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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Prednisolone 'come down' vs flare?
Hi everyone, Just before Christmas, I experienced a bad bout of costochondritis, which ended up with me being off sick from work for a few weeks. My regular rheumy refused to give me steroids, saying that because I'd never had them before there was no evidence they would work for me (?!?!?), so I had
Hi everyone, Just before Christmas, I experienced a bad bout of costochondritis, which ended up with me being off sick from work for a few weeks. My regular rheumy refused to give me steroids, saying that because I'd never had them before there was no evidence they would work for me (?!?!?), so I had
Nurseladybird
in
LUPUS UK
7 years ago
MMA and Homocysteine testing B12 whilst on injections...
I am 30 weeks pregnant. I am on monthly B12 injections, vitamin D pills and have had two iron infusions in the last couple of months. However, my most recent blood work (3 weeks ago) came back still showing anemia (and I am feeling pretty grotty too): Haemaglobin: 118 (range 120-150) RBC Count: 3.74
I am 30 weeks pregnant. I am on monthly B12 injections, vitamin D pills and have had two iron infusions in the last couple of months. However, my most recent blood work (3 weeks ago) came back still showing anemia (and I am feeling pretty grotty too): Haemaglobin: 118 (range 120-150) RBC Count: 3.74
jw44
in
Pernicious Anaemia Society
7 years ago
Worrying Article
Hi Everyone Was just having a quick look at The Guardian website (like you do) and came across an article: https://www.theguardian.com/science/2017/may/05/unnecessary-opioid-painkiller-prescriptions-thousands-addicted-nhs-doctors-warn?CMP=Share_iOSApp_Other hope the link works never done one before!
Hi Everyone Was just having a quick look at The Guardian website (like you do) and came across an article: https://www.theguardian.com/science/2017/may/05/unnecessary-opioid-painkiller-prescriptions-thousands-addicted-nhs-doctors-warn?CMP=Share_iOSApp_Other hope the link works never done one before!
ginger31
in
Pain Concern
7 years ago
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Anemia Profile: Megaloblastic
Anything unusual here? See link (https://healthunlocked.com/pasoc/posts/135301103/very-confused) for background, but as a quick summary, my B12 serum is now good after taking sublingual supplements for the last several months (>2000). Yet I am still having low B12 symptoms, particularly feeling cold
Anything unusual here? See link (https://healthunlocked.com/pasoc/posts/135301103/very-confused) for background, but as a quick summary, my B12 serum is now good after taking sublingual supplements for the last several months (>2000). Yet I am still having low B12 symptoms, particularly feeling cold
patgbreen
in
Pernicious Anaemia Society
7 years ago
Back pain
Good morning everyone and I wish you all a pain free and peaceful positive day! I haven't posted in a while, I have been busy with family, counselling sessions and a new addition to the family, a Puppy 🐶 I am not so sure it was the wisest decision, she is gorgeous and cute, but, high energy, mischievous
Good morning everyone and I wish you all a pain free and peaceful positive day! I haven't posted in a while, I have been busy with family, counselling sessions and a new addition to the family, a Puppy 🐶 I am not so sure it was the wisest decision, she is gorgeous and cute, but, high energy, mischievous
Wingz26
in
Fibromyalgia Action UK
7 years ago
Pregabalin
Does anybody know if I can take co-codamol with 25mg pregabalin if so how much? I have been advised to reduce the neupro patch. I am now on 1mg from 3mg but suffering badly with rls especially at night. The pregabalin doesnt seem to make any difference. Thank you
Does anybody know if I can take co-codamol with 25mg pregabalin if so how much? I have been advised to reduce the neupro patch. I am now on 1mg from 3mg but suffering badly with rls especially at night. The pregabalin doesnt seem to make any difference. Thank you
antelope99
in
Restless Legs Syndrome
7 years ago
Anaemia
Hi am in a position of not knowing what to do I have ongoing anaemia which is probably being caused by the RA and am taking iron liquid every day my go wants me to have a colonostomy and am really worried having this done probably for no reason as I have no trouble in that region has anyone else had
