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Finally got a diagnosis of Endometriosis today
I've been on such a journey with my pelvic pain. I'm 50 and I had a hysterectomy 4 months ago for fibroids. A laparoscopy ruled out Endo last year. I was pain free for the first time in months. I started hrt and my original pains 6 weeks ago came back with a vengeance just like they did last year when
I've been on such a journey with my pelvic pain. I'm 50 and I had a hysterectomy 4 months ago for fibroids. A laparoscopy ruled out Endo last year. I was pain free for the first time in months. I started hrt and my original pains 6 weeks ago came back with a vengeance just like they did last year when
Mindfullness4791
in
Endometriosis UK
1 month ago
Zoldex injection 3
On the 7th may i had my 3rd zoledex injection. My endo nurse was gonna take me of as ive had 2 bad monthly flare ups and breakdowns everyday. After my 3rd jab ive had 5 days flare up free but ive had some spotting bleeding amd now 1 week later ive got a bad flare, i am due my monthly cycle at the weekend
On the 7th may i had my 3rd zoledex injection. My endo nurse was gonna take me of as ive had 2 bad monthly flare ups and breakdowns everyday. After my 3rd jab ive had 5 days flare up free but ive had some spotting bleeding amd now 1 week later ive got a bad flare, i am due my monthly cycle at the weekend
Chartolfrey
in
Endometriosis UK
1 month ago
Lack of understanding from family and friends
I’m struggling with family and friends not understanding what I’m going through or experiencing - and looking for any tips on how to handle that emotionally. I am 34 and was diagnosed with endometriosis and adenomyosis in 2021. I’ve had symptoms since I was 11. Since 2021, I’ve had three endometriosis
I’m struggling with family and friends not understanding what I’m going through or experiencing - and looking for any tips on how to handle that emotionally. I am 34 and was diagnosed with endometriosis and adenomyosis in 2021. I’ve had symptoms since I was 11. Since 2021, I’ve had three endometriosis
MayNora1
in
Endometriosis UK
1 month ago
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pains 10 weeks after hysterectomy
hi I’m just wondering as anyone suffered pains in left side under ribs and upper back pain since having hysterectomy I’m still waiting on my 3 month scan so getting a bit worried in case this is a recurring pain
hi I’m just wondering as anyone suffered pains in left side under ribs and upper back pain since having hysterectomy I’m still waiting on my 3 month scan so getting a bit worried in case this is a recurring pain
Marketlover
in
My Ovacome
1 month ago
53, Bleeding on HRT and history of Endo
I am 53, post menopausal and been on combined continuous HRT (patches and pills, 75mg patches, 100mg pills) for nearly two years with no problem, my menopause symptoms were HORRENDOUS and the HRT solved them almost overnight…. then a month ago I started heavy bleeding and it hasn’t stopped since, every
I am 53, post menopausal and been on combined continuous HRT (patches and pills, 75mg patches, 100mg pills) for nearly two years with no problem, my menopause symptoms were HORRENDOUS and the HRT solved them almost overnight…. then a month ago I started heavy bleeding and it hasn’t stopped since, every
Brambledoggy
in
Endometriosis UK
1 month ago
Hello
Hey, I'm new. I've been looking for a community of women like me. I'm having a hard day... For a while now. But I went to a new family Dr after my move. When we started talking about my endometriosis she didn't seem to care about how much pain I'm in or have been in. How much this has effected my life
Hey, I'm new. I've been looking for a community of women like me. I'm having a hard day... For a while now. But I went to a new family Dr after my move. When we started talking about my endometriosis she didn't seem to care about how much pain I'm in or have been in. How much this has effected my life
ChildofGod07
in
Endometriosis UK
1 month ago
hysterectomy and ovary removal
hi, I’m after some advice pls. I have severe endo and adenmyosis. I’ve had a son and wont be having more children. The gynae has advised doing a full hysterectomy and removal of both ovaries. Can anyone tell me how the recovery is, when I would expect to be back working at my desk job? Did it help you
hi, I’m after some advice pls. I have severe endo and adenmyosis. I’ve had a son and wont be having more children. The gynae has advised doing a full hysterectomy and removal of both ovaries. Can anyone tell me how the recovery is, when I would expect to be back working at my desk job? Did it help you
