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Paul's last day today
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
Debbie_kinsey
Administrator
in
LUPUS UK
6 months ago
Fatty Liver -Pain
Hi, I have had NAFLD for several years but have just started to get pain with it. I think it may have moved to NASH and possibly fibrosis or cirrhosis (nothing has confirmed that officially yet). I had a blood test and the doctor said that the liver function number was raised more so than usual. It
Hi, I have had NAFLD for several years but have just started to get pain with it. I think it may have moved to NASH and possibly fibrosis or cirrhosis (nothing has confirmed that officially yet). I had a blood test and the doctor said that the liver function number was raised more so than usual. It
IronPilgrim
in
British Liver Trust
8 months ago
Statins
Back in 2008, I was diagnosed with AFIB and, after an echo, was also told that I had a bicuspid aortic valve. An ablation in 2018 lasted only 8 months and I was soon back in afib and back on rhythm and rate meds. Fast forward to this past March when I got Covid and my paroxysmal afib turned to persistent
Back in 2008, I was diagnosed with AFIB and, after an echo, was also told that I had a bicuspid aortic valve. An ablation in 2018 lasted only 8 months and I was soon back in afib and back on rhythm and rate meds. Fast forward to this past March when I got Covid and my paroxysmal afib turned to persistent
Jafib
in
Atrial Fibrillation Support
6 days ago
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My son died at the age of 36 in the USA in September 2023. He had been alcohol dependent but had finally managed to stop drinking a month before, and his liver results were steadily improving . He woke up one Sunday bright yellow but feeling fine and it took his wife 48 hours to persuade him to go to
My son died at the age of 36 in the USA in September 2023. He had been alcohol dependent but had finally managed to stop drinking a month before, and his liver results were steadily improving . He woke up one Sunday bright yellow but feeling fine and it took his wife 48 hours to persuade him to go to
Tortoise57
in
British Liver Trust
8 months ago
Rising PSA -
Diagnosed: May 2021 age 53 otherwise no health issues. Only symptom was increased urination that progressed to painful urination and inability to fully empty bladder. Highest PSA was 5. MRI showed Mets to pelvic lymph, seminal vessels, and pelvic bone. Gleason 4+3 (80% of samples) 4+5 for 10%. CT
Diagnosed: May 2021 age 53 otherwise no health issues. Only symptom was increased urination that progressed to painful urination and inability to fully empty bladder. Highest PSA was 5. MRI showed Mets to pelvic lymph, seminal vessels, and pelvic bone. Gleason 4+3 (80% of samples) 4+5 for 10%. CT
MPCSUX
in
Advanced Prostate Cancer
8 months ago
ASCO GU 2024 program
Ok! Here you go, but prostate cancer is only on day 1 https://conferences.asco.org/gu/program
Ok! Here you go, but prostate cancer is only on day 1 https://conferences.asco.org/gu/program
Maxone73
in
Advanced Prostate Cancer
8 months ago
Support Group for Dialysis Patients Thursday night 6pm EST
This is YaMarie from Virtual Dialysis Support Center sending you an invitation to our Support Group Meeting on Thursday at 6pm. This time, we are featuring Dr. Olaf Kroneman, who will answer any kidney questions you might have. He is a board-certified nephrologist, and we will also have random drawings
This is YaMarie from Virtual Dialysis Support Center sending you an invitation to our Support Group Meeting on Thursday at 6pm. This time, we are featuring Dr. Olaf Kroneman, who will answer any kidney questions you might have. He is a board-certified nephrologist, and we will also have random drawings
Bassetmommer
in
Kidney Dialysis
8 months ago
Losartan
Have been on Losartan 100mg for a long time and most mornings I seem to be often clearing my throat. I looked up on Google was this a symptom of the drug and read to my horror that Losartan had been recalled because of cancer scares! I haven't been told by the pharmacist of any such problem. I hope it
Have been on Losartan 100mg for a long time and most mornings I seem to be often clearing my throat. I looked up on Google was this a symptom of the drug and read to my horror that Losartan had been recalled because of cancer scares! I haven't been told by the pharmacist of any such problem. I hope it
valthomas15
in
Atrial Fibrillation Support
11 days ago
Fighting for corrections is so hard.
