Atrial Fibrillation: I was diagnosed... - Hughes Syndrome A...

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Atrial Fibrillation

Lizilue profile image
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I was diagnosed with A-Flutter 3 years ago by an Electrophysiologist that came to work for the Cardiology department of the Cardiologist I have been seeing for several years because of an artificial mitral heart valve. She informed me that I had been in A-Flutter for approximately one year. The only symptom I had was tiredness. I had been getting Echocardiograms yearly but wasn't informed by my Cardiologist that I was in A-Fib even though he had gotten the results of the Echo.

Anyway, I had Cardioversion which put me back into NSR but caused Bradycardia, and as a result, I had to have a pacemaker inserted. The A-Flutter came back after 9 months and I had cardiac ablation which resulted in NSR for 7 months. I had a two more ablations but the A- Flutter came back after a few months.

I am now being told I should try a medication called Tikosyn. This medication is relatively new and is very toxic so I will have to be hospitalized for 3 days so I can be monitored for an extremely high tachycardia response.

Does anyone else have experience with this drug?

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Lizilue
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lupus-support1 profile image
lupus-support1Administrator

Wishing you a speedy and full recovery.

With good wishes,

Ros

Pooky7 profile image
Pooky7

have you gotten a 2nd opinion?

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