastectomy and started back on Perjeta...my question is how long has anyone else been on Perjeta? I was hoping to get a few years out of it...My daughter is getting married in Oct. -19... love to not have to worry about this
Hi! I haven’t posted in awhile...I showed some progression in January had right mastectomy and started back on Perjeta...my question is how long has anyone else been on Perjeta? I was hoping to get a few years out of it...My daughter is getting married in Oct. -19... love to not have to worry about this
Rhwright12
in
SHARE Metastatic Breast Cancer
6 years ago
Wanna Be Dry Again
My dilemma is I had a radical prostatectomy in August 2015. My Gleason was 9 out 10. I had 39 radiation treatments. I did 2 rounds of Lupron. I had heavy incontinence. I had surgery of AUS implant in February this year. Last week I had to have emergency surgery to have the AUS removed. I have
My dilemma is I had a radical prostatectomy in August 2015. My Gleason was 9 out 10. I had 39 radiation treatments. I did 2 rounds of Lupron. I had heavy incontinence. I had surgery of AUS implant in February this year. Last week I had to have emergency surgery to have the AUS removed. I have
Trivista
in
Prostate Cancer Network
6 years ago
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Spinal pain
My spine hurts so bad and I woke up 2 days ago with severe pain. Last time I had a flare up with my spine I was bed ridden and couldn’t move my legs my husband had to lift my legs for me. The pain was so bad I cried so hard I wouldn’t wish that on anyone as it’s such torture. I see my docs in a few days
My spine hurts so bad and I woke up 2 days ago with severe pain. Last time I had a flare up with my spine I was bed ridden and couldn’t move my legs my husband had to lift my legs for me. The pain was so bad I cried so hard I wouldn’t wish that on anyone as it’s such torture. I see my docs in a few days
franklin1970
in
Neuropathy Support
6 years ago
Losing effectiveness of bimix
I am a 62-year-old male who had a radical prostatectomy in August 2017… I am fairly active sexually and able to get an erection with the help of bimix most of the time .. recently, I have had trouble getting and erection w the bimix and have even increased the dose .. it’s been less than a year since
I am a 62-year-old male who had a radical prostatectomy in August 2017… I am fairly active sexually and able to get an erection with the help of bimix most of the time .. recently, I have had trouble getting and erection w the bimix and have even increased the dose .. it’s been less than a year since
Patton1
in
Erectile Dysfunction Support
6 years ago
Adcal
I’ve just been prescribed Adcal I’ve been on Pred since April started at 15mg currently in 10mg and due to have a blood test next week to see whether I can taper further. I think I read somewhere that I shouldn’t take the Adcal at the same time as Pred can anyone confirm that is this correct please
I’ve just been prescribed Adcal I’ve been on Pred since April started at 15mg currently in 10mg and due to have a blood test next week to see whether I can taper further. I think I read somewhere that I shouldn’t take the Adcal at the same time as Pred can anyone confirm that is this correct please
JanetT58
in
PMRGCAuk
6 years ago
👽Return of the Alien 👽
I haven’t been very active on the website recently but I always take time every day to read the trials and tribulations of so many brave women. I get strength from reading their stories . Now I need them more than ever. Since I was first diagnosed with PPC in 2011 this unwelcome visitor has arrived
I haven’t been very active on the website recently but I always take time every day to read the trials and tribulations of so many brave women. I get strength from reading their stories . Now I need them more than ever. Since I was first diagnosed with PPC in 2011 this unwelcome visitor has arrived
IrishMollyO
in
My Ovacome
6 years ago
Chemotherapy schedule okay?
I met my doctor today & he suggested 6 cycles of CAF every 21 days. I am 41 years old, TNBC, stage 2a, grade 2, all lymph nodes clear, margins clear. I had mastectomy on 15 June. My question is standard procedure for TNBC is 4 AC followed by 12 weekly taxol. Why is mine different??? Do i need to have
I met my doctor today & he suggested 6 cycles of CAF every 21 days. I am 41 years old, TNBC, stage 2a, grade 2, all lymph nodes clear, margins clear. I had mastectomy on 15 June. My question is standard procedure for TNBC is 4 AC followed by 12 weekly taxol. Why is mine different??? Do i need to have
Ambie
in
Breast Cancer India
6 years ago
Hello. I am KKate
Diagnosed with PBC, taking Ursodial, in 2017. Multiple other issues: on second aortic valve replacement, radical cystectomy for bladder cancer, pace maker, RLS, arthritis, PLMD, Depression.. liver pain, low platelets... Hope to chat with many more of you with more experience of PBC. Also get the fatigue
Diagnosed with PBC, taking Ursodial, in 2017. Multiple other issues: on second aortic valve replacement, radical cystectomy for bladder cancer, pace maker, RLS, arthritis, PLMD, Depression.. liver pain, low platelets... Hope to chat with many more of you with more experience of PBC. Also get the fatigue
KKate2018
in
PBC Foundation
6 years ago
Leaning towards radical prostatectomy
I continue to do my research but also got additional feedback from my urological oncologist - my clinical stage T2b cancer (3+4, 2 cores out of 12) is showing up on the right side during biopsy but induration/nodules showing up on left side. He is fine with me getting additional opinions, including
I continue to do my research but also got additional feedback from my urological oncologist - my clinical stage T2b cancer (3+4, 2 cores out of 12) is showing up on the right side during biopsy but induration/nodules showing up on left side. He is fine with me getting additional opinions, including
gamma909
in
Prostate Cancer Network
6 years ago
Bad petscan results
Petscan shows cancer has spread significantly, but is still just in bones. I have been on generic xeloda for 3 months apparently its not working for me. I was on ibrance & fasoldex before that and tamoxifen & zometa before that, and chemo, mastectomy & radiation before that. Now my doc wants to put
Petscan shows cancer has spread significantly, but is still just in bones. I have been on generic xeloda for 3 months apparently its not working for me. I was on ibrance & fasoldex before that and tamoxifen & zometa before that, and chemo, mastectomy & radiation before that. Now my doc wants to put
My3girls
in
SHARE Metastatic Breast Cancer
6 years ago
medical cannabis
Has anyone been prescribed medical cannabis or know of any literature showing efficacy? even if for some other ailment.
