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Hello Everyone
I’m Yat I’ve been on
dialysis
8yrs I’ve done
peritoneal
dialysis
and Hemo I currently on Hemo (Monday Wednesday Friday) I have a graft in my left thigh. I wanna make New Friends?
I’m Yat I’ve been on
dialysis
8yrs I’ve done
peritoneal
dialysis
and Hemo I currently on Hemo (Monday Wednesday Friday) I have a graft in my left thigh. I wanna make New Friends?
Yat83
in
Kidney Dialysis
6 years ago
How I went from stage 3 to end stage in a month
I am also new to kidney disease. One day I woke up to swelling and it progressed very fast I was already stage 3. I swole up until I could barely move and stopped urinating, told my husband i needed to go to hospital low and behold was diagnosed with end stage kidney failure,they took off 40lbs of fluid
I am also new to kidney disease. One day I woke up to swelling and it progressed very fast I was already stage 3. I swole up until I could barely move and stopped urinating, told my husband i needed to go to hospital low and behold was diagnosed with end stage kidney failure,they took off 40lbs of fluid
CKD2018
in
Kidney Disease
6 years ago
My brothers in a coma/vegetative state from an OD and I’m losing my mind.
On June 17th, my brother was found unresponsive in a hotel room, having overdosed after being sober for 10 months. His drug of choice was alcohol but he ended up relapsing..this time turning to hard drugs trying to avoid alcohol and us knowing, and he laid for hours in that room alone with not enough
On June 17th, my brother was found unresponsive in a hotel room, having overdosed after being sober for 10 months. His drug of choice was alcohol but he ended up relapsing..this time turning to hard drugs trying to avoid alcohol and us knowing, and he laid for hours in that room alone with not enough
Moonshyne
in
ICUsteps
6 years ago
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Treatment going ahead for antibody mediated rejection!!
So lady’s and gents, some may remember my post a few weeks ago about being treated with a form of dialysis for antibody mediated rejection, the docs decided to send me home and watch how I go with my tacrolimus levels being high, this has caused a bit of damage to my kidneys and my bloods are much worse
So lady’s and gents, some may remember my post a few weeks ago about being treated with a form of dialysis for antibody mediated rejection, the docs decided to send me home and watch how I go with my tacrolimus levels being high, this has caused a bit of damage to my kidneys and my bloods are much worse
littleleah86
in
British Liver Trust
6 years ago
Kidney disease and RSL
Lately I’ve been experiencing really bad RSL to the point I can miss 2-3 days of sleep. I live in Florida and the medical care outside of Tampa is horrid. There are so many drug addicted abusing the system coupled with the overwhelming amount of older folks that I think the doctors here are just exhausted
Lately I’ve been experiencing really bad RSL to the point I can miss 2-3 days of sleep. I live in Florida and the medical care outside of Tampa is horrid. There are so many drug addicted abusing the system coupled with the overwhelming amount of older folks that I think the doctors here are just exhausted
Lilatillar3333
in
Vasculitis UK
6 years ago
the Journey of the KidneyBoy209
Hi, been here silent this whole time getting blood sucked and pumped and watching the screens (Simpsons in Clinic, Computer at home)(and ohh phone everywhere else ryt? ) And now im Transplanted and got this energy that keeps on getting stronger and stronger with each like, im just out trying to get the
Hi, been here silent this whole time getting blood sucked and pumped and watching the screens (Simpsons in Clinic, Computer at home)(and ohh phone everywhere else ryt? ) And now im Transplanted and got this energy that keeps on getting stronger and stronger with each like, im just out trying to get the
KidneyBoy209
in
Kidney Transplant Patient Support
6 years ago
STEAL SYNDROME