I am coming up on the one year of my wife's passing. On this day last year, she was sitting in her hospital bed eating frozen fruit. She was at 99% Sat with 1l of O2, and the plan was to turn it off in the morning. LFT's bang on Normal. Indirect Billi is still high, direct normal. Albumin low Plat low
I am coming up on the one year of my wife's passing. On this day last year, she was sitting in her hospital bed eating frozen fruit. She was at 99% Sat with 1l of O2, and the plan was to turn it off in the morning. LFT's bang on Normal. Indirect Billi is still high, direct normal. Albumin low Plat low
ceward204
in
British Liver Trust
8 months ago
AF ‘paranoia’ - echocardiogram
I don’t really know what to call it but I’m suffering from the feeling you get when you’ve had a test, know the tester can’t tell you anything but are trying to work out whether they gave you a hint or not 🤔 I was just about to phone cardiology to ask whether my echo had been booked at all as I’d had
I don’t really know what to call it but I’m suffering from the feeling you get when you’ve had a test, know the tester can’t tell you anything but are trying to work out whether they gave you a hint or not 🤔 I was just about to phone cardiology to ask whether my echo had been booked at all as I’d had
Buffafly
in
Atrial Fibrillation Support
12 days ago
A proposed metabolic treatment for prostate cancer, (theoretical only) using drugs approved for other conditions
See the PaSTe regimen below: pantoprozole (a drug currently used to reduce stomach acid), simvastatin (a statin used to reduce cholesterol), trimetazidine (a drug used to treat angina attacks). PaSTe. Blockade of the Lipid Phenotype of Prostate Cancer as Metabolic Therapy: A Theoretical Proposal
See the PaSTe regimen below: pantoprozole (a drug currently used to reduce stomach acid), simvastatin (a statin used to reduce cholesterol), trimetazidine (a drug used to treat angina attacks). PaSTe. Blockade of the Lipid Phenotype of Prostate Cancer as Metabolic Therapy: A Theoretical Proposal
Graham49
in
Advanced Prostate Cancer
8 months ago
Plant-based raw food diet eases symptoms of SLE, Sjögren’s: Report
More research needed into diet's role in autoimmune disease Three women with the autoimmune conditions systemic lupus erythematosus (SLE) and Sjögren’s syndrome saw their symptoms ease after starting a diet rich in plant-based raw foods, according to a recent case series report. The diet included
More research needed into diet's role in autoimmune disease Three women with the autoimmune conditions systemic lupus erythematosus (SLE) and Sjögren’s syndrome saw their symptoms ease after starting a diet rich in plant-based raw foods, according to a recent case series report. The diet included
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 months ago
high heart rate at night
Anyone else out there experience something like this at night and have any idea if this is AFib or something else? Currently on 2.5mg bisoprolol daily thanks
Anyone else out there experience something like this at night and have any idea if this is AFib or something else? Currently on 2.5mg bisoprolol daily thanks
Craneguy83
in
Atrial Fibrillation Support
5 months ago
Can a dialysis patient use protein power?
My protein level is low even with the Pro-Stat the kidney center gives to me, Is it ok to use whey protein powder? i mean in it the potassium is 160 mg per serving, Cholesterol is 55mg. I'm a dialysis person.I'm thinking cutting the per serving to half so to decrease the potassium.
My protein level is low even with the Pro-Stat the kidney center gives to me, Is it ok to use whey protein powder? i mean in it the potassium is 160 mg per serving, Cholesterol is 55mg. I'm a dialysis person.I'm thinking cutting the per serving to half so to decrease the potassium.
mingmiley
in
Kidney Dialysis
8 months ago
Husband's heart issues
My husband has a long history of heart issues, angioplasty and stents 2005 after 2nd MI (we have no idea when the first was as no symptoms), Permanent AF 2012. Aortic incompetence/ stenosis for years, sleep apnoea.Sep 23 cardiologist felt intervention for aortic valve necessary but needed angiogram before
My husband has a long history of heart issues, angioplasty and stents 2005 after 2nd MI (we have no idea when the first was as no symptoms), Permanent AF 2012. Aortic incompetence/ stenosis for years, sleep apnoea.Sep 23 cardiologist felt intervention for aortic valve necessary but needed angiogram before
Bagrat
in
Atrial Fibrillation Support
17 days ago
PSA Gone Up
I had RP in January of 2023, started ADT in May of 2023 and went through 38 session of SRT between July and August. In am currently on my second six month dose of Eligard and it should be done in May of this year. In November 2023, I had my first PSA test since SRT and it was .008 ng/mL. I just got
I had RP in January of 2023, started ADT in May of 2023 and went through 38 session of SRT between July and August. In am currently on my second six month dose of Eligard and it should be done in May of this year. In November 2023, I had my first PSA test since SRT and it was .008 ng/mL. I just got
toyman79912
in
Advanced Prostate Cancer
8 months ago
Mitral valve replacement
my mother in law had open heart surgery 4 days ago, all went well heart is working well just a complication with kidneys and was put on dialysis but the kidneys slowly started to wake up, she hasn’t woke up from being sedated 4 days ago yet, she is unresponsive too, doctors have said about doing brain
my mother in law had open heart surgery 4 days ago, all went well heart is working well just a complication with kidneys and was put on dialysis but the kidneys slowly started to wake up, she hasn’t woke up from being sedated 4 days ago yet, she is unresponsive too, doctors have said about doing brain
MYBOYS1234
in
ICUsteps
20 days ago
PSA holding low after all!!
As I complained a couple of months ago that PSA could be increasing, today the PSA moved a bit down from 0.03 3 months ago to 0.01 today :-), so I needed to write a few words here about my feelings. With a warm-hearted attitude, somehow enthusiastic but foolish too, as these things are never static,
As I complained a couple of months ago that PSA could be increasing, today the PSA moved a bit down from 0.03 3 months ago to 0.01 today :-), so I needed to write a few words here about my feelings. With a warm-hearted attitude, somehow enthusiastic but foolish too, as these things are never static,
Paulo1968
in
Advanced Prostate Cancer
8 months ago
My Oligometastatic PCa Journey Continues...coming up on year 9!
It's been a while since I've posted. But wanted to offer a note of
encouragement
for those here that have
oligometastatic prostate cancer
. I was diagnosed in 2015 (227 PSA, Gleason 8, 1 MET in the spine) and still going strong. After years of
hormone therapy
, 6 rounds of
chemo
It's been a while since I've posted. But wanted to offer a note of
encouragement
for those here that have
oligometastatic prostate cancer
. I was diagnosed in 2015 (227 PSA, Gleason 8, 1 MET in the spine) and still going strong. After years of
hormone therapy
, 6 rounds of
chemo
JamesAtlanta
in
Advanced Prostate Cancer
8 months ago
Dr. Jones' Knowledge
Several times a week I want to share some of Dr. Jones' statements regarding PBC These are all taken from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis. I [/i][/u]think it's important to share some of the basics of this complicated disease. If you have any questions
Several times a week I want to share some of Dr. Jones' statements regarding PBC These are all taken from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis. I [/i][/u]think it's important to share some of the basics of this complicated disease. If you have any questions
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
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