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Pelvic nerve damage
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Shingles vaccination
I know catching shingles with PMR is a complete no-no, but does anyone know if we are OK having the vaccination? I imagine if we are, it’s a good idea
I know catching shingles with PMR is a complete no-no, but does anyone know if we are OK having the vaccination? I imagine if we are, it’s a good idea
calibriel
in
PMRGCAuk
2 years ago
What exactly is shingles
I’m wondering what the early symptoms and what shingles is. Has anybody had this problem before? And how does it start. Any advice on reply would help
I’m wondering what the early symptoms and what shingles is. Has anybody had this problem before? And how does it start. Any advice on reply would help
Hidden
in
Pain Concern
2 years ago
rls maybe? I need help
im sat wide awake for the 13th week in a row,I have graves and a total thyroidectomy and thought my thyroid levels were to blame for my insomnia as well as the heat now even in the cold weather I cannot get my left leg to stop moving and being so hot towards the evening and at night time currently
im sat wide awake for the 13th week in a row,I have graves and a total thyroidectomy and thought my thyroid levels were to blame for my insomnia as well as the heat now even in the cold weather I cannot get my left leg to stop moving and being so hot towards the evening and at night time currently
Mommabear123
in
Restless Legs Syndrome
2 years ago
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I have a incredibly toxic family
I have a very low confidence and high level of social awkwardness. I think this is because of two things: my toxic family and my history of being bullied incessantly, especially from the 5th to 7th grade.I feel that my family is not a normal family. My mom and dad always scapegoated one another and swore
I have a very low confidence and high level of social awkwardness. I think this is because of two things: my toxic family and my history of being bullied incessantly, especially from the 5th to 7th grade.I feel that my family is not a normal family. My mom and dad always scapegoated one another and swore
Bulliedchild1
in
Anxiety and Depression Support
2 years ago
Update shingles vaccination before start JAK inhibitor
Thanks all…found all the information I need re shingles vaccination. Now aware there’s a non live one, Shingrix, but as I’m 62 it may take a bit of support (or saving up!) to get it.Only another 8 years to wait! Why isn’t this offered as routine for us folks….know it doesn’t provide full immunity..what
Thanks all…found all the information I need re shingles vaccination. Now aware there’s a non live one, Shingrix, but as I’m 62 it may take a bit of support (or saving up!) to get it.Only another 8 years to wait! Why isn’t this offered as routine for us folks….know it doesn’t provide full immunity..what
Taraheart
in
NRAS
2 years ago
Heat hurting heart?
hey heart friends, Is anyone finding this heat is hurting them (for those in UK)? My heart was funky last night and tonight my stomach is crunching and painful (maybe dodgy rice!). Just finding this weather quite hard on my PVCs, which are already at tens of thousands a day. Also, for anyone who
hey heart friends, Is anyone finding this heat is hurting them (for those in UK)? My heart was funky last night and tonight my stomach is crunching and painful (maybe dodgy rice!). Just finding this weather quite hard on my PVCs, which are already at tens of thousands a day. Also, for anyone who
LJM15
in
British Heart Foundation
2 years ago
unsuccessful referral to a gynaecologist give up with GP 👨⚕️
I’m really struggling to deal and cope with my endometriosis, I managed to get to my GP after months and weeks of trying to get an appointment to be told they won’t refer me as it’s soemthing the GP can manage yet it’s not being managed as I have nothing to take for pain apart from paracetamol and ibuprofen
I’m really struggling to deal and cope with my endometriosis, I managed to get to my GP after months and weeks of trying to get an appointment to be told they won’t refer me as it’s soemthing the GP can manage yet it’s not being managed as I have nothing to take for pain apart from paracetamol and ibuprofen
Shakiera123
in
Endometriosis UK
2 years ago
Vagus Nerve Stimulation VNS for FND?
If there is something wrong with your vagus nerve it affects heart rate, irregular movement, dizziness and nausea. Doctors have told me that sometimes what I described is like a vasovagal response. So I wondered if the vagus nerve was treated maybe it will help my FND symptoms. Has anyone had that Vagus
If there is something wrong with your vagus nerve it affects heart rate, irregular movement, dizziness and nausea. Doctors have told me that sometimes what I described is like a vasovagal response. So I wondered if the vagus nerve was treated maybe it will help my FND symptoms. Has anyone had that Vagus
AjaStar
in
Functional Neurological Disorder - FND Hope
2 years ago
Does it get better?
Hi all, I’ve been dealing with chronic pelvic pain for a really long time now, and in the last year it’s really snowballed into something that is unbearable. I’m in pain all day every day, varying from aches to proper full on debilitating pain. I’m to the point where I can’t carry out my job, I keep
Hi all, I’ve been dealing with chronic pelvic pain for a really long time now, and in the last year it’s really snowballed into something that is unbearable. I’m in pain all day every day, varying from aches to proper full on debilitating pain. I’m to the point where I can’t carry out my job, I keep
MelaniePhoebe
in
Endometriosis UK
2 years ago
What is your experience of TENS or Ultrasound Therapy ?
Hope everyone is having a good Fibro day , despite the heat. I am considering trying TENS or Ultrasound Therapy to help improve my Fibro pain. I am hoping that you friendly , helpful people on the forum can help me make a choice by telling me about your experience with these therapies. Have you used
Hope everyone is having a good Fibro day , despite the heat. I am considering trying TENS or Ultrasound Therapy to help improve my Fibro pain. I am hoping that you friendly , helpful people on the forum can help me make a choice by telling me about your experience with these therapies. Have you used
Blearyeyed
in
Fibromyalgia Action UK
2 years ago
So tired and p****d off
I swear bad luck just absolutely follows us. I’m just so tired of it all. The dreaming, the hopes only to get slapped in the face multiple times. Bad sperm, crap eggs, and now the era has shown I’m pre receptive so not even that works properly. Thought we had 2 embryos left just had a call to say they
I swear bad luck just absolutely follows us. I’m just so tired of it all. The dreaming, the hopes only to get slapped in the face multiple times. Bad sperm, crap eggs, and now the era has shown I’m pre receptive so not even that works properly. Thought we had 2 embryos left just had a call to say they
Boo718
in
Fertility Network UK
2 years ago
What Long Term Pain Killers do you use?
