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Michael Quaglia- 15 yrs with PD, Rock Steady Boxing, Radio Parkies & 2 Mikes Podcast
I had the pleasure of interviewing Michael yesterday and found him extremely inspiring. Diagnosed in 2006, Michael is dedicated to helping others manage Parkinson’s. He has done this in co-founding an affiliate of Rock Steady Boxing in 2014, working with Radioparkies since 2016 and setting up the “2
I had the pleasure of interviewing Michael yesterday and found him extremely inspiring. Diagnosed in 2006, Michael is dedicated to helping others manage Parkinson’s. He has done this in co-founding an affiliate of Rock Steady Boxing in 2014, working with Radioparkies since 2016 and setting up the “2
Michel0220
in
Cure Parkinson's
3 years ago
Parkinson disease risks: correctly identifying environmental factors for a chronic disease
I can only access the abstract, but it looks significant. Parkinson disease risks: correctly identifying environmental factors for a chronic disease Karl Kieburtz and E. Ray Dorsey Published June 1, 2021 - More info Parkinson disease (PD) is now the world’s fastest growing brain disease; however, the
I can only access the abstract, but it looks significant. Parkinson disease risks: correctly identifying environmental factors for a chronic disease Karl Kieburtz and E. Ray Dorsey Published June 1, 2021 - More info Parkinson disease (PD) is now the world’s fastest growing brain disease; however, the
pvw2
in
Cure Parkinson's
3 years ago
Could an Old Drug Be a New Alzheimer’s Treatment?
Would it work on Parkinson's as well? May be a possibility? https://www.aarp.org/health/dementia/info-2021/pill-may-prevent-alzheimers.html An analysis showed that adults 65 and older who took bumetanide were 35 to 75 percent less likely to be diagnosed with Alzheimer’s disease than those who took another
Would it work on Parkinson's as well? May be a possibility? https://www.aarp.org/health/dementia/info-2021/pill-may-prevent-alzheimers.html An analysis showed that adults 65 and older who took bumetanide were 35 to 75 percent less likely to be diagnosed with Alzheimer’s disease than those who took another
JayPwP
in
Cure Parkinson's
3 years ago
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Phase 1b - The first Parkinson’s patient has been dosed in a Phase 1 clinical trial that is testing IkT-148009
The first Parkinson’s patient has been dosed in a Phase 1 clinical trial that is testing IkT-148009, an investigational oral therapy being developed by Inhibikase Therapeutics to slow or stop disease progression. “We are pleased to begin dosing patients in our
Phase 1b
study,” Milton Werner,
The first Parkinson’s patient has been dosed in a Phase 1 clinical trial that is testing IkT-148009, an investigational oral therapy being developed by Inhibikase Therapeutics to slow or stop disease progression. “We are pleased to begin dosing patients in our
Phase 1b
study,” Milton Werner,
Hidden
in
Cure Parkinson's
3 years ago
Lactiplantibacillus (Lactobacillus) plantarum PS128
Before I share briefly my experience with PS128 I want to emphasize that this probiotic may not have the same effect on everyone, as we know we are all different. For four years I have been looking for something to help me with my symptoms. Many of the supplements I use have not given any specific relief
Before I share briefly my experience with PS128 I want to emphasize that this probiotic may not have the same effect on everyone, as we know we are all different. For four years I have been looking for something to help me with my symptoms. Many of the supplements I use have not given any specific relief
delboy381
in
Cure Parkinson's
3 years ago
FANTASTIC interview with Dr. Catherine Hamilton, co-creator of the Coronet Duo Red Hat.
Propertytyphoon made a comment on an old post of mine regarding the coronet red hat. A PD support group (No Silver Bullet) in which Propertytyphoon is involved conducted a one hour interview with Dr. Catherine Hamilton, an Australian doctor and co-owner of Wellred, which sells the coronet. Like Dr.
Propertytyphoon made a comment on an old post of mine regarding the coronet red hat. A PD support group (No Silver Bullet) in which Propertytyphoon is involved conducted a one hour interview with Dr. Catherine Hamilton, an Australian doctor and co-owner of Wellred, which sells the coronet. Like Dr.
jimcaster
in
Cure Parkinson's
3 years ago
New to Parkinson's? Or not new, but tired of taking supplement that don't improve Parkinson's cardinal symptoms of bradykinesia and tremor?
