Wanna Be Dry Again: My dilemma is I had... - Prostate Cancer N...

Prostate Cancer Network

5,258 members3,325 posts

Wanna Be Dry Again

Trivista profile image
4 Replies

My dilemma is I had a radical prostatectomy in August 2015.

My Gleason was 9 out 10.

I had 39 radiation treatments.

I did 2 rounds of Lupron.

I had heavy incontinence.

I had surgery of AUS implant in February this year.

Last week I had to have emergency surgery to have the AUS removed.

I have erosion of the urethra due to radiation.

My question:

Is there a doctor out there who is doing urethra reconstruction

surgery?

Is it possible to have my urethra repaired so I can have some Dry

Time.

I was dry from April until last week and it was great.

I have a catheter now. It should be removed next Tuesday (12 days on a

catheter).

Asheville VA doctors did not seem optimistic.

Do you know other men who have had this problem?

What do/did they do?

Is there a medical solution or am I as good as I am going to get?

Written by
Trivista profile image
Trivista
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Trivista profile image
Trivista

Thanks Bob. Been there, done that. The radiation really destroyed a lot of tissue in the area.

Andy3680 profile image
Andy3680

My husband has prostate cancer, but was unable to have it removed, due to already has breached the outer prostate capsule. He did 40 rad treatments, and has recently had his second Lupron shot. The shot is causing him a good bit of discomfort when urinating, but he's taking Flomax for it. Helps, but "not as much as I want it to". My suggestion about the urethra "rebuild" would be to contact several plastic surgeons about it. Given that it's possible to use plastic surgery to "swap out" genders, I would think a reconstruct of a urethra is possible as well. As you know, continuously having catheters is not healthy in the long run, far too big a chance for major infections. So, I would say ask around about plastic surgery to help rebuild urethra, and ask about medications for incontinence. God Bless your search and may He guide you to the right doctors. Please let us know how things go for you.

Trivista profile image
Trivista in reply toAndy3680

Thanks Andy. I am doing just that. There was a discouraging couple of weeks following explantation of pessimism, despair, depression, sadness....etc but I am back in the fight, regaining the joy of living. I have contacted a couple of Urology surgeons and I am waiting on their responses. I'm alive. I'm sober. I'm still in the game. What ever is next will be better than what I had before.

SsgCulldelight profile image
SsgCulldelight

Hi I know lupron has worked well for me, however my radical PROS, was aborted mid procedure so my prostate is intact and I'm on androgen therapy maybe that's why it works for me, sorry I couldn't be more informative. Stay up though.

Not what you're looking for?

You may also like...

Need practical advice re:RRP for 76 year-old in fair shape

Hi everyone, My husband, just turned 76, is having a robotic radical prostatectomy on 5/13. He is...
AliceinW57 profile image

"Nerve-Us" About Surgery - Both Nerves to be removed and a life worth living after??

Hi Community.... my second post and I am again looking for support for my surgery scheduled in 9...
azcanuck profile image

Suffering from incontinence?

Hello; I am a 23 year PC survivor diagnosed at age 52.  I had a radical prostatectomy, followed by...
ng27868168 profile image

Brachytherapy and blocked urethra

Had brachytherapy two weeks ago. Was told everything went fine. Over next three days urinination...
Scorpio53 profile image

Advice request for dealing with expected incontinence after prostate removal by Da Vinci

Hello all I am looking for some detail on what supplies i should stock up on at home prior to...
Fox2018 profile image

Moderation team

Bethishere profile image
BethishereAdministrator
Number6 profile image
Number6Administrator
Darryl profile image
DarrylPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.