Has anyone been prescribed medical cannabis or know of any literature showing efficacy? even if for some other ailment.
siskin
in
NRAS
6 years ago
Mike Mihelic
Michael Mihelic is partnered with one of Canada’s longest standing grassroots services that assists patients with cannabis for medical purposes. Along with Cannascribe Medical Marijuana Prescriptions, he has helped thousands of patients obtain their medical licenses to produce and obtain medical cannabis
Michael Mihelic is partnered with one of Canada’s longest standing grassroots services that assists patients with cannabis for medical purposes. Along with Cannascribe Medical Marijuana Prescriptions, he has helped thousands of patients obtain their medical licenses to produce and obtain medical cannabis
mikemihelic
in
Above & Beyond
6 years ago
Thanks to Prostate Cancer, I ________
Please fill in the blank(s): Thanks to Prostate Cancer, I ________ For example Thanks to Prostate Cancer, I don’t need a vasectomy
Please fill in the blank(s): Thanks to Prostate Cancer, I ________ For example Thanks to Prostate Cancer, I don’t need a vasectomy
Darryl
Partner
in
Advanced Prostate Cancer
6 years ago
Mammogram with MBC
Does anyone have advice on getting a mammogram with MBC? My doctor said it was up to me. I’m 46 and had a mastectomy on my right side 7 years ago. The cancer returned in November. I wasn’t happy with the vague answer from my doctor.
Does anyone have advice on getting a mammogram with MBC? My doctor said it was up to me. I’m 46 and had a mastectomy on my right side 7 years ago. The cancer returned in November. I wasn’t happy with the vague answer from my doctor.
Cshipley123
in
SHARE Metastatic Breast Cancer
6 years ago
Intro
Hi everyone, just wanted to introduce myself as I am new here. I live in the US and have suffered from RLS most of my life. I have been taking ropinirole for many years and am now at 4mg. I live in a state where medical marijuana is legal so I am trying that now with mixed results. It definitely helps
Hi everyone, just wanted to introduce myself as I am new here. I live in the US and have suffered from RLS most of my life. I have been taking ropinirole for many years and am now at 4mg. I live in a state where medical marijuana is legal so I am trying that now with mixed results. It definitely helps
ReallyBigK
in
Restless Legs Syndrome
6 years ago
pain from underarm incision
Three weeks ago I had a partial mastectomy, oncoplastic surgery to reconstruct that breast and lymph node removal. I'm experiencing a fair amount of pain in the underarm incision. Also experiencing a sort of zapping pain in the breast, which people say is nerve regeneration (?). Can anyone help with
Three weeks ago I had a partial mastectomy, oncoplastic surgery to reconstruct that breast and lymph node removal. I'm experiencing a fair amount of pain in the underarm incision. Also experiencing a sort of zapping pain in the breast, which people say is nerve regeneration (?). Can anyone help with
minagirl
in
SHARE Breast Cancer Support
6 years ago
My journey started March 2016
(2005 .. diagnosed Stage 2 Breast Cancer,
radical
mastectomy
,4 months chemo, 5 years hormonal therapy) now a survivor.
(2005 .. diagnosed Stage 2 Breast Cancer,
radical
mastectomy
,4 months chemo, 5 years hormonal therapy) now a survivor.
MichaelDD
in
Advanced Prostate Cancer
6 years ago
Legalisation of Medical Marijuana in the UK
I’m sure we all heard the news yesterday that medical marijuana will be legalised here in the UK from Autumn 2018 in exceptional circumstances. https://www.google.co.uk/amp/s/www.bbc.co.uk/news/amp/health-44968386 I don’t know which cases will be regarded as falling within the “ exceptional medical need
I’m sure we all heard the news yesterday that medical marijuana will be legalised here in the UK from Autumn 2018 in exceptional circumstances. https://www.google.co.uk/amp/s/www.bbc.co.uk/news/amp/health-44968386 I don’t know which cases will be regarded as falling within the “ exceptional medical need
Joolsg
in
Restless Legs Syndrome
6 years ago
For all UK people
Apparently medical cannabis is going to be legalised soon, I read in a paper yesterday I’m not sure how true it is or when it will be implanted or who it will be for but it’s a huge step in the right direction for us as all is chronic pain sufferers
Apparently medical cannabis is going to be legalised soon, I read in a paper yesterday I’m not sure how true it is or when it will be implanted or who it will be for but it’s a huge step in the right direction for us as all is chronic pain sufferers
Itsallinthehips
in
Pain Concern
6 years ago
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