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My MO suspects that I am non-metastatic, castration resistant but will not approve any treatment until metastases develop.
Gleason 9 at diagnosis, BRACA 2 germline and somatic. RP five years ago but cancer escaped the capsule; PSA of around 2.5 after surgery. Had radiation to pelvic area a few months later along with Eligard injection. Renewed Eligard after 3 months and PSA went down to undetectable. T was close to zero
Gleason 9 at diagnosis, BRACA 2 germline and somatic. RP five years ago but cancer escaped the capsule; PSA of around 2.5 after surgery. Had radiation to pelvic area a few months later along with Eligard injection. Renewed Eligard after 3 months and PSA went down to undetectable. T was close to zero
Balsam01
in
Advanced Prostate Cancer
6 months ago
Early detection: POSLUMA is the first FDA-approved radio-hybrid drug for PET imaging of prostate cancers.
Imaging tool can detect PCa even with very low PSA levels https://www.news4jax.com/health/2024/01/16/new-imaging-tool-is-lighting-up-prostate-cancer/
Imaging tool can detect PCa even with very low PSA levels https://www.news4jax.com/health/2024/01/16/new-imaging-tool-is-lighting-up-prostate-cancer/
Maxone73
in
Advanced Prostate Cancer
6 months ago
strange drop in PSA
My PSA dropped from 1.03 in July 2023 to 0.248 in February 2024. It's never been anywhere near this low, since I began getting tested in my 50s, even before I was diagnosed in 2008 (Gleason 7). I'm 77. I'm not on ADT, don't have metastatic disease. Since HIFU in 2015, which was a hemi-ablation but left
My PSA dropped from 1.03 in July 2023 to 0.248 in February 2024. It's never been anywhere near this low, since I began getting tested in my 50s, even before I was diagnosed in 2008 (Gleason 7). I'm 77. I'm not on ADT, don't have metastatic disease. Since HIFU in 2015, which was a hemi-ablation but left
kapakahi
in
Prostate Cancer Network
5 months ago
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weight loss on ProStap
hi everyone I have posted a few times about struggling to lose a horrendous amount of weight I have gained since being on these injections I have managed to get my doctor to prescribe me orlistat which is a fat binder to help me to lose weight because everything else I have child has not worked
hi everyone I have posted a few times about struggling to lose a horrendous amount of weight I have gained since being on these injections I have managed to get my doctor to prescribe me orlistat which is a fat binder to help me to lose weight because everything else I have child has not worked
Prettythings1
in
Endometriosis UK
11 months ago
Testosterone
39 sessions of SBRT ended Jan 2020. HDT ended Feb 2021 Labs Feb 2024: PSA - undetectable Testosterone 283 Would like to supplement testosterone for better QOL. Urologist not helping but primary Dr will help/monitor. Would like to hear opinions or suggestions both pro & con
39 sessions of SBRT ended Jan 2020. HDT ended Feb 2021 Labs Feb 2024: PSA - undetectable Testosterone 283 Would like to supplement testosterone for better QOL. Urologist not helping but primary Dr will help/monitor. Would like to hear opinions or suggestions both pro & con
BadNews4me
in
Prostate Cancer Network
5 months ago
Rise in Testosterone but not PSA?
My dad has stage 4 prostate cancer, diagnosed in August of 2022. Gleason 4+3 Stage 4 because it went to 1 lymph node in the abdomen. After 44 rounds of radiation, receiving Eligard injections every 3 months, and 10 months on Apalutamide, his scans show no evidence of disease. ( As of Oct 2023) His
My dad has stage 4 prostate cancer, diagnosed in August of 2022. Gleason 4+3 Stage 4 because it went to 1 lymph node in the abdomen. After 44 rounds of radiation, receiving Eligard injections every 3 months, and 10 months on Apalutamide, his scans show no evidence of disease. ( As of Oct 2023) His
ThisIsForMyMom
in
Advanced Prostate Cancer
6 months ago
post prostatectomy psa
hello. I Had surgery June 13 2023 biopsy showed Gleason 8. Psa 13 perineal invasion seminal vesicle invasion post surgery pathology Gleason 7. First two ultra sensitive psa came back with less than symbol 0.02. Then my last ultra sensitive psa came back 0.02 without the less than symbol. Is this something
hello. I Had surgery June 13 2023 biopsy showed Gleason 8. Psa 13 perineal invasion seminal vesicle invasion post surgery pathology Gleason 7. First two ultra sensitive psa came back with less than symbol 0.02. Then my last ultra sensitive psa came back 0.02 without the less than symbol. Is this something
Elkguide
in
Advanced Prostate Cancer
6 months ago
1600 to 100 and counting
Hi All In the summer of 2023 I was diagnosed with Stage 4 prostate cancer. My PSA test came in at 1634. I was told it was in my bones had three years to live and put on Zolodex. Since then my PSA in December 2023 is at 109 and my CT scan shows no bone or organ problems. Each test gets lower and I
Hi All In the summer of 2023 I was diagnosed with Stage 4 prostate cancer. My PSA test came in at 1634. I was told it was in my bones had three years to live and put on Zolodex. Since then my PSA in December 2023 is at 109 and my CT scan shows no bone or organ problems. Each test gets lower and I
Whiskeyriver
in
Advanced Prostate Cancer
6 months ago
At what psa is PCa suspected?
