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5 months after stopping the 4 mos of taking orgovyx still very symptomatic of low t (miserable)..told t may never recover (79),take trt? ?
Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE. need my life back..
Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE. need my life back..
JWS13
in
Advanced Prostate Cancer
6 months ago
Metastasized to Bones
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
hopefull99
in
Advanced Prostate Cancer
6 months ago
Supplements and self-care
Hi everyone, I am new to this site and to this forum. It has been a wealth of information. I know there have been plenty of other threads, regarding supplements, and how we take care of ourselves, but some of them have aged and just wanted to start a fresh one. I am 53 and was diagnosed with stage
Hi everyone, I am new to this site and to this forum. It has been a wealth of information. I know there have been plenty of other threads, regarding supplements, and how we take care of ourselves, but some of them have aged and just wanted to start a fresh one. I am 53 and was diagnosed with stage
StayinAlive8
in
Advanced Prostate Cancer
9 months ago
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Bleeding after salvage radiation
Had radical prostatectomy 12/21. Salvage radiation about 11 mos ago. Currently about one year into Lupron + Abiraterone + prednisone. Recently experienced very mild rectal and/or blood in stool. Is this likely due to the radiation, or something else?
Had radical prostatectomy 12/21. Salvage radiation about 11 mos ago. Currently about one year into Lupron + Abiraterone + prednisone. Recently experienced very mild rectal and/or blood in stool. Is this likely due to the radiation, or something else?
jmarsh
in
Advanced Prostate Cancer
10 months ago
Update on my daddy- 8 years stage four
Hello guys! I wanted to give a little update on my dad. He was diagnosed stage four prostate cancer in June 2015, with a PSA of 257 and a single lymph node involved. His prostate was so enlarged at the time that he had to have double nephrostomy bags. He started hormone therapy and chemo immediately
Hello guys! I wanted to give a little update on my dad. He was diagnosed stage four prostate cancer in June 2015, with a PSA of 257 and a single lymph node involved. His prostate was so enlarged at the time that he had to have double nephrostomy bags. He started hormone therapy and chemo immediately
Lynsi13
in
Advanced Prostate Cancer
9 months ago
tumor in spleen
my husband is having his spleen out very soon due to 2 tumors. We won’t know for sure if they are cancer until pathology done. He had radiation plus Lupron and has been in remission 2 years. 4 + 4 Psa still non detectable. Tumors picked up on pet scan to check kidney. Radiologist has said rare
my husband is having his spleen out very soon due to 2 tumors. We won’t know for sure if they are cancer until pathology done. He had radiation plus Lupron and has been in remission 2 years. 4 + 4 Psa still non detectable. Tumors picked up on pet scan to check kidney. Radiologist has said rare
Ojsm
in
Advanced Prostate Cancer
6 months ago
PSMA PET scan
Hello everyone, pardon the simplicity of my question. Is PSMA the same as PET Scan? I ask this because I specifically asked my MO to have a PSMA pet scam but no where in the order or appointment a mention of PSMA pet scan it only says pet scan. I am concerned because MO doesn't seem to be very involved
Hello everyone, pardon the simplicity of my question. Is PSMA the same as PET Scan? I ask this because I specifically asked my MO to have a PSMA pet scam but no where in the order or appointment a mention of PSMA pet scan it only says pet scan. I am concerned because MO doesn't seem to be very involved
Blueribbon63
in
Advanced Prostate Cancer
6 months ago
castration after 7 years of ADT
