Haemochromatosis Society UK | HealthUnlocked

anyone else here with the Compound varient? CY282Y + H63D? I have developed Peripheral Atrial Fibrillation, T2 Diabetes and possibly NAFLD(non-alcoholic...

I’ve been diagnosed with haemochromatosis for 5years and blamed all my aches and pains on it. Today I’ve been diagnosed with Fibromyalgia by my GP, is there a...

Hi, I am interested in diet suggestions and recommendations for those having weekly venesection. Many thanks

I was diagnosed with hemochromatosis in 2015, which I’m a carrier meaning I have a dna from my dad and mom so that made me a carrier so with that I could have...

I was made aware of this condition by a friend many months ago, possibly 18 months. I forgot about it until one evening around 7.30pm my GP rang to say my...

hi. I’m new to this forum so please bear with me. My late mum had this condition as does my sister. I was always regularly anaemic but had blood test results...

serum iron 21.8 umol/L (9.0-30.4) Serum transferrin 2.26 g/L ( 2.50-3.80) Unsat iron binding capacity 57 umol/L (45-81) Transferrin saturation index 38%(...

Hi all Been experiencing lots of symptoms since 2018 that have got progressively worse.. did a couple of fasting iron panel tests on Thriva, first one Sept...

Good Afternoon - I am wondering if I might ask for some help with regard to my Raised Ferriton Levels please - I was taken ill in August 2021 with severe...

All my results are within the ranges except UIBC. I showed the result to a doctor and they said everything is fine. Should I get a second opinion? IRON:...

Hi all I've started my first course of venesection and am thinking should I postpone my vaccinations until they are finished. I'm having venesection every...

advise please i have just had my third session and i am finding i feel very light headed and dizzy the afternoon of the procedure and completely exhausted and...

Hi 61 year old male in UK. Had a blood test a couple of years ago, which revealed elevated Iron. Not sure of the number. Just had another test which...

I have h63d homozygous haemochromatosis with raised ferritin and santuration levels i have had liver function tests and an ultrasound of liver spleen etc but...

Hi all I was diagnosed with Haemochromatosis about a year ago now, I'm going every 4 months for my venesection but I tried to contact my consultant about the...

i have just had the results of a genetic test for hemo and have been told i have the his63asp variant which shouldn’t give you iron overload. my ferritin...

Hi everyone and many thanks in advance for your time. Apologies in advance if I am in the wrong place. Clutching at straws as feeling very unwell for last 18...

Hello- Is anyone ever diagnosed with Hemochromatosis when their iron levels are normal? My son has had a laundry list of symptoms (including bronzing of the...

Hi I had various bloods taken recently. After looking at my iron levels they were slightly raised. I’m not diagnosed with haemochromatosis but this was the...

I am positive for hemochromatosis and am now in maintenance, my sister 5 years younger just tested positive for hemochromatosis, her ferritin levels were 178...

Hi all, Could you please advise what formally constitutes a diagnosis of Haemochromatosis? I have tested positive homozygous HFE:c. 187C>G (His63Ap). I have...

Hi Does anyone else suffer from the most horrific hangovers no matter how little they drink?

Serum ferritin 500 mcg / L will this get treated ?

Good afternoon I have many symptoms of Hemochromatosis, painful joint, hand pain, palmar erythema, brain fog, dizziness,back pain, abdominal pain, rib pain to...

Hi everyone, I have recently had a blood test as my ibs and diverticular are playing up more than usual. My bloods came back as follows: B12: 194 Folate: 1.7...

Hi I wonder could I ask what you think of my test results Medichecks 12 August - iron 62.37 (5,8-34.5) Ferritin 34.7...

Hi everyone. I have a history of iron deficiency, requiring iron infusions over the last few years. I’ve been feeling a bit wiped out/exhausted and just not...

anyone here have high iron and low ferritin?how do i fix it?i did a donation and sent a test in to see if i have the mutation, how would I raise my ferritin?

hi everyone im concerned about my labs done in April I did one blood donation already to try and lower my blood heres the labs Iron total 189(40-190)...

Hi I have been having thyroid blood tests done lately due to symptoms of all over joint pain and stiffness. Fluid retention, severe constipation and weight...