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Experiences with
Primary biliary cholangitis (PBC)
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Lesion detected
I have hemochromatosis and cirrhosis. I just had my 6 month visit and left feeling very positive, due to diet changes and phlebotomy my iron levels are managed and labs look awesome. Dr lowered my meld score to 7 which is fabulous however next day I got a call that the ultrasound found a lesion on my
I have hemochromatosis and cirrhosis. I just had my 6 month visit and left feeling very positive, due to diet changes and phlebotomy my iron levels are managed and labs look awesome. Dr lowered my meld score to 7 which is fabulous however next day I got a call that the ultrasound found a lesion on my
Ihavebigfeet
in
British Liver Trust
3 years ago
Health Anxiety - It will create physical symptoms!!!
I guess it all started about 10 years ago. At the time I was a fairly new firefighter/paramedic. Saw all kinds of bad stuff, cancer, emphysema, heart attacks you name it. Without going in to too much detail let me just say that since 2010 I have self diagnosed (thanks to Mr. Google and my anxious mind
I guess it all started about 10 years ago. At the time I was a fairly new firefighter/paramedic. Saw all kinds of bad stuff, cancer, emphysema, heart attacks you name it. Without going in to too much detail let me just say that since 2010 I have self diagnosed (thanks to Mr. Google and my anxious mind
Salleeper
in
Anxiety and Depression Support
3 years ago
Raised liver tests
Hi peeps hope all keeping well for the first time in months my bloods are raising again 10 days ago alt 43 gamma 106 then started with all over itching bloods Friday came back as alt 85 gamma 108 What i want to know is how the alt as double in 10days also I’m still dry Had a mrcp private 30 June came
Hi peeps hope all keeping well for the first time in months my bloods are raising again 10 days ago alt 43 gamma 106 then started with all over itching bloods Friday came back as alt 85 gamma 108 What i want to know is how the alt as double in 10days also I’m still dry Had a mrcp private 30 June came
Luca17
in
British Liver Trust
3 years ago
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How to encourage someone to seek medical support (who has turned their back on this due to prior negative experience with consultant)
Hi, I'm hoping that someone can point me in the direction of a positive source of support for someone who has turned their back on formal medical support because on a negative experience with consultant. They were hospitalised with liver failure back in 2011 and formally diagnosed with cirrhosis. There
Hi, I'm hoping that someone can point me in the direction of a positive source of support for someone who has turned their back on formal medical support because on a negative experience with consultant. They were hospitalised with liver failure back in 2011 and formally diagnosed with cirrhosis. There
Brighton1974
in
British Liver Trust
3 years ago
Anyone on Cholesterol Meds
Hi! I have an appointment with the cardiologist tomorrow. I have a history of A-Fib and PVCs and take meds for that. My cholesterol and triglycerides are high and have been for a long while. My former GP didn't want to add any more meds and was concerned about the side affects. My new GP who is very
Hi! I have an appointment with the cardiologist tomorrow. I have a history of A-Fib and PVCs and take meds for that. My cholesterol and triglycerides are high and have been for a long while. My former GP didn't want to add any more meds and was concerned about the side affects. My new GP who is very
Pumpkin2009
in
LUPUS UK
3 years ago
pillow with built-in HEPA filter for dust mite asthma
Hi all -- Just wanted to share today's project. It's a wacky idea, but who knows, might be useful for someone, as it worked for me. This is to manage dust mite allergy while sleeping (relatively) comfortably. Previously, I was using waterproof camping sacks stuffed with fleece blankets. Inflatable pillows
Hi all -- Just wanted to share today's project. It's a wacky idea, but who knows, might be useful for someone, as it worked for me. This is to manage dust mite allergy while sleeping (relatively) comfortably. Previously, I was using waterproof camping sacks stuffed with fleece blankets. Inflatable pillows
runcyclexcski
in
Asthma Community Forum
3 years ago
Question On Low platelets
Ok so I got the good news on my liver.And there’s no more follow up .I requested to talk to my specialist again about why I still have low platelets of 123,000 to 144,000? What question could I ask anybody else going through this? but still had low platelets? I have seen my blood dr twice and is not
