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20 public communities
Blue Faery Liver Cancer
609 members
Blue Faery’s mission is to prevent, treat and cure primary liver cancer, specifically Hepatocellular Carcinoma (HCC), through research, education and advocacy. Our Liver Cancer Community is our online, private forum for HCC patients and caregivers. Blue Faery is a 501(c)(3) national nonprofit organization with offices in Burbank, California and Birmingham, Alabama.
AMN EASIER
1,313 members
AMN Easier was set up to help men and women who have adrenomyeloneuropathy (AMN) - to help make this disease a bit easier to live with. AMN EASIER provides information and support by (1) providing answers to health questions from other AMN patients with experience of the disease; (2) showing what other AMN patients are doing and thinking; (3) describing ideas and possibilities for therapies that could help
Non Hodgkin's Lymphoma Friends
1,772 members
Patient Empowerment Network (PEN) is honored to offer a peer-support community for those living with Non-Hodgkin's Lymphoma, their families and their loved ones. Connect with patients like you and share your experiences. Discuss treatment, recovery, diagnoses, and help other patients through their journey. PEN is a nonprofit (501(c)(3) Public Charity) based in the US that works to help you gain confidence and strength to get yourself the best care and most personalized treatment. We are here to help you stand up and advocate for yourself and become informed so that you can make the right decisions for you. Giving medical advice or promoting alternative treatment that is not proven by clinical trials and approved by regulatory agencies is prohibited. Your participation should be respectful, honest and in the spirit of supporting and learning from others
Group B Strep Support
746 members
This is a community dedicated to helping those affected by group B Strep (GBS). GBS is a common bacterium that lives in 20-30% of adults, usually with no symptoms or side-effects. Most commonly found in the intestines, it can also live in the vagina of adult women. It is a ‘commensal’ – an organism that lives on another without causing harm. GBS can cause infection, most often in newborn babies. It more rarely causes infection in adults (typically women during pregnancy or after birth, the elderly and those with serious underlying medical conditions causing impaired immune system). Although relatively uncommon, GBS is the most common cause of infection in newborn babies and of meningitis in babies under age 3 months. On average in the UK, one baby a day develops GBS infection - one baby a week dies and one survivor a fortnight has long-term disability.
Thyroid UK
137,747 members
The Thyroid UK community is for anyone with diagnosed or undiagnosed underactive or overactive thyroid disease. Thyroid UK is a charity that supports people with thyroid disease and related disorders. We support people by informing them of various aspects of thyroid health and testing as well as other conditions such as adrenal deficiency, vitamin and mineral deficiencies and genetics that affect thyroid function. Your health journey is unique. HealthUnlocked can help you identify your unmet thyroid health needs allowing you to ask for the most appropriate support so that you can improve your health outcome in a way that is personalised to you by taking the Needs Assessment survey. Simply click on your profile picture and select "Your needs". The survey will take no longer than 3 minutes to complete and you can retake the assessment multiple times (up to once a month) giving you a tangible way to measure improvements in your health.
Strength & Flex
7,932 members
NHS Choices forum for the Strength and Flex community. The perfect addition to any HealthUnlocked forum activity, supported by a team of runners and fitness volunteers shared between our sister forums Active 10, Couch to 5k, Bridge to 10k and Marathon and Race Support. The forum supports the sharing of experiences at all levels, and makes use of fitness resources by the NHS as well as mainly freely available resources shared by our community. Of particular note are: • NHS Choices Strength and Flex programme (5 weeks): podcasts, for beginners & continued S&F support for runners: https://healthunlocked.com/strengthandflex/posts/145679354/nhs-5-week-strength-and-flexibility-programme • NHS 12 Week Live-Well Fitness Plan (12 weeks): workouts and running activities, incorporates Couch to 5k (9 weeks), Strength and Flexibility Programme (5 weeks), 3 C25k+ podcasts (Stepping Stones, Speed, Stamina) and instructional pages.: https://healthunlocked.com/strengthandflex/posts/145107072/nhs-12-week-fitness-plan-which-can-be-started-during-the-c25k-consolidation-period Both are perfect for individuals starting a fitness journey and also are a great accompaniment to C25k or the post-C25k consolidation period! Happy Working Out Everyone!
My EXI Community
1,368 members
The EXI Community is here to support you on your physical activity journey. If you have questions, ideas or worries, please share them here. EXI has experts in behaviour change, exercise, and our fabulous customer support team on hand to respond to your posts. More importantly, here you can connect to other people on a physical activity journey using EXI. So reach out and share your experiences, because there are people just like you who would love to know they are not alone. EXI is an award-winning app that will support you to become more physically active. Research shows even the smallest amount of physical activity, set at the right intensity, can make a huge difference to our health. This is why we say ‘Anything is Everything’. Designed by health experts, for people with long term health conditions, EXI uses the latest science and medical guidance to provide you with a safe, personalised physical activity plan, based on your current health status and physical activity habits. Your plan will be set at the appropriate level for you, wherever you are at in your physical activity journey, and gradually progresses over 12 weeks. Your plan will set goals for how often, how long and how hard the activity should be each week, starting as low as just 3 sessions of 10 minutes of low intensity activity per week. You choose how you achieve those goals, so there is no need to go to a gym or class if you don’t want to, you can do the activities you love. EXI includes a library of physical activity sessions set at the appropriate intensity level, or you can log your own activities in the app. EXI also recommends a wearable health device, such as an Apple Watch, to n order to understand your intensity levels better. EXI tracks your progress, so you can always see how close you are to your goals. If you have been provided with EXI by a healthcare professional, they can also see your progress, so you can discuss when reviewing your condition and treatment.
Endometriosis New Zealand
1,283 members
Endometriosis New Zealand is New Zealand’s national endometriosis organisation and has affiliated Support Networks throughout the country. We represent the tens of thousands of girls and women with endometriosis in New Zealand and we work with those who treat the condition and researchers to find solutions. We provide unique and professional services and programs to reach individuals, communities, schools, workplaces and all stakeholders involved in improving health outcomes for those with endometriosis and persistent pelvic pain.
Not Defined By Endometriosis
429 members
We are a peer-support group providing support to fellow endometriosis warriors and advocating and fighting for better research, funding and an eventual cure for endometriosis.
The Endometriosis Foundation
1,088 members
The Endometriosis Foundation (also known as women with endometriosis) is a Charity dedicated to raising awareness, informing and supporting those affected by endometriosis, and right now, we're needed more than ever.
Endometriosis UK
70,618 members
Endometriosis UK is a charity which provides vital support services, reliable information and a community for those affected by endometriosis.
Active Surveillance - Prostate Cancer
641 members
Active Surveillance is about men diagnosed with prostate cancer, trying to maintain the highest quality of life and living long enough to die from something else. We're about supporting each other in a world where overtreatment is the norm and where people just don't understand why men with cancer might want to delay or avoid treatment.
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