Next step

[Elbers123]

x Summer of 2020.59 yr old. Spent 2021 on AS eventually psa went from 6.5 to 10 day of RALP. 2/14/22

GL 7a T3aN0M0 post psa at 3 months .04. Stayed until at one year .08 . At 18 months .1 now 2 years out .22

I had a neg psma scan but psa is low so false neg is very real.

I have continually asked for agressive treatment but don’t feel I’ve gotten it. I hope I have an opportunity at some type of remission. I have an appointment in two days and will advocate for prostate bed and lymph node radiation plus ADT

Assuming 2 years.

Biggest worry is rapid doubling. I will be meeting w my surgeon. Who should he be referring me to? And how fast should I push for? Seems time is of the essence?

[treedown]

Sounds like you will need Medical and Radiation Oncologists to proceed. Are you in the states? If you tell us where somebody may offer good choices.

[Elbers123 in reply to treedown]

I am in Buffalo NY and go to Roswell Cancer Institute.

[Nfler]

I’m the same age n had about the exact same diagnosis, did the Rp n then adt n radiation ☢️. Couldn’t stand the ADT so eventually got off it after 7 mo and in the sixth month starting taking ivermectin and psa has dropped consistently (1.95 - .65)for over a year now. So if you’re concerned about doubling time, the ivermectin has cut my psa in half after a year n now it’s at 1/3 of what it was when I first started. Good luck in fighting this dreaded disease but it’s def treatable…😁😇

[garyjp9 in reply to Nfler]

Re the Ivermectin --- how often to you take it and in what amount?

[Tall_Allen]

Probably should consider salvage RT + 4-6 months of ADT, as in the SPPORT protocol:

prostatecancer.news/2022/05...

[j-o-h-n]

Greetings, Well you took a good step by joining H.U. MaleCare.... Keep posting here for info and camaraderie... Kill those tiny fuckers..........

Good Luck, Good Health and Good Humor.

j-o-h-n