Experiences with Proton therapy | HealthUnlocked

49 public communities

Anticoagulation Support

The Anticoagulation Support community is for anyone impacted by a health condition such as atrial fibrillation, stroke, deep vein thrombosis (DVT) and pulmonary embolism (PE), aortic heart valve replacement, antiphospholipid syndrome and thrombotic disorders. These conditions can increase the risk of blood clots or thrombosis and may require anticoagulation therapy to treat or prevent blood clots from happening. Anticoagulant therapy is sometimes described as a blood thinner and can be given for a short period of time (to prevent clots after hip and knee replacement surgery) or long term for people with thrombotic disorders to prevent recurrence of clotting episodes. Some people may be offered anticoagulation medication when they are being treated for cancer. Anyone requiring anticoagulation therapy should discuss medication options with a health care provider and be given adequate information around the duration and monitoring of the treatment provided. In the UK, there are several oral anticoagulant medications available - Apixaban, Dabigatran, Edoxaban, Rivaroxaban and Warfarin. Heparin is given by injection. Anticoagulation Support aims to help individuals engage with people who have lived experience of living with a condition and being treated with anticoagulants. The site is moderated by HealthUnlocked with input from an anticoagulation patient expert and an anticoagulation healthcare professional. For information about anticoagulation therapy and related conditions visit.... NHS website - https://www.nhs.uk/ National Institute of Health and Care Excellence(NICE) - https://www.nice.org.uk

The Children's Trust

The Children’s Trust, Tadworth is a national charity working with children with brain injury. We are based at a 24 acre site in Tadworth, Surrey but offer our services to children from across the UK. We provide expert rehabilitation, education, therapy and care to support children and their families. The Children's Trust has also developed The Brain Injury Hub which is an online information and advice service for parents and other family members and includes as well as developing an online community and includes Health Unlocked.

Chronic Pancreatitis Support

Welcome to the Chronic Pancreatitis Support community, here to support anyone impacted by chronic pancreatitis and related conditions, such as EPI (Exocrine Pancreatic Insufficiency). Whether you are looking for a diagnosis or currently on Pancreatic Enzyme Replacement Therapy (PERT), here you will find peers with whom you can share experiences, information and participate in research events within the community. This community is offered by Mission: Cure on the HealthUnlocked platform. We serve the patients & communities affected by recurrent acute and chronic pancreatitis. Our impact extends to disease research and healthcare, applying innovative financing models to advance new therapies and cures. Beginning with chronic pancreatitis, we are committed to advancing new therapies and accelerating a cure for debilitating and untreatable diseases—within ten years. This community has been funded in part by Aimmune Therapeutics, Inc., a Nestlé Health Science Company. Anonymous data from the content shared in this community is used to improve the understanding of this condition.

Mental Health Support

Shawmind is a young charity on a mental health mission. We are committed to helping young people, adults and communities to have access to mental health resources when they need them. We do not provide therapy or counselling. Our focus is on early intervention, helping people to understand anxiety, its triggers and related mental health affects, and how to effectively deal with them before they escalate into more serious mental health challenges. Our Breathe Cafés are the perfect place to just ‘breathe’ when you're feeling stressed or anxious. We are partnering with coffeeshops, pubs and restaurants around the country to provide a trained mental health first aider, mental health books, and other resources for those who need them. BreatheUni is a group run by trained Shawmind student volunteers, for students - dealing with all aspects of student mental health & wellbeing. This group is active on Instagram: @breathe_uni We provide a range of training courses which help one better understand mental health conditions and how to spot the signs of those who are struggling. See our website for more info and help! --- The best way to keep your community as safe as possible is by using "Report" feature. If needed, please do not hesitate to flag any posts to by clicking "Report" button https://support.healthunlocked.com/article/17-how-do-i-report-content or sending an email at support@healthunlocked.com. No one should have to deal with extreme feelings alone, so please reach out to close family and friends for help if you need to. You can also talk to your GP or contact one of the many mental health resources found in our Help Centre article here: https://support.healthunlocked.com/article/12-mental-health-resources-and-services If you feel you need immediate support, please call your emergency number 999 or go to your local A&E.

Prostate Cancer Caregivers

Welcome to caregivers currently caring for loved ones with PCa. Spouses and partners...a safe, caring community for all of us. It's OK to think of "me." You can't help the man you love if you don't take care of yourself, too. Sign up for our newsletter at https://malecare.org/prostate-cancer-newsletter/

Active Surveillance - Prostate Cancer

Active Surveillance is about men diagnosed with prostate cancer, trying to maintain the highest quality of life and living long enough to die from something else. We're about supporting each other in a world where overtreatment is the norm and where people just don't understand why men with cancer might want to delay or avoid treatment.

Prostate Cancer Network

Newly diagnosed? On Active Surveillance? You've got brothers here! What's next after surgery or radiation? Impotent? Difficulty with Urine Control? Caregiver or Spouse? You are not alone, here. A friendly, safe, informal atmosphere where we can pick each other's brains. Your 24 hour online support group. Our community is run by Malecare Cancer Support. We are men, fighting prostate cancer, together.

Advanced Prostate Cancer

A friendly prostate cancer support group where we can pick each other's brains. Our 24 hour online support group. Talking about advanced prostate cancer is a powerful tool. Our community is run by Malecare Cancer Support. We are men, fighting prostate cancer, together.

Fight Prostate Cancer

This community is no longer actively moderated. Please visit the other prostate cancer community to continue receiving support: healthunlocked.com/advanced-prostate-cancer/posts/138237903/welcome-new-members

Leukodystrophy Support

Welcome to Leukodystrophy Support, an online support community for anyone that is affected, directly or indirectly, by a leukodystrophy. This community is run by Alex, The Leukodystrophy Charity (Alex TLC), a charity who supports individuals and families affected by genetic leukodystrophies. We provide emotional and financial support to patients and families affected, including a grants programme that helps families cover vital support costs. We provide practical information and advice to patients and families to help them make informed decisions about their health and social care needs. We also help fund medical research projects looking into finding better treatment or a cure for the disorder. For support for carriers of leukodystrophy, go to our Leukodystrophy Carriers page (https://healthunlocked.com/leukodystrophy-carriers). Those with Adrenomyeloneuropathy (AMN) have their own dedicated community, AMN Easier (healthunlocked.com/amneasier). Leukodystrophies are rare, genetic conditions primarily affecting central nervous system white matter. You can find out more about each condition on the Alex TLC website.

Leukodystrophy Carriers

Alex, The Leukodystrophy Charity (Alex TLC) supports individuals and families with genetic leukodystrophies. This page is for carriers of leukodystrophy. For support for those caring for or suffering from leukodystrophies, go to our Leukodystrophy Support page (https://healthunlocked.com/leukodystrophy-support). Those with Adrenomyeloneuropathy (AMN) have their own dedicated community, AMN Easier (healthunlocked.com/amneasier). Leukodystrophies are rare, genetic conditions primarily affecting central nervous system white matter. You can find out more about each condition on the Alex TLC website.

Tenovus

We are the leading cancer charity focusing on supporting those affected by cancer. We help patients and their families get access to treatment, advice and support.

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