Anyone looking for PD advice from a real doctor with decades of experience (a real expert from the Mayo Clinic!)? You can start here with the presentation by Dr. Ahlskog:
Debunking Ten Myths that May Sabotage Treatment of Parkinson’s Disease
https://www.parkinsonsmi.org/docman/general/219-debunking-pd-myths-and-the-role-of-exercise-eric-ahlskog-md-phd-for-web
Anyone looking for PD advice from a real doctor with decades of experience (a real expert from the Mayo Clinic!)? You can start here with the presentation by Dr. Ahlskog:
Debunking Ten Myths that May Sabotage Treatment of Parkinson’s Disease
https://www.parkinsonsmi.org/docman/general/219-debunking-pd-myths-and-the-role-of-exercise-eric-ahlskog-md-phd-for-web
Hidden
in
Cure Parkinson's
3 years ago
Phyllocontin Withdrawal. / Uniphyllin Continus
Good afternoon all. This is my first post so apologies if it is inappropriately placed. Does anyone know ? Why Phyllocontin was withdrawn ? I have only heard 'no longer commercially available' but would like to know more. Whether there is any research available on the impact of the withdrawal of Phyllocontin
Good afternoon all. This is my first post so apologies if it is inappropriately placed. Does anyone know ? Why Phyllocontin was withdrawn ? I have only heard 'no longer commercially available' but would like to know more. Whether there is any research available on the impact of the withdrawal of Phyllocontin
montgomery72
in
Lung Conditions Community Forum
3 years ago
Magnesium supplements - what brands to try, what to avoid!
Hi All, I've been researching magnesium supplements as I'd like to try one to help my sleep, muscle and general aches etc., but following Wentz advice and what I've read online, thinking a combined /complex would be the best way to go above an oxide. I don't want a high citrate tab considering my '
Hi All, I've been researching magnesium supplements as I'd like to try one to help my sleep, muscle and general aches etc., but following Wentz advice and what I've read online, thinking a combined /complex would be the best way to go above an oxide. I don't want a high citrate tab considering my '
Ebx_design
in
Thyroid UK
3 years ago
C/L question
I have read many times that C/L is the gold standard for PD. I have also read many times on this forum, others remarking that they feel wonderful, normal again and that they have their life back after taking it. I want to feel normal and have my life back too ☹️ So, I bit the bullet and started C/L immediate
I have read many times that C/L is the gold standard for PD. I have also read many times on this forum, others remarking that they feel wonderful, normal again and that they have their life back after taking it. I want to feel normal and have my life back too ☹️ So, I bit the bullet and started C/L immediate
MomoP
in
Cure Parkinson's
3 years ago
Improvements in clinical signs of Parkinson’s disease using photobiomodulation (PBM)
Interesting piece of research dated July 2021 by Ann Liebert et al. Small sample of 12 patients only but encouraging conclusions: "PBM was shown to be a safe and potentially effective treatment for a range of clinical signs and symptoms of PD. Improvements were maintained for as long as treatment continued
Interesting piece of research dated July 2021 by Ann Liebert et al. Small sample of 12 patients only but encouraging conclusions: "PBM was shown to be a safe and potentially effective treatment for a range of clinical signs and symptoms of PD. Improvements were maintained for as long as treatment continued
Michel0220
in
Cure Parkinson's
3 years ago
Extended Dosing Improves Safety of IkT-148009, Animal Studies Show (blocks enzyme that plays a role in Parkinson’s progression)
The safety profile of IkT-148009, an investigational oral medication for Parkinson’s disease, improved the longer the drug was dosed, demonstrating target selectivity, according to interim three-month animal data. The ongoing toxicology studies, conducted by the therapy’s developer, Inhibikase Therapeutics
The safety profile of IkT-148009, an investigational oral medication for Parkinson’s disease, improved the longer the drug was dosed, demonstrating target selectivity, according to interim three-month animal data. The ongoing toxicology studies, conducted by the therapy’s developer, Inhibikase Therapeutics
Hidden
in
Cure Parkinson's
3 years ago
Iodine deficiency and Parkinson's disease
"While, as yet, the evidence is not conclusive, it suggests that early iodine deficiency may cause abnormalities in the dopaminergic system and so increase susceptibility to some dopamine-related diseases, such as
Parkinsonism
, later in life.
