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Discord for Dialysis Patients
Hello Everyone! I just wanted to make an updated post about the Dialysis discord we have. This discord serves a purpose for people who are going thru dialysis and want to have a place to feel at home. We have a lot of friendly members currently in this discord and we're always posting and talking about
Hello Everyone! I just wanted to make an updated post about the Dialysis discord we have. This discord serves a purpose for people who are going thru dialysis and want to have a place to feel at home. We have a lot of friendly members currently in this discord and we're always posting and talking about
Thizzle
in
Kidney Disease
2 years ago
hospital visit
Have I done the right thing and is ignorance bliss with this vile illness. I have gfr of 21 but everything else seems to be ok. The private consultant was very good and explained everything well. He did say though that if your gfr goes below 20 you could be talking about dialysis so now I am terrified
Have I done the right thing and is ignorance bliss with this vile illness. I have gfr of 21 but everything else seems to be ok. The private consultant was very good and explained everything well. He did say though that if your gfr goes below 20 you could be talking about dialysis so now I am terrified
fartikins
in
Kidney Disease
2 years ago
The Kidney Project
Today I wanted to post in one of the biggest CKD Facebook groups about The Kidney Project. I pointed out that the project is barely advancing due to the lack of sufficient funding and support. So, the government should be persuaded to fund the project. Even 1 percent of annual dialysis expenditure from
Today I wanted to post in one of the biggest CKD Facebook groups about The Kidney Project. I pointed out that the project is barely advancing due to the lack of sufficient funding and support. So, the government should be persuaded to fund the project. Even 1 percent of annual dialysis expenditure from
milo_miller
in
Kidney Disease
2 years ago
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A fun night in the hospital
Yesterday I went and had my labs done. I did not get them back, so I had no idea of what was happening. At 6pm, I get a call from the on-call doctor from the nephrology practice I use. I could barely understand his English and he had a screaming child behind him as he was calling from home. He ordered
Yesterday I went and had my labs done. I did not get them back, so I had no idea of what was happening. At 6pm, I get a call from the on-call doctor from the nephrology practice I use. I could barely understand his English and he had a screaming child behind him as he was calling from home. He ordered
Bassetmommer
NKF Ambassador
in
Kidney Disease
2 years ago
Father not waking up after septic shock
My beloved Dad (72) survived a severe septic shock. They called us 3 Weeks ago after a routine bile surgery and told us that he is now in the ICU. They told us he had internal bleeding and they needed to perform surgery on him. We were shocked and prayed that night that everything would go well. He survived
My beloved Dad (72) survived a severe septic shock. They called us 3 Weeks ago after a routine bile surgery and told us that he is now in the ICU. They told us he had internal bleeding and they needed to perform surgery on him. We were shocked and prayed that night that everything would go well. He survived
Bshyhsh
in
ICUsteps
2 years ago
Diet to lose weight
What is best diet you have found to lose weight while on dialysis?
What is best diet you have found to lose weight while on dialysis?
NurseRed
in
Kidney Dialysis
2 years ago
Urgent-start peritoneal dialysis
Not sure I would wait till this is required, but for folks caught off guard, it might be an option. https://www.healio.com/news/nephrology/20220306/speaker-urgentstart-
peritoneal
-
dialysis
-feasible-costefficient-with-support-system
Not sure I would wait till this is required, but for folks caught off guard, it might be an option. https://www.healio.com/news/nephrology/20220306/speaker-urgentstart-
peritoneal
-
dialysis
-feasible-costefficient-with-support-system
RonZone
in
Kidney Disease
2 years ago
Liver Transplant first then kidney transplant after recovery
My husband has stage 4 CKD and liver cirrhosis and diabetes 2. Yesterday we had a meeting at the hospital with a professor from the transplant team in Birmingham. He has confirmed my husband needs a kidney and liver transplant due to uncontrollable hepatic encephalopathy If after all the health checks
My husband has stage 4 CKD and liver cirrhosis and diabetes 2. Yesterday we had a meeting at the hospital with a professor from the transplant team in Birmingham. He has confirmed my husband needs a kidney and liver transplant due to uncontrollable hepatic encephalopathy If after all the health checks
Canttakemyeyesoffyou
in
British Liver Trust
2 years ago
Living vs. Deceased Donor?
I live in CO and the kidney wait for me is 7 years long : ((( I have been on dialysis for 2 years. I am pursuing a living donor. Any feedback would be so appreciated regarding how to find one. Also, the facts seems to say that a living donor kidney on average lasts 20 years vs. a deceased donor kidney
I live in CO and the kidney wait for me is 7 years long : ((( I have been on dialysis for 2 years. I am pursuing a living donor. Any feedback would be so appreciated regarding how to find one. Also, the facts seems to say that a living donor kidney on average lasts 20 years vs. a deceased donor kidney
BeachLove
in
Kidney Transplant
2 years ago
Cruise ports of call and dialysis
Any suggestions for my husband on ports of call dialysis clinics in Cabo and Puerta Vallerta? The cruise ship does not have dialysis on ship, so he has to go off ship...we will be out for 7 days...
Any suggestions for my husband on ports of call dialysis clinics in Cabo and Puerta Vallerta? The cruise ship does not have dialysis on ship, so he has to go off ship...we will be out for 7 days...
