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Wife of Newly Diagnosed Husband - PSMA questions
Hi Everyone, We found out two weeks ago that my husband has high grade prostate cancer. He is 59. PSA 5.9. Gleason 4+5, 4+3 and 3+4. There was perineural invasion in one sample and intraductal in another. He has had an MRI and a CT scan, as well. He is scheduled for a bone scan next week. No prostate
Hi Everyone, We found out two weeks ago that my husband has high grade prostate cancer. He is 59. PSA 5.9. Gleason 4+5, 4+3 and 3+4. There was perineural invasion in one sample and intraductal in another. He has had an MRI and a CT scan, as well. He is scheduled for a bone scan next week. No prostate
EvFC
in
Advanced Prostate Cancer
4 months ago
PSA following Lupron and question on scans
hi all, I am so happy to report that my dad has really improved following terrible side effects with his radiation treatment. I have posted before -he was having awful GI side effects which seemed to get worse following radiation completion. But this is all subsided which we are grateful for. dad
hi all, I am so happy to report that my dad has really improved following terrible side effects with his radiation treatment. I have posted before -he was having awful GI side effects which seemed to get worse following radiation completion. But this is all subsided which we are grateful for. dad
alysona828
in
Advanced Prostate Cancer
4 months ago
PSA Still Going Up
I had RP on January 2023, started ADT in May 2023 and went through 38 sessions of radiation. In November 2023, my PSA went down to 0.005 ng/mL. My PSA went up to 0.015 ng/mL in January 2024 and went up to 0.035 ng/mL in my current test. I know Tall Allen said the previous number was negligible because
I had RP on January 2023, started ADT in May 2023 and went through 38 sessions of radiation. In November 2023, my PSA went down to 0.005 ng/mL. My PSA went up to 0.015 ng/mL in January 2024 and went up to 0.035 ng/mL in my current test. I know Tall Allen said the previous number was negligible because
toyman79912
in
Advanced Prostate Cancer
2 months ago
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PSA 8 months after EBRT
I need some reassurance. I tend to worry a little bit so please let me know if the following is or could be somewhat normal. As per my history, I had 4+3 per Dr. Epstein, had Pylarify with no mets, seed implant LD brachytherapy in July 2023, EBRT 28 treatments finishing first of Oct 2023. RO said ADT
I need some reassurance. I tend to worry a little bit so please let me know if the following is or could be somewhat normal. As per my history, I had 4+3 per Dr. Epstein, had Pylarify with no mets, seed implant LD brachytherapy in July 2023, EBRT 28 treatments finishing first of Oct 2023. RO said ADT
electronics-guy
in
Prostate Cancer Network
2 months ago
Falling ALT - Pathway to Sarcopenia? - More Exercise Needed?
Two years in to my de novo high volume metastatic prostate cancer diagnosis, I am pleased to report excellent results so far with triplet therapy (Docetaxel chemo completed, Abiraterone ARPI, Firmagon/Degarelix GnRH antagonist as ADT). However I would be grateful for any advice today.
My ALT has fallen
Two years in to my de novo high volume metastatic prostate cancer diagnosis, I am pleased to report excellent results so far with triplet therapy (Docetaxel chemo completed, Abiraterone ARPI, Firmagon/Degarelix GnRH antagonist as ADT). However I would be grateful for any advice today.
My ALT has fallen
JohnInTheMiddle
in
Advanced Prostate Cancer
2 months ago
Froedtert & the Medical College of Wisconsin Cancer Network created the Bone Metastasis Program
there will also be clinical trials focused on bone metastasis https://www.froedtert.com/stories/treating-cancer-spreads-bones
there will also be clinical trials focused on bone metastasis https://www.froedtert.com/stories/treating-cancer-spreads-bones
Maxone73
in
Advanced Prostate Cancer
6 months ago
Phase 2 trial recruiting: revert hormone resistance with apalutamide and ENV105
In phase 1 it worked with 44% of patients it seems, it's multisite, it could be worth trying for our warrior with mCRPC (metastatic castrate resistant prostate cancer) https://www.biospace.com/article/releases/kairos-pharma-doses-first-patient-in-phase-2-trial-of-lead-drug-candidate-env105-with-apalutamide-to-improve-therapy-sensitivity-for-castrate-resistant-prostate-cancer
In phase 1 it worked with 44% of patients it seems, it's multisite, it could be worth trying for our warrior with mCRPC (metastatic castrate resistant prostate cancer) https://www.biospace.com/article/releases/kairos-pharma-doses-first-patient-in-phase-2-trial-of-lead-drug-candidate-env105-with-apalutamide-to-improve-therapy-sensitivity-for-castrate-resistant-prostate-cancer
Maxone73
in
Advanced Prostate Cancer
6 months ago
Casodex - stop or continue ?
