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Light Therapy - agony
Well last night, my thighs continued to swell until my knees disappeared amongst several folds of swollen skin. The skin was red raw, tight and painful. Sunburn without having seen the sun. Thankfully it has calmed down somewhat overnight but hasn't gone completely. And what an awful night
Well last night, my thighs continued to swell until my knees disappeared amongst several folds of swollen skin. The skin was red raw, tight and painful. Sunburn without having seen the sun. Thankfully it has calmed down somewhat overnight but hasn't gone completely. And what an awful night
PamJK
in
MY SKIN
11 years ago
Light Therapy for PLE - Session 2 of 8
Well it was a quick in and out at the hospital. Did discuss with the nurse the after-effects of the first session last Friday who seemed surprised by my rise in temperature. That's normal part of my PLE I find. She checked my legs were no longer showing any signs of redness, which they weren't so
Well it was a quick in and out at the hospital. Did discuss with the nurse the after-effects of the first session last Friday who seemed surprised by my rise in temperature. That's normal part of my PLE I find. She checked my legs were no longer showing any signs of redness, which they weren't so
PamJK
in
MY SKIN
11 years ago
First light therapy + 10.5 hours.
Now feeling really crappy. Had a dental appointment this afternoon - check up and S&P. Pointed out a lump I have on my jaw and now another referral to another specialist at another hospital. :( But I digress. Came home from dentist feeling cold and shivering. Realised this is not the effects of
Now feeling really crappy. Had a dental appointment this afternoon - check up and S&P. Pointed out a lump I have on my jaw and now another referral to another specialist at another hospital. :( But I digress. Came home from dentist feeling cold and shivering. Realised this is not the effects of
PamJK
in
MY SKIN
11 years ago
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Light Therapy
Well, I went for my first light therapy session this morning. It was a bit uncomfortable not being able to put any body lotion or moisturiser on after my shower but those were the instructions. My face felt so dry and my lips cracked in the cold wind. I wonder if a little lip salve would've been fine
Well, I went for my first light therapy session this morning. It was a bit uncomfortable not being able to put any body lotion or moisturiser on after my shower but those were the instructions. My face felt so dry and my lips cracked in the cold wind. I wonder if a little lip salve would've been fine
PamJK
in
MY SKIN
11 years ago
Hi, anyone else here with a diagnosis of Nodular Regenerative Hyperplasia of Liver?
It would be good to hear from anyone else who is living with this condition. My partner was diagnosed after a massive bleed at home from oesophageal varices (that he was unaware he had!) 5 years ago. On admission to the emergency dept. of hospital, the blood loss and trauma to his body was so great that
It would be good to hear from anyone else who is living with this condition. My partner was diagnosed after a massive bleed at home from oesophageal varices (that he was unaware he had!) 5 years ago. On admission to the emergency dept. of hospital, the blood loss and trauma to his body was so great that
Tootingalong
in
British Liver Trust
11 years ago
PLE
Finally got to the hospital this morning to discuss light therapy treatment. Start the actual sessions on Friday - two a week for 4 weeks. Just hope it helps. Feeling a bit anxious of the process - have to completely strip off apparently! - but I assume it's all sensitively done. Will let you know how
Finally got to the hospital this morning to discuss light therapy treatment. Start the actual sessions on Friday - two a week for 4 weeks. Just hope it helps. Feeling a bit anxious of the process - have to completely strip off apparently! - but I assume it's all sensitively done. Will let you know how
PamJK
in
MY SKIN
11 years ago
psoriasis ruining my life :(
hi, i developed psoriasis about 10 years ago, when me and my partner got together, it started on my head and is now on my head, ears, hands, elbows, belly, bum, knees and ankles :( i have tried every cream the doctor could prescribe and also got referred to a dermatology nurse, who wasnt very helpful
hi, i developed psoriasis about 10 years ago, when me and my partner got together, it started on my head and is now on my head, ears, hands, elbows, belly, bum, knees and ankles :( i have tried every cream the doctor could prescribe and also got referred to a dermatology nurse, who wasnt very helpful
louismummy2010
in
MY SKIN
11 years ago
An update on how am doing OFF URSO.
At the moment all I am taking for the itch is
Questran
Light
- one before and one after breakfast and one after supper (usually a bowl of cereal) and occassionally, one during the night ( and in the last week or so this is happening less and interestingly if have the itch in the night, its usually around
At the moment all I am taking for the itch is
Questran
Light
- one before and one after breakfast and one after supper (usually a bowl of cereal) and occassionally, one during the night ( and in the last week or so this is happening less and interestingly if have the itch in the night, its usually around
littlemo
in
PBC Foundation
11 years ago
Ibs or bile salt malabsorption ?
Having read many posts and being diagnosed ibs/diverticulosis I recently had a bile salt test and was told that was the problem after all these years of suffering with my stomach D prodominant can anyone shed any
light
on the subject have been given
questran
to take on codeine at the moment ..
Having read many posts and being diagnosed ibs/diverticulosis I recently had a bile salt test and was told that was the problem after all these years of suffering with my stomach D prodominant can anyone shed any
light
on the subject have been given
questran
to take on codeine at the moment ..
