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unsightly rash
Hello. I was diagnosed with Lupus,aps,sjorgens disease, blue finger syndrome and granuloma annuare about three years ago but suspect I have had these conditions for many years as always passed off as 'just Arthritis' because of my age and with other misdiagnosis. What I would like to know is does anyone
Hello. I was diagnosed with Lupus,aps,sjorgens disease, blue finger syndrome and granuloma annuare about three years ago but suspect I have had these conditions for many years as always passed off as 'just Arthritis' because of my age and with other misdiagnosis. What I would like to know is does anyone
patientpat
in
Hughes Syndrome APS Forum
7 years ago
Recipes for Questran if you are struggling!
Just saw somebody mention cooking with it, alarm bells rang as I would put money on heating it removing its efficacy. However these are sauces and soups and meals only to be added after. Hope it may help a few. http://www.nhshighland.scot.nhs.uk/Services/Documents/Cooking_with_Questran.pdf
Just saw somebody mention cooking with it, alarm bells rang as I would put money on heating it removing its efficacy. However these are sauces and soups and meals only to be added after. Hope it may help a few. http://www.nhshighland.scot.nhs.uk/Services/Documents/Cooking_with_Questran.pdf
Jo_Br
in
PBC Foundation
7 years ago
I am starting to lose hope!
Hi all, my latest update and I am more scared and confused than ever. I if you remember finally ditched the gastro guy, got a fab hepatologist who did a fibro, dexa scan and just had the MRCP last week. She started from scratch. I had seen her twice she was moving fast to get me either a diagnosis for
Hi all, my latest update and I am more scared and confused than ever. I if you remember finally ditched the gastro guy, got a fab hepatologist who did a fibro, dexa scan and just had the MRCP last week. She started from scratch. I had seen her twice she was moving fast to get me either a diagnosis for
Jo_Br
in
PBC Foundation
7 years ago
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If Mucana is only Levadopa - then where is carbidopa coming from ? Also any one tried using light therapy . PLEASE LET ME KNOW .
Given that mom is recovering from pneumonia - her daytime sleepiness is really bad and her off times (low energy times more ). . mucana . We just reintroduced Mucana for mom (every alternate dose ) . 1.5tsps total - four doses. What do folks take with mucana to make it a levodopa plus carbidopa . I
Given that mom is recovering from pneumonia - her daytime sleepiness is really bad and her off times (low energy times more ). . mucana . We just reintroduced Mucana for mom (every alternate dose ) . 1.5tsps total - four doses. What do folks take with mucana to make it a levodopa plus carbidopa . I
mymomhaspd
in
Cure Parkinson's
7 years ago
Roller-coaster 🎢
I think I have just experienced the worst 24 hours of itching in my life, I am red raw, sore, very tired and feeling sorry for myself which I hope everyone realises I don't do very often.... And I am definitely putting down to the increase of my advagraf as it begins a few hours after I take them,
I think I have just experienced the worst 24 hours of itching in my life, I am red raw, sore, very tired and feeling sorry for myself which I hope everyone realises I don't do very often.... And I am definitely putting down to the increase of my advagraf as it begins a few hours after I take them,
jojokarak
in
British Liver Trust
7 years ago
COPD, Lung Cancer and Phototherapy as a treatment
Hi my mum has just been diagnosed with lung cancer and has been told she can not have any treatment as she has COPD, however I have been researching treatments and have come across phototherapy (PDT) but when she mention it today at a clinic she was told they hadn't heard of it... has anyone got any
Hi my mum has just been diagnosed with lung cancer and has been told she can not have any treatment as she has COPD, however I have been researching treatments and have come across phototherapy (PDT) but when she mention it today at a clinic she was told they hadn't heard of it... has anyone got any
Figgyd
in
The Roy Castle Lung Cancer Foundation
7 years ago
Does the PBC cause the itch or the urso?
I did start taking
questran
light
but gave up after a few days. Is it worth trying again. My official diagnosis is probable PBC as other results don't quite fit with typical PBC.