Sara2013
in
Endometriosis UK
1 month ago
Heart Conditions & Endometriosis
Hi, i am a 45 yr old who got diagnosed with endo 7 yrs ago and had surgery which helped for a short period of time, used contraceptive pill to reduce symptoms which is did fractionally and then put on a GNHR and HRT for 6 months. After the GNHR and HRT treatment was finished i was taken into hospital
Hi, i am a 45 yr old who got diagnosed with endo 7 yrs ago and had surgery which helped for a short period of time, used contraceptive pill to reduce symptoms which is did fractionally and then put on a GNHR and HRT for 6 months. After the GNHR and HRT treatment was finished i was taken into hospital
Terrapin78
in
Endometriosis UK
1 month ago
PSA rising after salvage treatment
Hi, It's been a while since I was on this forum, but I am in need of some advice. I had a radical prostatectomy in 2021 followed by salvage radio therapy. My psa levels have been rising slowly since then and I wondered if there was any advice as to what it might mean and if there is anything I should
Hi, It's been a while since I was on this forum, but I am in need of some advice. I had a radical prostatectomy in 2021 followed by salvage radio therapy. My psa levels have been rising slowly since then and I wondered if there was any advice as to what it might mean and if there is anything I should
MotoGuzziFan
in
Prostate Cancer Network
4 months ago
I introduce myself to you
Hi all After reading the messages for a long time, I finally took the time to update my profile to describe my history of the disease. That's it Take care of yourself, I live in France, I was born in April 1963, I am married and I stopped my professional activity 10 months ago Diagnosed 09/2019,
Hi all After reading the messages for a long time, I finally took the time to update my profile to describe my history of the disease. That's it Take care of yourself, I live in France, I was born in April 1963, I am married and I stopped my professional activity 10 months ago Diagnosed 09/2019,
graal05
in
Advanced Prostate Cancer
4 months ago
Cancer diagnosis/Operation & impact on Fibromyalgia
Hello everyone😊 I never post anything, but often reply to other members. I’ve had a lot of ill health in other areas and I had 15 biopsies a few wks ago, which left me in a lot of pain & feeling nauseous ever since. The nurses were fantastic👏🏻and explained how it was now like 15 open wounds inside
Hello everyone😊 I never post anything, but often reply to other members. I’ve had a lot of ill health in other areas and I had 15 biopsies a few wks ago, which left me in a lot of pain & feeling nauseous ever since. The nurses were fantastic👏🏻and explained how it was now like 15 open wounds inside
DoubleMalibu
in
Fibromyalgia Action UK
2 months ago
Benefit of private consultation, Adeno & Fybroids
Hi this is the first time I have posted here, but have been following messages for a while and just wanted to share the positive experience I’ve had with a private consultation. I started in November last year with what I would describe as hemorrhaging. I’ve always had heavy periods but this was uncontrolled
Hi this is the first time I have posted here, but have been following messages for a while and just wanted to share the positive experience I’ve had with a private consultation. I started in November last year with what I would describe as hemorrhaging. I’ve always had heavy periods but this was uncontrolled
Clarabellapp
in
Endometriosis UK
2 months ago
Pelvic pain back 3 months after Hysterectomy
I have had significant pelvic pain with bowel and bladder issues for 2.5 years. It was hard to get a diagnosis. I was told at first it was a bowel issue, then Endometriosis/Adenomyosis and was eventually diagnosed with 4 fibroids, 1 being 7cm. A year ago, I was put on Prostap and add back hrt. The Prostap
I have had significant pelvic pain with bowel and bladder issues for 2.5 years. It was hard to get a diagnosis. I was told at first it was a bowel issue, then Endometriosis/Adenomyosis and was eventually diagnosed with 4 fibroids, 1 being 7cm. A year ago, I was put on Prostap and add back hrt. The Prostap
Mindfullness4791
in
Endometriosis UK
2 months ago
Original pelvic pain back 3 months after hysterectomy
To cut a very long story short. I have had significant pelvic pain with bowel and bladder issues for 2.5 years. It was difficult to get a diagnosis. I was told at first it was a bowel issue, then Endometriosis/Adenomyosis and was eventually diagnosed with 4 fibroids, 1 being 7cm. A year ago, I was put
