Haemochromatosis Society UK | HealthUnlocked

Haemochromatosis Society UK

479 members103 posts

Is it normal to be in constant pain?

Hi all I was diagnosed with Haemochromatosis about a year ago now, I'm going eve...

haemochromatosis

i have just had the results of a genetic test for hemo and have been told i have...

Maybe in the wrong place....advice please

Hi everyone and many thanks in advance for your time. Apologies in advance if I ...

Hemochromatosis with normal iron levels?

Hello- Is anyone ever diagnosed with Hemochromatosis when their iron levels are ...

Iron saturation raised

Hi I had various bloods taken recently. After looking at my iron levels they we...

Hemochromatosis

I am positive for hemochromatosis and am now in maintenance, my sister 5 years y...

What constitutes a diagnosis

Hi all, Could you please advise what formally constitutes a diagnosis of Haemoch...

Haemochromatosis and hangovers

Hi Does anyone else suffer from the most horrific hangovers no matter how littl...

Haemochromatosis

Serum ferritin 500 mcg / L will this get treated ?

Possible Hemochromatosis?

Good afternoon I have many symptoms of Hemochromatosis, painful joint, hand pai...

newbie

Hi everyone, I have recently had a blood test as my ibs and diverticular are pla...

Very confused about results ,help needed please

Hi I wonder could I ask what you think of my test results Medichecks 12 August ...

Haemochromatosis or just iron overload from stress and inflammation?

Hi everyone. I have a history of iron deficiency, requiring iron infusions over ...

High iron and low ferritin

anyone here have high iron and low ferritin?how do i fix it?i did a donation and...

high iron low ferritin

hi everyone im concerned about my labs done in April I did one blood donation...

New here, any advice please

Hi I have been having thyroid blood tests done lately due to symptoms of all ove...

Diagnosis

I have individual blood results and symptoms that lead me to believe I may have ...

Nerve pain

Does anyone have a nerve like sensation, not quite pain, in their joints? I hav...

How do you know when you need a venesection , symptom wise ?

How do you know when you need your next venesection , symptom wise

No diagnosis, unsure what to think while waiting

Hi. I wonder if anyone here can offer an opinion. I haven’t been diagnosed but m...

Arthritis in hands

Hi, im new to site. I've been diagnosed a few years ago with Hemochromitosis, ge...

Confused about results

Hi, I hoping someone may be able to give me some advice on iron levels. My dad...

Private genetic test for Haemochromatosis

Hello, I'm new to the forum. I wanted to find out any recommendations for privat...

Anyone here taking thyroid hormone?

Do you feel like you need to take an higher dose when your iron/ferritin is high...

Confused on results

Hi there. Posted my results but I'm confused as the results given, well I dont b...

H. Hemochromatosis, Polycythemia Vera & Arthritis

Does anyone else suffer with joint pain & stiffness? Was diagnosed with HH 10 ye...

LOW FERRITIN/NORMAL IRON LEVELS ADVICE PLEASE

Hi All I am hypo with high TSH 3.74 (0.22-4.20) And over range TGO antibodies ...

Possible HH and panicking a bit about damage to joints and other organs

Hi, I could use some advice, I may have HH (Dad is HH) and I am panicking that I...

Does blood-letting actually improve symptoms?

Hi, I'm currently at the investigatory stage for my health problems, but I wond...

Rash ever connected with haemochromatosis?

Hi. I've been plagued with itchy, raw 'rashes' round my eyes and along my collar...
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About us

The Haemochromatosis Society was established in 1990 in order to help, support and provide information for tho...

Read more about Haemochromatosis Society UK