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Reducing dose
I have recently been suffering with swelling of legs and feet which has been very painful. Finally got in touch with surgery and they said I need to see physio.I was given exercises to relieve the swelling,didn't work. Legs still painful and ankles swollen too. Do I need to try and reduce steroids as
I have recently been suffering with swelling of legs and feet which has been very painful. Finally got in touch with surgery and they said I need to see physio.I was given exercises to relieve the swelling,didn't work. Legs still painful and ankles swollen too. Do I need to try and reduce steroids as
kathyrob
in
PMRGCAuk
1 day ago
ongoing chronic constipation.. ‘opioid bowel & interstitial cystitis… test results!
following months of waiting I eventually paid to see a private bowel surgeon. Worth every penny. She organised tests through NHS. Won’t bore with details- but I have a dysfunctional opioid bowel ( due to severe back problems). A large rectocele & possibly a cystocele I’m having a transit study…
following months of waiting I eventually paid to see a private bowel surgeon. Worth every penny. She organised tests through NHS. Won’t bore with details- but I have a dysfunctional opioid bowel ( due to severe back problems). A large rectocele & possibly a cystocele I’m having a transit study…
Beakybird58
in
IBS Network
1 day ago
Recovery in exercise routine
Hi all, I have read that it will take longer for us (people with kidney transplants and on immunosuppressants) to recover after exercise. Do you find this to be true for you? What does that feel like? How do you structure your exercise to account for the need for recovery time (if you do)? I feel
Hi all, I have read that it will take longer for us (people with kidney transplants and on immunosuppressants) to recover after exercise. Do you find this to be true for you? What does that feel like? How do you structure your exercise to account for the need for recovery time (if you do)? I feel
TeacherMommy
in
Kidney Transplant
3 days ago
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This crazy disease
hi!… My sister was dx with PSP at age 79; she lived alone , no grown children, husband deceased for several years; she contacted me when she was in Rehab after falling and breaking her thumb after not communicating/ me for several years. She agreed to move close to me ( from TX to FL) so I could help
hi!… My sister was dx with PSP at age 79; she lived alone , no grown children, husband deceased for several years; she contacted me when she was in Rehab after falling and breaking her thumb after not communicating/ me for several years. She agreed to move close to me ( from TX to FL) so I could help
ckb4
in
PSP Association
4 days ago
RLS? PLMD? Myoclonic Jerks? All of the above?
I am a 69 year old man in the United States. In 2016, I started experiencing leg spasms that would occur when I lie prone or leaned back in my recliner. I first noticed it during the day, but it would soon keep me from falling asleep and staying asleep. I mentioned it to a doctor I was visiting for
I am a 69 year old man in the United States. In 2016, I started experiencing leg spasms that would occur when I lie prone or leaned back in my recliner. I first noticed it during the day, but it would soon keep me from falling asleep and staying asleep. I mentioned it to a doctor I was visiting for
LAdudePRS
in
Restless Legs Syndrome
5 days ago
Is Riding a Bike possible after having Radiation Cystitis w/ hematuria, 18 months after HBOT treatment
It is been 18 months since my last Hyperbaric Oygen Treatment for radiation cystitis. I had bleeding with clots multiple times which sent me to the ER. I have not had any bleeding since then, except one time a few months ago while doing exercises related to physical therapy. My urologist says as long
It is been 18 months since my last Hyperbaric Oygen Treatment for radiation cystitis. I had bleeding with clots multiple times which sent me to the ER. I have not had any bleeding since then, except one time a few months ago while doing exercises related to physical therapy. My urologist says as long
Teddy28
in
Advanced Prostate Cancer
5 days ago
in process of coming off Pred
hello all So im on week three of coming down from 30mg to 0 !! Im now back on 15 mg. Consultant rheumatologist has asked me to taper at 5mg a week! History is now might not be PMR even tho i have all symptoms ( just not responding to steroids) - so until he sees me agsin im alowd naproxen ( which
hello all So im on week three of coming down from 30mg to 0 !! Im now back on 15 mg. Consultant rheumatologist has asked me to taper at 5mg a week! History is now might not be PMR even tho i have all symptoms ( just not responding to steroids) - so until he sees me agsin im alowd naproxen ( which
JessJess21
in
PMRGCAuk
5 days ago
headaches #4
Back to tension headaches! I got to see my neurologist on Monday. He felt around, listened to what my other Drs had said, then said it’s definitely not migraines. He believes they are tension headaches due to spasms, not spasticity in my neck and shoulders. He told me to stop taking amitripaline,
Back to tension headaches! I got to see my neurologist on Monday. He felt around, listened to what my other Drs had said, then said it’s definitely not migraines. He believes they are tension headaches due to spasms, not spasticity in my neck and shoulders. He told me to stop taking amitripaline,
StacyHayward
in
My MSAA Community
7 days ago
Am I right to be angry?