Ok so I got the good news on my liver.And there’s no more follow up .I requested to talk to my specialist again about why I still have low platelets of 123,000 to 144,000? What question could I ask anybody else going through this? but still had low platelets? I have seen my blood dr twice and is not
Miesquivel0015
in
British Liver Trust
3 years ago
Plaquenil and possible drug interaction to antibiotics
Hi! Last week I knew something else was off, but it wasn't until Friday, that I knew it was a UTI. Excruciating pain, fever, constant painful trips to the bathroom, etc. and a strip from Amazon showing leucocytes, protein and blood. So Sat. morning went to Express Care. 3 hours later (not so express
Hi! Last week I knew something else was off, but it wasn't until Friday, that I knew it was a UTI. Excruciating pain, fever, constant painful trips to the bathroom, etc. and a strip from Amazon showing leucocytes, protein and blood. So Sat. morning went to Express Care. 3 hours later (not so express
Pumpkin2009
in
LUPUS UK
3 years ago
Crazy PVC when getting up from bed
Does anyone experience PVC mostly upon waking or if you quickly get up from seated position and walk? As soon as I wake up and try to get up my heart goes crazy for about 10 min then is ok. I never had this before I started metoprolol. Switched to calcium channel blocker and was still happening. I’
Does anyone experience PVC mostly upon waking or if you quickly get up from seated position and walk? As soon as I wake up and try to get up my heart goes crazy for about 10 min then is ok. I never had this before I started metoprolol. Switched to calcium channel blocker and was still happening. I’
picklesquish
in
AF Association
3 years ago
Cirrhosis diagnosis
I was diagnosed with Cirrhosis incidentally on a Scan last December and have entirely normal Liver functions and no symptoms The Consultant at Hospital is not concerned and told me to get on with my life and just have 6 monthly blood tests and ultrasound scans I have sadly had a breakdown with the
I was diagnosed with Cirrhosis incidentally on a Scan last December and have entirely normal Liver functions and no symptoms The Consultant at Hospital is not concerned and told me to get on with my life and just have 6 monthly blood tests and ultrasound scans I have sadly had a breakdown with the
Patharrbon
in
British Liver Trust
3 years ago
Thought it was ectopics
Hi everyone, I had an ablation in March this year for AF and after a couple of AF bouts in the 3 month blanking period it has thankfully not returned. Thing is, 2 months after the procedure I started getting daily ectopics, well I think that’s what it is. The skips and the thumping feeling in the chest
Hi everyone, I had an ablation in March this year for AF and after a couple of AF bouts in the 3 month blanking period it has thankfully not returned. Thing is, 2 months after the procedure I started getting daily ectopics, well I think that’s what it is. The skips and the thumping feeling in the chest
rayc99
in
AF Association
3 years ago
Finally managed to speak to my GP.
I finally managed to get through to my GP to advise her that I was really struggling with this laboured breathing and breathlessness I was experiencing on Bisoprolol 1.25mg, and that I had also developed a bit of a tickly cough. I told her I was petrified that I was in heart failure given that breathlessness
I finally managed to get through to my GP to advise her that I was really struggling with this laboured breathing and breathlessness I was experiencing on Bisoprolol 1.25mg, and that I had also developed a bit of a tickly cough. I told her I was petrified that I was in heart failure given that breathlessness
Kellylou1712
in
Arrhythmia Alliance
3 years ago
Exercise and PVC's
I had a heart attack, caused by a clot according to my cardiologist albeit I have clear coronary arteries and no sign of CAD in the main arteries. I do have slight disease in one of the minor arteries but it is too small to stent and my treatment is medication only. Prior to heart attack I was exercising
I had a heart attack, caused by a clot according to my cardiologist albeit I have clear coronary arteries and no sign of CAD in the main arteries. I do have slight disease in one of the minor arteries but it is too small to stent and my treatment is medication only. Prior to heart attack I was exercising
Skintight
in
British Heart Foundation
3 years ago
Primary Biliary Cholangitis linked to other autoimmune diseases any advice further research I could get my hands on?
There is a growing body of evidence with regards to the link between Hypothyroidism and
Primary
Biliary
(
cirrhosis
) Cholangitis.
