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Pelizaeus–Merzbacher disease
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Wednesday Word
[u][i]
ALT - Alanine Transaminase
[/i][/u] This is a blood test performed as part of your routine liver panel test. It is released more so by the [u][i]
hepatocytes -(liver cells)
[/i][/u] so it's associated more with hepatitis rather than PBC. ALT can be elevated in both non responders
[u][i]
ALT - Alanine Transaminase
[/i][/u] This is a blood test performed as part of your routine liver panel test. It is released more so by the [u][i]
hepatocytes -(liver cells)
[/i][/u] so it's associated more with hepatitis rather than PBC. ALT can be elevated in both non responders
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
How to control thirst to avoid Fluid overload
Hi Friends My mother is on Maintenance Haemodialysis thrice a week since 4 months. She is now adjusted to this process. As she lives in the tropical country, in the summer season it will be difficult for her to limit the fluid intake. Can any one advice how to control the thirst to limit fluid intake
Hi Friends My mother is on Maintenance Haemodialysis thrice a week since 4 months. She is now adjusted to this process. As she lives in the tropical country, in the summer season it will be difficult for her to limit the fluid intake. Can any one advice how to control the thirst to limit fluid intake
Mentoslfc
in
Dialysis Support
6 months ago
Lupus pain
I was diagnosed over23yrs ago i am now 64 and struggling quite alot with muscle and joint pains i am due ultrasound scans on both hips plus my right shoulder this month i cant sleep due to pain sick of feeling exhausted and downhearted i have severe acid reflux and ibs so cant take antinflamatory medications
I was diagnosed over23yrs ago i am now 64 and struggling quite alot with muscle and joint pains i am due ultrasound scans on both hips plus my right shoulder this month i cant sleep due to pain sick of feeling exhausted and downhearted i have severe acid reflux and ibs so cant take antinflamatory medications
LUPUSLADY60
in
NRAS
3 months ago
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always question
Just this morning there was a post about questioning the legitimacy of a survey about itching - and receiving payment for completing it. Some of you reached out to The PBC Foundation (as did I) to just make sure it was 'for real'. I am just as hopeful that when any of you don't feel the care you receive
Just this morning there was a post about questioning the legitimacy of a survey about itching - and receiving payment for completing it. Some of you reached out to The PBC Foundation (as did I) to just make sure it was 'for real'. I am just as hopeful that when any of you don't feel the care you receive
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Time to PSA Nadir is related to progression-free-survival
This graph from Teoh (2014) plots the relationship between Time to PSA Nadir (months) versus Time to Progression (months) (i.e., Progression Free Survival). Cohort: ADT monotherapy (No RP or RT), all metastatic patients, median 74 y.o., GS = 8-10, N=419. A cubic spline curve fit matched the data points
This graph from Teoh (2014) plots the relationship between Time to PSA Nadir (months) versus Time to Progression (months) (i.e., Progression Free Survival). Cohort: ADT monotherapy (No RP or RT), all metastatic patients, median 74 y.o., GS = 8-10, N=419. A cubic spline curve fit matched the data points
janebob99
in
Advanced Prostate Cancer
6 months ago
Abiraterone seems to be working
An update on my situation. To review, I now appear to be castrate resistant after about 6 1/2 years of being castrate sensitive. My MO put me on Abiraterone, along the existing Lupron. I had my MO appt and my PSA has fallen from 4.5 to 2 after about 7 weeks on Abi. This is my second iteration with Abi
An update on my situation. To review, I now appear to be castrate resistant after about 6 1/2 years of being castrate sensitive. My MO put me on Abiraterone, along the existing Lupron. I had my MO appt and my PSA has fallen from 4.5 to 2 after about 7 weeks on Abi. This is my second iteration with Abi
fireandice123
in
Advanced Prostate Cancer
6 months ago
Cortisol test
Result of morning cortisal test was 131 which is rubbish (range 102-535) and explains why I feel exhausted some days. Have been on 3mg for several weeks. Looks like it’s a Synacthen test next. Thanks PMRpro for the info on that. Is the experience ok anyone out there who’s had one?