Hi, I have a really long story that I need to try and shorten without leaving out details.... I need someone to tell me if I am right to be angry. At the age of 21 my life went down hill so fast! Before it all went to pot, I was so active. I took a year out of Uni to get some real world experience
Hi, I have a really long story that I need to try and shorten without leaving out details.... I need someone to tell me if I am right to be angry. At the age of 21 my life went down hill so fast! Before it all went to pot, I was so active. I took a year out of Uni to get some real world experience
YoungAndPainful
in
Arthritis Action
8 days ago
it’s good to reach out
Got diagnosed with OP after MRI showed I had 4 compressed fractures in my thoracic spine and 2 more recent ones in lower, prior to this had pain for months and it wasn’t until I had seen an extended role physio that listened to me and made the referral. I was so shocked to receive diagnosis by letter
Got diagnosed with OP after MRI showed I had 4 compressed fractures in my thoracic spine and 2 more recent ones in lower, prior to this had pain for months and it wasn’t until I had seen an extended role physio that listened to me and made the referral. I was so shocked to receive diagnosis by letter
MillieLou
in
Bone Health and Osteoporosis UK
9 days ago
Big boost from new rehab routine.
Hi folks, many of you know I have managed to retrain my cognitive functions, most of my sensory processing functions and had managed to get moderately fit physically. Physically I have dystonia down my left arm, this is caused by motor neuron dysfunction in the brain and the symptoms include numb fingers
Hi folks, many of you know I have managed to retrain my cognitive functions, most of my sensory processing functions and had managed to get moderately fit physically. Physically I have dystonia down my left arm, this is caused by motor neuron dysfunction in the brain and the symptoms include numb fingers
pinkvision
in
Headway
9 days ago
PPPD and vestibular disorders
Did you know that many of the underlying issues in dizziness are related to the autonomic nervous system? Or that sleep, diet and stress can play a role? Re-actives team program centres on an holistic approach to dizziness; an approach that includes looking at your movement, muscular factors, lifestyle
Did you know that many of the underlying issues in dizziness are related to the autonomic nervous system? Or that sleep, diet and stress can play a role? Re-actives team program centres on an holistic approach to dizziness; an approach that includes looking at your movement, muscular factors, lifestyle
Lady4
in
Functional Neurological Disorder - FND Hope
10 days ago
maybe not PMR!
hello - i saw my consultant rhematologist last week and he doesnt think i have PMR - or at least it’s atypical. If atypical then thats a management problem. So he says steroids are masking symptoms and also causes and im using them as painkiller so he's taking me off them over 6 weeks to see whats really
hello - i saw my consultant rhematologist last week and he doesnt think i have PMR - or at least it’s atypical. If atypical then thats a management problem. So he says steroids are masking symptoms and also causes and im using them as painkiller so he's taking me off them over 6 weeks to see whats really
JessJess21
in
PMRGCAuk
12 days ago
lower back pain
Had car accident in 2012 I had a prolapse disc, Always had pain but not bad 3 years ago this started more, went doctors give me pain killers and Pregbalin. 2023 July sent me to physio, I ended up telling them it just aggravates the problem,they were going to escalate the case, my wife says It’s like
Had car accident in 2012 I had a prolapse disc, Always had pain but not bad 3 years ago this started more, went doctors give me pain killers and Pregbalin. 2023 July sent me to physio, I ended up telling them it just aggravates the problem,they were going to escalate the case, my wife says It’s like
Abergele
in
Pain Concern
12 days ago
Does having a goitre always mean you have a thyroid problem. Asking for someone else
Hi I don't and never have had a goitre so I can't use my experience to help. I'm working with someone who has developed a large goitre. She has pain in her neck, radiating to her ear, she has a diagnosis of fibromyalgia, gall bladder removed, type 2 diabetes amongst other things. She has been told her
Hi I don't and never have had a goitre so I can't use my experience to help. I'm working with someone who has developed a large goitre. She has pain in her neck, radiating to her ear, she has a diagnosis of fibromyalgia, gall bladder removed, type 2 diabetes amongst other things. She has been told her
BiscuitBaby
in
Thyroid UK
17 days ago
Pelvic / hip nerve pain - how to get diagnosis?
