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Experiences with
Polycythaemia vera
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Aloe vera
Has anyone tried taking aloe vera liquid to help reduce Pred dose and if so what was the result?
Has anyone tried taking aloe vera liquid to help reduce Pred dose and if so what was the result?
Bagadash
in
PMRGCAuk
4 years ago
Help aloe Vera capsules
I suffer from ibs -c and d . Terrible pain in right side and bloating . Been diagnosed with slow track bowel and scar tissue causing a narrowing in my bowel . Would aloe Vera help . I take laxido everyday 1sachet sometimes 2 and constella 290 for the pain . Just don’t no what to do any more .😩
I suffer from ibs -c and d . Terrible pain in right side and bloating . Been diagnosed with slow track bowel and scar tissue causing a narrowing in my bowel . Would aloe Vera help . I take laxido everyday 1sachet sometimes 2 and constella 290 for the pain . Just don’t no what to do any more .😩
Readmeastory
in
IBS Network
4 years ago
Maca root or aloe vera for endometriosis?
Hi Has anyone used maca root or aloe vera to help with endo symptoms? Did they help? Cheers
Hi Has anyone used maca root or aloe vera to help with endo symptoms? Did they help? Cheers
TennisAM
in
Endometriosis UK
4 years ago
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Benadryl tablets for hive looking lupus rash
Hello, I hope all are safe and keeping well? I’ve only been diagnosed few months ago and still learning lots about Lupus and how to manage it. Has anyone used successfully Benadryl tablets to keep under control hive looking like lupus rash? I came off prednisolone and only on hydroxy now and these
Hello, I hope all are safe and keeping well? I’ve only been diagnosed few months ago and still learning lots about Lupus and how to manage it. Has anyone used successfully Benadryl tablets to keep under control hive looking like lupus rash? I came off prednisolone and only on hydroxy now and these
MadT
in
LUPUS UK
4 years ago
Diltazem Viazem XL
I have been taking taking Diltazem for around 21/2 months now as an alternative to Digoxin which worked for me if I sat still but was useless for any kind of exercise which made my heart rate increase to very high levels. Diltazem has worked well in any situation be it sitting or exercise and I have
I have been taking taking Diltazem for around 21/2 months now as an alternative to Digoxin which worked for me if I sat still but was useless for any kind of exercise which made my heart rate increase to very high levels. Diltazem has worked well in any situation be it sitting or exercise and I have
dindy
in
Atrial Fibrillation Support
4 years ago
Is it time for interferon in low-risk patients with polycythaemia vera?
« The use of interferon for the treatment of myeloproliferative neoplasms has a long tradition. Pioneering studies were done by Silver and Gisslinger in the late 1980s. 1 , 2 They showed interferon alfa (then conventional interferon alfa) to be effective in controlling erythrocytosis, thrombocytosis
« The use of interferon for the treatment of myeloproliferative neoplasms has a long tradition. Pioneering studies were done by Silver and Gisslinger in the late 1980s. 1 , 2 They showed interferon alfa (then conventional interferon alfa) to be effective in controlling erythrocytosis, thrombocytosis
Manouche
in
MPN Voice
4 years ago
Right rib sensation
In short had Acid Reflux & IBS problems since Dec 19. Had all tests including ultrasound on upper abdomen in Jan 20 & endoscopy Nov 20, all back fine. Through all of this period and still on going I have a strange sensation / feeling under my right rib, it's not pain as such, hard to explain. Every doc
In short had Acid Reflux & IBS problems since Dec 19. Had all tests including ultrasound on upper abdomen in Jan 20 & endoscopy Nov 20, all back fine. Through all of this period and still on going I have a strange sensation / feeling under my right rib, it's not pain as such, hard to explain. Every doc
AlexMac83
in
IBS Network
4 years ago
Something good for pain between shoulders
PMR not too bad - on 6 mg pred - diagnosed Oct 18 - have pain at top of back below neck in middle of shoulders - I use Glucosamine Complex Gel with Aloe Vera Devils Claw and MSM - very soothing
PMR not too bad - on 6 mg pred - diagnosed Oct 18 - have pain at top of back below neck in middle of shoulders - I use Glucosamine Complex Gel with Aloe Vera Devils Claw and MSM - very soothing
Daffodilia
in
PMRGCAuk
4 years ago
Diverticulitis diagnosis
Recently diagnosed with uncomplicated diverticulitis, spent 4 days on IV antibiotics & fluids only in horrendous pain. Released on day 5 as pain was manageable (their words) & told to eat low fibre diet for next week & then to eat high fibre diet. I have found that white bread brings back cramps & bloating
Recently diagnosed with uncomplicated diverticulitis, spent 4 days on IV antibiotics & fluids only in horrendous pain. Released on day 5 as pain was manageable (their words) & told to eat low fibre diet for next week & then to eat high fibre diet. I have found that white bread brings back cramps & bloating
Sme08
in
IBS Network
4 years ago
ICC ruled in favor of AOP Orphan Pharmaceuticals AG in arbitration proceedings pertaining to BESREMi®
«We are relieved that the ICC ruling compensates AOP Orphan now for the delay in getting BESREMi® approved in the European Union, and the delay in bringing this important medication to the patients suffering from
polycythaemia
vera
, a rare and chronic disease of the blood building cells", explains Dr
«We are relieved that the ICC ruling compensates AOP Orphan now for the delay in getting BESREMi® approved in the European Union, and the delay in bringing this important medication to the patients suffering from
polycythaemia
vera
, a rare and chronic disease of the blood building cells", explains Dr
Manouche
in
MPN Voice
4 years ago
ICC ruled in favor of AOP Orphan Pharmaceuticals AG in arbitration proceedings pertaining to BESREMi®
Consequently, AOP Orphan is entitled to payment of damages for project delays caused by PharmaEssentia, resulting in delays of the approval of the medicinal product for human use BESREMi® in Europe and delays in supply to patients affected by
polycythaemia
vera
.