my 45 year old son has a psa of 0.79. No PCa diagnosis. Should he be concerned? (Dad with PCa)
my 45 year old son has a psa of 0.79. No PCa diagnosis. Should he be concerned? (Dad with PCa)
CousinGrandpa
in
Advanced Prostate Cancer
5 months ago
6 months after MRI Guided SBRT at MSK
After a year and a half of Active Surveillance, my cancer progressed to GL 4+3 and I decided to have MRI Guided SBRT in August at Memorial Sloan Kettering in NYC under the care of Dr. Sean McBride. I had 5 sessions over 10 days and each lasted about an hour. The entire team at MSK was wonderful and
After a year and a half of Active Surveillance, my cancer progressed to GL 4+3 and I decided to have MRI Guided SBRT in August at Memorial Sloan Kettering in NYC under the care of Dr. Sean McBride. I had 5 sessions over 10 days and each lasted about an hour. The entire team at MSK was wonderful and
rosenjpj
in
Advanced Prostate Cancer
5 months ago
Maybe because of "careful" patient selection, but still great: PSA Undetectable in First Patient Cu-67 SAR-bisPSMA
Positive results for mCRPC, very positive. Sorry if I have already posted this (my mind is not so sharp lately...was it ever??). "The first patient with prostate cancer dosed with 2 cycles of 8GBq of 67Cu-SAR-bisPSMA has reached undetectable prostate specific antigen (PSA) levels using PET" https:/
Positive results for mCRPC, very positive. Sorry if I have already posted this (my mind is not so sharp lately...was it ever??). "The first patient with prostate cancer dosed with 2 cycles of 8GBq of 67Cu-SAR-bisPSMA has reached undetectable prostate specific antigen (PSA) levels using PET" https:/
Maxone73
in
Advanced Prostate Cancer
6 months ago
Good news. Hope it can help others.
Hello fellow warriors. I’m 52 , was diagnosed in July 23 with stage 4 PC , mets to bones and lymph nodes. Psa 258 , Gleason 9. Just met with my MO for latest scan results. PSA has steadily gone down, currently 0.17 . Lymph nodes are clear. Still have mets to several areas to bones but holding steady
Hello fellow warriors. I’m 52 , was diagnosed in July 23 with stage 4 PC , mets to bones and lymph nodes. Psa 258 , Gleason 9. Just met with my MO for latest scan results. PSA has steadily gone down, currently 0.17 . Lymph nodes are clear. Still have mets to several areas to bones but holding steady
BillyVolt
in
Advanced Prostate Cancer
5 months ago
Rapidly Rising PSA
without going into too much detail I was treated with SBRT for mets on my spine that showed up on a ga68 PSMA Pet scan in july 2021 I have been on Zoladex for 4 years and Xtandi for 20 months My PSA in Nov 2022 was 0.27 by Nov 2023 it was up to 2.40 and now Feb 2024 it is 5.70 Time for a PSMA
without going into too much detail I was treated with SBRT for mets on my spine that showed up on a ga68 PSMA Pet scan in july 2021 I have been on Zoladex for 4 years and Xtandi for 20 months My PSA in Nov 2022 was 0.27 by Nov 2023 it was up to 2.40 and now Feb 2024 it is 5.70 Time for a PSMA
Ian996
in
Advanced Prostate Cancer
5 months ago
Adding second line hormonal therapy?
