Feeling low after consultant meeting following laoaroscopy

[Mindfullness4791]

I have a long history of pelvic pain. I had a laparoscopy in August and no Endo was found but they did say I have a globular uterus, which is probably caused by Adenomyosis. I wasn't surprised, as I have all the symptoms. I met with the consultant and he did play my symptoms down. He said that the globular uterus could be caused by Adenomyosis and offered me a hysterectomy but couldn't promise that would solve my issues. It's a 12 to 18 month wait.

I then queried the previous diagnosis of 2 fibroids pressing against the bowel and bladder, one of which was nearly 6cm on the scan. He said that wasn't seen in the laparoscopy and he was sending me for an urgent MRI.

I just get this feeling I am not believed. The constant pain and discomfort is making my life a misery. I just think they think it's all in my head 🥺😪

[VioletCoffee]

Hi! I'm kind of going through a similar thing as you right now. I had a lap at the beginning of October that apparently found nothing wrong. I have every endo symptom plus a family history (my mum, my aunt etc). I got to see a consultant after demanding to as they were going to just discharge me with no follow up. I had to convince them to treat my painful intercourse so am managing to get a referral to a vaginismus clinic. I think I'm getting a referral to gastro too but apparently the head doctor at my gp wants to talk to me about a referral I need so I'm a bit nervous on what that might mean. My consultant was very dismissive about adenomyosis even after I gave her all the research I had done. Also with endo, I just don't see how I could not have it. My surgery was done by a regular gynaecologist so I think I'm going to have to pay to see a private BSGE specialist in order to fully put my mind to rest because surprise surprise, my chronic pain is STILL there after the laparoscopy and hasn't disappeared like it seems the doctors assume it would because there's "nothing wrong with you"

Sorry that ended up being kind of a vent, but I totally get what you mean with feeling like it's all in your head. Plus after my surgery, I had all the nurses telling me it was a good thing they found nothing as if they don't understand all you want at this point is a diagnosis to confirm the pain is not all in your head

Sending love and I hope you can get things sorted, the MRI sounds positive though as hopefully they'll be able to find exactly where it is and can come up with a game plan x

[Mindfullness4791 in reply to VioletCoffee]

Thank you so much for your reply.It's a scary place to be when you have real/physical symptoms but are almost having to prove that you are not faking it!

I just feel as though I am being fobbed off and have been seen by one inexperienced sonographer after another. You have to trust what they are saying is true. The frustrating thing is that due to their lack of knowledge, we as patients suffer

As I said in my appointment. I don't care what it is, I just want it to stop!! This level of pain is not normal.

I am hoping the MRI will give me some clear answers. If not I will have to pay for private scans at Harley street.

Thank you. Sending you love too and please feel free to chat to me anytime xxx