Result of morning cortisal test was 131 which is rubbish (range 102-535) and explains why I feel exhausted some days. Have been on 3mg for several weeks. Looks like it’s a Synacthen test next. Thanks PMRpro for the info on that. Is the experience ok anyone out there who’s had one?
Bluey-1
in
PMRGCAuk
6 months ago
B12 website - Norway (Norge / Noreg)
This has probably been mentioned before but just thought I'd post it for any forum members from Norway. B12-Foreningen https://www.b12-foreningen.no/ Another link for Norway below. https://www.b12info.com/very-useful-links/ PAS (Pernicious Anaemia Society) accepts members from across the world.
This has probably been mentioned before but just thought I'd post it for any forum members from Norway. B12-Foreningen https://www.b12-foreningen.no/ Another link for Norway below. https://www.b12info.com/very-useful-links/ PAS (Pernicious Anaemia Society) accepts members from across the world.
Sleepybunny
in
Pernicious Anaemia Society
3 months ago
Insertable Cardiac Monitor (ICM)
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin to record the activity of your heart. The ICM monitors and records your heart’s electrical activity in order to identify any changes to the heart rhythm. You may be experiencing symptoms that indicate you have
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin to record the activity of your heart. The ICM monitors and records your heart’s electrical activity in order to identify any changes to the heart rhythm. You may be experiencing symptoms that indicate you have
SamAdmin
Administrator
in
Sudden Cardiac Arrest & Heart Attack
20 hours ago
Does anyone have experience of how Large Vessel Vasculitis (GCA /TA) may be affected by a long haul flight?
I’ve never experienced a long haul flight and, as we prefer to drive when we holiday abroad, I haven’t been on a plane for 15 years but I am booked to go to S Korea next week to visit my granddaughter who is currently teaching in Seoul. In August I was diagnosed with Large Vessel Vasculitis and the consultant
I’ve never experienced a long haul flight and, as we prefer to drive when we holiday abroad, I haven’t been on a plane for 15 years but I am booked to go to S Korea next week to visit my granddaughter who is currently teaching in Seoul. In August I was diagnosed with Large Vessel Vasculitis and the consultant
Obscureclouds
in
Vasculitis UK
23 hours ago
Atrial Fibrillation
I was diagnosed with A-Flutter 3 years ago by an Electrophysiologist that came to work for the Cardiology department of the Cardiologist I have been seeing for several years because of an artificial mitral heart valve. She informed me that I had been in A-Flutter for approximately one year. The only
I was diagnosed with A-Flutter 3 years ago by an Electrophysiologist that came to work for the Cardiology department of the Cardiologist I have been seeing for several years because of an artificial mitral heart valve. She informed me that I had been in A-Flutter for approximately one year. The only
Lizilue
in
Hughes Syndrome APS Forum
3 days ago
PSA showing .014 - concerned?
I had RP 3/22, PSA went up to .095 3 months after. I started Orgovyx on 8/15/22 had radiation Jan & Feb 23 and started Abi 4/23. All my psa's have been 0 since 10/22. Now it is at .014. I see my oncologist next Tuesday but I don't want to wait for his answer. How bad of a sign is this? I'm guessing
I had RP 3/22, PSA went up to .095 3 months after. I started Orgovyx on 8/15/22 had radiation Jan & Feb 23 and started Abi 4/23. All my psa's have been 0 since 10/22. Now it is at .014. I see my oncologist next Tuesday but I don't want to wait for his answer. How bad of a sign is this? I'm guessing
VanHalen84
in
Advanced Prostate Cancer
6 months ago
amiadrone
For those of you with hypothyroidism and heart disease, have any of you been advised to or taken amiadrone and warfarin prior to cardioversion to increase likelihood of staying in sinus rhythm? There are so many contraindications for me personally due to other meds and comorbidities.
For those of you with hypothyroidism and heart disease, have any of you been advised to or taken amiadrone and warfarin prior to cardioversion to increase likelihood of staying in sinus rhythm? There are so many contraindications for me personally due to other meds and comorbidities.
bikebabe
in
Thyroid UK
3 days ago
amiadrone
For those of you with hypothyroidism and heart disease, have any of you been advised to or taken amiadrone and warfarin prior to cardioversion to increase likelihood of staying in sinus rhythm? There are so many contraindications for me personally due to other meds and comorbidities.
