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Life Expectancy
I am in my early 40s and started dialysis this year. I was diagnosed with CKD 20 years ago when I was in college and have been on BP meds for the last 10 yr. CKD affected my life since I was first diagnosed in college. There’s always an urgency to live life at fullest. It is scary with the uncertainty
I am in my early 40s and started dialysis this year. I was diagnosed with CKD 20 years ago when I was in college and have been on BP meds for the last 10 yr. CKD affected my life since I was first diagnosed in college. There’s always an urgency to live life at fullest. It is scary with the uncertainty
curiousmind2019
in
Kidney Disease
5 years ago
need help understanding dialysis
why do I have to be in such pain when they stick me with the needles befor my treatment.....laying there for 3hrs in pain in not going to happen I will quit first.....please help me understand....why this has to happen.....
why do I have to be in such pain when they stick me with the needles befor my treatment.....laying there for 3hrs in pain in not going to happen I will quit first.....please help me understand....why this has to happen.....
Hidden
in
Kidney Disease
5 years ago
Patience to Reach the Finish Line
The process for evaluation for a kidney transplant is so long and having to wait for decision from the committee who meets every Thursday about potential kidney transplant patients is very hard. The one thing putting mine off is that they’re not sure to give me a transplant since my issues with my heart
The process for evaluation for a kidney transplant is so long and having to wait for decision from the committee who meets every Thursday about potential kidney transplant patients is very hard. The one thing putting mine off is that they’re not sure to give me a transplant since my issues with my heart
gilgar76
in
Kidney Transplant
5 years ago
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Bloated tummy
Hello everyone. I just want to collect insights from you about my husband's condition. He has been in dialysis for almost 7months now. A few months ago, he used to cough especially when his head while lying down gets closer to the bed. Gradually, he can already sleep with only one pillow behind his head
Hello everyone. I just want to collect insights from you about my husband's condition. He has been in dialysis for almost 7months now. A few months ago, he used to cough especially when his head while lying down gets closer to the bed. Gradually, he can already sleep with only one pillow behind his head
Lalay40
in
Kidney Disease
5 years ago
Getting on the list
I’ve been on dialysis five years and I don’t think my doctor really cares they tell me I’m not a good candidate for my knee because I fell last year and I have no cartilage between the bones I’ve had to Cortizone shots and see the ortho doctor in November. I don’t think my doctor really cares about me
I’ve been on dialysis five years and I don’t think my doctor really cares they tell me I’m not a good candidate for my knee because I fell last year and I have no cartilage between the bones I’ve had to Cortizone shots and see the ortho doctor in November. I don’t think my doctor really cares about me
Arleendodson
in
Kidney Dialysis
5 years ago
Transplant Update
On July 11, 2019 I spent a full day at the hospital for testing. (28 different blood tests, psychological, social history, physical examination and review of other medical tests, such as an ABI, EKG, catscan and ultrasound). A few weeks later I received a letter informing me I was NOT approved for a
On July 11, 2019 I spent a full day at the hospital for testing. (28 different blood tests, psychological, social history, physical examination and review of other medical tests, such as an ABI, EKG, catscan and ultrasound). A few weeks later I received a letter informing me I was NOT approved for a
MPK0706
in
Kidney Dialysis
5 years ago
People of HealthUnlocked | Meet Jane
[i] Hello friends, today's story really moved me. I have so much admiration for Jane, who talks about her rollercoaster journey with weight management and chronic pain. Hopefully, her story below will inspire one of you today - as it inspired me. Don't forget to leave Jane a lovely comment below. [/i
[i] Hello friends, today's story really moved me. I have so much admiration for Jane, who talks about her rollercoaster journey with weight management and chronic pain. Hopefully, her story below will inspire one of you today - as it inspired me. Don't forget to leave Jane a lovely comment below. [/i
MarketingHU
in
HealthUnlocked Blog
5 years ago
Loss of strength in hands
Hello, My husband is stage 5 GFR 9. He’s not on dialysis yet he has high blood pressure and on the line of diabetic. He’s 53 he has rheumatoid arthritis which he takes Humira for and psoriasis. He’s slowly declining and needs to get the stomach port to start dialysis. But this past Monday he woke up
Hello, My husband is stage 5 GFR 9. He’s not on dialysis yet he has high blood pressure and on the line of diabetic. He’s 53 he has rheumatoid arthritis which he takes Humira for and psoriasis. He’s slowly declining and needs to get the stomach port to start dialysis. But this past Monday he woke up
Jmccool
in
Kidney Disease
5 years ago
First exchange at home.
Welp, today’s the day. I’ve had 3 exchanges a day everyday in PD training for the last week or so and today was my first one at home. Yesterday I got a start with some supplies and was able to clean out a drawer to store everything. I decided to use a comfy chair in the living room and a nearby coffee
Welp, today’s the day. I’ve had 3 exchanges a day everyday in PD training for the last week or so and today was my first one at home. Yesterday I got a start with some supplies and was able to clean out a drawer to store everything. I decided to use a comfy chair in the living room and a nearby coffee
Meghan40694
in
Parents of Children with Kidney Disease
5 years ago
Shrinking kidney
Hi there. Im male 67 creatinine of 2.46 and latest ultrasound shown that one of my kodneys shrinks in size. Does anyone here have the same issue? Will this event continues to kidney failute or end stage or dialysis. Pls help and share some experience or knowledge. Thanks
Hi there. Im male 67 creatinine of 2.46 and latest ultrasound shown that one of my kodneys shrinks in size. Does anyone here have the same issue? Will this event continues to kidney failute or end stage or dialysis. Pls help and share some experience or knowledge. Thanks
Mannyboy17
in
Early CKD Support
5 years ago
What GFR when you started dialysis?
