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Dysautonomia in Sjögren's - Genital Sore/dry symptoms
Because of the shame or embarrassment sometimes involved in talking about vulvar or vaginal symptoms, I have not really gone into depth with my Rheumatologist. I am just wondering whether anyone has any tips of how to soothe:- Burning of the vagina or vulvaI Itchy vulva or vagina I am also going through
Because of the shame or embarrassment sometimes involved in talking about vulvar or vaginal symptoms, I have not really gone into depth with my Rheumatologist. I am just wondering whether anyone has any tips of how to soothe:- Burning of the vagina or vulvaI Itchy vulva or vagina I am also going through
Energy14
in
LUPUS UK
6 months ago
If these were your results what would you do?
So despite increasing my T3 dose my FT3 is staying at 5. My FT4 is falling. My symptoms are mostly in check these days but the fatigue and malaise is creeping higher again and it's starting to inhibit what I can do. (Noting that my estrogen is below range and I'm hoping to start HRT soon.) I'm sporadic
So despite increasing my T3 dose my FT3 is staying at 5. My FT4 is falling. My symptoms are mostly in check these days but the fatigue and malaise is creeping higher again and it's starting to inhibit what I can do. (Noting that my estrogen is below range and I'm hoping to start HRT soon.) I'm sporadic
WitchingHour2point0
in
Thyroid UK
6 months ago
prostap hrt and hysterectomy
Hi I’m looking for some advice, I’ve always suffered with my periods since starting them. I’ve tried lots of different contraceptives and found I’m really sensitive. I’ve had 3 children and don’t plan to have any more. I had an ablation done in 2021 which reduced bleeding but made pain more intense
Hi I’m looking for some advice, I’ve always suffered with my periods since starting them. I’ve tried lots of different contraceptives and found I’m really sensitive. I’ve had 3 children and don’t plan to have any more. I had an ablation done in 2021 which reduced bleeding but made pain more intense
Jessdoss
in
Women's Health
6 months ago
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Getting ready to begin T3... YAY... but...
I found a swell Endo (unwilling to wait 6-12 months for the NHS referral), and he's prescribing Tybon Henning 20mcg tablets to chop up. I currently take 75mcg Levo and have done so for 20+ years. I feel like a slug, gained about two stone in the past 3 years, have chronic pain, no libido, a bit depressed
I found a swell Endo (unwilling to wait 6-12 months for the NHS referral), and he's prescribing Tybon Henning 20mcg tablets to chop up. I currently take 75mcg Levo and have done so for 20+ years. I feel like a slug, gained about two stone in the past 3 years, have chronic pain, no libido, a bit depressed
wavedancers
in
Thyroid UK
7 months ago
Odd statement found in STAMPEDE trial results
"Hormone therapy can cause bone problems. But the trial found that abiraterone reduced the risk of serious bone problems by a half." https://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-trial-looking-at-hormone-therapy-with-other-treatments-for-prostate-cancer-stampede-trial-results
"Hormone therapy can cause bone problems. But the trial found that abiraterone reduced the risk of serious bone problems by a half." https://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-trial-looking-at-hormone-therapy-with-other-treatments-for-prostate-cancer-stampede-trial-results
Hidden
in
Advanced Prostate Cancer
6 months ago
what to do??