For those of you with hypothyroidism and heart disease, have any of you been advised to or taken amiadrone and warfarin prior to cardioversion to increase likelihood of staying in sinus rhythm? There are so many contraindications for me personally due to other meds and comorbidities.
bikebabe
in
Thyroid UK
3 days ago
warfarin and chia seeds
Hi I self test my INR. I want to introduce chia seeds as part of my daily diet. I know they can interact with anticoagulants. I take Warfarin. Has anybody had any experience with warfarin and chia. it says on the net it doesnt mean no. But exercise caution. Presumably, it could raise my INR so
Hi I self test my INR. I want to introduce chia seeds as part of my daily diet. I know they can interact with anticoagulants. I take Warfarin. Has anybody had any experience with warfarin and chia. it says on the net it doesnt mean no. But exercise caution. Presumably, it could raise my INR so
Gilli54
in
Anticoagulation Support
4 days ago
Now Dr. Mandrola not only likes, but loves Pulse Field Ablation (PFA).
Dr. John Mandrola previously had reservations about Pulse Field Ablation being a breakthrough in treating afib. Npw that he has personally seen it in action, he has changed his mind. From his Substack 11/22 "Now I have used PFA. And. It is somewhat amazing. It ablates cardiac tissue quickly and
Dr. John Mandrola previously had reservations about Pulse Field Ablation being a breakthrough in treating afib. Npw that he has personally seen it in action, he has changed his mind. From his Substack 11/22 "Now I have used PFA. And. It is somewhat amazing. It ablates cardiac tissue quickly and
mjames1
in
Atrial Fibrillation Support
4 days ago
Where Is Data Stored for Wellue's ECG Traces?
I have had a Wellue ECG device for a few days -- the kind that can record heartbeats for up to 24 hours. When I review one of these recordings, I can immediately see the ECG tracings. The file with these tracings can be hundreds of screens long, one screen per minute of recording time. You can advance
I have had a Wellue ECG device for a few days -- the kind that can record heartbeats for up to 24 hours. When I review one of these recordings, I can immediately see the ECG tracings. The file with these tracings can be hundreds of screens long, one screen per minute of recording time. You can advance
Corazon17
in
Atrial Fibrillation Support
4 days ago
Biologics - when/did you move up to them?
Trying to get a measure of the stages and various meds that treat lupus, and wondering if/when anyone was moved up to biologics like Belimumab and Rituximab. I understand lupus is treated softly softly, as in mildest immune suppressants first and gradually move up the ladder, and biologics are stronger
Trying to get a measure of the stages and various meds that treat lupus, and wondering if/when anyone was moved up to biologics like Belimumab and Rituximab. I understand lupus is treated softly softly, as in mildest immune suppressants first and gradually move up the ladder, and biologics are stronger
smeackles
in
LUPUS UK
5 days ago
angiogram update
Hi all, Just a quick update for anyone that is interested, I went for the cardiac angiogram on Friday and apart from a few bruises and a rash, probably a reaction to the contrast dye, I seem to be okay, however no intervention was carried out because the findings didn’t correlate with the CT angiogram
Hi all, Just a quick update for anyone that is interested, I went for the cardiac angiogram on Friday and apart from a few bruises and a rash, probably a reaction to the contrast dye, I seem to be okay, however no intervention was carried out because the findings didn’t correlate with the CT angiogram
Buttsy
in
Scleroderma & Raynaud's UK (SRUK)
5 days ago
DRUGS
Good afternoon. I take 50mg Flecainide morning and night. 1.25mg Bisoprolol mornings. 4mg Candesartan mornings and 20mg Xeralto at night. Heart rate is usually on the low side of normal even without Bisoprolol. Two years ago when I started these drugs the recommended dose of Bisoprolol was 5mg and
Good afternoon. I take 50mg Flecainide morning and night. 1.25mg Bisoprolol mornings. 4mg Candesartan mornings and 20mg Xeralto at night. Heart rate is usually on the low side of normal even without Bisoprolol. Two years ago when I started these drugs the recommended dose of Bisoprolol was 5mg and
Afibtastic
in
Atrial Fibrillation Support
5 days ago
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