Consequently, AOP Orphan is entitled to payment of damages for project delays caused by PharmaEssentia, resulting in delays of the approval of the medicinal product for human use BESREMi® in Europe and delays in supply to patients affected by
polycythaemia
vera
.
Manouche
in
MPN Voice
4 years ago
Itchy Skin problems
At the same time I had an alteration in medication dosage for
Polycythaemia
Vera
that I have and which can have the side effect of itchy skin. I am asked by the consultant or registrar fairly regularly if this is occurring.
At the same time I had an alteration in medication dosage for
Polycythaemia
Vera
that I have and which can have the side effect of itchy skin. I am asked by the consultant or registrar fairly regularly if this is occurring.
nanmc
in
MPN Voice
4 years ago
Trying to help to newly diagnosed PMR
I was 54 when it first hit from nowhere. I was in absolute agony and nobody got it. I struggled with the idea of PMR at my age and simply couldn’t bear the idea of it. Steroids just seemed such a big leap and I tried everything high mg slow release ibruprofen, turmeric, heated pads, you name it. I bought
I was 54 when it first hit from nowhere. I was in absolute agony and nobody got it. I struggled with the idea of PMR at my age and simply couldn’t bear the idea of it. Steroids just seemed such a big leap and I tried everything high mg slow release ibruprofen, turmeric, heated pads, you name it. I bought
Crackers1964
in
PMRGCAuk
4 years ago
Polycythaemia Vera
I was diagnosed with
polycythaemia
vera
about 11 yrs ago and spent years not having enough energy to lead an active life. Four years ago I was diagnosed with coeliac disease. While PV increases my levels of hemoglobin, CD decreases it.
I was diagnosed with
polycythaemia
vera
about 11 yrs ago and spent years not having enough energy to lead an active life. Four years ago I was diagnosed with coeliac disease. While PV increases my levels of hemoglobin, CD decreases it.
Goliat
in
MPN Voice
4 years ago
Dry Mouth, Gum Disease, Chapped Lips, Dry Eyes, Dry Skin, Eye Floaters And Some Possible Help From A Single Spray!
With winter just around the corner, this information may be most useful and timely! With winter weather comes heater use which can have very drying effects on skin, eyes and your mouth and the information below may be a useful way to deal with these issues! I put the following post up about 2 to 3 years
With winter just around the corner, this information may be most useful and timely! With winter weather comes heater use which can have very drying effects on skin, eyes and your mouth and the information below may be a useful way to deal with these issues! I put the following post up about 2 to 3 years
chartist
in
Cure Parkinson's
4 years ago
Balanitis for 3 months
I’ve been dealing with a fungal infection / Balanitis for the past 3 months 1/2. It started when I had smegma underneath my foreskin built up that caused redness. I was prescribed Ketoconazole and Desitin which got rid of the infection in 3 weeks. I was dealing with a bit of tip issues towards the end
I’ve been dealing with a fungal infection / Balanitis for the past 3 months 1/2. It started when I had smegma underneath my foreskin built up that caused redness. I was prescribed Ketoconazole and Desitin which got rid of the infection in 3 weeks. I was dealing with a bit of tip issues towards the end
DBT123
in
Men's Health Forum (Penis Health)
4 years ago
Doc Martin
It mentioned
Polycythaemia
Rubra
Vera
. First time I've ever heard it mmentioned in a tv programme. Hope you're all keeping well.
It mentioned
Polycythaemia
Rubra
Vera
. First time I've ever heard it mmentioned in a tv programme. Hope you're all keeping well.
mark382
in
MPN Voice
4 years ago
Flaring and fed up
Good morning all. I'm on my fourth day of a horrid flare and feeling massively sorry for myself so sorry for the self indulgent post. My legs have gone - achey, fizzy and no strength; sharp one-sided head pain is back with dizziness and sick feeling; joints aching and so stiff - when I move from most
Good morning all. I'm on my fourth day of a horrid flare and feeling massively sorry for myself so sorry for the self indulgent post. My legs have gone - achey, fizzy and no strength; sharp one-sided head pain is back with dizziness and sick feeling; joints aching and so stiff - when I move from most
Apricot100
in
LUPUS UK
4 years ago
Aloe Vera Juice
Just a quick question. Has anyone taken aloe vera juice while having chemo. I was taking it prior to treatment but not sure if I should carry on taking it x
Just a quick question. Has anyone taken aloe vera juice while having chemo. I was taking it prior to treatment but not sure if I should carry on taking it x
Cazbird
in
My Ovacome
4 years ago
PV itch
Hi, sorry to keep going on about it, but has anyone used Aloe Vera for “the itch” and does it help ? A friend has recommended it may help 🤔 Thanks 💞
Hi, sorry to keep going on about it, but has anyone used Aloe Vera for “the itch” and does it help ? A friend has recommended it may help 🤔 Thanks 💞
Yvette49
in
MPN Voice
4 years ago
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