Cats1561
in
Kidney Disease
2 years ago
So sad
Today I lost my first friend at dialysis. He was a charming gentleman who always made me laugh. We engaged in friendly conversations before and after dialysis. He came in slumped in his wheelchair not wanting to talk. I found out later that he died on his way home from dialysis. This makes me sad
Today I lost my first friend at dialysis. He was a charming gentleman who always made me laugh. We engaged in friendly conversations before and after dialysis. He came in slumped in his wheelchair not wanting to talk. I found out later that he died on his way home from dialysis. This makes me sad
Frankie24
in
Kidney Dialysis
2 years ago
Seeking feedback for a project
Hello everyone, I am working with a small team on a school project that we are very excited about. We are developing an app that will help people track food consumption and nutrients. The goal of this project is to provide Kidney Disease patients with a platform where they can organize and keep track
Hello everyone, I am working with a small team on a school project that we are very excited about. We are developing an app that will help people track food consumption and nutrients. The goal of this project is to provide Kidney Disease patients with a platform where they can organize and keep track
cl123
in
Kidney Disease
2 years ago
GPA and RA or Fibromyalgia
I was diagnosed with C-Anca GPA in 2017. I went into remission in 2019. I was extremely sick for 4 months before being diagnosed and one of my symptoms was severe joint pain body wide. It caused kidney failure and I was on dialysis for about a year. My kidneys are now at 30%. Over the past 5 years, I
I was diagnosed with C-Anca GPA in 2017. I went into remission in 2019. I was extremely sick for 4 months before being diagnosed and one of my symptoms was severe joint pain body wide. It caused kidney failure and I was on dialysis for about a year. My kidneys are now at 30%. Over the past 5 years, I
Hidden
in
Vasculitis UK
2 years ago
Dialysis Day very anxiety provoking
Good Morning, it is dialysis day once again. On top of all my mental health issues each treatment wreaks havoc on me both mentally and physically. I get very anxious sitting in center for four hours three times a week. I try to stay quite busy on my days off but it doesn’t help me with my days on
Good Morning, it is dialysis day once again. On top of all my mental health issues each treatment wreaks havoc on me both mentally and physically. I get very anxious sitting in center for four hours three times a week. I try to stay quite busy on my days off but it doesn’t help me with my days on
Frankie24
in
Anxiety and Depression Support
2 years ago
Nausea and dizziness CKD stage 3b no albuminuria
My 77 year old husband with CKD stage 3b who is otherwise healthy ( no CVD, controlled diabetes with HgA1c at 7.0%) got up this morning nauseous and dizzy. I helped him sit down, hydrated with water etc. His blood pressure has been stable 100/70 and his hemoglobin is 12.5g/dL. He has been on thyroxine
My 77 year old husband with CKD stage 3b who is otherwise healthy ( no CVD, controlled diabetes with HgA1c at 7.0%) got up this morning nauseous and dizzy. I helped him sit down, hydrated with water etc. His blood pressure has been stable 100/70 and his hemoglobin is 12.5g/dL. He has been on thyroxine
Vprp
in
Kidney Disease
2 years ago
The Queen Who?
Tonight I'm tired and avoiding homework by typing this note, so I am the Queen who avoided homework for an entire night. Going to school and work is draining. Some days I wonder why I"m doing it. But I have many reasons: I want to be a role model for other Black women. I want to help make change that
Tonight I'm tired and avoiding homework by typing this note, so I am the Queen who avoided homework for an entire night. Going to school and work is draining. Some days I wonder why I"m doing it. But I have many reasons: I want to be a role model for other Black women. I want to help make change that
HipHopQueen
in
Kidney Dialysis
2 years ago
Snow Queen
Tonight was the first real snow of the year. It has me thinking will this be the last first snow that I will not be on dialysis. I am trying not to think that way. It's just hard. But you know I'm going to put a bright spin on it. It's okay if this is the last first snow, I truly enjoyed watch every
Tonight was the first real snow of the year. It has me thinking will this be the last first snow that I will not be on dialysis. I am trying not to think that way. It's just hard. But you know I'm going to put a bright spin on it. It's okay if this is the last first snow, I truly enjoyed watch every
HipHopQueen
in
Kidney Dialysis
2 years ago
APPROVED FOR KIDNEY TRANSPLANT BUT NEED A DONOR...HOW DO I GET MY STORY OUT? So scared about dialysis before getting a kidney.
Hi Sweet Friends.... hope everyone is hanging in there and doing well. I was approved for transplant at Mayo and am so grateful. My dear husbandand wanted to give me on of his kidneys but during his testing they found dangerously low platelets and found he has idiopathic ITP. After 2 hospitalizations
Hi Sweet Friends.... hope everyone is hanging in there and doing well. I was approved for transplant at Mayo and am so grateful. My dear husbandand wanted to give me on of his kidneys but during his testing they found dangerously low platelets and found he has idiopathic ITP. After 2 hospitalizations
Highgfr
in
Kidney Disease
2 years ago
Dialysis is upon me!
So, coming out of a not so great weekend. On Friday, I had my routine bloodwork done. That evening, my nephrologists office called and asked that I go to the hospital for admission. After laying in there all weekend, I discovered that I was having a tunnel placed in my chest as a temporary access for
So, coming out of a not so great weekend. On Friday, I had my routine bloodwork done. That evening, my nephrologists office called and asked that I go to the hospital for admission. After laying in there all weekend, I discovered that I was having a tunnel placed in my chest as a temporary access for
MSWwv
in
Kidney Disease
2 years ago
Muscle cramps
Good evening all. I was wondering if anyone experiences foot cramps in the pre dialysis stage. Im generally well, but recently have been getting these painful cramps but dont want to unduly panic about it by calling my dr. So easy to become slightly hypochondriac with this disease. Any guidance would
Good evening all. I was wondering if anyone experiences foot cramps in the pre dialysis stage. Im generally well, but recently have been getting these painful cramps but dont want to unduly panic about it by calling my dr. So easy to become slightly hypochondriac with this disease. Any guidance would
wheezoids21
in
Kidney Disease
2 years ago
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