Dad , 83 , got diagnosed last month with bone mets and psa 18. The urologist started him on Casodex 100 mg to take daily and then take a lupron shot after 2-3 weeks. Before starting the Casodex he had bone pain in a femur and was taking Ibuprofen sometimes but since starting the Casodex since the
Dad , 83 , got diagnosed last month with bone mets and psa 18. The urologist started him on Casodex 100 mg to take daily and then take a lupron shot after 2-3 weeks. Before starting the Casodex he had bone pain in a femur and was taking Ibuprofen sometimes but since starting the Casodex since the
Tinkudi
in
Advanced Prostate Cancer
2 months ago
FDA approves a new IND application of 225Ac-J591 (Actinium)
The FDA has granted clearance to an investigational new drug (IND) application for 225Ac-J591 (CONV01-α), a prostate-specific membrane antigen-targeted monoclonal antibody under investigation for the treatment of patients with advanced prostate cancer, announced Convergent Therapeutics, the developer
The FDA has granted clearance to an investigational new drug (IND) application for 225Ac-J591 (CONV01-α), a prostate-specific membrane antigen-targeted monoclonal antibody under investigation for the treatment of patients with advanced prostate cancer, announced Convergent Therapeutics, the developer
Maxone73
in
Advanced Prostate Cancer
4 months ago
Need info on blood in urine
Diagnosed with prostate cancer 4 1/2 years ago. Had prostate removed Sept. 2019 and had radiation winter 2020/2021 because PSA was going higher. Radiation is causing blood in my urine periodically. Now that I am older the blood in my urine seems to occur more often. I read on the internet that if
Diagnosed with prostate cancer 4 1/2 years ago. Had prostate removed Sept. 2019 and had radiation winter 2020/2021 because PSA was going higher. Radiation is causing blood in my urine periodically. Now that I am older the blood in my urine seems to occur more often. I read on the internet that if
peanutbutter2
in
Prostate Cancer Network
2 months ago
LATITUDE secondary analysis - Concurrent use of Abiraterone and NSAIDs - higher risk of Prostate Cancer Specific Mortality and inferior OS
https://doi.org/10.1200/JCO.2024.42.4_suppl.120 ”Conclusions: In this secondary analysis, concomitant exposure to 7 classes of medications was not associated with any statistically significant modification of abiraterone effect on OS in de novo high risk mHSPC. Men who received concurrent NSAIDs had
https://doi.org/10.1200/JCO.2024.42.4_suppl.120 ”Conclusions: In this secondary analysis, concomitant exposure to 7 classes of medications was not associated with any statistically significant modification of abiraterone effect on OS in de novo high risk mHSPC. Men who received concurrent NSAIDs had
Graham49
in
Advanced Prostate Cancer
6 months ago
Ultrahypofractional RT and ADT for Int. Risk PC
I am a 60 year old recently diagnosed PC with a PSA of 11.3 and ultra sound biopsy grade cT1c Gleason 3+4 = 7 Right basal and 3+3 on Right medial only 2 of 12 cores contain cancer. MRI showed PI Rads 5 lesion in right basal peripheral zone and extension into right seminal vesicle. Chose to go with
I am a 60 year old recently diagnosed PC with a PSA of 11.3 and ultra sound biopsy grade cT1c Gleason 3+4 = 7 Right basal and 3+3 on Right medial only 2 of 12 cores contain cancer. MRI showed PI Rads 5 lesion in right basal peripheral zone and extension into right seminal vesicle. Chose to go with
Hidden
in
Prostate Cancer Network
2 months ago
Agonists vs. antagonists (the latter not to be confused with a character in a novel!)