My doctor is trying to take me off cocodamol and giving me paracetamol as it’s not long term. I keep informing them that paracetamol is not going to help and I would just be in so muhc pain. What other medications do you guys use to manage flare ups. I’m currently having one can’t get out of bed I’m
My doctor is trying to take me off cocodamol and giving me paracetamol as it’s not long term. I keep informing them that paracetamol is not going to help and I would just be in so muhc pain. What other medications do you guys use to manage flare ups. I’m currently having one can’t get out of bed I’m
Littlebug77
in
Endometriosis UK
2 years ago
Rituximab and tetanus (etc.)
This is to all my fellow immune suppressed folks about rituximab. I've been unable to find solid information, and my consultants aren't sure, so wondered if anyone here knows. Does rituximab impact our tetanus jabs and similar? I was up to date on all my boosters, but got bit by a tick on Saturday (think
This is to all my fellow immune suppressed folks about rituximab. I've been unable to find solid information, and my consultants aren't sure, so wondered if anyone here knows. Does rituximab impact our tetanus jabs and similar? I was up to date on all my boosters, but got bit by a tick on Saturday (think
Grizzly-bear
in
Vasculitis UK
2 years ago
8 MONTH waiting times…
I saw a pain clinic consultant two months ago and he referred me for nerve block injections in my abdominal wall and groin… after speaking with pain management yesterday, they advised me to follow up on the appointment as I haven’t had anything yet. I’ve just been advised that the MINIMUM waiting time
I saw a pain clinic consultant two months ago and he referred me for nerve block injections in my abdominal wall and groin… after speaking with pain management yesterday, they advised me to follow up on the appointment as I haven’t had anything yet. I’ve just been advised that the MINIMUM waiting time
PenelopeClearwater
in
Fibromyalgia Action UK
2 years ago
2 year old won’t wake post BM
Sunday I brought my 2 year old into the emergency room due to vomiting and fever. We were sent home. I returned two hours later with an unresponsive limp child. Long story short she has sepsis as a result of bacterial meningitis. She’s now on Day 3 or 4. They are treating the meningitis (and have been
Sunday I brought my 2 year old into the emergency room due to vomiting and fever. We were sent home. I returned two hours later with an unresponsive limp child. Long story short she has sepsis as a result of bacterial meningitis. She’s now on Day 3 or 4. They are treating the meningitis (and have been
gigismum
in
Meningitis Now
2 years ago
Can a TENS device help with mood and pain relief?
A TENS device has a pad which is attached to your body. Small electrical pulses are sent to the affected area which can either distract you from pain or even dismiss it completely. I tried it for Auto Immune Encephalitis and Complex Post Traumatic Stress Disorder. It's relatively early days as we've
A TENS device has a pad which is attached to your body. Small electrical pulses are sent to the affected area which can either distract you from pain or even dismiss it completely. I tried it for Auto Immune Encephalitis and Complex Post Traumatic Stress Disorder. It's relatively early days as we've
Gandalf2
in
Encephalitis International
2 years ago
Transcutaneous Vagus Nerve Stimulation - TENS type machine
Hello all - I have read good things about the above for lupus related fatigue. Does anyone have any recommendations for a machine ? I know about the exercises etc, but am more interested in treating the fatigue using a TENS type machine. I'm in the UK
Hello all - I have read good things about the above for lupus related fatigue. Does anyone have any recommendations for a machine ? I know about the exercises etc, but am more interested in treating the fatigue using a TENS type machine. I'm in the UK
Ophelia1
in
LUPUS UK
2 years ago
Lyme Disease can cause AF & much more!
Hi Guys, just a short timely message to check for tics if you have been outside in long grass or heathland. LD can trigger an irregular heart beat. The following is the best I've read in a while https://heartmdinstitute.com/health-and-wellness/lyme-disease-symptoms-prevention-treatment/
Hi Guys, just a short timely message to check for tics if you have been outside in long grass or heathland. LD can trigger an irregular heart beat. The following is the best I've read in a while https://heartmdinstitute.com/health-and-wellness/lyme-disease-symptoms-prevention-treatment/
secondtry
in
AF Association
2 years ago
Tens Devices - Do they really help with pain?
I’ve seen a lot about these lately but there are so many mixed reviews! Has anyone tried these? How well do they work for you? Which one would you recommend? Thank you 💜💛
I’ve seen a lot about these lately but there are so many mixed reviews! Has anyone tried these? How well do they work for you? Which one would you recommend? Thank you 💜💛
CoffeeandCrisps
in
Endometriosis UK
2 years ago
Tens Machine
Hi, I have endometriosis and adenomyosis and pretty much in constant pain. I am already on pain medication and morphine. I was looking into getting a tens machine but I don’t even know where to begin looking. Does anyone have any recommendations? Thank you in advance 😊
Hi, I have endometriosis and adenomyosis and pretty much in constant pain. I am already on pain medication and morphine. I was looking into getting a tens machine but I don’t even know where to begin looking. Does anyone have any recommendations? Thank you in advance 😊
Buddyboo18
in
Endometriosis UK
2 years ago
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