To cut a very long story short. I have had significant pelvic pain with bowel and bladder issues for 2.5 years. It was difficult to get a diagnosis. I was told at first it was a bowel issue, then Endometriosis/Adenomyosis and was eventually diagnosed with 4 fibroids, 1 being 7cm. A year ago, I was put
Mindfullness4791
in
Pelvic Pain Support Network
2 months ago
Long post sorry
I was officially diagnosed with endo 4 years ago after having my appendix removed and the surgeon seeing the issues at the same time. I have been fighting with doctors for over 20 years to believe that there was something wrong. I have had 6 months of hormone injections that were amazing and sorted
I was officially diagnosed with endo 4 years ago after having my appendix removed and the surgeon seeing the issues at the same time. I have been fighting with doctors for over 20 years to believe that there was something wrong. I have had 6 months of hormone injections that were amazing and sorted
Fudge05
in
Endometriosis UK
2 months ago
Provera advice
Hi all, I had a lot of really supportive posts after my last one so I’m diving in again. My consultant has recommended I go on Provera (10mg twice a day) until I have a hysterectomy at some point in the next year. I’d be on it permanently, so no breaks. I stupidly googled (because apparently I’m a
Hi all, I had a lot of really supportive posts after my last one so I’m diving in again. My consultant has recommended I go on Provera (10mg twice a day) until I have a hysterectomy at some point in the next year. I’d be on it permanently, so no breaks. I stupidly googled (because apparently I’m a
Laura2306
in
Endometriosis UK
2 months ago
catheter pain post lap
Hi, I had a laproscopy on 22nd of may, in prep for my hysterectomy. I was told that the team needed to catherterise me on the table in the procedure. since this I have had terrible pain when passing urine, and a very heavy full feeling deep in my abdomen. feel like my ureters are bruised etc. GP has
Hi, I had a laproscopy on 22nd of may, in prep for my hysterectomy. I was told that the team needed to catherterise me on the table in the procedure. since this I have had terrible pain when passing urine, and a very heavy full feeling deep in my abdomen. feel like my ureters are bruised etc. GP has
Foodman500
in
Endometriosis UK
2 months ago
Confused! Adhesiolysis or Hysterectomy or Mirena!
I attended a follow up appointment this morning which was booked straight after my lap in March. It was with the original team (let's call them Team A), as since then I was put under a different team for Laparoscopic Adhesiolysis after finding severe, dense, widespread adhesions. Team B refused to scan
I attended a follow up appointment this morning which was booked straight after my lap in March. It was with the original team (let's call them Team A), as since then I was put under a different team for Laparoscopic Adhesiolysis after finding severe, dense, widespread adhesions. Team B refused to scan
TallulaShark
in
Endometriosis UK
2 months ago
Both ovaries out or not?
Hi, its me again! So ive read my notes from my MDT meeting and noticed they want to take both my ovaries out when they do my hysterectomy and endo excision. One has a big endometrioma on it and as of last year the scan showed the other was healthy. My question is do I agree to them both coming out and
Hi, its me again! So ive read my notes from my MDT meeting and noticed they want to take both my ovaries out when they do my hysterectomy and endo excision. One has a big endometrioma on it and as of last year the scan showed the other was healthy. My question is do I agree to them both coming out and
Loveneige
in
Endometriosis UK
2 months ago
adenomyosis
Hey Just looking for some advice I had an MRI and it showed focal uterine adenomyosis. I haven’t had an appointment with my gynaecologist yet ( it’s in a few weeks) so haven’t discussed any options. But I’m getting severe back pain wondering if this is related to adenomyosis. I’m also don’t want a hysterectomy
Hey Just looking for some advice I had an MRI and it showed focal uterine adenomyosis. I haven’t had an appointment with my gynaecologist yet ( it’s in a few weeks) so haven’t discussed any options. But I’m getting severe back pain wondering if this is related to adenomyosis. I’m also don’t want a hysterectomy
Zbluee
in
Endometriosis UK
2 months ago
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