"While, as yet, the evidence is not conclusive, it suggests that early iodine deficiency may cause abnormalities in the dopaminergic system and so increase susceptibility to some dopamine-related diseases, such as
Parkinsonism
, later in life.
Kia17
in
Cure Parkinson's
3 years ago
Is ELDEPRYL the reason for my PD not getting vorse the last 15 years?
To be among those who were so unlucky to withdraw the card Parkinson's disease, I am so blessed to belong to a very rare group of PD patients where the development of the disease is almost completely stagnant. This unique and very rare development where PD does not get worse as the years go by (About
To be among those who were so unlucky to withdraw the card Parkinson's disease, I am so blessed to belong to a very rare group of PD patients where the development of the disease is almost completely stagnant. This unique and very rare development where PD does not get worse as the years go by (About
snorre
in
Cure Parkinson's
3 years ago
Idebenone-Activating Autophagic Degradation of α-Synuclein via Inhibition of AKT-mTOR Pathway in a SH-SY5Y-A53T Model of Parkinson's Disease
Idebenone-Activating Autophagic Degradation of α-Synuclein via Inhibition of AKT-mTOR Pathway in a SH-SY5Y-A53T Model of Parkinson's Disease: A Network Pharmacological Approach Sept 2021 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8463184/ Conclusion In summary, we applied network pharmacology to identify
Idebenone-Activating Autophagic Degradation of α-Synuclein via Inhibition of AKT-mTOR Pathway in a SH-SY5Y-A53T Model of Parkinson's Disease: A Network Pharmacological Approach Sept 2021 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8463184/ Conclusion In summary, we applied network pharmacology to identify
Bolt_Upright
in
Cure Parkinson's
3 years ago
Overview of the Ataxias
Action tremor, dysexecutive syndrome, neuropathy,
Parkinsonism
: Fragile-X tremor ataxia syndrome (FXTAS).
Action tremor, dysexecutive syndrome, neuropathy,
Parkinsonism
: Fragile-X tremor ataxia syndrome (FXTAS).
wobblybee
in
Ataxia UK
3 years ago
Rivastigmine
Husband just diagnosed with Parkinson’s dementia starting on Rivastigmine has anyone seen an improvement in their PD symptoms as well as dementia symptoms ?
Husband just diagnosed with Parkinson’s dementia starting on Rivastigmine has anyone seen an improvement in their PD symptoms as well as dementia symptoms ?
ruff1
in
Cure Parkinson's
3 years ago
What is the Best Supplement to Alleviate Trembling?
I feel like my back is against the wall when it comes to trembling. My neurologist is skeptical about supplements, so it's like I'm being forced to take powerful medications which can have serious short- and long-term side effects, drug interactions, withdrawal effects, etc.. I'd really like
I feel like my back is against the wall when it comes to trembling. My neurologist is skeptical about supplements, so it's like I'm being forced to take powerful medications which can have serious short- and long-term side effects, drug interactions, withdrawal effects, etc.. I'd really like
Alock2020
in
Cure Parkinson's
3 years ago
Neuroprotective effect of rapamycin against Parkinson's disease in mice - 2018 https://pubmed.ncbi.nlm.nih.gov/30693687/
Conclusions: Rapamycin inhibits the activation of mTOR pathway, which contributes to protect against the loss of dopaminergic neurons and provide behavioral improvements in mice with Parkinson's disease. These results are partially related to the ability of rapamycin in inducing autophagy and reducing
Conclusions: Rapamycin inhibits the activation of mTOR pathway, which contributes to protect against the loss of dopaminergic neurons and provide behavioral improvements in mice with Parkinson's disease. These results are partially related to the ability of rapamycin in inducing autophagy and reducing
Bolt_Upright
in
Cure Parkinson's
3 years ago
Gut microbiota and metabolites of α-synuclein transgenic monkey models with early stage of Parkinson’s disease - Sept 2021
https://www.nature.com/articles/s41522-021-00242-3 Did I understand this report? No. It is open access, so you get to read it all. There's lots of interesting stuff in the "Discussion" section. I just read through it and hoped something useful would get stuck in my head. I think a few things did:
https://www.nature.com/articles/s41522-021-00242-3 Did I understand this report? No. It is open access, so you get to read it all. There's lots of interesting stuff in the "Discussion" section. I just read through it and hoped something useful would get stuck in my head. I think a few things did:
Bolt_Upright
in
Cure Parkinson's
3 years ago
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