I have been a reader and sometimes give a small answer but haven't put my "details" out there. Since all of us are different in this fight we look for similarities. I was told I can't help if I don't input mine. This is me on my journey. Found out in March 2016. I went to my primary and told her that exhaustion / huge fatigue was ruining my day. No other symptoms . None . ALL functions "worked" very well. Did my blood work and the PSA was up (12) and then the story begins. Ironically the fatigue is still very prevalent.. Something now I will think get worse as I work the next stage options of HT. I have had about everything else thrown at this and though a low PSA-- doubling is every 3-4.5 months. This next blood work the first of July ('18) will put be back to single digit.
This is me.....
Michael (age 62 diagnosed) 64 currently. (2005 .. diagnosed Stage 2 Breast Cancer, radical mastectomy ,4 months chemo, 5 years hormonal therapy) now a survivor.
Prostate Cancer history: 2016 - March PSA 12 / Gleason 4+4=8 / no stage assigned /12 biopsies -3 benign 2016- June DaVinci Surgical prostate removal Surgical Pathology : pT3aNo Size of prostate : 4.5x4.5x4.3 cm wt: 72.4 g // Extraprostatic Invasion- Present // Seminal Vesicle Invasion -Not Identified // Perineural Invasion - Present Lymphatic/Vasular Invasion - Present No Incontinence after surgery . Semi Hard Erection function. Dry Orgasms PSA: 0 2016- Aug PSA : .024 2016- Oct PSA: .042 Waited 3 months to heal before radiation to begin 2016- Oct: [B] Radiation - 8 weeks 39 sessions started 2016- Dec: PSA : .080 - 8 weeks radiation completed on 12-23-16 actually doubles in radiation. Creates bowel and diarrhea issues . Learn to handle, but never have left.
2017 -Feb: PSA : .092 - PSA not returning to zero. PSA test every 3 months..
- May PSA: .190 -July PSA: .230 Full body scan done for tumors -none -Oct PSA: .320
2018- JAN PSA: .600
-MAR Full body scan done for tumors- none -APR PSA: .720 Discussion now Axumin next scan. HT by years end.
Oncologist says all indicators show very aggressive. Just low PSA. Expects PSA to eventually accelerate more rapidly.
Feel better now if someone else is out there who may need to ask "have you had this"? Thanks all for the help from all of you . More appreciative then I can ever say.