I did start taking
questran
light
but gave up after a few days. Is it worth trying again. My official diagnosis is probable PBC as other results don't quite fit with typical PBC.
Frances61
in
PBC Foundation
7 years ago
Questran Light, (cholestyramine) and other meds - timings of taking advice.
I finally have given in and requested
Questran
Light
, no proper sleep for over a week no with the intense itch, the daytimes not any difference in itch but I can think about other things, chat etc. I was so low I think I would swap all this for any side effects for a bit.
I finally have given in and requested
Questran
Light
, no proper sleep for over a week no with the intense itch, the daytimes not any difference in itch but I can think about other things, chat etc. I was so low I think I would swap all this for any side effects for a bit.
Jo_Br
in
PBC Foundation
7 years ago
Psoriasis on your face
Anyone else struggling with psoriasis on their face. I've had a flare up of guttate psoriasis and am undergoing phototherapy but my face looks terrible lots a small patches. I also have adult acne so have to be really careful what I use to moisturise. The UV is drying out my skin but I've had a breakout
Anyone else struggling with psoriasis on their face. I've had a flare up of guttate psoriasis and am undergoing phototherapy but my face looks terrible lots a small patches. I also have adult acne so have to be really careful what I use to moisturise. The UV is drying out my skin but I've had a breakout
DoubleM
in
Beyond Psoriasis
7 years ago
Update
Since initial diagnosis and some doubt from me regarding medication and the hospital Dr saying once I take Urso I will stop itching and only on half dose I had spoken to Robert last week, his good advice led me to contact my GP and he was not happy with what had been done and tests not done. I am very
Since initial diagnosis and some doubt from me regarding medication and the hospital Dr saying once I take Urso I will stop itching and only on half dose I had spoken to Robert last week, his good advice led me to contact my GP and he was not happy with what had been done and tests not done. I am very
Jo_Br
in
PBC Foundation
7 years ago
Anyone else have Morphea
I was diagnosed with Morphea about 6months ago, I'm 52,, though looking back, I've had pigmentation problems for about 3-4 years but just put it down to starting the menopause, I just happen to mention it to the Dr on a visit one day, I've had a biopsy, and have just had my first phototherapy (PUVA
I was diagnosed with Morphea about 6months ago, I'm 52,, though looking back, I've had pigmentation problems for about 3-4 years but just put it down to starting the menopause, I just happen to mention it to the Dr on a visit one day, I've had a biopsy, and have just had my first phototherapy (PUVA
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
bright light therapy
A pilot study using 1000–1500 lux of daily bright light therapy for 60–90 minutes for 2 weeks demonstrated reduction in bradykinesia and muscle rigidity.2 http://www.ultimaedizione.eu/wp-content/uploads/2015/03/Tiamina-e-Parkinson-Journal-of-alternative-and-complementary-therapies.pdf
A pilot study using 1000–1500 lux of daily bright light therapy for 60–90 minutes for 2 weeks demonstrated reduction in bradykinesia and muscle rigidity.2 http://www.ultimaedizione.eu/wp-content/uploads/2015/03/Tiamina-e-Parkinson-Journal-of-alternative-and-complementary-therapies.pdf
Hidden
in
Cure Parkinson's
7 years ago
Alternative therapy the ongoing story
Just realized it's been three months since I updated. I had hoped to phase out the low intensity light therapy (refer to earlier posts on my profile for details) but it seems that if more than two weeks go by I do start to feel a return of PMR symptoms, so I'm in a bit of a holding pattern with that
Just realized it's been three months since I updated. I had hoped to phase out the low intensity light therapy (refer to earlier posts on my profile for details) but it seems that if more than two weeks go by I do start to feel a return of PMR symptoms, so I'm in a bit of a holding pattern with that
HeronNS
in
PMRGCAuk
7 years ago
Infra Red Light Therapy
Don't get me wrong. I have only just had a rise in TSH to 3.5+ and antibodies still in normal range but higher than I would like. But I want to be proactive I have just received my near infra red lamp. Investigated the therapy having taken my dog to a chiropracter because of an injured shoulder giving
Don't get me wrong. I have only just had a rise in TSH to 3.5+ and antibodies still in normal range but higher than I would like. But I want to be proactive I have just received my near infra red lamp. Investigated the therapy having taken my dog to a chiropracter because of an injured shoulder giving
LynneG
in
Thyroid UK
7 years ago
Itching and burning
I am at my wits end with itching and burning sensation mainly in both arms and back. Is this normal with PBC? Had this for about 12 months My skin is such a mess looks like I have chicken pox scabs the are raised lumps that itch then bleed. Have been on Questran 1 sachet a day now for a month ......
