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I just found out the cause of my autoimmune chronic pancreatitis and it’s not good. I have Sjögren’s syndrome.
it’s effecting my other organs too. I have osteoporosis, not from prednisone but from lack of nutrients from the pancreatitis. I need to go on a steroid to help stop my body from effecting multiple lungs, kidney’s, liver and pancreas. I have 4 cysts on my pancreas too. I had lymphoma from Sjogren’s
it’s effecting my other organs too. I have osteoporosis, not from prednisone but from lack of nutrients from the pancreatitis. I need to go on a steroid to help stop my body from effecting multiple lungs, kidney’s, liver and pancreas. I have 4 cysts on my pancreas too. I had lymphoma from Sjogren’s
Joanhappy21
in
Chronic Pancreatitis Support
6 months ago
Comparative Effectiveness of Levothyroxine, Desiccated Thyroid Extract, and Levothyroxine+Liothyronine in Hypothyroidism.....a study
Comparative Effectiveness of Levothyroxine, Desiccated Thyroid Extract, and Levothyroxine+Liothyronine in Hypothyroidism
https://academic.oup.com/jcem/article/106/11/e4400/6311304 [u]
The rationale behind thyroid hormone replacement therapy is to administer thyroid hormone in a way that restores
Comparative Effectiveness of Levothyroxine, Desiccated Thyroid Extract, and Levothyroxine+Liothyronine in Hypothyroidism
https://academic.oup.com/jcem/article/106/11/e4400/6311304 [u]
The rationale behind thyroid hormone replacement therapy is to administer thyroid hormone in a way that restores
DippyDame
in
Thyroid UK
2 months ago
It's mortar and pestle time - Ginkgo update
Holland & Barrett have discontinued 30mg Ginkgo tablets, leaving 60mg and 120mg on the shelf. No more convenience for a 3 x 30mg dose. I tried a 120 but the increase in tinnitus which happens for me on dose day was uncomfortable so I won't be doing that again. It looks like more is not necessarily better
Holland & Barrett have discontinued 30mg Ginkgo tablets, leaving 60mg and 120mg on the shelf. No more convenience for a 3 x 30mg dose. I tried a 120 but the increase in tinnitus which happens for me on dose day was uncomfortable so I won't be doing that again. It looks like more is not necessarily better
Ray200
in
Tinnitus UK
1 month ago
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Hi I’m dory10. I was diagnosed inDec2019 but had it for 27 years. I fall over a lot now I’m having tests to find out why.
I fell down stairs expecting my 3rd child at 37 weeks . She was fine a genius infact but I was left in muscle spasms and so much pain. I was told I was so close to being a paraplegic. I put up with all the little things that went wrong, I was fortunate not to be paraplegic. In 2016 I had a minor car
I fell down stairs expecting my 3rd child at 37 weeks . She was fine a genius infact but I was left in muscle spasms and so much pain. I was told I was so close to being a paraplegic. I put up with all the little things that went wrong, I was fortunate not to be paraplegic. In 2016 I had a minor car
Dory10
in
Fibromyalgia Action UK
5 months ago
Loss of voice!
Anybody with asthma + bronchiectasis combo ever suffer with total loss of voice? Ihave the odd croaky days, but it doesn't last long, now I've lost my voice ccompletely.....had loads of hot drinks, nothing working. Tips please!! Thanks.
Anybody with asthma + bronchiectasis combo ever suffer with total loss of voice? Ihave the odd croaky days, but it doesn't last long, now I've lost my voice ccompletely.....had loads of hot drinks, nothing working. Tips please!! Thanks.
Tiggertheterrier
in
Asthma Community Forum
5 months ago
Ginkgo Trial (winter update)
The story so far. Taking 3 x 30mg Ginkgo during the lighter months one day a week resulted in a relief of my mild, variable T the following day. For 5 or so hours in the afternoon. I have now established that the same happens during the darker days but it takes 2 days for the effect to happen. I put
The story so far. Taking 3 x 30mg Ginkgo during the lighter months one day a week resulted in a relief of my mild, variable T the following day. For 5 or so hours in the afternoon. I have now established that the same happens during the darker days but it takes 2 days for the effect to happen. I put
Ray200
in
Tinnitus UK
7 months ago
Pseudomonas colonised.