Two weeks out from having my A/V fistula surgery for dialysis in my left wrist and I have been experiencing terrible pain and numbness and tingling in my hand. I was told I have what they believe is steal syndrome, where the fistula is pulling to much blood away from my hand and causing symptoms. Now
Two weeks out from having my A/V fistula surgery for dialysis in my left wrist and I have been experiencing terrible pain and numbness and tingling in my hand. I was told I have what they believe is steal syndrome, where the fistula is pulling to much blood away from my hand and causing symptoms. Now
Frankie24
in
Kidney Disease
6 years ago
Steal Syndrome
Two weeks out from having my A/V fistula surgery for dialysis in my left wrist and I have been experiencing terrible pain and numbness and tingling in my hand. I was told I have what they believe is steal syndrome, where the fistula is pulling to much blood away from my hand and causing symptoms. Now
Two weeks out from having my A/V fistula surgery for dialysis in my left wrist and I have been experiencing terrible pain and numbness and tingling in my hand. I was told I have what they believe is steal syndrome, where the fistula is pulling to much blood away from my hand and causing symptoms. Now
Frankie24
in
Kidney Disease
6 years ago
My testimony
A severe case of strep throat caused me to go into kidney failure. Before i could be eligible for a transplant, i needed to lose a lot of weight. While on dialysis, i was approved for gastric bypass surgery, and two months later i received a kidney from a donor I met, I have never felt so alive before
A severe case of strep throat caused me to go into kidney failure. Before i could be eligible for a transplant, i needed to lose a lot of weight. While on dialysis, i was approved for gastric bypass surgery, and two months later i received a kidney from a donor I met, I have never felt so alive before
Karen2_b
in
Kidney Disease
6 years ago
My yoga and nutrition community for you to follow
Hi All - as a naturopathic nutritional therapist and yoga teacher as well as having been on the journey with my own kidneys from childhood through dialysis and transplantation, some of you will notice I have been posting in this group. In case it is also helpful, you can follow my own community here
Hi All - as a naturopathic nutritional therapist and yoga teacher as well as having been on the journey with my own kidneys from childhood through dialysis and transplantation, some of you will notice I have been posting in this group. In case it is also helpful, you can follow my own community here
WhollyAligned
in
Early CKD Support
6 years ago
Questions about Protein and Supplements for weight training after transplant
Hi, I'm new on this site and had a general question for those who are athletic and have had a kidney transplant. I have had a very successful kidney and pancreas cadaver transplant for about 9 years now. I am becoming more active and spending more time in the gym. I've been reading the common literature
Hi, I'm new on this site and had a general question for those who are athletic and have had a kidney transplant. I have had a very successful kidney and pancreas cadaver transplant for about 9 years now. I am becoming more active and spending more time in the gym. I've been reading the common literature
ShutterGhost
in
Kidney Transplant
6 years ago
DIALYSIS PATIENT DEPRESSION TOOLKIT
The last week or two have seen some questions asked about Dialysis and the options, or modalities, available. Beyond deciding which method to choose there are many other things to be aware of when facing ESRD and all that entails. The toolkit below can help you find your way through the process and
The last week or two have seen some questions asked about Dialysis and the options, or modalities, available. Beyond deciding which method to choose there are many other things to be aware of when facing ESRD and all that entails. The toolkit below can help you find your way through the process and
Hidden
in
Kidney Disease
6 years ago
PD dialysis
Does anyone have recommendation as to starting PD v. in center Hemo. No partner so home Hemo seems problematic. Infection, discomfort with fluid in abdomen with PD. Hemo seems hard to sit in a chair for 3-4 hours, and maybe washed out afterwards.