I am really struggling, I am wondering if I have hashimotos. Diagnosed with an underactive thyroid in march ( the day my dad died) just 6 months after losing my mother in law. Had gone to the drs thinking my HRT needed tweaking for my perimenopause symptoms. (Hair loss, brittle nails, weight gain, sweating
I am really struggling, I am wondering if I have hashimotos. Diagnosed with an underactive thyroid in march ( the day my dad died) just 6 months after losing my mother in law. Had gone to the drs thinking my HRT needed tweaking for my perimenopause symptoms. (Hair loss, brittle nails, weight gain, sweating
Vorney
in
Thyroid UK
6 months ago
Poor converters
Can anyone give me some stats on the percentage of patients in the UK needing combined therapy T4/T3? That is, percentage of poor converters? Percentage of faulty genes Di01 and DI02? Am writing a follow-up article to the one published for Central Bylines https://centralbylines.co.uk/big-pharma-the-nhs-thyroid-disease-and-me
Can anyone give me some stats on the percentage of patients in the UK needing combined therapy T4/T3? That is, percentage of poor converters? Percentage of faulty genes Di01 and DI02? Am writing a follow-up article to the one published for Central Bylines https://centralbylines.co.uk/big-pharma-the-nhs-thyroid-disease-and-me
judycopage
in
Thyroid UK
10 months ago
pre lap care (long post)
I haven’t had my endometriosis confirmed by lap yet, I’m awaiting mri and I’m on a 2 year wait list for laparoscopy surgery after 8 nearly 9 years of waiting to be somewhat listened to- I had my first gynae app on the 16th and was told I could use contraceptive to help the affects until my lap (in 2
I haven’t had my endometriosis confirmed by lap yet, I’m awaiting mri and I’m on a 2 year wait list for laparoscopy surgery after 8 nearly 9 years of waiting to be somewhat listened to- I had my first gynae app on the 16th and was told I could use contraceptive to help the affects until my lap (in 2
Luna-rat
in
Endometriosis UK
8 months ago
From a Gleason 9 to a clean CT scan in 18 mos.
18 mos ago, my husband was told by his dr. that he "most likely had two or three good years left." (WHY do they say stupid things like that?) I think that a lot of people believe whatever the dr. says and subconsciously program themselves accordingly. I, on the other hand, thought to myself, "We'll
18 mos ago, my husband was told by his dr. that he "most likely had two or three good years left." (WHY do they say stupid things like that?) I think that a lot of people believe whatever the dr. says and subconsciously program themselves accordingly. I, on the other hand, thought to myself, "We'll
jtango
in
Advanced Prostate Cancer
6 months ago
How important is missing 2 months of ADT?
I'm one month into RT and ADT for 9 months. I chose monthly Eligard. The Urology office made a mistake and came in with a 3-month dose. When I told the nurse I had communicated my 1-month preference prior, she left the room. The Dr. came in, eyeballed the dosage, removed 2/3 and I received it. I was
I'm one month into RT and ADT for 9 months. I chose monthly Eligard. The Urology office made a mistake and came in with a 3-month dose. When I told the nurse I had communicated my 1-month preference prior, she left the room. The Dr. came in, eyeballed the dosage, removed 2/3 and I received it. I was
Eadgbe
in
Prostate Cancer Network
6 months ago
bone mets
Does anybody here has obsteoblastic lesion on the first diagnosis then osteolytic and sclerotic lesion after some few years on bone mets? How are you managing bone mets? Xgeva? Zoledronic acid? Xofigo? Appreciate your inputs in here. My dad is on 1st line ADT since 2021 and just started 2nd line(abiraterone
Does anybody here has obsteoblastic lesion on the first diagnosis then osteolytic and sclerotic lesion after some few years on bone mets? How are you managing bone mets? Xgeva? Zoledronic acid? Xofigo? Appreciate your inputs in here. My dad is on 1st line ADT since 2021 and just started 2nd line(abiraterone
dnmrk
in
Advanced Prostate Cancer
6 months ago
Managing side effects of ADT
I have found that Richard Wassersug has many blog postings related to ways to manage ADT side effect on the LifeOnAdt.com website. I also found the new version of his book has a great section on dealing with relationship issues. It was very helpful in keeping my relationship with Coco on track when
I have found that Richard Wassersug has many blog postings related to ways to manage ADT side effect on the LifeOnAdt.com website. I also found the new version of his book has a great section on dealing with relationship issues. It was very helpful in keeping my relationship with Coco on track when
Scout4answers
in
Advanced Prostate Cancer
6 months ago
declining psa #7
Gm ladies n gents, I’m here to give my results as promised post Rp, rad, and 7 mo of adt. Solely using ivermectin, cbd oil, turmeric, zinc and now testosterone boosters ashwagandha, cordyceps extract and diindolylmethane(dim) which is an estrogen blocker. Psa has dropped to 1.29 down from 1.34 last
Gm ladies n gents, I’m here to give my results as promised post Rp, rad, and 7 mo of adt. Solely using ivermectin, cbd oil, turmeric, zinc and now testosterone boosters ashwagandha, cordyceps extract and diindolylmethane(dim) which is an estrogen blocker. Psa has dropped to 1.29 down from 1.34 last
Nfler
in
Advanced Prostate Cancer
6 months ago
Are there any free resources?