I know many of you on this site are beyond ADT, but for those who are still holding on in that space, I'd like to share my experience with the newer antagonists drugs, degarelix ( U.S. brand, Firmagon) and relugolix (U.S. brand, Orgovyx). I started ADT exactly 8 years ago this month and during my off-and-on
I know many of you on this site are beyond ADT, but for those who are still holding on in that space, I'd like to share my experience with the newer antagonists drugs, degarelix ( U.S. brand, Firmagon) and relugolix (U.S. brand, Orgovyx). I started ADT exactly 8 years ago this month and during my off-and-on
bluesnjazz
in
Advanced Prostate Cancer
6 months ago
QoL be here awhile, ain't going nowhere. PSA/T update
https://youtu.be/TOeefy2v5sc?si=jkRpBWtTS-pszP1n Well, what a long *ss day it was, but I completed the 28 miler up here on my 67th bday, the Big Bear event was postponed to 2025. Did 10, 10, then 8 miles with pit stops at the office for snacks and maybe a beer or two🍺. Raised $2800 for Make a Wish
https://youtu.be/TOeefy2v5sc?si=jkRpBWtTS-pszP1n Well, what a long *ss day it was, but I completed the 28 miler up here on my 67th bday, the Big Bear event was postponed to 2025. Did 10, 10, then 8 miles with pit stops at the office for snacks and maybe a beer or two🍺. Raised $2800 for Make a Wish
dockam
in
Advanced Prostate Cancer
2 months ago
New saliva test for PCa screening
It will be presented this weekend. They claim that it is more specific than PSA screening and also can be done at home using supplied by mailed kits.
It will be presented this weekend. They claim that it is more specific than PSA screening and also can be done at home using supplied by mailed kits.
Justfor_
in
Fight Prostate Cancer
2 months ago
Rising PCA - on ADT Holiday
Diagnosed Stage 4 oligometastatic (low volume) PCA in 2021. Gleason 7, 4+3 . Completed RT and 18 months on ADT (Nubeqa) paused the ADT in September after PSA non detectable and a fresh set of scans showed no “evidence of disease”. Continued to do bloodwork quarterly and PSA remained at 0. Until
Diagnosed Stage 4 oligometastatic (low volume) PCA in 2021. Gleason 7, 4+3 . Completed RT and 18 months on ADT (Nubeqa) paused the ADT in September after PSA non detectable and a fresh set of scans showed no “evidence of disease”. Continued to do bloodwork quarterly and PSA remained at 0. Until
Kkash
in
Advanced Prostate Cancer
4 months ago
A little Great News!
Hello Friends, A couple years ago our journey began. I was scared, panicked, and at a complete loss as my husband was diagnosed with stage 4 prostate cancer at age 49. He had 17 bone Mets. After some amazing input from this community and special advice from Tall Allen, I was able to set my sights
Hello Friends, A couple years ago our journey began. I was scared, panicked, and at a complete loss as my husband was diagnosed with stage 4 prostate cancer at age 49. He had 17 bone Mets. After some amazing input from this community and special advice from Tall Allen, I was able to set my sights
Lshanks07
in
Advanced Prostate Cancer
6 months ago
Scary PSA results
I was diagnosed in October 2023 with Gleason 4+5=9. Tissue came from TURP. PSA was 11.8. PSMA Pet was negative for METS. Started ADT on November 9. Did 28 sessions of IMRT from Feb 12, 2024, to Mar 21, 2024. Nadir was .8 on Mar 26 and then the last two have been 1.5 and 3.1. RO said 2.8 was the
I was diagnosed in October 2023 with Gleason 4+5=9. Tissue came from TURP. PSA was 11.8. PSMA Pet was negative for METS. Started ADT on November 9. Did 28 sessions of IMRT from Feb 12, 2024, to Mar 21, 2024. Nadir was .8 on Mar 26 and then the last two have been 1.5 and 3.1. RO said 2.8 was the
7OaksTom
in
Advanced Prostate Cancer
2 months ago
Low Ovarian Reserve - (supplements to boost eggs quality)
I'm 44 with a low ovarian reserve and multiple fibroids (which thankfully is outside the cavity). My GP referred me for NHS fertility investigations but I was rejected due to CCG criteria. My GP applied for Individual funding request but I was rejected. I had a consultation with a fertility expert
I'm 44 with a low ovarian reserve and multiple fibroids (which thankfully is outside the cavity). My GP referred me for NHS fertility investigations but I was rejected due to CCG criteria. My GP applied for Individual funding request but I was rejected. I had a consultation with a fertility expert
olabode
in
Fertility Network UK
1 year ago
Salvage Brachytherapy
has anyone here had salvage brachytherapy? High dose radiation Brachytherapy is being recommended for me at MSK pending results of a very recent MRI to determine if I can have it. Sounds promising….administered with carefully placed needles over two sessions two weeks apart. Current PSA is 0.02 on
has anyone here had salvage brachytherapy? High dose radiation Brachytherapy is being recommended for me at MSK pending results of a very recent MRI to determine if I can have it. Sounds promising….administered with carefully placed needles over two sessions two weeks apart. Current PSA is 0.02 on
Tommyj2
in
Advanced Prostate Cancer
2 months ago
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