Does anyone have recommendation as to starting PD v. in center Hemo. No partner so home Hemo seems problematic. Infection, discomfort with fluid in abdomen with PD. Hemo seems hard to sit in a chair for 3-4 hours, and maybe washed out afterwards.
miketrial
in
Kidney Disease
6 years ago
New post on Kidney Diet Tips
Just received this and since there have been a few questions regarding diet, I thought it would be helpful: New post on Kidney Diet Tips Tips for Following a Kidney Diet by Torie Yackanicz Following a kidney diet takes education, diet tools and resources, and help from family and healthcare teams
Just received this and since there have been a few questions regarding diet, I thought it would be helpful: New post on Kidney Diet Tips Tips for Following a Kidney Diet by Torie Yackanicz Following a kidney diet takes education, diet tools and resources, and help from family and healthcare teams
lowraind
in
Early CKD Support
6 years ago
Keeping hydrated with kidney disease
Right now in the the northeast of the United States, we are in a very dry bad drought. The temperatures have been staying in the 90's with high humidity. When the weather is like this, it is important to stay hydrated. But that can be tricky with kidney disease depending on the stage you are in. For
Right now in the the northeast of the United States, we are in a very dry bad drought. The temperatures have been staying in the 90's with high humidity. When the weather is like this, it is important to stay hydrated. But that can be tricky with kidney disease depending on the stage you are in. For
Bassetmommer
NKF Ambassador
in
Kidney Disease
6 years ago
No "thrill"
Has anyone had problems with their av fistula? I was dialysing very well unti last friday when after dialysis my blood presure dropped and the next day i couldn't feel the "thrill" on my fistula it just stopped working allofthe sudden..i have it on my forearm and now i sort of fell a small "thrill" on
Has anyone had problems with their av fistula? I was dialysing very well unti last friday when after dialysis my blood presure dropped and the next day i couldn't feel the "thrill" on my fistula it just stopped working allofthe sudden..i have it on my forearm and now i sort of fell a small "thrill" on
Newatdis
in
Dialysis Support
6 years ago
New stage 5
Hi. I am new to the group. New stage 5 and getting a fistula tomorrow. Told it is urgent. I am hoping to have a graft but was told my vessels are too small they would try. I’m 50 kids at home going to college. Still slugging along working. Tired. Itchy(thought I had scabbies, before I was diagnosed😂
Hi. I am new to the group. New stage 5 and getting a fistula tomorrow. Told it is urgent. I am hoping to have a graft but was told my vessels are too small they would try. I’m 50 kids at home going to college. Still slugging along working. Tired. Itchy(thought I had scabbies, before I was diagnosed😂
Poly3
in
Kidney Dialysis
6 years ago
Dialysis Options
In preparation for dialysis which I hope will not happen, I need to make a decision about center or home. I have been doing a lot of research. I am wondering about people's experiences. I would like to do home dialysis, but do not have a partner, is this really necessary ? I do know people who do
In preparation for dialysis which I hope will not happen, I need to make a decision about center or home. I have been doing a lot of research. I am wondering about people's experiences. I would like to do home dialysis, but do not have a partner, is this really necessary ? I do know people who do
Frankie24
in
Kidney Disease
6 years ago
Blood pressure.
Hi there, how is everyone doing? My blood pressure is below 200 for the 1st time in more than a year. I am really happy about the improvement but unfortunately I have to go for dialysis as my numbers for creatinine, Grf, etc are skyrocketing and my kidneys are failing according to my doctor. Anyways,
Hi there, how is everyone doing? My blood pressure is below 200 for the 1st time in more than a year. I am really happy about the improvement but unfortunately I have to go for dialysis as my numbers for creatinine, Grf, etc are skyrocketing and my kidneys are failing according to my doctor. Anyways,
fish320
in
Early CKD Support
6 years ago
Saying hello to you all. I'm a nutritionist and yoga teacher specialising in kidneys based in London
Hi All. Just wanted to reach out and let you know my specific interest in working with kidneys having experienced the journey myself. Through dialysis, transplantation, back to dialysis and how one can still thrive and live a beautiful life. Every person's journey with their kidneys will be unique so
Hi All. Just wanted to reach out and let you know my specific interest in working with kidneys having experienced the journey myself. Through dialysis, transplantation, back to dialysis and how one can still thrive and live a beautiful life. Every person's journey with their kidneys will be unique so
WhollyAligned
in
Early CKD Support
6 years ago
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