The Haemochromatosis Society was established in 1990 in order to help, support and provide information...Read more
HH AND CROHNS
craigyrose3 days ago
Does anyone have HH and Crohns? I am looking for advice on diet etc, any information would be gratefully appreciated
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Pheonix514 days ago
Today I went to see a haematoligist about my ferritin level which was 715 normal range is 30 to 400.
So I got it in my head to avoid as much...
What does High Ferritin mean?
Spareribsa month ago
Back in August I got some private tests - should I ignore them?
Over-range Ferritin 270*(13-150) CRP 9.4*(0-5) Zinc 1900*(700-1200)
Lizziesydneya month ago
I'm searching for answers or opinions.
I've been short of breath for over 2 months. I'm absolutely exhausted. I have shoulder and neck aches ...
Sarahlou09052 months ago
Hi I have recently been diagnosed with genetic haemochromatosis & have been referred to the hospital to be seen by a consultant. Though have...
Help with results
Andypandy302 months ago
Hi I have the haemachromatosis gene and got my 42 yr old brother who complains of aches and pains in joints extreme tiredness low mood his r...
Blood results.please help
Pheonix513 months ago
HI Everyone, I went for a blood test because my ferritin levels were high,and have been for at leat 2 yrs but nobody picked it up.
These are ...
where to get the genetic hfe test
amypinga3 months ago
Hi, I'm currently trying to work out whether I have GH. I do definitely have high ferritin 5-700, highish transferrin 53%, normal iron, and ...
Hi everyone, I am on the thyroid community which I recently joined. They told me that I should get a blood test done so I can put on the sit...
Doctor not concerned but I am
Palermo4 months ago
My ferritin levels have been in the area of 358 for a few years. I asked him if I should be tested and he said if I had it levels would be...
High Ferritin was taking prenatals
Dep1394 months ago
Good Morning!!!I'm hoping somebody can answer me. I was taking prenatal vitamins for 9 mos.I wasn't trying to get pregnant.I was taking it w...
Ankitapaliwal4 months ago
I'm 30 yrs old female, my ferritin level goes down very low to 10.8, due to which I'm suffering from severe hair fall it's really depress...
Cymrawes4 months ago
Hi -is it ok to take Vitamin K as a supplement for bone health with haemochromatosis?
2 Replies1 Like
Left kidney pain
Debbs735 months ago
I've got genetic hematomacrosis and over the last few days I've been getting pain in my left hand side (kidney area). Just wondered ...
New and searching
leisuretime6 months ago
I'm Janey. A former physical therapist, I'm increasingly frustrated with the medical world I once embraced.
The more I research with groups ...
Pre Phleb advice
Madlegs16 months ago
At last I've been given a date for phleb- next Monday 16th.
They said to have a good breakfast and hydrate with 2 litres.
What constitutes a"...
Could this be haemochromatosis?
tracyd599 months ago
Hello, I'm glad I found this website
After a blood test for thyroid a week ago, I got these results -
CRP H 7.30 <5.0 mg/l
Is anyone able to help me understand these results and the meaning? High iron serum/sat
jchance123a year ago
I had self administered two B12 injections within 7 days (clearly too much) and was wondering if this could be the cause of the high Iron s...
ppf123a year ago
Good morning i'm new here and so pleased I've found this site as I need advice regarding high ferritin
My ferritin levels are going up and...
Asymptomatic high ferritin
Madlegs1a year ago
Hi- I'm hoping someone here can help or point me in the right direction.
I'm 69 yr old male. I had a bad accident in 2013 involving six month...
Help with haemchromatotis
Debbiecarra year ago
I have been diagnosed with haemchromatotis and went for my third viensection yesterday but unfortunately I was very unsuccessful as my veins...
high ferritin, low serum?
catalonia13a year ago
4 weeks ago my ferritin levels were once again 'above range' , been like this since last August despite having been told years ago my body w...
Should I be concerned
Deb592 years ago
Hi, I have just received results of my blood test and note that my serum folate and ferritin are high. I am hypothyroid and have b12 jabs....
Overactive thyroid and high iron level
Suzie222 years ago
Just been diagnosed with both an overactive thyroid and high iron in my blood. Although on Carbimozole for my thyroid, with an endo...
What does low zinc protoporphyrin indicate?
wesleysnipes2 years ago
Having high low zinc protoporphyrin can indicate iron deficiency, correct? Is the inverse true?
Joint pain with hemochromtosis or bursitis
PainBfree3 years ago
Does anyone have any feedback? My ferritan has been at a 14
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