Do any of you need blood transfusions... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Do any of you need blood transfusions about every other year? I seem to need about 2-3 units every other year. Just wondering!!!!

77tiger05 profile image
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77tiger05
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That's very unusual with HS. Are you sure that's not related to something like autoimmune anemia?

77tiger05 profile image
77tiger05

I don't think so, have just had so many things that I lost blood from. And then ended up having so many tranfusions. I have probably had since 1997 when first diagnosed 16-18 tranfusions. It probably is related to anemia.

Lyndsaylou profile image
Lyndsaylou in reply to 77tiger05

Did you have internal bleeding like upper GI or lower GI bleed? In Canada if your hemoglobin is lower then 100 then usually a transfusion is considered , but we watch the level's over 48hr, and if your levels go lower then we would transfuse. Was it only blood or did you have FFP Fresh frozen platelets?/Plasma?