I've had endo for 20+ years, 15 operations and lots of scar tissue. I'm really struggling with hip joint pain / pain down right thigh (over last 18 months) which I think is linked to nerve damage or lesions/scar tissue pressing on nerves but I haven't had this latest bit diagnosed. Having a massive
I've had endo for 20+ years, 15 operations and lots of scar tissue. I'm really struggling with hip joint pain / pain down right thigh (over last 18 months) which I think is linked to nerve damage or lesions/scar tissue pressing on nerves but I haven't had this latest bit diagnosed. Having a massive
GWP81
in
Endometriosis UK
17 days ago
Non drug help needed please
I am 81 and have osteoporosis. My endocrinologist recommends Evinity once/ month for 12months followed by Reclast for two years. She says I can then stop all drug treatment. I prefer not to use drugs but my doctor won’t offer any other treatment. I prefer weight bearing exercises but cannot find any
I am 81 and have osteoporosis. My endocrinologist recommends Evinity once/ month for 12months followed by Reclast for two years. She says I can then stop all drug treatment. I prefer not to use drugs but my doctor won’t offer any other treatment. I prefer weight bearing exercises but cannot find any
ridethetrail
in
Osteoporosis Support
20 days ago
prednisone burst
I am sick all the time—sore muscles, drippy nose, sneezing, red fingers, gi distress, weak, can’t breathe (although blood oxygen 100%), etc. went to er recently because I was sure I was having a stroke, they did blood work, all ok, didn’t examine me, said “don’t come back.” Saw gp this week who listened
I am sick all the time—sore muscles, drippy nose, sneezing, red fingers, gi distress, weak, can’t breathe (although blood oxygen 100%), etc. went to er recently because I was sure I was having a stroke, they did blood work, all ok, didn’t examine me, said “don’t come back.” Saw gp this week who listened
Twopies
in
PMRGCAuk
24 days ago
Osteoporotic pelvic fracture
Hello, I would really appreciate some guidance regarding my mom's condition. After years of taking corticosteroids for an autoimmune condition and being diagnosed with osteopenia, she had a nasty fall on the ice in January 2022 which left her with an unstable pelvic fracture, compressed lumbar spine
Hello, I would really appreciate some guidance regarding my mom's condition. After years of taking corticosteroids for an autoimmune condition and being diagnosed with osteopenia, she had a nasty fall on the ice in January 2022 which left her with an unstable pelvic fracture, compressed lumbar spine
MKari
in
Bone Health and Osteoporosis UK
24 days ago
Chronic neck pain
I’ve had severe neck pain for a few years now, and nothing is working. I’ve had my entire neck, spine and head looked at - MRI, x-ray, specialists, Physio. I’ve seen everyone and no one can figure it out. I’m not looking for a diagnosis (as all the specialists I have seen have failed already to provide
I’ve had severe neck pain for a few years now, and nothing is working. I’ve had my entire neck, spine and head looked at - MRI, x-ray, specialists, Physio. I’ve seen everyone and no one can figure it out. I’m not looking for a diagnosis (as all the specialists I have seen have failed already to provide
Just_breathe_1
in
Pain Concern
24 days ago
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