Morning all, l have been on nebulised Colomycin since last August. Although it has kept infections at bay, l am more breathless than l used to be and energy levels are very low. I have told that l will be on this medication for a long time as my lungs are very badly damaged. I cannot walk any length
Morning all, l have been on nebulised Colomycin since last August. Although it has kept infections at bay, l am more breathless than l used to be and energy levels are very low. I have told that l will be on this medication for a long time as my lungs are very badly damaged. I cannot walk any length
falcon68
in
Lung Conditions Community Forum
6 months ago
Extreme fatigue. Any solution?
This is wiping me out. Honestly. It tends to start at about 5 pm and lasts for about 2/3 hours. I used to take Whey protein to counter it but this appears to not hit the spot. I’m utterly exhausted when this phenomenon strikes and am wondering if anyone has any ideas? I take B1 daily (Superior Source
This is wiping me out. Honestly. It tends to start at about 5 pm and lasts for about 2/3 hours. I used to take Whey protein to counter it but this appears to not hit the spot. I’m utterly exhausted when this phenomenon strikes and am wondering if anyone has any ideas? I take B1 daily (Superior Source
jeeves19
in
Cure Parkinson's
3 months ago
anyone used myovvii device ?
hello everyone, curious to find out if any of you have used the myovvii device that is promoted on instagram for period pain and endo pains? Apparently it sends signals to your brain to change where the pain is being detected. A little bit like acupuncture which I have also read about. I’m currently
hello everyone, curious to find out if any of you have used the myovvii device that is promoted on instagram for period pain and endo pains? Apparently it sends signals to your brain to change where the pain is being detected. A little bit like acupuncture which I have also read about. I’m currently
Virginia10
in
Endometriosis UK
7 months ago
weird prickling
hi everyone. Hope you all had a good Christmas. My doctor has been trying me on different medication to help with anxiety. It’s mainly in the mornings Im anxious. I’ve tried sertraline, which kept me awake and made me feel worse. Then they tried Mirtazapine, which seemed to help with sleep and the anxiety
hi everyone. Hope you all had a good Christmas. My doctor has been trying me on different medication to help with anxiety. It’s mainly in the mornings Im anxious. I’ve tried sertraline, which kept me awake and made me feel worse. Then they tried Mirtazapine, which seemed to help with sleep and the anxiety
Lakeshiker
in
Tinnitus UK
7 months ago
helvella - Thyroid Blog
You might or might not know that I have been accumulating information about thyroid issues in my blog - I have created a significant number of pages now. Many will be aware of some of the specific pages which I link to quite regularly. But you might not have realised what else is there. Below is a copy
You might or might not know that I have been accumulating information about thyroid issues in my blog - I have created a significant number of pages now. Many will be aware of some of the specific pages which I link to quite regularly. But you might not have realised what else is there. Below is a copy
helvella
Thyroid UK
in
Thyroid UK
3 months ago
how soon after stopping prog/estro did you get period?
Found out today that our first fet failed. I already took my progesterone shot and morning estrace today but will not take it tomorrow. Wondering, if you've had a fet that didn't work, when did you get your period after stopping progesterone and estrogen?
Found out today that our first fet failed. I already took my progesterone shot and morning estrace today but will not take it tomorrow. Wondering, if you've had a fet that didn't work, when did you get your period after stopping progesterone and estrogen?
Rjfguitfg
in
Fertility Network UK
6 months ago
Dead down below. Asexual?