I am at my wits end with itching and burning sensation mainly in both arms and back. Is this normal with PBC? Had this for about 12 months My skin is such a mess looks like I have chicken pox scabs the are raised lumps that itch then bleed. Have been on Questran 1 sachet a day now for a month ......
Chebsy1407
in
PBC Foundation
8 years ago
S.A.D seems to get more intense winter by winter
Hello. I am a 47 year old male and have battled general depression for 20 years but these last few years I have noticed that I am very affected by the lack of natural sunlight in the winter months. Things are now different as I now have got myself a job after 19 years of being unemployed, which has
Hello. I am a 47 year old male and have battled general depression for 20 years but these last few years I have noticed that I am very affected by the lack of natural sunlight in the winter months. Things are now different as I now have got myself a job after 19 years of being unemployed, which has
Baroque
in
Foggy's "Invisible Illness" Support
8 years ago
Questran from GP?
I have read a lot about Questran recently and wonder whether people have had it from their GPS or only through a specialist? My GP is very disinterested and just tells me to use loperamide bought over the counter, despite this being of limited help. I have had daily D for 5 years, usually 5-10 episodes
I have read a lot about Questran recently and wonder whether people have had it from their GPS or only through a specialist? My GP is very disinterested and just tells me to use loperamide bought over the counter, despite this being of limited help. I have had daily D for 5 years, usually 5-10 episodes
Mai16
in
IBS Network
8 years ago
Trying to provide some help for those with a skin condition....
I've had psoriasis (guttate and scalp) since Jan 2000. Like most on this forum, I've spent many years experimenting with 'magic' creams, dietary changes, oils, steroid creams, stress reduction and UV light therapy. I've also spent much of my career researching skin conditions. This research has recently
I've had psoriasis (guttate and scalp) since Jan 2000. Like most on this forum, I've spent many years experimenting with 'magic' creams, dietary changes, oils, steroid creams, stress reduction and UV light therapy. I've also spent much of my career researching skin conditions. This research has recently
LB35
in
MY SKIN
8 years ago
The Journey of Healing
I feel like it's important to share what I've learned in healing from hypothyroidism and if it can help even one person, then hallelujah! I have had this for about 5 years now and this past year I got extremely sick from it...the brain fog was unbearable and very scary to say the least. I believe in
I feel like it's important to share what I've learned in healing from hypothyroidism and if it can help even one person, then hallelujah! I have had this for about 5 years now and this past year I got extremely sick from it...the brain fog was unbearable and very scary to say the least. I believe in
Clementine44
in
Thyroid UK
8 years ago
Alternative Therapy Update Dec, 2016
I've been waiting to update my progress until I got my DXA scan results which finally I did this morning. Happily there has been a noticeable improvement and they are no longer recommending OP drugs, nor will I need another scan for three to five years! So nutrition and exercise do work, even when
I've been waiting to update my progress until I got my DXA scan results which finally I did this morning. Happily there has been a noticeable improvement and they are no longer recommending OP drugs, nor will I need another scan for three to five years! So nutrition and exercise do work, even when
HeronNS
in
PMRGCAuk
8 years ago
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