Hello everyone. My father's treatment from diagnosis consisted of ADT (Zoladex, 3-month injections as of now) and 6 courses of Docetaxel chemotherapy. PSA nadir was 0.89 after 7 months of treatment but after that the last 3 PSA tests show increase (PSA 2.310 on 24 Oct. 2023, PSA 6.81 on 24 Nov. 2023
Hello everyone. My father's treatment from diagnosis consisted of ADT (Zoladex, 3-month injections as of now) and 6 courses of Docetaxel chemotherapy. PSA nadir was 0.89 after 7 months of treatment but after that the last 3 PSA tests show increase (PSA 2.310 on 24 Oct. 2023, PSA 6.81 on 24 Nov. 2023
gio2x
in
Advanced Prostate Cancer
6 months ago
One month on alternative meds only
Three pluses and one negative. Breast met is gone, prostate shrunk to near normal size, nagalase dropped from 1.55 to 1.37 . The negative is PSA jumped from 14 to 22. Which is more accurate the nagalase test or the PSA?
Three pluses and one negative. Breast met is gone, prostate shrunk to near normal size, nagalase dropped from 1.55 to 1.37 . The negative is PSA jumped from 14 to 22. Which is more accurate the nagalase test or the PSA?
agnut
in
Fight Prostate Cancer
5 months ago
Dumb Question about rising PSA after initial RT.
If you still have a prostate after RT treatment 7 years ago ( NO ADT), could a slowly rising PSA just be 'natural' as you age? Have always been curious, as when initial biopsy was ordered, the doctor said, "if you were a few months older (70), your PSA level would not have prompted further investigation
If you still have a prostate after RT treatment 7 years ago ( NO ADT), could a slowly rising PSA just be 'natural' as you age? Have always been curious, as when initial biopsy was ordered, the doctor said, "if you were a few months older (70), your PSA level would not have prompted further investigation
Researcher50
in
Advanced Prostate Cancer
6 months ago
High volume, advanced metastatic prostate cancer
Hello. I am looking for guidance. My dad (now 81) was diagnosed with metastatic prostate cancer at the initial point of diagnosis in the ER on 10/25/2022. It had spread to 8 bones and was all over his spine, hip, base of skull, etc, but also as far as the base of the skull, and shoulder. His PSA was
Hello. I am looking for guidance. My dad (now 81) was diagnosed with metastatic prostate cancer at the initial point of diagnosis in the ER on 10/25/2022. It had spread to 8 bones and was all over his spine, hip, base of skull, etc, but also as far as the base of the skull, and shoulder. His PSA was
lgutman
in
Advanced Prostate Cancer
5 months ago
How to monitor PCa after you stop ADT?
I've been on Zoladex implants for coming up to 4 years in February. I plan to stop ADT next time when it's due, as my PSA is always "undetectable" and it's been 4 years of physical and mental torment for me (the side effects). I think that enough is enough now. Does anyone have advice on the best ways
I've been on Zoladex implants for coming up to 4 years in February. I plan to stop ADT next time when it's due, as my PSA is always "undetectable" and it's been 4 years of physical and mental torment for me (the side effects). I think that enough is enough now. Does anyone have advice on the best ways
BluesmanNick
in
Advanced Prostate Cancer
6 months ago
Starting Abiraterone with CRPC
Had prostatectomy 6 years ago. Radiation treatment twice. Been on lupron 3 + years. PSA #s low but rising rapidly. Were 0.01, 9 months ago, 0.77 a month ago, 2.1 couple days ago. Starting Abirateron with prednisone when I wake tonight so I can have coffie with toast in the morning. Been dealing with
Had prostatectomy 6 years ago. Radiation treatment twice. Been on lupron 3 + years. PSA #s low but rising rapidly. Were 0.01, 9 months ago, 0.77 a month ago, 2.1 couple days ago. Starting Abirateron with prednisone when I wake tonight so I can have coffie with toast in the morning. Been dealing with
Water327
in
Advanced Prostate Cancer
5 months ago
new and looking for resources Stage 4 metastatic. Gleason 9
New and concerned wife here. The Reddit group suggested to come to this form. Yesterday we got the worst news possible after waiting 3+ weeks for results. I waffle back and forth between anger, sadness and hope. My husband was diagnosed at 61 with metastatic prostate cancer. Gleason 9, it has
New and concerned wife here. The Reddit group suggested to come to this form. Yesterday we got the worst news possible after waiting 3+ weeks for results. I waffle back and forth between anger, sadness and hope. My husband was diagnosed at 61 with metastatic prostate cancer. Gleason 9, it has
Sunnysailor
in
Advanced Prostate Cancer
5 months ago
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