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Experiences with
Pelizaeus–Merzbacher disease
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Communities
69 public communities
Kidney Disease
11,182 members
Welcome to the National Kidney Foundation's Community for people affected by Chronic Kidney Disease (CKD)! In this community you will find a safe and supportive space where you can share your experiences, ask questions, and get answers that are accurate and up to date. Fueled by passion and urgency, NKF is a lifeline for all people affected by kidney disease. As pioneers of scientific research and innovation, NKF focuses on the whole patient through the lens of kidney health. Relentless in our work, we enhance lives through action, education and accelerating change.
ABDA
551 members
American Behcet's Disease Association - we aim to support patients with Behcet's disease and their families.
Children's Liver Disease Foundation
2,003 members
CLDF is a UK based national charity taking action against the effects of childhood liver disease, providing information, emotional support, research funds and a voice for all affected.
Living with Lyme Disease UK
233 members
Welcome to LWLD community! :) Here you can share your experiences about living with Lyme Disease in a non-judgemental friendly environment. The philosophy of the group to treat one another with respect & understanding focusing on bringing the Lyme community together to support each other. We aim to post relevant information or signpost members to other organisations that may give the appropriate advice. We are passionate about raising awareness & share relevant campaigns to help spread the word. Please can we kindly ask you adhere to the guidelines to make the community a supportive place for one & all. Any questions pleases contact our Volunteer Admin or alternatively email lwlymedisease@gmail.com. IMPORTANT: Living with Lyme Disease UK is NOT associated with any UK charities for Lyme disease and are an independent group for those living with Lyme Disease.
Paget’s Support
299 members
This is a safe online community for anyone affected by Paget's disease to share advice, find support and meet others who truly understand. Whether you're newly diagnosed, been living with Paget's disease for years or caring for someone affected, this is the community for you. Why not introduce yourself today: https://healthunlocked.com/pagets-support
Kidney Health New Zealand
427 members
We support patients and their families living in New Zealand who have been impacted by kidney disease.
Partners for Behcet's
523 members
We are a community dedicated to supporting those with Behcet’s Syndrome, which is a rare disease that sees the blood vessels become inflamed.
Crohn's and Colitis Support
5,292 members
We are a peer support community for people living with Crohn's disease and Ulcerative colitis. Here we share our experiences, ask questions and support each other!
Cure Parkinson's
25,550 members
This Cure Parkinson's HealthUnlocked community aims to seek the opinions of those with Parkinson's to help shape research and best clinical practice. Cure Parkinson's has one bold aim: to cure Parkinson's disease. We fund innovative projects and inspirational scientists with the aim of building momentum towards a cure. We improve communication and promote collaboration between researchers. We were founded by patients and involve patients in our work. We are working with the European Parkinson's Disease Association (EPDA) within HealthUnlocked to support members with topical information.
Parents of Children with Kidney Disease
906 members
Welcome to the National Kidney Foundation's Community for Parents of Children with Kidney Disease! In this community you will find a safe and supportive space where you can share your experiences, ask questions, and get answers that are accurate and up to date. Fueled by passion and urgency, NKF is a lifeline for all people affected by kidney disease. As pioneers of scientific research and innovation, NKF focuses on the whole patient through the lens of kidney health. Relentless in our work, we enhance lives through action, education and accelerating change.
Graves Disease Support
1,816 members
We are a peer support community for people living with Graves Disease. Here we share our experiences, ask questions and support each other!
Gluten Free Guerrillas
10,827 members
Gluten Free Guerrillas is a group dedicated to supporting people with Coeliac Disease or Gluten sensitivities. Share your experiences about diagnosis and living gluten free to help others. Follow us on Twitter and Instagram @gfguerrillas for recipes, foodie news & more. Enjoy the site! Share, learn, connect. GFGs
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