Hi am in a position of not knowing what to do I have ongoing anaemia which is probably being caused by the RA and am taking iron liquid every day my go wants me to have a colonostomy and am really worried having this done probably for no reason as I have no trouble in that region has anyone else had
14penny
in
NRAS
7 years ago
Follow up from my GP appointment
Hi all, just an update from my GP appointment yesterday. Well as expected he was quite insistent after looking at my blood test results from St Thomas' that I don't have a B12 deficiency, I asked him to explain how 187ng/L is normal but 186ng/L is deficient! and he couldn't. I took my son with me for
Hi all, just an update from my GP appointment yesterday. Well as expected he was quite insistent after looking at my blood test results from St Thomas' that I don't have a B12 deficiency, I asked him to explain how 187ng/L is normal but 186ng/L is deficient! and he couldn't. I took my son with me for
Cali25
in
Pernicious Anaemia Society
7 years ago
Still in pain
I'm on co codamol and extended release 20mg morphine for my severe pain and I have been in this for a while and I'm still in so much pain it helped at first but it seems to be getting worse or my body has got used to these medications. I feel so bad as I have a little boy who's two and a half and I
I'm on co codamol and extended release 20mg morphine for my severe pain and I have been in this for a while and I'm still in so much pain it helped at first but it seems to be getting worse or my body has got used to these medications. I feel so bad as I have a little boy who's two and a half and I
Yummymummy31
in
Pelvic Pain Support Network
7 years ago
a rant..because i have to..
So a few days ago I was sat on a train,staring blankly out of the window trying to read the graffiti on the walls and bridges anything really to take my mind off the pain and block out the constant chattering of the many on their mobiles. I sank into my seat and attempted to close my eyes,perhaps I thought
So a few days ago I was sat on a train,staring blankly out of the window trying to read the graffiti on the walls and bridges anything really to take my mind off the pain and block out the constant chattering of the many on their mobiles. I sank into my seat and attempted to close my eyes,perhaps I thought
underscorehashtag
in
Fibromyalgia Action UK
7 years ago
Varraces banded
Hi everyone, I am new here, and my question is, should I be in so much pain after having two varraces banded two days ago? It is agony to eat and drink and the pain also comes in spasams at other times. I am real very uncomfortable, but frightened to take much co-codamol. This was my first endoscapy
Hi everyone, I am new here, and my question is, should I be in so much pain after having two varraces banded two days ago? It is agony to eat and drink and the pain also comes in spasams at other times. I am real very uncomfortable, but frightened to take much co-codamol. This was my first endoscapy
donaldsgirl
in
British Liver Trust
7 years ago
I'm new.
I have been on zero prednisolone (to treat PMR) for 5 weeks. Over nearly 4 years this is my fourth attempt on a tapered reducing programme due to 3 flair ups. The rheumatologist specialist thinks the PMR has 'burnt itself out' and suggests I take anti inflammatories whilst my system
I have been on zero prednisolone (to treat PMR) for 5 weeks. Over nearly 4 years this is my fourth attempt on a tapered reducing programme due to 3 flair ups. The rheumatologist specialist thinks the PMR has 'burnt itself out' and suggests I take anti inflammatories whilst my system
ScorpioUK
in
Thyroid UK
7 years ago
VSL#3
Some time ago I bought some VSL#3 probiotics to see if it helped the gastric problems, and said I'd report back. First of all, a period of having difficulty getting anything down meant I didn't take it ( that stuff is too expensive to waste). Now, I've got through the best part of a month's worth. Please
Some time ago I bought some VSL#3 probiotics to see if it helped the gastric problems, and said I'd report back. First of all, a period of having difficulty getting anything down meant I didn't take it ( that stuff is too expensive to waste). Now, I've got through the best part of a month's worth. Please
Lupiknits
in
LUPUS UK
7 years ago
Neo cytamen
My b12 injections were changed to cobalamin h 12 weeks ago but I have a reaction to them. My doctor tried to print a prescription for neo cytamen but his computer said he could no longer issue this on NHS. Does anyone know why? I live in Scotland.