I have been on Zoladex for nearly 7 years and am fully over any regrets of Chemical castration. My psa is now slowly rising and ghastly taken 2 years from undetectable to 0.65. I am considering surgical castration now as it would mean no more 3 monthly Zoladex injections and a reduced chemical load on
I have been on Zoladex for nearly 7 years and am fully over any regrets of Chemical castration. My psa is now slowly rising and ghastly taken 2 years from undetectable to 0.65. I am considering surgical castration now as it would mean no more 3 monthly Zoladex injections and a reduced chemical load on
Roscoaus2000
in
Advanced Prostate Cancer
6 months ago
Pluvicto Failed - Next step
Hello Warriors: Pluvicto has failed. I went through four sessions and had severe side effects of exhaustion and GI problems as well as it seemed to stimulate my foot neuropathy. My PSA went down during injection 2 and 3 but then came back up in 4. Disappointing... I just met my new MO at the Mayo
Hello Warriors: Pluvicto has failed. I went through four sessions and had severe side effects of exhaustion and GI problems as well as it seemed to stimulate my foot neuropathy. My PSA went down during injection 2 and 3 but then came back up in 4. Disappointing... I just met my new MO at the Mayo
Hidden
in
Advanced Prostate Cancer
6 months ago
BP with abiraterone + prednisone, eplerenone, dexamethasone
I have been on Lupron and abiraterone with (initially) prednisone for 4.5 years, which has maintained my PSA at <0.1 since 111 at diagnosis. I have all the usual side effects. One that doesn't bother me day-to-day, but definitely concerns me, is hypertension. Before PCa, I had moderately high BP, which
I have been on Lupron and abiraterone with (initially) prednisone for 4.5 years, which has maintained my PSA at <0.1 since 111 at diagnosis. I have all the usual side effects. One that doesn't bother me day-to-day, but definitely concerns me, is hypertension. Before PCa, I had moderately high BP, which
Gearhead
in
Advanced Prostate Cancer
9 months ago
Relugolix and Apalutamide
Any experience with elevated AST and ALT after being treated with Relugolix and Apalutamide? My AST and ALT were normal on Relugolix for 6 weeks.....added Apalutamide and after 4 weeks my AST and ALT are now 3X previous level. I feel fine. Oncologist is wanting to stop the one of the drugs.....I convinced
Any experience with elevated AST and ALT after being treated with Relugolix and Apalutamide? My AST and ALT were normal on Relugolix for 6 weeks.....added Apalutamide and after 4 weeks my AST and ALT are now 3X previous level. I feel fine. Oncologist is wanting to stop the one of the drugs.....I convinced
GoLowPSA
in
Advanced Prostate Cancer
6 months ago
What a long strange road it's been.
Nov 2007 I had DaVinci surgery Gleason 7. I got the surgeon's notes and he said margins were clear, took s bunch of lymph glands, all clear. Held my dick in his hand and said it would come back. It did, but never quite lost the "happy bladder" and I shot pee about 50% of the time. PSA never went
Nov 2007 I had DaVinci surgery Gleason 7. I got the surgeon's notes and he said margins were clear, took s bunch of lymph glands, all clear. Held my dick in his hand and said it would come back. It did, but never quite lost the "happy bladder" and I shot pee about 50% of the time. PSA never went
bcskibdy
in
Prostate Cancer And Gay Men
6 months ago
ADT before Surgery?
I have a prostatectomy which is probably 6-8 weeks in my future. My outlook is that metastasis in imminent. (T3bM0n0 and no evidence of cancer outside the gland as of May 25 PSMA PET scan, but I am told I am intermediate/unfavorable and my PSA went from 10 to 12 in only a month.) Today is August 18.
I have a prostatectomy which is probably 6-8 weeks in my future. My outlook is that metastasis in imminent. (T3bM0n0 and no evidence of cancer outside the gland as of May 25 PSMA PET scan, but I am told I am intermediate/unfavorable and my PSA went from 10 to 12 in only a month.) Today is August 18.
