Car-T begins tomorrow!

[Bajabarb]

Just wanted to update you all about where I am with my CLL/MZL which transformed into DLBCL (still not sure if it’s Richters but definitely close) in January, 2025. I had 10 radiation treatments focused on the axial lump that was biopsied and which determined I had DLBCL, then 3 lympho depleting treatments of chemo. Tomorrow I begin the transfusion of T-cells which will hopefully fight both the CLL and the DLBCL during a 2 week hospital stay.

As I have been fighting CLL for almost 5 years and failed treatments of Acalabrutinib, Venetoclax, Pirtobrutinib and Obinutuzumab, this is apparently the best way currently to treat this wily disease. I hope so.

I would really appreciate your prayers, good wishes and any other positive thoughts you all can send my way during this next month. I am so thankful for such an amazingly supportive and compassionate group that cares about all its members.

Thanks so much. Barbara

[newyork917]

All the best! Sending positive thoughts and healing vibes to you!

[Bajabarb in reply to newyork917]

Thanks so much!

[Bajabarb in reply to Bajabarb]

To all of you who wrote with your kind thoughts and prayers.

[Name-1]

🍀🍀🍀

[PaulaS Volunteer]

Have just prayed for you, Barbara.

Wishing you all the best for this latest treatment. May you experience God's peace and healing through it all.

Blessings,

Paula

[studebaker]

Will keep you in my prayers Barbara and sending good vibes your way to keep you safe 🙏🏻👋🏻🤗

Dana

[Homebody123]

Best of luck for your treatment.

[hope-73]

wishing you all the best 🙏🏼

[LawyerCLL]

I am thinking about you and keeping you in my prayers.

[cartwheels]

All the best and you sound like a warrior 💪💪 which leads me to think you will do this 💪 🙏👍

[Jm954 Administrator]

wishing you a very smooth and uneventful CAT-T and recovery. 💪🙏

[Doremefasol]

Hello Barbara, I had CAR T for CLL one month and a half ago. I am 71 years old and will be 72 in April.

I didn't feel great for a week, with fevers and one short incident of losing contact with the surroundings, which only lasted about five hours. However, all of this was remedied quickly. I have been home since the seventh of this month, and I am getting stronger every day. Go for it, Barbara. Scientists have almost perfected this treatment; now, it is not as bad as it was years ago.

I had my CAR T at NIH, and it was a very good experience. They are still looking for candidates for this particular trial. Excellent place to take it at the institute. The doctors/scientists are fantastic, with a first-class follow-up.

Wishing you the best.

[DoNorth in reply to Doremefasol]

I actually just screened for this trial this week. Hope to start in July. Good results?

[Doremefasol in reply to DoNorth]

So far ,so good

[Stamphappy]

I've just said a prayer for you for a smooth as possible experience and especially a healing recovery of body, mind, and spirit surrounded with God's grace❤️.

[spi3]

Prayers are being sent up! I've been reading alot about CAR-T and they have come a very long way! I am praying for a quick recovery for you and please let us know how you are doing

[Osprey69]

will certainly be keeping you in thoughts and prayers 🙏 As you are able please let’s us know how things are progressing. It is because of people like you that many of us have choices-thank you. 👏

[Lila1]

Barb you are in prayers. Faith, hope, and love to you. You will do amazing!

[Danie50]

prayers to you

[AnneHill]

You have been througĥ so much and must be really frightened. We are all thinking about you and the power of prayer is strong, Anne uk

[Islandvibes]

good wishes, positive thoughts sent your way

[JigFettler Volunteer]

Wishing you all strength courage, and a healthy dose of fortitude .

Jig

[nvp815]

Wishing you the very best of luck with CAR-T. I participated in a clinical trial for this treatment in June of 2023 and am still in remission. Hoping you get similar success!!!

All the best,

Nan

[Schubert1870]

I will keep you in my thoughts as you go through having CAR-T. I think just having that fighting spirit helps to get us through these treatments. When a patient is in the best of hands, that alone is reassuring.

Best to you,

Schubert

[MGirl-Aust]

Wishing you smooth sailing and a good outcome Barbara 🙏🧡