Hi guys may i know for those undergoing dialysis treatment what was your GFR value when your doctor advice you that u need dialysis? Thanks in advance
Hi guys may i know for those undergoing dialysis treatment what was your GFR value when your doctor advice you that u need dialysis? Thanks in advance
Mannyboy17
in
Kidney Disease
5 years ago
Update on Transplant
Hi all Just a quick update, hubby is now making progress, still in intensive care, but they have removed the ventilator. On kidney dialysis but hopefully that will come good too. I know we have a long road ahead of us but I honestly was scared we might not even get the chance to go on it!!! The staff
Hi all Just a quick update, hubby is now making progress, still in intensive care, but they have removed the ventilator. On kidney dialysis but hopefully that will come good too. I know we have a long road ahead of us but I honestly was scared we might not even get the chance to go on it!!! The staff
Dannythedog
in
British Liver Trust
5 years ago
Time management skills during dialysis
Doing
peritoneal
dialysis
three time a week at nighttime. How do you keep up with your demands and schedule? What do you find works the best for you while struggling with ESRD? Anyone loves to journal this stage of our lives?
Doing
peritoneal
dialysis
three time a week at nighttime. How do you keep up with your demands and schedule? What do you find works the best for you while struggling with ESRD? Anyone loves to journal this stage of our lives?
mhawk123
in
Kidney Dialysis
5 years ago
Help, with home hemo
I am hoping someone can help me, or at least give me information. I am new to the forum. I had been doing PD for about 18 months. I decided that I wanted to change to home hemodialysis as I feel the PD was really affecting my quality of life (not to mention the time commitment). I have just begun in-center
I am hoping someone can help me, or at least give me information. I am new to the forum. I had been doing PD for about 18 months. I decided that I wanted to change to home hemodialysis as I feel the PD was really affecting my quality of life (not to mention the time commitment). I have just begun in-center
nh9man
in
Kidney Disease
5 years ago
Cirrhosis and Liver problems
Hi my brother was first diagnosed with cirrhosis and liver problem four years ago, after a few problem ie kidney dialysis, bleeding varices, fluid retention. He has generally been okay however he has recently been informed his pancreas is swollen. We have an appointment at the specialist coming up is
Hi my brother was first diagnosed with cirrhosis and liver problem four years ago, after a few problem ie kidney dialysis, bleeding varices, fluid retention. He has generally been okay however he has recently been informed his pancreas is swollen. We have an appointment at the specialist coming up is
Mar15
in
British Liver Trust
5 years ago
Whole Foods Plant Based Diet and My Kidney Expierence
Last week my GFR went down to 12.7%; since mid-September it has been declining and I was following a conventional renal diet as advised by health care officials. The only deviation was in August right after I was told my GFR had decreased by 50%. I was on vacation and began doing the only thing I could
Last week my GFR went down to 12.7%; since mid-September it has been declining and I was following a conventional renal diet as advised by health care officials. The only deviation was in August right after I was told my GFR had decreased by 50%. I was on vacation and began doing the only thing I could
jmkb
in
Kidney Disease
5 years ago
Gut affected by Scleroderma
Hi, My wife was diagnosed with Scleroderma in May 2019 and have been in and out of hospital since. In July, she had renal failure and was admitted to Intensive Care shortly after her first dialysis with all her major organs failing. The condition has affected her guts severely and is unable to drink
Hi, My wife was diagnosed with Scleroderma in May 2019 and have been in and out of hospital since. In July, she had renal failure and was admitted to Intensive Care shortly after her first dialysis with all her major organs failing. The condition has affected her guts severely and is unable to drink
simon_m
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
GFR near 60 for 2.5 years
2.5 years ago I went to my doctor for a regular physical. He took blood and I was told I had a GFR of 59, two weeks later it was 54. Two weeks after that it was over 60. In the 2.5 years since it has been just over 60 every time. I am 48, not diabetic, no high blood pressure. I had a scan of my kidneys
2.5 years ago I went to my doctor for a regular physical. He took blood and I was told I had a GFR of 59, two weeks later it was 54. Two weeks after that it was over 60. In the 2.5 years since it has been just over 60 every time. I am 48, not diabetic, no high blood pressure. I had a scan of my kidneys
AlwaysForward
in
Kidney Disease
5 years ago
Being on dialysis
I’m 44 yrs old, I’m currently in dialysis 3xs a week for 3 1/2 hours
I’m 44 yrs old, I’m currently in dialysis 3xs a week for 3 1/2 hours
Hotgirl74
in
Kidney Disease
5 years ago
Does dialysis make you feel better or worse
My husband's creatinine is at a level 10 and is not on dialysis. He doesn't have too many physical symptoms except a little fatigue and doesn't sleep well. His nephrologist talks to him about but I think he's scared not knowing what to expect. Does it make you feel better or worse? I heard that it makes
My husband's creatinine is at a level 10 and is not on dialysis. He doesn't have too many physical symptoms except a little fatigue and doesn't sleep well. His nephrologist talks to him about but I think he's scared not knowing what to expect. Does it make you feel better or worse? I heard that it makes
brynat2
in
Kidney Disease
5 years ago
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