Experiences with

Proton Therapy

Hello I've been hypo for 23 years. I rarely stay level for too long. October my TSH was 0.21, meds were tweaked from 125mcg mon-fri & 150 at weekends to 125mcg 7 days. January my TSH 5.05 but told stay on 125mcg for anther couple months. As i'm sure the reason most of us are on here, you understand

First post. Age 67. Unfavorable intermediate PCa. 4+3 in 4 cores/20; 3+4 in 6 cores/20. Simple cribriform. Some PI in 2 cores. PSMA pet scan shows no evidence of meta. .66 Decipher score. Decipher says that with this score, I have an 8.6% risk of metastasis in 10 years if treated with RT or RP

Well, it looks like my honeymoons of ADT are over. I was (and still am) on a tripple therapy along the lines of the ARASENS trial (Docetaxel, Lupron and NUBEQA) for about 2 years. My PSA started rising six months ago, at first slowly, but now very rapidly. It went from 0.04 to 0.05 then 0.17 (in three

Men with pc are more likely to get cvd than non sufferers, is this due to ADT when advanced pc is treated or are there other reasons

I have had my first prolotherapy injections, they don't hurt much at all.......I must admit the next day I thought oh no I have done the wrong thing....my legs were so bad I wanted to jump off the bridge. Today they have settled down a bit. I suppose this has happened because the prolotherapy causes

I have had my first prolotherapy injections, they don't hurt much at all.......I must admit the next day I thought oh no I have done the wrong thing....my legs were so bad I wanted to jump off the bridge. Today they have settled down a bit. I suppose this has happened because the prolotherapy causes

Hello All , I just hit the 2 yr. mark of Eligard , Zytiga and pred. Im Stage 4 N1 , Had SBRT to prostate 2015 , then 7 yrs later PSMA-Pet saw 1 tumor in my pelvic lymph node Had SBRT on that . I have a heart doctor for heart murmur . The question is according to a study , per Tall Allen , Stampede

HiI am new here with a question for my daughter (19). She is really struggling with fatigue so much so she is home from Uni. Also feels sick, headaches, really cold hands and feet and very pale. She had low ferritin last year and was put on iron tablets for 3 months. She went for a private blood test

I have had depression since my 20’s and likely in teens. I’m now 56 and my meds are no longer working like they once did. I’m going to be meeting with a clinic about other options ie: ECT etc. I’m very scared and anxious as this feels next level to me in my illness. Have you tried ECT and/or Esketamine

The range of access to Pluvicto (Lu177-PSMA-617) radionuclide treatment is expanding. Great news. The PSMA-Fore trial recently showed that it iis very beneficial before docetaxel chemotherapy in mCRPC. Now a worldwide trial is exploring it in metastatic hormone sensitive PC, including de novo metastatic

hey so when are the side effects are supposed to kick in… started ADT in Mid October and Erleada mid January. Thanks in advance.

just here for a moan really.. feel like Ivd been hit by a truck last few days, pain everywhere, immense fatigue, then not sleeping.. I’m now 46, and been diagnosed with RA about 16 months ago.. currently on Leflunomide but is not really working, but having done 12 months on MTX which affected my MH

I'm trying to stay positive and help everyone come up with ideas for journaling, artwork, ect....I try not to get carried away with my posts.....trying not to be too pushy....will you please let me know if i get too carried away

I recently had my quarterly PSA and T tests, following stopping 18 months of ADT (Orgovyx) in April of 2022. PSA continued to de undetectable (<0.01) and T was 761. The last quarterly T was 706. Having had an initial PC Dx of GL9, Stage 4, Decipher .76 (July 2019) should I be concerned that T is

Does anyone know of any face-to-face groups within the Portsmouth area? Or, does anyone know who to contact to find out? Any advice would be gratefully received. Thank you

Morning lovely people. I really hope you can help we make sense of what's been going on for me for the past 4 years. After getting covid in March 2020 I have not really been 100%. The fatigue etc did improve to about 95% of normal until getting covid again in October 2021 (and going through some extreme

I have had depression since my 20’s and likely in teens. I’m now 56 and my meds are no longer working like they once did. I’m going to be meeting with a clinic about other options ie: ECT etc. I’m very scared and anxious as this feels next level to me in my illness. Have you tried ECT and/or Esketamine

I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds

Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only

hi has anyone been down this road please? - Taking bio identical hormones via Louise Newson to gp & now from the nhs, & my sub clinical thyroid numbers (& after years of taking levothyroxine doses without conversion improvement or drop in tsh). On taking hrt i went from TSH 5 to 1.1!!! In a very