I go to therapy and really like my therapist but its expensive. Inpay $240/session so i can only afford one session a month. However, i need more. Are there any free therapy or group therapy available for social anxiety, suicidal thoughts, to talk about difficulty in marriage etc?
I go to therapy and really like my therapist but its expensive. Inpay $240/session so i can only afford one session a month. However, i need more. Are there any free therapy or group therapy available for social anxiety, suicidal thoughts, to talk about difficulty in marriage etc?
AsterixSocialanxiety
in
Anxiety and Depression Support
10 months ago
Will HRT help me?
I have been having bladder sensitivity and urge incontinence for about 3 years. I am 67 and postmenopausal for about 15 years. Is it too late to start HRT and if I did, would it make any difference now?
I have been having bladder sensitivity and urge incontinence for about 3 years. I am 67 and postmenopausal for about 15 years. Is it too late to start HRT and if I did, would it make any difference now?
Guineapiggy
in
Bladder Health UK
6 months ago
Radiation and diarrhea/ GI issues/ please help
looking for other experiences with radiation. My dad just went through -4.5 weeks of radiation. I believe it was standard radiation EBRT or IMRT not sure which. It was fine at first, no side effects. By week 4 the side effects started - diarrhea, constipation, abdominal discomfort, gas. He is so uncomfortable
looking for other experiences with radiation. My dad just went through -4.5 weeks of radiation. I believe it was standard radiation EBRT or IMRT not sure which. It was fine at first, no side effects. By week 4 the side effects started - diarrhea, constipation, abdominal discomfort, gas. He is so uncomfortable
alysona828
in
Advanced Prostate Cancer
3 months ago
Bladder dysfunction
in 2014, diagnosed Gleason 9, had Prostate surgery, cancer metastasized to pelvic region, did ADT, followed by 72 Proton blasts ( 37 to cavity-35 to pelvic) Two years ago, stricture surgery ( 80% urethra blockage- all good), had stricture surgery 3 weeks ago ( 25% blockage), but bladder stopped operating
in 2014, diagnosed Gleason 9, had Prostate surgery, cancer metastasized to pelvic region, did ADT, followed by 72 Proton blasts ( 37 to cavity-35 to pelvic) Two years ago, stricture surgery ( 80% urethra blockage- all good), had stricture surgery 3 weeks ago ( 25% blockage), but bladder stopped operating
Tkwham
in
Advanced Prostate Cancer
6 months ago
Private Consultation Findings - thoughts on next steps
Hello everyone. I am looking for some advice and experiences on Dienogest / Zalkya. Diagnosed in 2022 via lap by general gynae and never prescribed anything. Own GP has tried me on contraceptives & meds for pain management, which nearly tipped me over the edge. After a scare with my mental health,
Hello everyone. I am looking for some advice and experiences on Dienogest / Zalkya. Diagnosed in 2022 via lap by general gynae and never prescribed anything. Own GP has tried me on contraceptives & meds for pain management, which nearly tipped me over the edge. After a scare with my mental health,
usernames123
in
Endometriosis UK
6 months ago
Cognition Issues
My husband is going into year 7 with PC. He had prostate removed… at Mayo in 2017. All clear margins, contained etc. 6 months he had Biochemical Recurrence. Then radiation and cryptography on one node. Since then he has been intermittently on ADT until he because Castrate resistant about a year ago
My husband is going into year 7 with PC. He had prostate removed… at Mayo in 2017. All clear margins, contained etc. 6 months he had Biochemical Recurrence. Then radiation and cryptography on one node. Since then he has been intermittently on ADT until he because Castrate resistant about a year ago
JolleySprings
in
Advanced Prostate Cancer
6 months ago
First Post Biopsy Consult
I'm grateful to have found this network. I've spent many hours over reading your posts and replies, and learning from you all. Thank you. I'm 59 years old. Both my father and brother were diagnosed with PCa in their late 50s. I did a genome test for my family some years ago and learned I carry the
I'm grateful to have found this network. I've spent many hours over reading your posts and replies, and learning from you all. Thank you. I'm 59 years old. Both my father and brother were diagnosed with PCa in their late 50s. I did a genome test for my family some years ago and learned I carry the
Mpls
in
Prostate Cancer Network
6 months ago
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