My b12 injections were changed to cobalamin h 12 weeks ago but I have a reaction to them. My doctor tried to print a prescription for neo cytamen but his computer said he could no longer issue this on NHS. Does anyone know why? I live in Scotland.
Maadkins
in
Pernicious Anaemia Society
7 years ago
Feels like me life has come to a stop!!
Hi Ladies, I am waiting for the comfromation of diagones but I have suffered from crippling period pain since I was 14. Heavey bleeding and dizziness/ fainting. I have tried many treatments over the years from orale contracetives, hormone injections which seams to help. But due to developing a blood
Hi Ladies, I am waiting for the comfromation of diagones but I have suffered from crippling period pain since I was 14. Heavey bleeding and dizziness/ fainting. I have tried many treatments over the years from orale contracetives, hormone injections which seams to help. But due to developing a blood
Jenaust1985
in
Endometriosis UK
7 years ago
Antihistamines.
Hi all. :) Does anyone have any idea which hay fever remedies are ok to take when you have RLS? I am taking Gabapentin and Co-codamol which work for me quite well now but I am very cautious about buying anything that might tip me back into hellish nights and miserable days again. Any help greatly appreciated
Hi all. :) Does anyone have any idea which hay fever remedies are ok to take when you have RLS? I am taking Gabapentin and Co-codamol which work for me quite well now but I am very cautious about buying anything that might tip me back into hellish nights and miserable days again. Any help greatly appreciated
Twitch_1
in
Restless Legs Syndrome
7 years ago
Please Help :(
Can anyone please help... I'm really suffering from RLS at mo, in my legs and arms. I have a few factors which I think contribute to it but not sure there's much I can do about them. I'm looking for help, tips, things that I can try that others have said really help. 1) I'm on 20mg fluoxetine and I
Can anyone please help... I'm really suffering from RLS at mo, in my legs and arms. I have a few factors which I think contribute to it but not sure there's much I can do about them. I'm looking for help, tips, things that I can try that others have said really help. 1) I'm on 20mg fluoxetine and I
yuna1971
in
Restless Legs Syndrome
7 years ago
Advice please
Just got my surgery to give me copies of my last few blood test results as I was curious to see if it show my b12/iron dipping for a long time or suddenly and my blood test from February 2016 when I was taken into a&e with acidosis shows my b12 at 128 & folate at 2.4 , do you think acidosis could of
Just got my surgery to give me copies of my last few blood test results as I was curious to see if it show my b12/iron dipping for a long time or suddenly and my blood test from February 2016 when I was taken into a&e with acidosis shows my b12 at 128 & folate at 2.4 , do you think acidosis could of
mand82
in
Pernicious Anaemia Society
7 years ago
Dosage far too high!
Hi all. On Thursday just gone, I had a phone consultation with a GP (not my usual GP), explained to him that i have Severe OA, & the prescribed meds (Gabapentin) are not kicking in anymore. Explained how i was feeling, losing my balance, continuous pains etc etc. Told me he could prescribe Co-Codamol
Hi all. On Thursday just gone, I had a phone consultation with a GP (not my usual GP), explained to him that i have Severe OA, & the prescribed meds (Gabapentin) are not kicking in anymore. Explained how i was feeling, losing my balance, continuous pains etc etc. Told me he could prescribe Co-Codamol
Hidden
in
NRAS
7 years ago
Should i test before i supplement?
I'm awaiting results for ferratin, folate B12 and Vit D but I've started taking 10 billion probiotic 200ug selenium and 400iu Vit E with my levo first thing 1000mg of cod liver oil and 30mg of zinc with lunch and osteoguard calcium and magnesium at bedtime, all purchased from Nature's best, should i
I'm awaiting results for ferratin, folate B12 and Vit D but I've started taking 10 billion probiotic 200ug selenium and 400iu Vit E with my levo first thing 1000mg of cod liver oil and 30mg of zinc with lunch and osteoguard calcium and magnesium at bedtime, all purchased from Nature's best, should i
Clairewalker751
in
Thyroid UK
7 years ago
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