Lost_Sheep
in
Prostate Cancer Network
9 months ago
Blood in urine and clotting 3 weeks after starting Zytiga
After starting Zytiga I noticed a few drops of blood but only after a bowel motion. Yesterday after a big bowel motion I couldn’t pee and headed for hospital though on getting there I suppose my bladder was full enough it forced the clot out while going to the toilet. I’ve had blockage problems ana
After starting Zytiga I noticed a few drops of blood but only after a bowel motion. Yesterday after a big bowel motion I couldn’t pee and headed for hospital though on getting there I suppose my bladder was full enough it forced the clot out while going to the toilet. I’ve had blockage problems ana
Ausi
in
Advanced Prostate Cancer
9 months ago
A PCRI video about Malecare
Prostate Cancer Services Every Patient Needs To Know About | Darryl Mitteldorf https://youtu.be/EHzlNlfgU5c
Prostate Cancer Services Every Patient Needs To Know About | Darryl Mitteldorf https://youtu.be/EHzlNlfgU5c
Darryl
Partner
in
Advanced Prostate Cancer
10 months ago
Penis Enlargement After Atrophy
Just had my first erection in 4 years after 4th injection of testosterone. Very disappointed in the decrease in size as I am literally 1/2 the man I used to be (lol). I am a good researcher but wanted to find out if anyone out there has had or knows someone who has had any success with pumps or any
Just had my first erection in 4 years after 4th injection of testosterone. Very disappointed in the decrease in size as I am literally 1/2 the man I used to be (lol). I am a good researcher but wanted to find out if anyone out there has had or knows someone who has had any success with pumps or any
Moespy
in
Advanced Prostate Cancer
10 months ago
PSA increasing during radiation treatment
Hi all, Please refresh my memory. Can PSA increase during radiation treatment due to cancer cells dying off? Last month 0.14 and today 0.26. On day #4 of radiation treatment. Thanks!
Hi all, Please refresh my memory. Can PSA increase during radiation treatment due to cancer cells dying off? Last month 0.14 and today 0.26. On day #4 of radiation treatment. Thanks!
Abcsoup73
in
Advanced Prostate Cancer
9 months ago
Newly detectable PSA after prostatectomy: RT + ADT planned; add Erleada?
Diagnosed 12/21, PSA 7, negative PSMA PET. Radical prostatectomy with extended lymph node dissection in Mar 2022. Gleason 4+5, +cribriform, +intraductal, + bilat SVI, +ECE. Margins negative (barely) and 1/34 lymph nodes positive with very small focus of cancer. PSA was undetectable until Jun 2023, then
Diagnosed 12/21, PSA 7, negative PSMA PET. Radical prostatectomy with extended lymph node dissection in Mar 2022. Gleason 4+5, +cribriform, +intraductal, + bilat SVI, +ECE. Margins negative (barely) and 1/34 lymph nodes positive with very small focus of cancer. PSA was undetectable until Jun 2023, then
Brokedown_Palace
in
Advanced Prostate Cancer
9 months ago
c-myc
Further to the "
Supraphysiological Androgens [SPA] Promote Tumor Suppressive Activity of the AR Through cMYC Repression and Recruitment of the DREAM Complex
" thread, here's a handful of papers of interest. [1] Metformin & c-myc [2] 5-LOXIN & c-myc [3] Sulforaphane & c-myc [4] Honokiol
Further to the "
Supraphysiological Androgens [SPA] Promote Tumor Suppressive Activity of the AR Through cMYC Repression and Recruitment of the DREAM Complex
" thread, here's a handful of papers of interest. [1] Metformin & c-myc [2] 5-LOXIN & c-myc [3] Sulforaphane & c-myc [4] Honokiol
pca2004
in
Fight Prostate Cancer
10 months ago
Bring PSA from 6.7 to 3.1 in 4 weeks by pure water fast (3wks) and vegan diet (1 wk).
Note from moderator: NO ONE SHOULD ATTEMPT THE SUGGESTIONS IN THIS POST WITHOUT FIRST CONSULTING WITH YOUR UROLOGIST AND/or ONCOLOGIST. READ ALL OF THE COMMENTS BELOW THE POST. THE WISDOM AND CONCERN OF OUR COMMUNITY IS THE ONLY REASON THIS POST REMAINS PUBLISHED, I have prostate cancer, and I
Note from moderator: NO ONE SHOULD ATTEMPT THE SUGGESTIONS IN THIS POST WITHOUT FIRST CONSULTING WITH YOUR UROLOGIST AND/or ONCOLOGIST. READ ALL OF THE COMMENTS BELOW THE POST. THE WISDOM AND CONCERN OF OUR COMMUNITY IS THE ONLY REASON THIS POST REMAINS PUBLISHED, I have prostate cancer, and I
DADICIDAD
in
Advanced Prostate Cancer
9 months ago
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