I am feeling a deep sense of loss, although maybe, or at least at one time, and maybe now, it may be what I want or perhaps need. For the last 30 years, I have had a very high libido, and while my partnered life has been vanilla, I had been curious about and interested in just about everything. Since
I am feeling a deep sense of loss, although maybe, or at least at one time, and maybe now, it may be what I want or perhaps need. For the last 30 years, I have had a very high libido, and while my partnered life has been vanilla, I had been curious about and interested in just about everything. Since
Hidden
in
Anxiety and Depression Support
7 months ago
Pain diminishing
Hi All Wanted to post an update and share what I'm doing with my diet: I was diagnosed on 20th October 2023, put on 15mg Pred, 1 month later reduced to 12.5mg then Saturday 16th Dec reduced to 10mg, at first all the pain and stiffness reappeared and I was gutted but it was "only" 6/10 and after taking
Hi All Wanted to post an update and share what I'm doing with my diet: I was diagnosed on 20th October 2023, put on 15mg Pred, 1 month later reduced to 12.5mg then Saturday 16th Dec reduced to 10mg, at first all the pain and stiffness reappeared and I was gutted but it was "only" 6/10 and after taking
MalloryMoss
in
PMRGCAuk
7 months ago
Tamoxifen v Acid Reflux
Hi All I have been clear from hormone related breast cancer for 3 years now. I am 62 & post menapausal . I changed medication from anastrozole to tamoxifen last month to try to help slow my osteopenia, as I do not get on with bisphosphonates. Unfortunately it appears to have aggravated my hiatus
Hi All I have been clear from hormone related breast cancer for 3 years now. I am 62 & post menapausal . I changed medication from anastrozole to tamoxifen last month to try to help slow my osteopenia, as I do not get on with bisphosphonates. Unfortunately it appears to have aggravated my hiatus
Calamintha
in
My Breast Cancer Community
7 months ago
Ant-inflammatory
I have chronic pancreatitis treated with Creon but I just discovered why and that I had additional issues. I has an MRI/MRCP, which disclosed I have 4 cysts on my pancreas and I have autoimmune cirrhosis. The cysts are just under a cc so nothing can be done but wait and watch. I wanted him to treat cirrhosis
I have chronic pancreatitis treated with Creon but I just discovered why and that I had additional issues. I has an MRI/MRCP, which disclosed I have 4 cysts on my pancreas and I have autoimmune cirrhosis. The cysts are just under a cc so nothing can be done but wait and watch. I wanted him to treat cirrhosis
Joanhappy21
in
Chronic Pancreatitis Support
7 months ago
Getting bombarded with ads for RA treatment Honey bee venom cream?.
Amazing too good to be true claims for this but there seems to be a few bits of research on it being anti inflammatory. Anyone tried it ? Still taking the meds....
Amazing too good to be true claims for this but there seems to be a few bits of research on it being anti inflammatory. Anyone tried it ? Still taking the meds....
welsh12
in
NRAS
6 months ago
MGUS and PMR/GCA
If true, this is a little unsettling... MGUS can be a precursor to Multiple Myeloma. Quote from article: "A study of United States veterans suggested that subjects with autoimmune conditions where autoantibodies are detectable are at increased risk of developing MGUS [46]. Furthermore, a recent
If true, this is a little unsettling... MGUS can be a precursor to Multiple Myeloma. Quote from article: "A study of United States veterans suggested that subjects with autoimmune conditions where autoantibodies are detectable are at increased risk of developing MGUS [46]. Furthermore, a recent
kp60
in
PMRGCAuk
6 months ago
imurel
hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off steroids. The pains in my head have mostly gone and I am starting to feel better now. I did start on 60 mgs prednisol when first diagnosed with PMR 15 months ago reduced to 10 mgs but then diagnosed with
hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off steroids. The pains in my head have mostly gone and I am starting to feel better now. I did start on 60 mgs prednisol when first diagnosed with PMR 15 months ago reduced to 10 mgs but then diagnosed with
NormaB
in
PMRGCAuk
7 months ago
Ginkgo trials - something different
I don't know if anyone is following my posts on Ginkgo, but if there be... Once a week I take 3 x 30mg the day before I would like a guaranteed (?) break from tinnitus for a few hours the afternoon of the following day. It didn't happen yesterday. Instead, it happened today. T in the morning (as usual
I don't know if anyone is following my posts on Ginkgo, but if there be... Once a week I take 3 x 30mg the day before I would like a guaranteed (?) break from tinnitus for a few hours the afternoon of the following day. It didn't happen yesterday. Instead, it happened today. T in the morning (as usual
Ray200
in
Tinnitus UK
8 months ago
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