Twoguns67
in
IBS Network
11 years ago
light therapy
i have been having light therapy for several years due to psoriasis this latest treatment they have increased my time that im in the machine,i have never been in for so long,past treatments i only managed to stay in for a max of 4.5 mons but this treatment iv been in for 8.49 mins which was reduced
i have been having light therapy for several years due to psoriasis this latest treatment they have increased my time that im in the machine,i have never been in for so long,past treatments i only managed to stay in for a max of 4.5 mons but this treatment iv been in for 8.49 mins which was reduced
pickle1234
in
Fibromyalgia Action UK
11 years ago
any advice on QUESTRAN
glitterbug38
in
Children's Liver Disease Foundation
11 years ago
Arghhhhhhhhhhhhhhhhhhhhh
The last couple of weeks have been so frustrating for so many reason, poor health is driving me to distraction, and after brief admission to hospital (apparently I know myself so well, that is quite okay to discharge me one hour after being admitted to hospital, despite being brought in by the big yellow
The last couple of weeks have been so frustrating for so many reason, poor health is driving me to distraction, and after brief admission to hospital (apparently I know myself so well, that is quite okay to discharge me one hour after being admitted to hospital, despite being brought in by the big yellow
Daxiemad
in
Lung Conditions Community Forum
11 years ago
Please help me!
Hello. My name is Zaw Zaw and I'm from Myanmar.I have one younger sister.Last year,in August, my mother was diagnosed PBC.My mother is 47 years old.I and my younger sister worry too much for my mother.My mother takes UDIHEP Forte 3 times per day and also questran powder.I would like to share my mother
Hello. My name is Zaw Zaw and I'm from Myanmar.I have one younger sister.Last year,in August, my mother was diagnosed PBC.My mother is 47 years old.I and my younger sister worry too much for my mother.My mother takes UDIHEP Forte 3 times per day and also questran powder.I would like to share my mother
theboyzaw
in
PBC Foundation
11 years ago
Does anyone know the best way to take questran lite? I mixed it with water but its not very nice!!!
Elainey
in
Pain Concern
11 years ago
Does everyone with raised levels of bilirubin have itch?
I ask this question as I am one of the unfortunates with PBC who has always had itch even though my bilirubin levels were within the normal range. Thankfully since been off the urso my itch is fairly mild and quite tolerable and well controlled with just taking about 4 Questran sachets a day. However
I ask this question as I am one of the unfortunates with PBC who has always had itch even though my bilirubin levels were within the normal range. Thankfully since been off the urso my itch is fairly mild and quite tolerable and well controlled with just taking about 4 Questran sachets a day. However
littlemo
in
PBC Foundation
12 years ago
Dirty Weekend!
Boy have I got down and filthy dirty this weekend, and loved every single minute of it! Saturday morning was spent helping hubby cut up and bag the lopped part of my Cherry Tree. Hubby who normally does so much is still experiencing almost total role reversal, and I am loving it, whilst from time to
Boy have I got down and filthy dirty this weekend, and loved every single minute of it! Saturday morning was spent helping hubby cut up and bag the lopped part of my Cherry Tree. Hubby who normally does so much is still experiencing almost total role reversal, and I am loving it, whilst from time to
Daxiemad
in
Lung Conditions Community Forum
12 years ago
I'm back!
11 days since my discharge from the Royal Brompton, London for 10 days of IV's and drips for my Brittle Asthma. And since I have been home have made it a rule not to spend so much time in Cyber World, 10 days of breathing space (sorry no pun intended) gave me plenty of time to realise how little of
11 days since my discharge from the Royal Brompton, London for 10 days of IV's and drips for my Brittle Asthma. And since I have been home have made it a rule not to spend so much time in Cyber World, 10 days of breathing space (sorry no pun intended) gave me plenty of time to realise how little of
Daxiemad
in
Lung Conditions Community Forum
12 years ago
Am an oldie on here by sounds of things in relation to how long have had pbc!
I still have the itch but as I said it is well controlled now with
Questran
light
. I hope and pray that this will continue to be the case for a very long time to come.
I still have the itch but as I said it is well controlled now with
Questran
light
. I hope and pray that this will continue to be the case for a very long time to come.
littlemo
in
PBC Foundation
12 years ago
Is there anyone on here who has had pbc for more than 10yrs, suffered with the itch but never been on urso?
I have managed to live with it all this time and using
questran
light
has helped but have never gotten rid of it completely.
I have managed to live with it all this time and using
questran
light
has helped but have never gotten rid of it completely.
littlemo
in
PBC Foundation
12 years ago
Has anyone else been on urso for many years ,come off it and improved symptom wise in doing so?
I have been taking urso for 10years and after reaching the end of my tether with the horrendous itch I decided to stop taking the urso to see if I would feel any different. I based my decision on my blood results over the last 11 yrs which is when I first took the itch amongst other symptoms. There
I have been taking urso for 10years and after reaching the end of my tether with the horrendous itch I decided to stop taking the urso to see if I would feel any different. I based my decision on my blood results over the last 11 yrs which is when I first took the itch amongst other symptoms. There
littlemo
in
PBC Foundation
12 years ago
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