PBC
is an autoimmune disorder that attacks the bile ducts in the liver - people can be symptom-free for many years before problems start to arise.
There is a growing body of evidence with regards to the link between Hypothyroidism and
Primary
Biliary
(
cirrhosis
) Cholangitis.
PBC
is an autoimmune disorder that attacks the bile ducts in the liver - people can be symptom-free for many years before problems start to arise.
Charlie-Farley
in
Thyroid UK
3 years ago
Ablation or not?
So due ablation in October for ectopic beats mix of pvcs snd supra ventricular ectopics about 8000 a day was getting more snd felt terrible when cardioligist tried me on beta blocker and calcium blocker. But when he stopped them for me they started to im prove slightly and I've kind of got use to them
So due ablation in October for ectopic beats mix of pvcs snd supra ventricular ectopics about 8000 a day was getting more snd felt terrible when cardioligist tried me on beta blocker and calcium blocker. But when he stopped them for me they started to im prove slightly and I've kind of got use to them
Dpc2019
in
British Heart Foundation
3 years ago
Ablation or not?
I'm due to have ablation for ectopic heart beats I get about 8000 a day some supra ventricular some pvcs Mix of both, cardioligist said he can offer me ablation as at the time my mental health was suffering and I was taking two diffrent drugs beta and calcium blocker but since stopping those my burdens
I'm due to have ablation for ectopic heart beats I get about 8000 a day some supra ventricular some pvcs Mix of both, cardioligist said he can offer me ablation as at the time my mental health was suffering and I was taking two diffrent drugs beta and calcium blocker but since stopping those my burdens
Dpc2019
in
AF Association
3 years ago
PVC nightmare
PVCs are weird heartbeat sensations. Fluttering, pounding , flipfopping….had them for 20 years and recently learned how to deal with them. But they’ve gotten worse lately. Had testing including ekg, stress test, etc. All good. That’s reassuring until I have another attack. It is crazy making and I feel
PVCs are weird heartbeat sensations. Fluttering, pounding , flipfopping….had them for 20 years and recently learned how to deal with them. But they’ve gotten worse lately. Had testing including ekg, stress test, etc. All good. That’s reassuring until I have another attack. It is crazy making and I feel
Catsamaze
ADAA Volunteer
in
Anxiety and Depression Support
3 years ago
A ‘Normal’ Day
Hi everyone, I’ve had a journey on bisoprolol so far and I can’t at this stage say I’m completely happy with the medication nor whether I am tolerating it all that well. I still feel like my breathing is quite laboured at times and keep petrifying myself with google searches that I have given myself
Hi everyone, I’ve had a journey on bisoprolol so far and I can’t at this stage say I’m completely happy with the medication nor whether I am tolerating it all that well. I still feel like my breathing is quite laboured at times and keep petrifying myself with google searches that I have given myself
Kellylou1712
in
Arrhythmia Alliance
3 years ago
Six month scanxiety.
Just going through my six month scanxiety. Will have my six month ultrasound and AFP test on July 20. All prayers appreciated. For those who don’t know, I suffer from cirrhosis cause by my right sided heart failure. Yep, the heart affects many of our organs. My cirrhosis is well compensated and will
Just going through my six month scanxiety. Will have my six month ultrasound and AFP test on July 20. All prayers appreciated. For those who don’t know, I suffer from cirrhosis cause by my right sided heart failure. Yep, the heart affects many of our organs. My cirrhosis is well compensated and will
Bluegirl52
in
British Liver Trust
3 years ago
Cryo ablation
Hi All, After my first cryoablation for af last year my EP told me that he didn’t manage to get it all during the op as he didnt have all the equipment he needed at the time. Thankfully I’ve not had any episodes of af post ablation but do get a fluttering sensation a few times a week which can sometimes
Hi All, After my first cryoablation for af last year my EP told me that he didn’t manage to get it all during the op as he didnt have all the equipment he needed at the time. Thankfully I’ve not had any episodes of af post ablation but do get a fluttering sensation a few times a week which can sometimes
Bailou
in
AF Association
3 years ago
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