Haemochromatosis Society UK | HealthUnlocked

Hi. I was recently diagnosed with hemochromatosis based on slightly off bloodwork and genetic test. Neither of my parents had hemochromatosis but both were...

I’m homozygous/have the 2 copies for H63D. I’ve have higher ferritin levels over past 7/8 years ranges from circa 180 upto 380 at times. I found out as hubby...

how does the NHS treat zinc below range when it will not be absorbed though the stomach and normal oral supplements have no effect?

Hi, My husband has been feeling extremely fatigued with a foggy brain for months. He finally went to the GP at the beginning of the year as he was also...

Hi, Would just like a bit of advice. After years of infertility and miscarriages, we were referred for fertility testing. We have been refused for IVF on NHS...

Hi Everybody I have hemochromatosis and my ferritin is now 13 but no venesection for 2 years. I have had heart twinges and chronic constipation. I have been...

A few years ago I had blood tests which showed high iron levels so my doc suspected Haemochromatosis. I had the genetic testing which showed I had the gene...

In November 2023 my iron labs were increased. Ferritin 117 TSAT 58 my doctor said we would retest in six month and do genetic testing but wasn’t concerned....

hi everyone I have just tested positive for genetic haemochromatosis. I have 2 genes. I know nothing about this condition.my blood results was not that high....

I haven’t yet been diagnosed but these are my latest labs Iron: 129 Ferritin 117 Uibc 106 Tibc 255 Iron saturation 58% thoughts?

Hi I have had haemochromatosis for 10 years and have always had venesections but now my ferritin is very low 14 and no venesection for over a year. Been...

Hello. I just wondered if anyone could recommend a good multivitamin that has no iron. Since my diagnosis of GH in Dec 2022, my GP advised me to stop taking my...

Hi. Was hoping someone could help with my results please? Serum ferritin 62.9 ug/l (13-150) Serum iron 31.1umol/l (10-30) H Serum transferrin 1.86 g/l...

Reduction in Ferritin Concentrations among Patients Consuming a Dark-Green Leafy Vegetable–Rich, Low Inflammatory Foods Everyday (LIFE) Diet...

Hi, I had a venesection (500mls) recently followed by a blood test to check levels & the result has come back higher than before the venesection. Has anyone...

I hear bad stories about iron infusions and allergic reactions. What happens if you get an allergic reaction and once you recover, do you feel better for...

anyone else here with the Compound varient? CY282Y + H63D? I have developed Peripheral Atrial Fibrillation, T2 Diabetes and possibly NAFLD(non-alcoholic...

I’ve been diagnosed with haemochromatosis for 5years and blamed all my aches and pains on it. Today I’ve been diagnosed with Fibromyalgia by my GP, is there a...

Hi, I am interested in diet suggestions and recommendations for those having weekly venesection. Many thanks

I was diagnosed with hemochromatosis in 2015, which I’m a carrier meaning I have a dna from my dad and mom so that made me a carrier so with that I could have...

I was made aware of this condition by a friend many months ago, possibly 18 months. I forgot about it until one evening around 7.30pm my GP rang to say my...

hi. I’m new to this forum so please bear with me. My late mum had this condition as does my sister. I was always regularly anaemic but had blood test results...

serum iron 21.8 umol/L (9.0-30.4) Serum transferrin 2.26 g/L ( 2.50-3.80) Unsat iron binding capacity 57 umol/L (45-81) Transferrin saturation index 38%(...

Hi all Been experiencing lots of symptoms since 2018 that have got progressively worse.. did a couple of fasting iron panel tests on Thriva, first one Sept...

Good Afternoon - I am wondering if I might ask for some help with regard to my Raised Ferriton Levels please - I was taken ill in August 2021 with severe...

All my results are within the ranges except UIBC. I showed the result to a doctor and they said everything is fine. Should I get a second opinion? IRON:...

Hi all I've started my first course of venesection and am thinking should I postpone my vaccinations until they are finished. I'm having venesection every...

advise please i have just had my third session and i am finding i feel very light headed and dizzy the afternoon of the procedure and completely exhausted and...

Hi 61 year old male in UK. Had a blood test a couple of years ago, which revealed elevated Iron. Not sure of the number. Just had another test which...

I have h63d homozygous haemochromatosis with raised ferritin and santuration levels i have had liver function tests and an ultrasound of liver spleen etc but...